Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,484 members•8,374 posts

All posts for March 2021

Side effects of ursofalk

What are the common side effects you have to this drug?

Gwelos

•4 years ago

4 Replies

PBC due to Covid-19?

Hi, I have recently gotten an AMA M2 positive blood test result, as part of panel testing for liver values. I initially got a result of raised ALAT value (103...

Hi, I have recently gotten an AMA M2 positive blood test result, as part of pane...

Hidden

•4 years ago

15 Replies

Gall bladder removal

I saw a consultant today who said that I needed my gall bladder removed, however I was at greater risk because of having pbc. He explained that there is a...

I saw a consultant today who said that I needed my gall bladder removed, however...

nosroblig

•4 years ago

10 Replies

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I’ve just started taking Urso

Hi there, I’ve very recently just been diagnosed with PBC, and I finally got my prescription for Urso. So I’ve been on it for 2 days now and to be honest I...

Hi there, I’ve very recently just been diagnosed with PBC, and I finally got my ...

Darcy2608

•4 years ago

32 Replies

Finally got a reliable answer

Hello my fellow PBC sufferers, I hope that we are all feeling as well as possible, both mentally and physically 🙏🏻 I did say that I would return when I...

Hello my fellow PBC sufferers, I hope that we are all feeling as well as possib...

Sallam

•4 years ago

5 Replies

Is it possible for Ursodiol responders to stop responding to the medication in the future?

That's my biggest worry. I am a responder now but I worry about the future.

mmihhih

•4 years ago

39 Replies

Diet

Can anyone recommend food/ or what to eliminate to help with Fatigue. I know some have mentioned reduce carbs. I'm considering tring it but I crave carbs so I...

Can anyone recommend food/ or what to eliminate to help with Fatigue. I know so...

Nellies47

•4 years ago

7 Replies

Locations

Hi everyone. I’ve been wondering if anyone here is in Texas.

gwillistexas

•4 years ago

11 Replies

Ketosis

Hi I have started doing the Fast800 eating plan, but as it takes you into ketones just wanted to check this is ok withPBC? Can anyone help? Thank you

Hi I have started doing the Fast800 eating plan, but as it takes you into ketone...

SueRead

•4 years ago

3 Replies

PBC monitoring.

I got diagnosed last spring, during lockdown. Since then I've only had one hospital appointment, which was a phone call. I've had lfts only done twice by my...

I got diagnosed last spring, during lockdown. Since then I've only had one hospi...

Kakey

•4 years ago

34 Replies

PBC and Sleep

I am averaging 2 hours a night deep sleep, the remainder snoozing. Any suggestions on getting more sleep. I go to bed exhausted but still average the 2 hours.

I am averaging 2 hours a night deep sleep, the remainder snoozing. Any suggestio...

Yseift

•4 years ago

8 Replies

Medication

I have PBC which has progressed to Cirrhosis. I also have Fibromyalgia along with RA Osteoporosis among lots of other Auto Imm diagnosis. Among my Meds pI take...

I have PBC which has progressed to Cirrhosis. I also have Fibromyalgia along wit...

lorac

•4 years ago

3 Replies

Restless legs

Hi. Does anyone else suffer with restless legs. I have it alot and I haven't found anything to help. Has anyone any advice. Thanks Nelly

Hi. Does anyone else suffer with restless legs. I have it alot and I haven't fou...

Nellies47

•4 years ago

8 Replies

Ache on right side?

Hi, I was diagnosed with Pbc 11 months ago and I’m on Urso,but keep getting an ache and bloated feeling on my right side, about level with belly button....

Hi, I was diagnosed with Pbc 11 months ago and I’m on Urso,but keep getting...

2009gardener

•4 years ago

2 Replies

Ursodeoxycholic and Bizofibrate

Good morning all, I actually got a response from my specialist regarding my original question, which was ‘ Can I take/ mix these two medications together in...

Good morning all, I actually got a response from my specialist regarding my ori...

Sallam

•4 years ago

3 Replies

ALP

Hi, I’ve just had my latest blood results back and my ALP has come back as 164, this is up 20 on the last result. I was diagnosed with PBC in 2016 and have...

Hi, I’ve just had my latest blood results back and my ALP has come back as 164, ...

Jules-S

•4 years ago

21 Replies

Shoulder pain now memory!!

recently diagnosed with PBC , 55 male, led a rough life broke a lot of bones, the shoulder pain I go thru daily cannot be explained!! Wake up at 4:00 , can...

recently diagnosed with PBC , 55 male, led a rough life broke a lot of bones, t...

Camsarmshurt

•4 years ago

2 Replies

Weight struggles

Hi all. I am struggling with my weight which I think is related to my PBC & Ursodiol. I have been walking, on average 3 miles/day, 6 days a week. I have been...

Hi all. I am struggling with my weight which I think is related to my PBC & Urso...

astalpbili10

•4 years ago

5 Replies

PBC & HRT

PBC & HRT I was diagnosed with PBC in 2019 and have recently found out I’m going through early menopause (I’m 29). Has anyone else gone through this and are...

PBC & HRT I was diagnosed with PBC in 2019 and have recently found out I’m goin...

Cookie712

•4 years ago

5 Replies

Cost of Urso

Hello American PBCers! I went to the pharmacy to get my first prescription of Urso and the copay was $600.00 for a 3 month supply!! Has anyone found a less...

Hello American PBCers! I went to the pharmacy to get my first prescription of Ur...

sjt58

•4 years ago

23 Replies

Does hair loss slow down once you adjust to Urso?

I started Urso a two months ago and my hair is falling out. I know others have had problems with hair loss too. Does the hair loss slow down once your body...

I started Urso a two months ago and my hair is falling out. I know others have h...

sjt58

•4 years ago

9 Replies

Has anyone found fibrates affect kidney function

Sandy220

•4 years ago

6 Replies

Fatigue

Hi. I'm really struggling with Fatigue. I'm beginning to dread getting up in the morning because I know I'm going to find it difficult to do the essentials,...

Hi. I'm really struggling with Fatigue. I'm beginning to dread getting up in th...

Nellies47

•4 years ago

12 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for March 2021

Side effects of ursofalk

PBC due to Covid-19?

Gall bladder removal

I’ve just started taking Urso

Finally got a reliable answer

Is it possible for Ursodiol responders to stop responding to the medication in the future?

Diet

Locations

Ketosis

PBC monitoring.

PBC and Sleep

Medication

Restless legs

Ache on right side?

Ursodeoxycholic and Bizofibrate

ALP

Shoulder pain now memory!!

Weight struggles

PBC & HRT

Cost of Urso

Does hair loss slow down once you adjust to Urso?

Has anyone found fibrates affect kidney function

Fatigue

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