Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,382 members • 7,975 posts

All posts for October 2013

Is a person with PBC more apt to develop other health problems? Are certain things common to effect people with PBC?

Are they more prone to infection?

sarahalawson

•10 years ago

13 Replies

How many stages are there of PBC? And when should the gastroenterologist offer Urso?

The specialist has told me I'm in the early stages of PBC, but not specified which one, or how many there are. It's my understanding this progresses at...

The specialist has told me I'm in the early stages of PBC, but not specified whi...

sarahalawson

•10 years ago

16 Replies

rheumatoligist

going to hospital next week to find out if it is my pbc that is causing bad hip pain or is it something else is there any thing I should ask or be tested for...

going to hospital next week to find out if it is my pbc that is causing bad hip ...

sadie21

•10 years ago

5 Replies

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Diclofenic and pbc

Since being diagnosed with pbc I've stopped taking my diclofenic , but I'm really suffering does any one know if it is safe to take it .

Since being diagnosed with pbc I've stopped taking my diclofenic , but I'm real...

Kieraferret

•10 years ago

2 Replies

Coloured urine

Hi just recently I have been having episodes of orange wee I have noticed this when my liver is hurting I am just wondering if anybody else has had this...

Hi just recently I have been having episodes of orange wee I have noticed this w...

Poppygayle

•10 years ago

16 Replies

Fatigue??

Hi everyone, I would just like to ask about Fatigue, how tiered do you feel? I'm asking this because for nearly a year now, I am so tired, but I put it down...

Hi everyone, I would just like to ask about Fatigue, how tiered do you feel? I'...

Fudger126

•10 years ago

18 Replies

Hello everyone, I've been diagnosed with PBC and Autoimmune Hepatitis Overlap Syndrome in July'13.

Liver biyopsy showed stage 3 fibrosis. I'm 28 years old. My all elevated LFTs got back to normal ranges after 1.5 month i started using Urso 250mg (2*2). My...

Liver biyopsy showed stage 3 fibrosis. I'm 28 years old. My all elevated LFTs go...

Burke0626

•10 years ago

7 Replies

Stupid flipping itch!!!

Hi everyone.... I found out in august I had Pbc x have been on ur so from then, 500 mg. meant to be on 1000 mg but my stomach can't tolerate it. I first...

Hi everyone.... I found out in august I had Pbc x have been on ur so from then, ...

Dmb1

•10 years ago

17 Replies

Newbie to the PBC Foundation

I was diagnosed with PBC about 10 years ago and have had very vague symptoms until 3 1/2 years ago when I turned yellow and retained 26kgs of fluid. I had an...

I was diagnosed with PBC about 10 years ago and have had very vague symptoms unt...

Julez1961

•10 years ago

8 Replies

Morning to you all... can anyone tell me if I have chronic cirrhosis would this mean I have late stages of PBC.

Fernleard

•10 years ago

6 Replies

Is urso the only treatment ?

hi, Has anyone out there taken anything other than urso for pbc ? I cant tolerate it , very bad nausea and vomitting and have to go back to the consultant !!

hi, Has anyone out there taken anything other than urso for pbc ? I cant tolerat...

meandmypbc

•10 years ago

30 Replies

Has anyone in the UK who suffers with PBC, successfully applied for a Blue Badge? I am pretty upset as I have just been rejected.

soozey14

•10 years ago

16 Replies

What dose of Urso are you on ? MD says it goes according to weight ( here in the USA pounds ).

Chippy45

•10 years ago

9 Replies

How to get on to ESA support group after passing tribunal and being put on WRG. We were late reapplying so have to start new application.

My husband has M.E severe anxiety,is recovering from chemo for Large B cell Lymphoma and also has an alcohol problem which has been exacerbated by losing his...

My husband has M.E severe anxiety,is recovering from chemo for Large B cell Lym...

Dreamer49

•10 years ago

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Has anyone else with PBC been prescribed citralopram for fatigue & joint pain?

I was given this for PBC by a consultant. I was unsure if it was helping so stopped taking it after consulting my GP. I am now experiencing severe pain...

I was given this for PBC by a consultant. I was unsure if it was helping so stop...

Tigger858

•10 years ago

6 Replies

How long have people had to wait for a Liver transplant at Leeds?

Hi All, I am getting desperate and can't seem to focus on anything. I am losing my temper at the slightest thing and my emotions are all over the place, I...

Hi All, I am getting desperate and can't seem to focus on anything. I am losing...

florrie505

•10 years ago

2 Replies

Lightheadedness

Been on Urso now for a month, last few days been getting lightheaded , dizzy and really hot has any one else experienced this?

Been on Urso now for a month, last few days been getting lightheaded , dizzy and...

Kieraferret

•10 years ago

14 Replies

constipation and pbc

and urso , help my bum is soooo sore from trying to go to the loo, is it the meds. I ate 20 prunes yesterday and at 5 am success, if that's what you call it....

and urso , help my bum is soooo sore from trying to go to the loo, is it the me...

dm1360

•10 years ago

17 Replies

9months taking urso and amitriptyline and gained 4 stone in weight only 5ft and 12stone plus healthy or what

karenlesley

•10 years ago

5 Replies

Pain in lower back

Hi, Just woundering if any of you have had pain in your lower back? Its on the left hand side and its sore to touch.

