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PBC Foundation

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All posts for July 2013

Concerns about liver biopsy

I seen my consultant recently, and even though my dosage of Urso had been increased to just about maximum of 1500mg per day, it seems my bloods have not...

I seen my consultant recently, and even though my dosage of Urso had been increa...

madmags

•11 years ago

8 Replies

sore spots

hi im starting to get really sore spots on knees heels and hands gets really hot and painfull and so sore to touch any 1 else have these symptoms thanks Sadie...

hi im starting to get really sore spots on knees heels and hands gets really hot...

sadie21

•11 years ago

5 Replies

I'm curious about your appetite. Does anyone experience having 'no appetite' and if so, what do you do to encourage food intake?

For the past two years or so, I've had a very low appetite and don't always eat meals, as I should. I've heard that with PBC it's better to eat small meals...

For the past two years or so, I've had a very low appetite and don't always eat ...

JennerLayne

•11 years ago

8 Replies

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Here's an article about living with a chronic illness. It explains a lot of the emotions I've experienced from my recent diagnosis.

http://www.alpineguild.com/COPING%20WITH%20CHRONIC%20ILLNESS.html I saw this on the Yahoo Groups PBC forum and think it is worth a repost.

http://www.alpineguild.com/COPING%20WITH%20CHRONIC%20ILLNESS.html I saw this on...

JennerLayne

•11 years ago

3 Replies

My pbc has progressed to cirrhosis and signs of jaundice what does this mean long term?

Jaed79

•11 years ago

4 Replies

My sister went for a blood test and came back with positive AMA of 80. All other tests were normal.

She went to a gastro and he said she doesn't have PBC but could develop it as she carries the gene for it. I thought a positive AMA was a diagnosis of PBC....

She went to a gastro and he said she doesn't have PBC but could develop it as sh...

skippydownunder

•11 years ago

10 Replies

PBC Itching is Taking Over my Mom's Life!

I'm at a loss. My mother was told she had PBC about 3 years ago following months of inexplicable full body itching. From my research, it is unclear to how many...

I'm at a loss. My mother was told she had PBC about 3 years ago following months...

JayyGee09

•11 years ago

30 Replies

Liver Biopsy at Central Middx Hospital

I have just had a biopsy at Central Middx Hospital. I was dreading it as 12 years ago the experience was very unpleasant. This time was completely different,...

I have just had a biopsy at Central Middx Hospital. I was dreading it as 12 year...

dianemle

•11 years ago

3 Replies

Anybody else have painful fingers? Mine hurt for just 10minutes after waking up!

berg944

•11 years ago

4 Replies

PUNCTAL PLUGS

Has anyone had punctal plugs inserted for dry eyes, how did you find them.

Hidden

•11 years ago

1 Reply

Blood Test

Just wanted to know if anyone as had or heard of a L- Fetoprotein Blood test.I think it may be a new blood test to have to detect early stages of anything...

Just wanted to know if anyone as had or heard of a L- Fetoprotein Blood test.I ...

cavi

•11 years ago

2 Replies

I Won My ESA Tribunal After 13 Months Of Fighting!

Hi All - Today I attended my tribunal over my ESA claim, I scored 0 points on my medical assessment as my illness is an invisible one (scitzophrenia) and so...

Hi All - Today I attended my tribunal over my ESA claim, I scored 0 points on my...

TommyBlue

•11 years ago

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another newbie here - needing help

I was just told I have PBC - I have Skleroderma and some weird hep B with no viral load - but always shows postive for the igm looking like I just got over it...

I was just told I have PBC - I have Skleroderma and some weird hep B with no vir...

privatebillcollector

•11 years ago

1 Reply

Desperate Newby needing advice

Please can anyone help? I recently tested AMA and M2 positive and my GP said it was PBC. I went to see a consultant at the hospital who said I haven't got PBC,...

Please can anyone help? I recently tested AMA and M2 positive and my GP said it ...

worriednan

•11 years ago

5 Replies

Anyone know what the difference

Is between PBC and PSC? My daughter has it, I carried the gene with my UC. And are any posters in the ~UK please. http://www.youtube.com/watch?v=7uIB5qBqksQ

Is between PBC and PSC? My daughter has it, I carried the gene with my UC. And...

Is4bell4

•11 years ago

3 Replies

dear lord now what!!!

some of you kindly answered me recently about bleeding gums.ive tried gentle toothbrushes mouth washes etc to no avail.they still bleed when brushing also now...

some of you kindly answered me recently about bleeding gums.ive tried gentle too...

cazz22

•11 years ago

5 Replies

confirmed pbc????

