Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,389 members • 7,995 posts

All posts for September 2022

Hypertrophy of segment 1 of the liver.

Hello, I have been diagnosted with PBC in 2018 and I am treated with ursodiol 500mg 3 x a day. 10 days ago I had a CT scan with injection for a suspected...

Hello, I have been diagnosted with PBC in 2018 and I am treated with ursodiol 5...

Ancolie

•2 years ago

7 Replies

PBC/AIH1 Positive

Just as I was wrapping my head around my April PBC diagnosis and taking Urso (which does seem to me improving my liver enzyme levels) a liver biopsy also...

Just as I was wrapping my head around my April PBC diagnosis and taking Urso (wh...

lovesoccer

•2 years ago

7 Replies

hair thinning and brakeing

hi I’ve been on urso for 9months now and my hair seems too be so thin has anybody else had this problem with urso? If so can anybody recommend anything too...

hi I’ve been on urso for 9months now and my hair seems too be so thin has anybod...

Lena2011

•2 years ago

20 Replies

Want to take advantage of all our features? Just log in!

B and O type Blood and Alkaline Phosphatase and Labs have different ULN

I just started Urso last month, and had blood work done last week, the other enzymes dropped a lot to normal range, but Alkaline Phosphatase is still higher...

I just started Urso last month, and had blood work done last week, the other enz...

Gmama2

•2 years ago

12 Replies

PBC and Doctor Berkson Protocol

Hi, new to PBC and wondering how those of you who have tried it are doing? I am also looking for a conventional doctor who is open minded to this kind of...

Hi, new to PBC and wondering how those of you who have tried it are doing? I am ...

Stamatiki

•2 years ago

3 Replies

Teeth issues

I’ve been on Yrso since 2019 and doing well on it. I also had 39 pelvic radiation treatments in 2016 for cancer. I know that radiation basically destroys your...

I’ve been on Yrso since 2019 and doing well on it. I also had 39 pelvic radiatio...

FurbabyMama

•2 years ago

9 Replies

Hi everyone

hi everyone how often should you see your consultant for pbc as its been over 2 years ?

hi everyone how often should you see your consultant for pbc as its been over 2 ...

Purdy2017

•2 years ago

20 Replies

Cramps , diarrhoea and stomach discomfort

I was diagnosed in 2017 being on URSO, so far so good, my lft’s pretty ok , Fibroscan is now 9,3 from 5,8 . My doctor has prescribed me Atorvastatin 20 mg...

I was diagnosed in 2017 being on URSO, so far so good, my lft’s pretty ok , Fib...

ritarobainapbc

•2 years ago

4 Replies

imuran

I have been on Imuran 50mg for over 3 years and will be on it another 2 for autoimmune hepatitis. I also have PBC and take ursodiol for that. Imuran has...

I have been on Imuran 50mg for over 3 years and will be on it another 2 for auto...

JJBae

•2 years ago

5 Replies

imuran /Azathioprine

i’ve been started on Imuran/Azathioprine, for arthritis. I will have to be monitored closely, with labs due to my PBC. I was wondering if anyone else had...

i’ve been started on Imuran/Azathioprine, for arthritis. I will have to be moni...

LorraineLouise

•2 years ago

4 Replies

COVID and PBC

I've had covid and it should be behind me I'm now at day 12 since testing positive. I'm feeling very tired and wondering if anyone else has experience of...

I've had covid and it should be behind me I'm now at day 12 since testing positi...

Odieweb

•2 years ago

15 Replies

how often do you have flares?

I just got over a pretty bad flare—fatigue (walking through jello), itching, bone and joint pain. Had labs, nothing major elevated but then we all know labs...

I just got over a pretty bad flare—fatigue (walking through jello), itching, bon...

CeeCee101

•2 years ago

5 Replies

ELF Test (Enhanced Liver Fibrosis)

Has anyone here had this test? I saw a different hepatologist and he ordered this lab. From what I understand, it measures 3 molecules in the liver matrix...

Has anyone here had this test? I saw a different hepatologist and he ordered th...

gwillistexas

•2 years ago

21 Replies

Methylprednisolone - PBC

Is anyone using steroids to relieve some of the symptoms of PBC , specifically low-grade fever , fatigue, and muscle ache ? Hi, my dad was diagnosed with...

