Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,388 members • 7,993 posts

All posts for September 2020

Pbc

Fealing very upset with my doctor struggling with fatigue ache all over asked doctor to write a letter explaining this to my employer to support me as I'm...

Fealing very upset with my doctor struggling with fatigue ache all over asked do...

Purdy2017

•4 years ago

38 Replies

Alkaline phosphate

Hi. How concerned should I be ? My latest lab tests indicate that my alkaline phosphate has increased and is increasing slowly ! Freaked out as I don’t know...

Hi. How concerned should I be ? My latest lab tests indicate that my alkaline p...

Mrsfancypants

•4 years ago

10 Replies

Small intestinal bacterial overgrowth (SIBO) impacts with PBC ?

Hi, Does anyone have knowledge of Small intestinal bacterial overgrowth (SIBO) impacts with PBC ?...

Hi, Does anyone have knowledge of Small intestinal bacterial overgrowth (SIBO) i...

Pepite

•4 years ago

2 Replies

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Pbc/aih symptoms

How long can I live with pbc/aih without the severe symptoms In January I will be 4 years. This concerns me. I feel like my time is up and it’s time to...

How long can I live with pbc/aih without the severe symptoms In January I will b...

Jennyhadenough

•4 years ago

6 Replies

PBC and C19

Does anyone know of a PBC sufferer who has had Covid 19 and knows whether or not they had further complications due to our disease?

Does anyone know of a PBC sufferer who has had Covid 19 and knows whether or not...

Gioielli5

•4 years ago

12 Replies

Biopsy complication

Hi! I'm new here, and got my diagnosis last week, stage 1 it seemed, after the biopsy. My question to all you who have had a biopsy done. How often do...

Hi! I'm new here, and got my diagnosis last week, stage 1 it seemed, after the b...

Barremjau

•4 years ago

19 Replies

Good news for me😍

Hi friends. I just got my lab data and fortunately ALP is decreased to 118. 6 months ago, I experienced a small jump in alp, it was 133 and raised to 141. It...

Hi friends. I just got my lab data and fortunately ALP is decreased to 118. 6 m...

Sona_akb

•4 years ago

10 Replies

Elevated ALP, GGT and Ferritin

Anyone else have anything like this with no symptoms that I notice

debnevada

•4 years ago

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PBC and progression

With having PBC, if you respond to the medicines, will you definitely still need a liver transplant say if you have PBC for 30-40 years? How much does Urso...

With having PBC, if you respond to the medicines, will you definitely still need...

Ablack98

•4 years ago

14 Replies

Tired every afternoon

Lately I’ve been feeling very tired every mid afternoon more so than I ever have I’m wondering is this the PBC and just a natural progression. I was diagnosed...

Lately I’ve been feeling very tired every mid afternoon more so than I ever have...

Odieweb

•4 years ago

13 Replies

NAC

Is anyone using the supplement NAC with Urso and seeing good results?

Susn

•4 years ago

3 Replies

Work

Had meeting at work today as been on sick for 8 weeks I'm a support worker so finding my shift pattern difficult so I've asked to do 2 shifts then have a day...

Had meeting at work today as been on sick for 8 weeks I'm a support worker so fi...

Purdy2017

•4 years ago

2 Replies

Pbc

Has anyone got the overlap syndrome and how does it affect you day to day. I'm getting tested for this

Has anyone got the overlap syndrome and how does it affect you day to day. I'm g...

janine541

•4 years ago

6 Replies

Pbc

Has anyone suffered sickness and not able to eat greasy foods . Or meat I feel physically I'll putting it to my mouth

Has anyone suffered sickness and not able to eat greasy foods . Or meat I feel p...

janine541

•4 years ago

4 Replies

Joints and stuff

Hi can I ask if anyone has trouble with muscle and joints aches and pains. When first diagnosed I did have aches and pain but recently and especially today I...

Hi can I ask if anyone has trouble with muscle and joints aches and pains. When...

Alley27

•4 years ago

10 Replies

Good morning

Good morning everyone hope you are all keeping well. Three weeks in on mercaptopurin and interestingly, no nausea because of this medication, but it never...

Good morning everyone hope you are all keeping well. Three weeks in on mercapto...

Alley27

•4 years ago

3 Replies

Pbc and Australia

Hi has anyone with PBC ever successfully managed to emigrate to Australia from UK? I am on trial at QE and wondered if anyone knew of some sort of reciprocal...

Hi has anyone with PBC ever successfully managed to emigrate to Australia from U...

TOMOLLIE

•4 years ago

3 Replies

Playing Catch Up

Good Morning! I have not been able to see updated posts for 6 days. I finally deleted and reinstalled HU and it worked. I had notifications of replies but was...

Good Morning! I have not been able to see updated posts for 6 days. I finally d...

gwillistexas

•4 years ago

2 Replies

Pbc

Hi every body hope all are ok Has anybody after a few years still got high alt and alp s Mine are 303 alt and 244 alp

Hi every body hope all are ok Has anybody after a few years still got high alt ...

janine541

•4 years ago

23 Replies

Capsules

Walmart changed my capsules from Watson to KVK-Tech. They are pink and white with K-237 on them. Is anyone else taking these? If so any problems ? I had been...

Walmart changed my capsules from Watson to KVK-Tech. They are pink and white wit...

Twojer

•4 years ago

7 Replies

Back to diagnosed!

Now after about more than two years, at last back to officially diagnosed with PBC but no medications fore me since I get very bad rashes from Ursofalk. It is...

Now after about more than two years, at last back to officially diagnosed with P...

Evaibrahim60

•4 years ago

11 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for September 2020

Pbc

Alkaline phosphate

Small intestinal bacterial overgrowth (SIBO) impacts with PBC ?

Pbc/aih symptoms

PBC and C19

Biopsy complication

Good news for me😍

Elevated ALP, GGT and Ferritin

PBC and progression

Tired every afternoon

NAC

Work

Pbc

Pbc

Joints and stuff

Good morning

Pbc and Australia

Playing Catch Up

Pbc

Capsules

Back to diagnosed!

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