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PBC Foundation

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All posts for June 2017

Need help explaining the pain Im in

Past two todays I have been in pain. My joints and muscles ache. Yesterday i was disoriented. Has anyone had this experience if so what did you do? I have put...

Past two todays I have been in pain. My joints and muscles ache. Yesterday i was...

cfsummerford72

•7 years ago

24 Replies

What do PBC flare ups feel like for those who are symptomatic?

Hi again, Sorry for so many questions but I have been flying solo for 5yrs and I am my doctor's only patient. I have read here that some PBC patients have...

Hi again, Sorry for so many questions but I have been flying solo for 5yrs and I...

Q8Cooper

•7 years ago

8 Replies

Itch relief

What are you guys using to manage itching Especially at night it feels like I'm being eaten alive from inside out ! All usual stuff tried - cider vinegar ,...

What are you guys using to manage itching Especially at night it feels like I'm...

Lookforward

•7 years ago

9 Replies

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Has any one diagnosed with PBC gone untreated for any length of time?

Question? Has anyone here after being diagnosed spent a significant time without any treatment? I ask because I first had an allergic response to Urso then...

Question? Has anyone here after being diagnosed spent a significant time without...

Q8Cooper

•7 years ago

27 Replies

Arthritis and PBC

What does anyone take for arthritis

Ohio82

•7 years ago

4 Replies

Could this be PBC?

Hi all. I am new to this site and would appreciate some info. I had blood tests taken recently for severe joint pains. I complained of this for many years but...

Hi all. I am new to this site and would appreciate some info. I had blood tests ...

Flower-powr

•7 years ago

6 Replies

Sugar

I recently read a post where someone said that sugar was just as bad on our liver as alcohol. Im not remembering who posted it but I have a awful sweet tooth...

I recently read a post where someone said that sugar was just as bad on our live...

Shulsey

•7 years ago

16 Replies

Just got home from ER

My alk is elevated out of range again My ast is right on range And my alt is elevated out of range again. The ER DR said he wasn't concerned but wanted to...

My alk is elevated out of range again My ast is right on range And my alt is e...

Hidden

•7 years ago

16 Replies

Where is the best PBC specialized medical team located?

Hi all. Just wanted to know if from general public opinion and common knowledge of PBC patients/forums, there is in some hospital or clinic of the world a...

Hi all. Just wanted to know if from general public opinion and common knowledge...

cmb82

•7 years ago

12 Replies

Itchy welts

For those of you that have them, do these look familiar. They are spreading and getting worse. Go to GP tomorrow. I have not eaten, drank or been exposed to...

For those of you that have them, do these look familiar. They are spreading and ...

labootz16

•7 years ago

10 Replies

Nieuweling

Hoi allemaal, ben ook nieuw op deze site. Net te horen gekregen dat ik PBC heb. Krijg nog een biopt waar ik erg angstig voor ben. Hoop deze site heleboel...

Hoi allemaal, ben ook nieuw op deze site. Net te horen gekregen dat ik PBC heb. ...

marianne349

•7 years ago

11 Replies

B12 injections/Questran

I have had PBC for more than 10 years. I recently noticed a return of some of the unpleasant symptoms I suffered prior to being diagnosed with Pernicious...

I have had PBC for more than 10 years. I recently noticed a return of some of t...

butterflyEi

•7 years ago

9 Replies

Feeling sorry for myself

I feel so sad today im so so tired,even though I'm on modafinil I am off today from work and was hoping to achieve something in my house or in my garden. But...

I feel so sad today im so so tired,even though I'm on modafinil I am off today f...

flora

•7 years ago

28 Replies

Hello I am brand new to the group, and sure am glad to have found you!

Hi everyone, I am brand new to this site and I have enjoyed ready everyone's comments. It sure helps to know there are other people on the same journey and I...

Hi everyone, I am brand new to this site and I have enjoyed ready everyone's com...

Q8Cooper

•7 years ago

2 Replies

post transplant 5 weeks hot sweats!

Just wondering if anyone whos had a transplant got hot flushes... im finding it difficult to deal with. asked consultant about it but he just asked if id had...

Just wondering if anyone whos had a transplant got hot flushes... im finding it ...

cazer

•7 years ago

10 Replies

Adverse response to Urso so put on Ocaliva. My alkaline phosphatase remains around 300. How do I know if the Ocaliva is working?

Hi, I am a 56yr old female diagnosed with PBC six years ago. I had a severe reaction to Ursol the first time I tried it, waited a year and tried it again but...

Hi, I am a 56yr old female diagnosed with PBC six years ago. I had a severe reac...

Q8Cooper

•7 years ago

4 Replies

Where is Brummi

I haven't heard from him in a while Brummi are you ok

Hidden

•7 years ago

5 Replies

Any suggestions please.

