Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,381 members • 7,970 posts

All posts for January 2017

LDN

Hi, is anyone reading this, on LDN? Low dose Naltraxone. I know some with Sjogrens and Sarcoidosis are on it but PBC is different and I would like to know if...

Hi, is anyone reading this, on LDN? Low dose Naltraxone. I know some with Sjogr...

kandiepat

•7 years ago

32 Replies

Who does not have diabetes, but has high glucose ? PBC

My husband doesn't have diabetes but his glucose is so high Has Pbc Who can explain?

My husband doesn't have diabetes but his glucose is so high Has Pbc Who can exp...

Mysa1981

•7 years ago

10 Replies

Anyone taking Rifampicin?

Hi everyone, I saw the specialist this afternoon, as an itcher not cured by cholestyramine I was prescribed Naltrexone which gave me some very unpleasant side...

Hi everyone, I saw the specialist this afternoon, as an itcher not cured by chol...

butterflyEi

•7 years ago

23 Replies

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Symptoms getting worse

I was doing well for a while ... but the last month or so my symptoms have slowly been getting worse ... now the itching is horrible and my skin burns from...

I was doing well for a while ... but the last month or so my symptoms have slowl...

Becca75

•7 years ago

34 Replies

Low INR?

I was just going over some blood work results from November 30th! And what did I find? My INR is a (1). OMG! I am so scared. Is this a normal thing for people...

I was just going over some blood work results from November 30th! And what did I...

marty102

•7 years ago

6 Replies

Muscle pain after Flu

Hello all! Yet another weird symptom has cropped up and I'm trying to decide if its something to do with PBC or not. About a week or so before I got the flu...

Hello all! Yet another weird symptom has cropped up and I'm trying to decide if...

NotorDJP

•7 years ago

9 Replies

Pbc/ Aih

Does any body have stomach ulcers and bowel trouble or cysts. And anyone able to get help to reduce working hours!

Does any body have stomach ulcers and bowel trouble or cysts. And anyone able to...

janine541

•7 years ago

5 Replies

Has anyone ever "gotten off" Urso?

My son had Lupus and has since passed away. Twenty years ago at age 46, I had my thyroid removed. This year, I learned that I have PBC in the earliest stage. I...

My son had Lupus and has since passed away. Twenty years ago at age 46, I had my...

Sissymcc

•7 years ago

22 Replies

A lot of medication

Hi Iam on what seems to be a lot of medication for my pbc, iam sure it's making me feel worse iam on ursodeoxycholic rifampicin, setraline, chloleseveral and...

Hi Iam on what seems to be a lot of medication for my pbc, iam sure it's making...

Starcat

•7 years ago

21 Replies

PBC/AIH overlap

I saw my consultant today he said that my blood results suggest an overlap of PBC/AIH but he had taken more today and depending on the results I may have to...

I saw my consultant today he said that my blood results suggest an overlap of PB...

lizagood1

•7 years ago

13 Replies

Elevated Alp

Hello I have not been feeling to good lately I got blood work done and my Alp level was 131 but my primary doctor said there was no concern because my other...

Hello I have not been feeling to good lately I got blood work done and my Alp l...

mayragon76

•7 years ago

4 Replies

Blood work

Does any one no wot the normal blood works should read am getting more bloods done nxt week and would really like to no to keep eye on it and what questions to...

Does any one no wot the normal blood works should read am getting more bloods do...

Sylvia1968

•7 years ago

7 Replies

leg pain

Hi Everyone, I would like to know if any one of you with PBC have suffered with leg pain when walking in elevated areas , and I work full time each day I feel...

Hi Everyone, I would like to know if any one of you with PBC have suffered with ...

susanashworth

•7 years ago

25 Replies

Stage 2-3

Any one has pbc stage 3 or 2-3 please help me with your experience and how long do you have this stage?

Any one has pbc stage 3 or 2-3 please help me with your experience and how long ...

Mysa1981

•7 years ago

14 Replies

trouble swallowing?

has anyone had trouble swallowing ? I've noticed over the last few months that I choke every now and then when drinking tea. Today I noticed that swallowing...

has anyone had trouble swallowing ? I've noticed over the last few months that ...

Becca75

•7 years ago

17 Replies

Extra travel insurance yes or no?

going away in aug have travel insurance. mentioned about pbc. they said i needed to do a medical screen. it was £94 for me. its down as Cirrhosis . I dobt have...

going away in aug have travel insurance. mentioned about pbc. they said i needed...

Louedwards

•7 years ago

11 Replies

Skin issues

Does anyone suffer from small hard fatty lumps similar to milia but look like blackheads on their face , I have a good quality skincare routine so I know it's...

