Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,484 members•8,374 posts

All posts for November 2017

Hello

I just wanted to drop in to say that Im still here & kickin. I have started to put weight on after being diagnosed in 2012, which is actually a good thing. I...

I just wanted to drop in to say that Im still here & kickin. I have started to p...

Shulsey

•7 years ago

15 Replies

Interesting

Just for read some of you might like it https://www.emedicinehealth.com/script/main/mobileart-emh.asp?articlekey=184235#primary_biliary_cirrhosis_pbc_overview

Just for read some of you might like it https://www.emedicinehealth.com/script/...

Sachin1234

•7 years ago

1 Reply

Revision at conclusionALT, AST, Alk-phos and their possible insignificance in monitoring PBC progression?

Hello friends, Ever since I was diagnosed with PBC last year I've been anxious everytime I have my labs drawn. I'm always anxious to know all about what my...

Hello friends, Ever since I was diagnosed with PBC last year I've been anxious ...

Ktltel

•7 years ago

41 Replies

Want to take advantage of all our features? Just log in!

Come to learn

Hi I'm luckee33 and getting on in age and thought I'd come join and learn from experiences.

Hi I'm luckee33 and getting on in age and thought I'd come join and learn from e...

luckee33

•7 years ago

3 Replies

Mother has PBC and has recently become diabetic.

Hello everyone, my name is Anthony and I'm new here. My mother has PBC and just this past summer discovered she has diabetes. Her doctor doesn't believe her...

Hello everyone, my name is Anthony and I'm new here. My mother has PBC and just...

Ant_F

•7 years ago

6 Replies

Positive Ama M2, all blood work for liver gallbladder normal, suspected other autoimmune disease

Hello everyone. I did some autoimmune tests, AMA M2 was found positive.Have been to doctors rheumatologist and gastro, did all liver blood tests in a 2 months...

Hello everyone. I did some autoimmune tests, AMA M2 was found positive.Have been...

Elineea

•7 years ago

4 Replies

Health Records On A Flash Drive

At the time that all of this started in May 2016, I did not even have a Primary Care Physician as I was rarely ever sick, and I had not had one in over a...

At the time that all of this started in May 2016, I did not even have a Primary ...

GhostHunter

•7 years ago

10 Replies

Bullous Blisters

Have any of you developed Bullous Pemphigoid with PBC? I have had 3 lesions develop in my groin area... the first was a larger lesion with clear fluid in it...

Have any of you developed Bullous Pemphigoid with PBC? I have had 3 lesions dev...

GhostHunter

•7 years ago

10 Replies

Pbc

Does anyone know if statins can cause pbc I was prescribed statins in 2012 and my liver enzymes were elevated in 2013 for the first time Just recently...

Does anyone know if statins can cause pbc I was prescribed statins in 2012 and ...

Ballymahon2

•7 years ago

58 Replies

EGD results

I haven't been on in a while. So I had a follow up appointment and my levels are not coming down like the dr hoped. I had an EGD last Wednesday and it showed I...

I haven't been on in a while. So I had a follow up appointment and my levels are...

Krichards1971

•7 years ago

2 Replies

Osteopenia

Anyone else diagnosed with PBC and osteopenia? What are you taking? I saw somewhere that it was important to include Vitamin K2 in addition to calcium and...

Anyone else diagnosed with PBC and osteopenia? What are you taking? I saw somewh...

windfire777

•7 years ago

18 Replies

Alk Phosphatase Level’s - URSO for 3 Months

Been on Urso for 3 months and ALT and AST levels reduced by 50%, but alkaline phosphatase was about the same. Doctor says to not worry since the one year mark...

Been on Urso for 3 months and ALT and AST levels reduced by 50%, but alkaline ph...

windfire777

•7 years ago

14 Replies

Tricor

My doctor had just started me on fenofibrate 48 mg..... is anyone else taking this? The brochure in the meds said to be careful and make sure your doctor...

My doctor had just started me on fenofibrate 48 mg..... is anyone else taking th...

Pamela4475

•7 years ago

9 Replies

Questions please read

How many people have other autoimmune disorders? I have Hashimoto and pbc. I recently suffered a miscarriage and wondering if it may be due to hughs syndrome...

How many people have other autoimmune disorders? I have Hashimoto and pbc. I rec...

Jhenderson

•7 years ago

10 Replies

Fibroscan

Hi all hope you are all keeping well and warm a bit confused went on Mon for Fibroscan first one ive had since being diagnosed 7 years result was 13. something...

Hi all hope you are all keeping well and warm a bit confused went on Mon for Fib...

cavi

•7 years ago

10 Replies

App

What the name of this app I’m trying to download this app in my Mac pro and I couldn’t find it lol

What the name of this app I’m trying to download this app in my Mac pro and I co...

Sachin1234

•7 years ago

4 Replies

PBC

Hi last week I was diagnosed with PBC I initially went to doctors 10 years ago with upper right pain 5 scans later they continued to tell me it was a fatty...

Hi last week I was diagnosed with PBC I initially went to doctors 10 years ago w...

Ellymay1

•7 years ago

38 Replies

Confused

Can somebody orient me. I was diagnosing with pbc three months ago and started on Urso with a great response. Then two weeks ago I visited my hepatoligist and...

Can somebody orient me. I was diagnosing with pbc three months ago and started o...

YADILURO

•7 years ago

28 Replies

Just got diagnosed with pbc

I just got diagnosed with pbc and I’m new with this and honestly little scared. Gastroenterologist didn’t say anything about it and said because of my fatty...

