Posts - PBC Foundation | HealthUnlocked

hi has anyone started this medication for pbc? I’ve just started 80mg of elafribnor with a 1000mg of Urso also… Just wondered if anyone has had any good...

Administrator•3 months ago

6 Replies

elafibrinor

hi has anyone started this medication for pbc? I’ve just started 80mg of elafr...

Dexiedog

•3 months ago

11 Replies

Thursday's Thoughts

Sorry for the late post. I had an early morning appointment almost an hour away - fighting traffic and the rain made for a nerve wracking drive.......

Sorry for the late post. I had an early morning appointment almost an hour away ...

Administrator•3 months ago

has anyone with findings on their biopsy with Nodular regenerative hyperplasia? I hope I spelt it right…. If anyone can tell me what happens after it is found...

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NRH on biopsy

has anyone with findings on their biopsy with Nodular regenerative hyperplasia? ...

Artsy123

•3 months ago

Ascites This refers to fluid build up in the abdomen.This is often associated with cirrhosis as well as other conditions. It is usually...

Wednesday's Word

Ascites This refers to fluid build up in the abdomen.This is often associated ...

Administrator•3 months ago

Don't forget that the Q&A will be at the slightly different time of 3pm (UK time) tomorrow. Dr Robert Gish will be answering your #PBC questions this week....

Note the time...

Don't forget that the Q&A will be at the slightly different time of 3pm (UK time...

Administrator•3 months ago

In late 2023 I started HRT because my perimenopause symptoms had become so severe - anxiety, depression and lack of sleep. I checked with my liver specialist...

progesterone and bile flow

In late 2023 I started HRT because my perimenopause symptoms had become so sever...

Turquoise2075

•3 months ago

13 Replies

Repeat as needed....

You are so much more than the things that have happened to you or the thoughts that try to hold you back. 💙 You are your courage to keep going. You are your...

You are so much more than the things that have happened to you or the thoughts t...

Administrator•3 months ago

PBC is long term in nature with bile duct injury typically occurring over the years. Many more patients die with the...

Tuesday's Tip

PBC is long term in nature with bile duct injury typically occurring over the y...

Administrator•3 months ago

The Q&A will be at the slightly different time of 3pm (UK time) on Thursday. Dr Robert Gish will be answering your #PBC questions this week. Watch live on...

Different time...

The Q&A will be at the slightly different time of 3pm (UK time) on Thursday. Dr...

I'm hoping you took some time over the last week or so for yourself. This afternoon I have a ZOOM seminar on Radical Self...

Administrator•3 months ago

3 Replies

It's Monday 'Me'!

I'm hoping you took some time over the last week or so for yourself. This after...

** ANNOUNCEMENT ** The Medicines & Healthcare Products Regulatory Agency (MHRA) in the UK have announced the approval of Seladelpar (Livdelzi) to be used in...

Administrator•3 months ago

1 Reply

Great news!

** ANNOUNCEMENT ** The Medicines & Healthcare Products Regulatory Agency (MHRA)...

Administrator•3 months ago

Hello Everyone, I have a question about itching as I have read several posts here about PBCers c/o of itching. Most of the posts talk about itching legs or...

Question about itching

Hello Everyone, I have a question about itching as I have read several posts h...

Toddyboo

•3 months ago

6 Replies

Friday Fun Question

full disclosure 😄 What is one of your idiosyncrasies? for me, if there is a scrap of anything or a crumb on my counter I HAVE...

full disclosure 😄 What is one of your idiosyncrasies? for me, if there is a...

Hi All, anyone on IQIRVO (? Dr. wants to supplement my URSO with it. I take 1000mg a day of URSO, but my ALP level is still elevated. 178. The side effects...

Administrator•3 months ago

2 Replies

IQIRVO (elafibranor) 80mg

Hi All, anyone on IQIRVO (? Dr. wants to supplement my URSO with it. I take 1000...

TanGram

•3 months ago

24 Replies

Thursday's Thoughts

I was scrolling thru FB this morning and came across a short video of a man speaking at a conference somewhere. The point of his talk was that every...