Hi, Just woundering if any of you have had pain in your lower back? Its on the...

Gemma01

•11 years ago

3 Replies

Colestid Orange

Colestid Orange ( Colestipol Hydrochloride) 5.0g any one taking or tried this for the itching have been on Questran Light did little help for the itching...

Colestid Orange ( Colestipol Hydrochloride) 5.0g any one taking or tried this fo...

cavi

•11 years ago

5 Replies

Side effects of urso

I started urso on the full dose 1000mg a day, had awful nausea and vomiting, the gp has taken me off for 4 days to reintroduce at a slower pace. Hs anyone out...

I started urso on the full dose 1000mg a day, had awful nausea and vomiting, the...

meandmypbc

•11 years ago

18 Replies

Is it a new thing for blood to be tested for AFP as a routine blood test?

blubelle

•11 years ago

9 Replies

Pregnancy

I'm 20 weeks pregnant and was diagnosed with pbc 7 weeks ago and am currently taking urso. Has anyone else been diagnosed whilst pregnant or had a pregnancy...

I'm 20 weeks pregnant and was diagnosed with pbc 7 weeks ago and am currently ta...

Hattyson

•11 years ago

21 Replies

I have raised AMAs. First test was 25.5 . Second was 23.5. Third was 32.5. I'm in the US. What are some of your guys test numbers?

My Dr won't do a biopsy. I'm very frustrated. I just turned 40 and have been suffering for the last year -- I have side pains, low fever, memory problems,...

My Dr won't do a biopsy. I'm very frustrated. I just turned 40 and have been s...

Annalida

•11 years ago

19 Replies

Doc suspects PBC, 33 yo

Hi all! Thanks for reading... I had intraheptic cholestasis of pregnancy. I am now 5 months postpartum. 2 months postpartum I still had elevated AST, ALT, and...

Hi all! Thanks for reading... I had intraheptic cholestasis of pregnancy. I am n...

Librarianlady

•11 years ago

9 Replies

Stomach cramps

I've only been on Urso for 1 week but I've been getting stomach cramps for the first time in my life. Has anyone else had this reaction and, if so, do they go...

I've only been on Urso for 1 week but I've been getting stomach cramps for the f...

Goose60

•11 years ago

12 Replies

My mom was diagnosed with PBC at the age of 62, each of her children were then tested and we all came out negative. I'm now 62 with

numerous medical issues (Aortic Stenosis, Pulm Hypertension, High B/P, hypothyroid, CHF,COPD....etc), but I'd like to be retested for PBC. My doc looked at...

numerous medical issues (Aortic Stenosis, Pulm Hypertension, High B/P, hypothyro...

georgiegirls

•11 years ago

5 Replies

Can I enjoy a glass of wine ?

I have only just been diagnosed ... and have all the info in the post...brilliant !! I have read it all and it is really helpful...my only question out there...

I have only just been diagnosed ... and have all the info in the post...brillian...

meandmypbc

•11 years ago

13 Replies

Hi all, Does anybody get flu like symptoms with PBC? . I seem to get this a lot my bones ache and i'm wiped out for the day. Thanks..

Fernleard

•11 years ago

22 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for October 2013

Is a person with PBC more apt to develop other health problems? Are certain things common to effect people with PBC?

How many stages are there of PBC? And when should the gastroenterologist offer Urso?

rheumatoligist

Diclofenic and pbc

Coloured urine

Fatigue??

Hello everyone, I've been diagnosed with PBC and Autoimmune Hepatitis Overlap Syndrome in July'13.

Stupid flipping itch!!!

Newbie to the PBC Foundation

Morning to you all... can anyone tell me if I have chronic cirrhosis would this mean I have late stages of PBC.

Is urso the only treatment ?

Has anyone in the UK who suffers with PBC, successfully applied for a Blue Badge? I am pretty upset as I have just been rejected.

What dose of Urso are you on ? MD says it goes according to weight ( here in the USA pounds ).

How to get on to ESA support group after passing tribunal and being put on WRG. We were late reapplying so have to start new application.

Has anyone else with PBC been prescribed citralopram for fatigue & joint pain?

How long have people had to wait for a Liver transplant at Leeds?

Lightheadedness

constipation and pbc

9months taking urso and amitriptyline and gained 4 stone in weight only 5ft and 12stone plus healthy or what

Pain in lower back

Colestid Orange

Side effects of urso

Is it a new thing for blood to be tested for AFP as a routine blood test?

Pregnancy

I have raised AMAs. First test was 25.5 . Second was 23.5. Third was 32.5. I'm in the US. What are some of your guys test numbers?

Doc suspects PBC, 33 yo

Stomach cramps

My mom was diagnosed with PBC at the age of 62, each of her children were then tested and we all came out negative. I'm now 62 with

Can I enjoy a glass of wine ?

Hi all, Does anybody get flu like symptoms with PBC? . I seem to get this a lot my bones ache and i'm wiped out for the day. Thanks..

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