I just got diagnosed with pbc and I’m new with this and honestly little scared. ...

3phyraX

•7 years ago

30 Replies

Urso

After taking urso for 6 weeks my levels are all normal, should I now stop taking urso and look closer at my immune system? I am still unsure my diagnosis of...

After taking urso for 6 weeks my levels are all normal, should I now stop taking...

Gillian61

•7 years ago

7 Replies

Starting Ocaliva

I am starting on Ocaliva next week as I am not responding to URSO after 9 months. Anyone have any pointers for me as I start this new drug

I am starting on Ocaliva next week as I am not responding to URSO after 9 months...

happy0507

•7 years ago

17 Replies

Patient Summaries & Lab Results

I keep seeing posts from people who are not sure how high their numbers are, and they were never given a copy of their blood test results by the doctor. I just...

I keep seeing posts from people who are not sure how high their numbers are, and...

GhostHunter

•7 years ago

3 Replies

Ama results

Hi everyone. So my ANA test was negative, now im able to see my results online from the AMA and it says <1:20. Very anxious for the doctor to explain this to...

Hi everyone. So my ANA test was negative, now im able to see my results online f...

Hidden

•7 years ago

2 Replies

Recent PBC diagnosis

Hi I was diagnosed with PBC in July after 3 years of raised liver enzymes and tiredness and itching, this was all put down to stress and the menopause as well...

Hi I was diagnosed with PBC in July after 3 years of raised liver enzymes and t...

Rozm2004

•7 years ago

12 Replies

problems with residronate (bisphosphonate) for osteoporosis

Question for anyone with osteoporosis who has been given residronate. I took my first pill yesterday, as per instructions, didn't sit for half an hour drank...

Question for anyone with osteoporosis who has been given residronate. I took my ...

freidasima

•7 years ago

6 Replies

Alk-phos climbing up... 😔

Hello all, Well, got my labs back. Everything is in normal range except my AMA M2 and my alk-phos. It's elevated yet again. Slowly over the past few months...

Hello all, Well, got my labs back. Everything is in normal range except my AMA ...

Ktltel

•7 years ago

73 Replies

Happy Thanksgiving to all who celebrate this holiday :)

I've been cooking and cleaning all day with more of the same tomorrow. I'll stuff the bird in the a.m. and throw him on the grill and get a nice fire going in...

I've been cooking and cleaning all day with more of the same tomorrow. I'll stuf...

shadowme2

•7 years ago

8 Replies

systemic itching - no rash

I am a 57 year female with long standing Hashimotos, B12 deficiency and Sjogren's syndrome. I am treated with combo T3/t4 (very good endocrinologist - keeping...

I am a 57 year female with long standing Hashimotos, B12 deficiency and Sjogren'...

hashiB12sjogrens

•7 years ago

2 Replies

Activated Charcoal

Is anyone taking activated charcoal ??

woodlandT

•7 years ago

6 Replies

Fibroscan norm?

After some very stressful weeks/ months my liver scan was normal. I had a ama at 90, so they had started me on urso too early. Does the fibroscan mean I do not...

After some very stressful weeks/ months my liver scan was normal. I had a ama at...

Sdone

•7 years ago

17 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for November 2017

Hello

Interesting

Revision at conclusionALT, AST, Alk-phos and their possible insignificance in monitoring PBC progression?

Come to learn

Mother has PBC and has recently become diabetic.

Positive Ama M2, all blood work for liver gallbladder normal, suspected other autoimmune disease

Health Records On A Flash Drive

Bullous Blisters

Pbc

EGD results

Osteopenia

Alk Phosphatase Level’s - URSO for 3 Months

Tricor

Questions please read

Fibroscan

App

PBC

Confused

Just got diagnosed with pbc

Urso

Starting Ocaliva

Patient Summaries & Lab Results

Ama results

Recent PBC diagnosis

problems with residronate (bisphosphonate) for osteoporosis

Alk-phos climbing up... 😔

Happy Thanksgiving to all who celebrate this holiday :)

systemic itching - no rash

Activated Charcoal

Fibroscan norm?

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Where in the world are you? Please select an option, but feel free to tell us specifically which country you are in, if you would like. No more detail than that, however. Thank you.

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Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for November 2017

Hello

Interesting

***Revision at conclusion***ALT, AST, Alk-phos and their possible insignificance in monitoring PBC progression?

Come to learn

Mother has PBC and has recently become diabetic.

Positive Ama M2, all blood work for liver gallbladder normal, suspected other autoimmune disease

Health Records On A Flash Drive

Bullous Blisters

Pbc

EGD results

Osteopenia

Alk Phosphatase Level’s - URSO for 3 Months

Tricor

Questions please read

Fibroscan

App

PBC

Confused

Just got diagnosed with pbc

Urso

Starting Ocaliva

Patient Summaries & Lab Results

Ama results

Recent PBC diagnosis

problems with residronate (bisphosphonate) for osteoporosis

Alk-phos climbing up... 😔

Happy Thanksgiving to all who celebrate this holiday :)

systemic itching - no rash

Activated Charcoal

Fibroscan norm?

Search posts

Pinned Posts

Latest poll

Where in the world are you? Please select an option, but feel free to tell us specifically which country you are in, if you would like. No more detail than that, however. Thank you.

Topics

Archive

Revision at conclusionALT, AST, Alk-phos and their possible insignificance in monitoring PBC progression?