Posts - PBC Foundation | HealthUnlocked

PBC Foundation

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All posts for April 2013

Positive AMA, normal LFT - can fatigue be pbc related

12 years ago after abnormal LFT, was tested and confirmed positive for AMA. After a clear ultrasound and the return to normal LFT, was informed by consultant...

12 years ago after abnormal LFT, was tested and confirmed positive for AMA. Afte...

Jebweb

•11 years ago

18 Replies

Told I have pbc/aih overlap syndrome today!

Hi everyone, I'm very new to this! Although I have been reading some of your posts over the last few months to get advice! I was diagnosed with pbc 2 years ago...

Hi everyone, I'm very new to this! Although I have been reading some of your pos...

Ktb32

•11 years ago

7 Replies

Does anyone sufer with a swollen face when they get up in the morning?

I have recently been waking up with a swollen face, I am on 1000mg of Uroso a day, my GP has told me to stop taking it for a week to see if it makes any...

I have recently been waking up with a swollen face, I am on 1000mg of Uroso a ...

sooo

•11 years ago

5 Replies

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PBC -it's all so confusing

Evening all, so story so far, consultant advises I have pbc, had the scan a raft of blood tests. Just had liver biopsy last week and started on urso 2 x. 300m...

Evening all, so story so far, consultant advises I have pbc, had the scan a raft...

jewelsspeak

•11 years ago

1 Reply

Hi, has anyone been involved in a drug trial? My consultant is keen for me to participate. Any info would be appreciated. Thanks Michelle

MickeyMouse

•11 years ago

7 Replies

support group help pls ????

hi, i won my appeal wks ago and was put in the support group, now they're asking for more sick notes ????? is this right ?????

hi, i won my appeal wks ago and was put in the support group, now they're asking...

misswelsh1

•11 years ago

2 Replies

ESA RE-APPLYING

When ESA WRAG has ceased, is it true that after six months of the end date you can reapply for ESA again??

When ESA WRAG has ceased, is it true that after six months of the end date you c...

bettyboop68

•11 years ago

2 Replies

So flipping miserable cant even spell depression, no hope for this girl?

ekkk

Lisacj

•11 years ago

4 Replies

Cant shake this deperssion!

How do I get over this, I get so little help from the family, they really have no clue of this illness, friends have all but gone, because i cant join in any...

How do I get over this, I get so little help from the family, they really have n...

Lisacj

•11 years ago

8 Replies

Chest infections

Hi everyone, i have PBC and had it for 4 years, i am not to bad, get a few aches and pains some times, bu since christmas i have had 2 bad chest infections,...

Hi everyone, i have PBC and had it for 4 years, i am not to bad, get a few aches...

0137kaz45

•11 years ago

11 Replies

Biopsy

Good morning after five anxious weeks waiting for a biopsy I am finally going in today! Get today over with another step done on the pbc journey!

Good morning after five anxious weeks waiting for a biopsy I am finally going in...

jewelsspeak

•11 years ago

12 Replies

ESA Appeal Refused, Can I Apply Again?

I was put onto ESA WRAG in november 2011 and this finished in Novemeber 2012. I suffer with severe agoraphobia, depression, social phobia and do not leave the...

I was put onto ESA WRAG in november 2011 and this finished in Novemeber 2012. I ...

bettyboop68

•11 years ago

Be the first to reply

diagnosed with PBC today 23/04/13

Hi Everyone, I would just like to say that after being told by my doctor today I was very down. However on the information he gave me was the details of the...

Hi Everyone, I would just like to say that after being told by my doctor today ...

astondb9

•11 years ago

10 Replies

how long does it take to receive the backdated monies due to you after winning your tribunal

I was given 0 points at my ATOS ,medical, after 3 years of handing in doctors sick notes. I attended my Tribunal last week and was awarded 24!!! points with a...

I was given 0 points at my ATOS ,medical, after 3 years of handing in doctors si...

jaybel28

•11 years ago

3 Replies

Is anyone at the cirrhosis stage of PBC and what have doctors given as life expectancy?

I know everyone is different but I've heard from one extreme to the other such as a person still living after 10 years from initial diagnosis of cirrhosis...

I know everyone is different but I've heard from one extreme to the other such a...

Hidden

•11 years ago

8 Replies

Esa backpay

Hi did any1 win their esa appeal on 20 feb2013 if so have u heard wen ul get ur back dated payment as its now 20 april and havn't erd owt,thanx.

Hi did any1 win their esa appeal on 20 feb2013 if so have u heard wen ul get ur ...

nonails

•11 years ago

1 Reply

hi i suffer with very bad bloating! was hoping to find out if pbc can cause this?????

hi every1, hope ur all well, i have a queastion for you, i have really bad bloating (where i look lke im 7 months pregnant) i am on alot of medication due to a...

hi every1, hope ur all well, i have a queastion for you, i have really bad bloat...

susielou

•11 years ago

5 Replies

Eligibility for scan or biopsy - a fight against the GP

I have negative AMA, abnormal ALTs, high cholesterol, chronic fatigue and itchy rashed skin,and a Mum who died of liver cirrhosis after PBC when she was 56....