Does anyone suffer from small hard fatty lumps similar to milia but look like b...

Harley2016

•7 years ago

2 Replies

Had this all morning ...

This won't go away ... no idea what it is - I may have scratched earlier this morning but it usually doesn't last this long ...it was all red like a rash and...

This won't go away ... no idea what it is - I may have scratched earlier this mo...

Becca75

•7 years ago

2 Replies

PBC

Hi my name is Yvonne , I have been diagnosed with PBC with nodules throughout the liver. I was diagnosed after years of high liver enzyme readings. I'm on...

Hi my name is Yvonne , I have been diagnosed with PBC with nodules throughout t...

yvonner0

•7 years ago

4 Replies

Pbc/ Aih

Well after reading some of these posts.it helps me feel quite normal. Ive been diagnosed with the above but have had dreadful dizzyness and tiredness. And...

Well after reading some of these posts.it helps me feel quite normal. Ive been d...

janine541

•7 years ago

2 Replies

Urso users

If all urso users have encountered problems getting urso its because you chemist your using is Boots. I had this problem about a year ago its because Boots is...

If all urso users have encountered problems getting urso its because you chemist...

Jude1

•7 years ago

2 Replies

URSO! Manufacturing issue

About to run out of URSO. Went to collect my prescription from Boots, only to be told no stock as there is a manufacturing issue. Anyone else had this ? No...

About to run out of URSO. Went to collect my prescription from Boots, only to b...

fred6577

•7 years ago

16 Replies

Fenofibrate

Hi all, Been on URSO since June as although my liver function levels immediately decreased,I still have ALT of 400+. My consultant has just put me on 200mg...

Hi all, Been on URSO since June as although my liver function levels immediate...

Starfish72

•7 years ago

11 Replies

Any one can help

How long dose urso take to work then you feel better? My husband started urso put He feel abdominal pain and think that is side effects of urso

How long dose urso take to work then you feel better? My husband started urso p...

Mysa1981

•7 years ago

15 Replies

Stage 2 to Stage 4 in 13 months

I was diagnosed with Stage 2 PBC in 2004 and I am a rare case because I am ANA negative. I had an MRI done in December and the results showed I have moved from...

I was diagnosed with Stage 2 PBC in 2004 and I am a rare case because I am ANA n...

Parker9533

•7 years ago

4 Replies

Urso side effect?

Hi all, Hope you are all well!!! I started taking Urso around 3 weeks ago and 2 days ago I broke out in a rash all over my body, its still there now, not...

Hi all, Hope you are all well!!! I started taking Urso around 3 weeks ago and 2...

Thenoise

•7 years ago

6 Replies

Itching and burning

I am at my wits end with itching and burning sensation mainly in both arms and back. Is this normal with PBC? Had this for about 12 months My skin is such a...

I am at my wits end with itching and burning sensation mainly in both arms and b...

Chebsy1407

•7 years ago

5 Replies

Thinking of deleting membership

I'm getting very disappointed with this site. I just feel many people on here just winge about their problems and many are so negative. I joined in the hope...

I'm getting very disappointed with this site. I just feel many people on here ju...

Hidden

•7 years ago

57 Replies

Low wbc with Spleenomegally and aih, pbc along with scleroderma and Lupus

Often I have low wbc and require Granix to pick them up with the help of my hematologist. I take Ursodiol which does help with PBC. For the itching my doc...

Often I have low wbc and require Granix to pick them up with the help of my hema...

albiar123

•7 years ago

3 Replies

Blood

I was diagnosed with PBC a little over a year ago. Honestly taking my meds and staying relatively healthy seems to have been an easy task. I haven't really had...

I was diagnosed with PBC a little over a year ago. Honestly taking my meds and s...

Beck7

•7 years ago

7 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for January 2017

LDN

Who does not have diabetes, but has high glucose ? PBC

Anyone taking Rifampicin?

Symptoms getting worse

Low INR?

Muscle pain after Flu

Pbc/ Aih

Has anyone ever "gotten off" Urso?

A lot of medication

PBC/AIH overlap

Elevated Alp

Blood work

leg pain

Stage 2-3

trouble swallowing?

Extra travel insurance yes or no?

Skin issues

Had this all morning ...

PBC

Pbc/ Aih

Urso users

URSO! Manufacturing issue

Fenofibrate

Any one can help

Stage 2 to Stage 4 in 13 months

Urso side effect?

Itching and burning

Thinking of deleting membership

Low wbc with Spleenomegally and aih, pbc along with scleroderma and Lupus

Blood

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