Hi i phoned the pbc foundation and ask about information to be sent out to be to understand pbc and got told i could only have a booklet at the mo as i haven't...

Hi i phoned the pbc foundation and ask about information to be sent out to be to...

melbourne

•11 years ago

3 Replies

Gallbladder

I am waiting to have my gallbladder removed as I have polyps, I have to admit I am scared. Can anyone tell me anything about how it is just before and after...

I am waiting to have my gallbladder removed as I have polyps, I have to admit I ...

Hidden

•11 years ago

4 Replies

sorry another Question

They say if u have AMA is found in 95% of people which pbc, does That mean that 5 % can have the antibody and not have pbc??? so many Questions and a long wait...

They say if u have AMA is found in 95% of people which pbc, does That mean that ...

melbourne

•11 years ago

2 Replies

information is need if anyone can help. thank u.

Hi i had a AMA positive when i went to see a immunologist about something else, so they ordered my doctor to do another test and it has come back positive...

Hi i had a AMA positive when i went to see a immunologist about something else, ...

melbourne

•11 years ago

4 Replies

is anyone a bit more sensitive to the sun. I seem to go very red and get prickly heat now

flora

•11 years ago

3 Replies

How do I get to be tested to be a living donor for my partner?

rollerteam

•11 years ago

4 Replies

Feeling alone and needing help

Hi everyone, I am the partner of someone who is suffering from PBC. He was diagnosed three and half years ago (age 41) and was told that he was at stage 3 of...

Hi everyone, I am the partner of someone who is suffering from PBC. He was diag...

rollerteam

•11 years ago

17 Replies

Does stress affect pbc?

My question is because my husband is currently in intensive care after serious urine infection causing kidney injury and pneumonia and wonder if the stress...

My question is because my husband is currently in intensive care after serious u...

Jackie07123

•11 years ago

13 Replies

how long can u live or have have had pbc for???

Sorry trying to get as much information on pbs while my second test comes in, My Question is 1.)how long have you had it for? 2.) did u go to the doctors...

Sorry trying to get as much information on pbs while my second test comes in, My...

melbourne

•11 years ago

52 Replies

liver test normal

Hi what does it mean when my liver test come back normal??? am i in any stages??? i can't see a doctor till next week, and have no clue what is going on.. i am...

Hi what does it mean when my liver test come back normal??? am i in any stages??...

melbourne

•11 years ago

8 Replies

can someone help

i have a positive ama and a positive m2 not sure what a m2 is...... i am 30 and not sure whats going on as they want to run the test again... can there be a...

i have a positive ama and a positive m2 not sure what a m2 is...... i am 30 and ...

melbourne

•11 years ago

3 Replies

some advice plz

have been prescribed urso seem to be doing ok on it just lately been feeling really tired exhausted horrible feeling not to good at all is it the urso or is it...

have been prescribed urso seem to be doing ok on it just lately been feeling rea...

sadie21

•11 years ago

6 Replies

A big thank you x

I would just like to say thank you to everyone who replies back to my blogs uz always give great responses and youz make me feel as im not alone with pbc so...

I would just like to say thank you to everyone who replies back to my blogs uz ...

sadie21

•11 years ago

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Excessive sweating

Do any other Pbc'ers suffer from this, particularly after even mild activities? I sweat so much that if Im not careful, become quite dehydrated, and it has...

Do any other Pbc'ers suffer from this, particularly after even mild activities? ...

mardot

•11 years ago

18 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for July 2013

Concerns about liver biopsy

sore spots

I'm curious about your appetite. Does anyone experience having 'no appetite' and if so, what do you do to encourage food intake?

Here's an article about living with a chronic illness. It explains a lot of the emotions I've experienced from my recent diagnosis.

My pbc has progressed to cirrhosis and signs of jaundice what does this mean long term?

My sister went for a blood test and came back with positive AMA of 80. All other tests were normal.

PBC Itching is Taking Over my Mom's Life!

Liver Biopsy at Central Middx Hospital

Anybody else have painful fingers? Mine hurt for just 10minutes after waking up!

PUNCTAL PLUGS

Blood Test

I Won My ESA Tribunal After 13 Months Of Fighting!

another newbie here - needing help

Desperate Newby needing advice

Anyone know what the difference

dear lord now what!!!

confirmed pbc????

Gallbladder

sorry another Question

information is need if anyone can help. thank u.

is anyone a bit more sensitive to the sun. I seem to go very red and get prickly heat now

How do I get to be tested to be a living donor for my partner?

Feeling alone and needing help

Does stress affect pbc?

how long can u live or have have had pbc for???

liver test normal

can someone help

some advice plz

A big thank you x

Excessive sweating

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