I have negative AMA, abnormal ALTs, high cholesterol, chronic fatigue and itchy ...

Glenys

•11 years ago

11 Replies

Anyone suffer from right side chest pain which radiates to neck, shoulder and even sometimes arm and wrist?

Kaywal

•11 years ago

8 Replies

Hello, been diagnosed Jan 2013. Have been given amoxicillin today by dentist I was refered to.

Is it ok to take, didn't think to ask as was more focused on getting to chemist before it shut. Its a 7 day course of 21 500 mg tablets. Thank you.

Is it ok to take, didn't think to ask as was more focused on getting to chemist ...

silver112

•11 years ago

7 Replies

Pyoderma gangrenosum

I recently had a Pyoderma gangrenosum rmoved from my neck, I read somewhere (but can't remember where) that PBC could cause these horrible things. My...

I recently had a Pyoderma gangrenosum rmoved from my neck, I read somewhere (bu...

cthblngr

•11 years ago

1 Reply

I've never had the itch with pbc but this last 2 weeks got itches in all different places all time mostly in bed is it the itch in ears eyes

karenlesley

•11 years ago

3 Replies

PBC or PSC ?

After 9 years of being told I have PBC I visited the consultant today and he says hes not sure that it could be Primary Sclerosing Cholangitis, Now lined up...

After 9 years of being told I have PBC I visited the consultant today and he say...

jennyspringer

•11 years ago

9 Replies

Day 5 !!!

On my fifth day taking Questran Light,and God help me i am still itching,am i expecting to much to soon,Consultant mentioned Ripithcin don't know if that's how...

On my fifth day taking Questran Light,and God help me i am still itching,am i ex...

cavi

•11 years ago

5 Replies

has anyone tried reflexology or any other alternative therapy's for the itch

petula

•11 years ago

1 Reply

Does anyone with pbc take pregabalin for pain relief

karenlesley

•11 years ago

Be the first to reply

pbc and sore gums

Hi everyone,hope your all ok.I was wondering is it common to get sore gums and ulcers inside the mouth with pbc? I have heard you can wheen taking urso,but i...

Hi everyone,hope your all ok.I was wondering is it common to get sore gums and u...

shakira10

•11 years ago

17 Replies

Anyone know how long esa back pay takes to come through

andyrlufc

•11 years ago

3 Replies

Has anyone seen an Immunologist?

I've learned that PBC is an autoimmune disease and that there may be other autoimmune diseases attached to it that we may have. Has anyone seen an...

I've learned that PBC is an autoimmune disease and that there may be other autoi...

Hidden

•11 years ago

6 Replies

Has anyone been prescribed Cetirizine for the PBC itch AND Fluoxetine because of fatigue and lack of energy?

I was also prescribed Fluoxetine, because I am so tired and have no energy to do anything

I was also prescribed Fluoxetine, because I am so tired and have no energy to do...

AngelaGM

•11 years ago

9 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for April 2013

Positive AMA, normal LFT - can fatigue be pbc related

Told I have pbc/aih overlap syndrome today!

Does anyone sufer with a swollen face when they get up in the morning?

PBC -it's all so confusing

Hi, has anyone been involved in a drug trial? My consultant is keen for me to participate. Any info would be appreciated. Thanks Michelle

support group help pls ????

ESA RE-APPLYING

So flipping miserable cant even spell depression, no hope for this girl?

Cant shake this deperssion!

Chest infections

Biopsy

ESA Appeal Refused, Can I Apply Again?

diagnosed with PBC today 23/04/13

how long does it take to receive the backdated monies due to you after winning your tribunal

Is anyone at the cirrhosis stage of PBC and what have doctors given as life expectancy?

Esa backpay

hi i suffer with very bad bloating! was hoping to find out if pbc can cause this?????

Eligibility for scan or biopsy - a fight against the GP

Anyone suffer from right side chest pain which radiates to neck, shoulder and even sometimes arm and wrist?

Hello, been diagnosed Jan 2013. Have been given amoxicillin today by dentist I was refered to.

Pyoderma gangrenosum

I've never had the itch with pbc but this last 2 weeks got itches in all different places all time mostly in bed is it the itch in ears eyes

PBC or PSC ?

Day 5 !!!

has anyone tried reflexology or any other alternative therapy's for the itch

Does anyone with pbc take pregabalin for pain relief

pbc and sore gums

Anyone know how long esa back pay takes to come through

Has anyone seen an Immunologist?

Has anyone been prescribed Cetirizine for the PBC itch AND Fluoxetine because of fatigue and lack of energy?

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