I Take 500 urso 3 a day, plus 800 vitamin d 4 a day, I'm getting bad constipation, it's getting worse not sure if it's to much vit d as it's now sunny, does...

I Take 500 urso 3 a day, plus 800 vitamin d 4 a day, I'm getting bad constipatio...

Horsefield2

•7 years ago

7 Replies

I'm new

Hi I'm 48 finally diagnosed Dec after 2 years with a useless locom doctor, who has had to leave the trust. (not surprised). I now have a lovely lady doctor who...

Hi I'm 48 finally diagnosed Dec after 2 years with a useless locom doctor, who h...

Horsefield2

•7 years ago

11 Replies

Itch welts

For those of you itching, I have been itching for awhile but not severe. Just the last week or so it has increased. Now, staring yesterday, I have actual red...

For those of you itching, I have been itching for awhile but not severe. Just th...

labootz16

•7 years ago

9 Replies

I'm getting lumpy knees too

Here is a photo of my new lumpy knees. The lump on the left side at times swells golf ball size. It doesn't hurt at this time. However I tore my rotator cuff a...

Here is a photo of my new lumpy knees. The lump on the left side at times swells...

Hidden

•7 years ago

10 Replies

Pbc/Aih

Has anyone had knee problems. Ive got a lump and find it hard to not limp. Also shooting pains in leg. Going for xray monday

Has anyone had knee problems. Ive got a lump and find it hard to not limp. Also ...

janine541

•7 years ago

4 Replies

Transjugular Liver biopsy results

I will never trust another Ultra Sound. My Dr said it showed a healthy persons liver even thought my fibroscan was 21.3. I have extensive stage 4 cirrhosis...

I will never trust another Ultra Sound. My Dr said it showed a healthy persons l...

Hidden

•7 years ago

42 Replies

Do you go to a support group in your area for PBC?

Just wanted to see if you go to a support group in your area?If so is it a Hospital?

Just wanted to see if you go to a support group in your area?If so is it a Hospi...

PBCTracy

•7 years ago

6 Replies

Confused!

Hello there, I'm in need of advice please! Was diagnosed about 2yrs ago here in the U.K. with PBC after blood tests and liver biopsy. Seeing a consultant...

Hello there, I'm in need of advice please! Was diagnosed about 2yrs ago here in ...

Caroline-12

•7 years ago

14 Replies

Changes in my Pic

Hello I was diagnosed with pbc 4 years ago. Been on urso since & felt fine but the last 6 months my itching started I feel tired all the time. I was thinking...

Hello I was diagnosed with pbc 4 years ago. Been on urso since & felt fine but t...

Carolebroadbent

•7 years ago

8 Replies

Pain

Does anyone else suffer from rightsided pain. It's what started my PBC journey and I was told it was a cracked rib. It went away but last week it came back. It...

Does anyone else suffer from rightsided pain. It's what started my PBC journey a...

GayleShepherd

•7 years ago

25 Replies

God hates me

Now my AST is elevating and my alt is dropping. Different labs have different titrs I get it But why is my ast now elivating Aih is going to kill me

Now my AST is elevating and my alt is dropping. Different labs have different ti...

Hidden

•7 years ago

11 Replies

Insurance (home/holiday)

Hi Everyone I need your help, please... I am in the process of buying a house for the first time and no insurance will cover me for critical life insurance....

Hi Everyone I need your help, please... I am in the process of buying a house fo...

xXxAndzxXx

•7 years ago

10 Replies

Update: pain all over

I saw a neurologist yesterday morning & her thoughts on my condition is not neuropathic pain, which I was diagnosed with by a rheumatologist, of all people....

I saw a neurologist yesterday morning & her thoughts on my condition is not neur...

Shulsey

•7 years ago

5 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for June 2017

Need help explaining the pain Im in

What do PBC flare ups feel like for those who are symptomatic?

Itch relief

Has any one diagnosed with PBC gone untreated for any length of time?

Arthritis and PBC

Could this be PBC?

Sugar

Just got home from ER

Where is the best PBC specialized medical team located?

Itchy welts

Nieuweling

B12 injections/Questran

Feeling sorry for myself

Hello I am brand new to the group, and sure am glad to have found you!

post transplant 5 weeks hot sweats!

Adverse response to Urso so put on Ocaliva. My alkaline phosphatase remains around 300. How do I know if the Ocaliva is working?

Where is Brummi

Any suggestions please.

I'm new

Itch welts

I'm getting lumpy knees too

Pbc/Aih

Transjugular Liver biopsy results

Do you go to a support group in your area for PBC?

Confused!

Changes in my Pic

Pain

God hates me

Insurance (home/holiday)

Update: pain all over

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