I was scrolling thru FB this morning and came across a short video of a man spea...

Trigger warning if you are easily pulled into depression or anxiety about your condition: Hello all. I posted on here a couple of days ago because I...

Administrator•3 months ago

2 Replies

Fear and Reality

Trigger warning if you are easily pulled into depression or anxiety about your c...

NotorDJP

•3 months ago

15 Replies

Wednesday's Word

portal hypertension This refers to a state of high blood pressure within the portal vein ( the large blood vessel that drains...

portal hypertension This refers to a state of high blood pressure within the...

Administrator•3 months ago

Please be aware that there will be no Q&A this week. However, we are pleased to confirm that Dr Robert Gish will be joining us next week to answer your #PBC...

just so you know...

Please be aware that there will be no Q&A this week. However, we are pleased to...

Administrator•3 months ago

There are time to time questions about AMA (anti mitochondrial antibody). If the result is greater to any degree than the minimum level of 1:40 it does...

Tuesday's Tip

There are time to time questions about AMA (anti mitochondrial antibody). If the...

5 years ago, I tested positive for AMA. Although he said a weak positive. My liver enzymes at that time were slightly raised. My...

Administrator•3 months ago

1 Reply

Urso stopped and monitoring liver enzymes

5 years ago, I tested positive for AMA. Although he said a weak positive. My liv...

Grams2020

•3 months ago

Hi, I was diagnosed with PBC last year and am on urso, I have no symptoms and keep well and would like to go abroad on holiday this year. Two companies I've...

Travel Insurance

Hi, I was diagnosed with PBC last year and am on urso, I have no symptoms and ke...

JustChillin68

•3 months ago

7 Replies

Fibrosis

I recently had a fibroscan after 2 years since last one which showed 6.9 kpa now it's 7.7 they said mild fibrosis. Does this mean I'm going downhill? Really...

I recently had a fibroscan after 2 years since last one which showed 6.9 kpa now...

Misn

•3 months ago

23 Replies

AMA + PBC?

Morning, Just wondering if you very knowledgeable people would know if AMA+ always meant PCB? I also have anti thyroglobulin antibodies of 398. My AMA is...

Morning, Just wondering if you very knowledgeable people would know if AMA+ al...

DL12345

•3 months ago

3 Replies

fibroscan tomorrow

hi all. PBC diagnosed in 2014. Been on urso since then and been with a gastroenterologist that basically just followed my disease with blood tests. Fibroscans...

hi all. PBC diagnosed in 2014. Been on urso since then and been with a gastroent...

NotorDJP

•3 months ago

11 Replies

It's Monday Me Day

just another reminder.... we all need to take care ourselves. We have to recharge our 'battery' so to speak so we can take care of others, so we can give...

just another reminder.... we all need to take care ourselves. We have to recharg...

Administrator•3 months ago

Diagnosed with Pbc last Feb through routine blood test, very high LFT'S, no symptoms, ultrasound normal, fibroscan 7.5, after taking urso within 3 weeks bloods...

slightly raised ALP

Diagnosed with Pbc last Feb through routine blood test, very high LFT'S, no symp...

Stlucia1936

•3 months ago

12 Replies

Friday Fun Question

What do you think is your strongest personality trait? for me, I think I'm a good listener

What do you think is your strongest personality trait? for me, I think I'm a go...

Hello Everyone 🙂 Just a quick question: I’m still waiting on my appointment for hi & liver, but in the meantime, I’ve also received an invite for cancer...

Administrator•3 months ago

11 Replies

Additional Checks?

Hello Everyone 🙂 Just a quick question: I’m still waiting on my appointment fo...

Misssjb

•3 months ago

3 Replies

Thursday's Thoughts

https://liverfoundation.org/resource-center/blog/what-i-wish-people-knew-about-pbc/ I wanted to post this again for you to read. Hopefully you can relate to...

https://liverfoundation.org/resource-center/blog/what-i-wish-people-knew-about-p...