Posts - PBC Foundation | HealthUnlocked

Hello Everyone 🙂 Just a quick question: I’m still waiting on my appointment for hi & liver, but in the meantime, I’ve also received an invite for cancer...

Administrator•19 hours ago

5 Replies

Additional Checks?

Hello Everyone 🙂 Just a quick question: I’m still waiting on my appointment fo...

https://liverfoundation.org/resource-center/blog/what-i-wish-people-knew-about-pbc/ I wanted to post this again for you to read. Hopefully you can relate to...

•2 days ago

3 Replies

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Thursday's Thoughts

https://liverfoundation.org/resource-center/blog/what-i-wish-people-knew-about-p...

** IMPORTANT UPDATE ** Unfortunately, today's session with Ange has been postponed. The good news is that the session will take place on Thursday 06...

Administrator•2 days ago

1 Reply

Just so you know...

** IMPORTANT UPDATE ** Unfortunately, today's session with Ange has been postpo...

Administrator•2 days ago

hi I have PBC/AIH overlap and see gastro dr in my local hosp in Northumberland. Can I request to move to a specific dr in a different trust (Newcastle) . Not...

Specialist change

hi I have PBC/AIH overlap and see gastro dr in my local hosp in Northumberland...

She-66

•2 days ago

anti-mitochondrial antibody This is the antibody seen in PBC. There is no evidence of it doing any harm to us. in and of itself....

Wednesday's Word

anti-mitochondrial antibody This is the antibody seen in PBC. There is no evid...

There will be no Q&A this coming week. Instead, we have a special self-care workshop with guest host Ange Cameron coming up on Thursday 16 January: Navigating...

Administrator•3 days ago

4 Replies

Taking care of YOU!

There will be no Q&A this coming week. Instead, we have a special self-care wor...

Administrator•4 days ago

Hi Just wondering if anyone stopped their Urso for a week to see if it helped with stomach issues. I've been on it now for 2 years and my numbers are all good...

Stomach issues

Hi Just wondering if anyone stopped their Urso for a week to see if it helped wi...

Casslucy

•4 days ago

17 Replies

Tuesday's Tip

I know we have touched on this subject before ( I think) but it is so important to repeat. Although it is part of the guidelines regarding...

I know we have touched on this subject before ( I think) but it is so important ...

Just try to take 5-10 minutes out of your day just for you... Have you been able to do that lately?

Administrator•4 days ago

9 Replies

It's Monday 'Me'

Just try to take 5-10 minutes out of your day just for you... Have you been ab...

Administrator•5 days ago

Hi everyone, I was recently diagnosed with Primary Biliary Cholangitis (PBC), and my doctor started me on UDCA. Unfortunately, I’m struggling to tolerate it....

Ursodeoxycholic acid intolerance

Hi everyone, I was recently diagnosed with Primary Biliary Cholangitis (PBC), an...

Juhainar

•5 days ago

28 Replies

pemphigoid

my mother passed away from pemphigus because she was hemorrhaging from her mouth and nose etc. dr thought her labs were false positives and kept taking her off...

my mother passed away from pemphigus because she was hemorrhaging from her mouth...

Dvern

•6 days ago

4 Replies

sounds great!

There will be no Q&A this coming week. Instead, we have a special self-care workshop with guest host Ange Cameron coming up on Thursday 16 January: Navigating...

There will be no Q&A this coming week. Instead, we have a special self-care wor...

Administrator•7 days ago

Anyone have any fond sledding memories? currently we have a lot of snow and still coming down..... I can remember sledding down a...

Friday Fun Question

Anyone have any fond sledding memories? currently we have a lot of snow and sti...

Administrator•8 days ago

I’m happy to say I haven’t had to wait long for my rheumatology appointment as I now have one for mid Feb. & according to my NHS alert yesterday,...

It has come 😁

I’m happy to say I haven’t had to wait long for my rheumatology appointment as I...

•8 days ago

Hello friends, I have been following this companies exciting research as they have been developing a nano-particle platform geared at addressing the...

News on PBC clinical trial progress

Hello friends, I have been following this companies exciting research as they h...

EileenUSA

•9 days ago

4 Replies

Thursday's Thoughts

How often have I said - or you've read it - that exercise help with the fatigue. Seems hard to believe but it's true. But.... when you can hardly put one...

How often have I said - or you've read it - that exercise help with the fatigue....

Administrator•9 days ago

Hepatocellular Carcinoma (HCC) This is a cancer of the hepatocytes ( liver cells). This is usually a secondary...

Wednesday's Word

Hepatocellular Carcinoma (HCC) This is a cancer of the hepatocytes ( liver cel...

Administrator•10 days ago

Dr Martin Weltman will be with us tomorrow from Sydney, Australia to answer your #PBC questions. It's an early one for the UK with a start time of 2am, which...

... another opportunity to learn

Dr Martin Weltman will be with us tomorrow from Sydney, Australia to answer your...

Administrator•10 days ago

Chronic fatigue syndrome (CFS) is one condition that cannot co-exist with PBC. CFS is always its own diagnosis, meaning it's reached only after all other...

Tuesday's Tip

Chronic fatigue syndrome (CFS) is one condition that cannot co-exist with PBC. C...

Administrator•11 days ago

Well, yesterday’s visit didn’t go as expected. My GP seems to think my positive ANA & positive AMA relate to 2 separate issues. So I’ve been referred to...

GP update

Well, yesterday’s visit didn’t go as expected. My GP seems to think my positive ...

How many of you have taken time over the holidays just for yourself?

•11 days ago

13 Replies

It's 'Monday Me'!

Administrator•12 days ago

Hello, I joined this group because I’ve been trying to research what it means to have serum anti nuclear antibody’s positive Cytoplasmic, & Mitochondrial...

Ana & ama positive help

Hello, I joined this group because I’ve been trying to research what it means to...

What was the best vacation spot you've been to?

•13 days ago

7 Replies

Friday Fun Question

I know I keep referring to this being a new year - but it is and we often associate that with starting over, making changes, being better at something,...

Administrator•15 days ago

10 Replies

Thursday's Thoughts

I know I keep referring to this being a new year - but it is and we often associ...

Administrator•16 days ago

live your life... see all the beauty around you!

just some thoughts I found....

Administrator•17 days ago

First of all, Happy New Year to all of you. I sincerely wish health and peace for you in 2025. Resolution - I...

Wednesday's Word

First of all, Happy New Year to all of you. I sincerely wish health and peace fo...