Is anyone using steroids to relieve some of the symptoms of PBC , specifically l...

RishiMaini

•2 years ago

14 Replies

Hand stiffness does it go away with treatment?

I was diagnosed with PBC last month (stage 1) and started Urso. Assuming the Urso works for me, does anyone have experience with hand stiffness/pain? Did it go...

I was diagnosed with PBC last month (stage 1) and started Urso. Assuming the Urs...

Gmama2

•2 years ago

9 Replies

Bezafibrate and weight gain

I was switched to Bezafibrate when I couldn’t tolerate Urso or Ocaliva. It’s absolutely fine. However I seem to be gaining weight. Has anyone else had......

I was switched to Bezafibrate when I couldn’t tolerate Urso or Ocaliva. It’s ab...

SuziS

•2 years ago

1 Reply

How long can you go on with diarrhea?

Going into the 3rd month. Alternating clay and orange colored. 4 times a day not much notice either, usually starts with mucous leaking out, then the big...

Going into the 3rd month. Alternating clay and orange colored. 4 times a day ...

Pheebe

•2 years ago

2 Replies

Ursofalk v Cholurso

I’ve just collected my prescription and I’ve been given Cholurso. I’ve been successfully on Ursofalk since diagnosis in 2014. The active ingredients are the...

I’ve just collected my prescription and I’ve been given Cholurso. I’ve been suc...

alderstone

•2 years ago

5 Replies

jan16

anyone been diagnosed with lung cancer following liver transplant for pbc

jackk9

•2 years ago

1 Reply

I am 1/ 2yrs out from liver transplant with recurrent PBC.

Has anyone had problems with taking course of anti biotics?

Denvercarol1

•2 years ago

5 Replies

Newbie to this community - possible PBC

Evening, new to this page....I am 56 and have had nafld for as long as I can remember, was monitored yearly...earlier this year I was prescribed statins and...

Evening, new to this page....I am 56 and have had nafld for as long as I can rem...

nanashon

•2 years ago

5 Replies

Regression of Varices

Hi all, Following up on my mom's condition, she was diagnosed with PBC resulting in Cirrhosis two years ago. She was diagnosed quite late when there was...

Hi all, Following up on my mom's condition, she was diagnosed with PBC resultin...

Shon1234

•2 years ago

6 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for September 2022

Hypertrophy of segment 1 of the liver.

PBC/AIH1 Positive

hair thinning and brakeing

B and O type Blood and Alkaline Phosphatase and Labs have different ULN

PBC and Doctor Berkson Protocol

Teeth issues

Hi everyone

Cramps , diarrhoea and stomach discomfort

imuran

imuran /Azathioprine

COVID and PBC

how often do you have flares?

ELF Test (Enhanced Liver Fibrosis)

Methylprednisolone - PBC

Hand stiffness does it go away with treatment?

Bezafibrate and weight gain

How long can you go on with diarrhea?

Ursofalk v Cholurso

jan16

I am 1/ 2yrs out from liver transplant with recurrent PBC.

Newbie to this community - possible PBC

Regression of Varices

Search posts

Pinned Posts

Latest poll

Where in the world are you? Please select an option, but feel free to tell us specifically which country you are in, if you would like. No more detail than that, however. Thank you.

Topics

Archive

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for September 2022

Hypertrophy of segment 1 of the liver.

PBC/AIH1 Positive

hair thinning and brakeing

B and O type Blood and Alkaline Phosphatase and Labs have different ULN

PBC and Doctor Berkson Protocol

Teeth issues

Hi everyone

Cramps , diarrhoea and stomach discomfort

imuran

imuran /Azathioprine

COVID and PBC

how often do you have flares?

ELF Test (Enhanced Liver Fibrosis)

Methylprednisolone - PBC

Hand stiffness does it go away with treatment?

Bezafibrate and weight gain

How long can you go on with diarrhea?

Ursofalk v Cholurso

jan16

﻿I am 1/ 2yrs out from liver transplant with recurrent PBC.

Newbie to this community - possible PBC

Regression of Varices

Search posts

Pinned Posts

Latest poll

Where in the world are you? Please select an option, but feel free to tell us specifically which country you are in, if you would like. No more detail than that, however. Thank you.

Topics

Archive

I am 1/ 2yrs out from liver transplant with recurrent PBC.