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PBC Foundation

9,389 members • 7,994 posts

All posts for September 2015

Non responder/clinical trial

Hello everyone, 2 issues I'd appreciate help on please. I saw the consultant on Monday who confirmed I am a non responder to urso. He stated i am a long way...

Hello everyone, 2 issues I'd appreciate help on please. I saw the consultant on ...

Rosie2410

•9 years ago

12 Replies

Upset and confused 😭

Today I have been to see the consultant again and he has told me the result of my mri scan is normal and therefore he cannot offer me a diagnosis. He did...

Today I have been to see the consultant again and he has told me the result of m...

Happy43

•9 years ago

14 Replies

Help! I'm feeling drunk all the time.

I've been feeling drunk for the past 2 days now, after drinking quite a lot in a party I was having. now I just can't focus and I'm trying to search on google...

I've been feeling drunk for the past 2 days now, after drinking quite a lot in a...

user2016

•9 years ago

4 Replies

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Questions?

I have been reading as much as I can about PBC but still have questions. I have osteoarthritis pretty bad for few years now and have had 4 surgeries for carpal...

I have been reading as much as I can about PBC but still have questions. I have ...

Lisa15

•9 years ago

3 Replies

pbc

hi everyone,went to see my consultant and hes confirmed pbc,anyway has anyone claimed dla with this condition? i also have fibro and recieving dla for low...

hi everyone,went to see my consultant and hes confirmed pbc,anyway has anyone cl...

hay65

•9 years ago

6 Replies

Received letter to make appointment to see my gp after kidney scan?

Hi, been suffering from renal colic and was sent for a ultrasound scan. Was in long and asked if she could see any stones and she said no and I'd likely passed...

Hi, been suffering from renal colic and was sent for a ultrasound scan. Was in l...

ikandee

•9 years ago

3 Replies

Tribunal for ESA

Hi, I have after 16 months been diagnosed with possible ME/CFS. I have appealed the DWP as they have deemed me fit to work, therefore I'm currently on JSA. I...

Hi, I have after 16 months been diagnosed with possible ME/CFS. I have appealed ...

14021975

•9 years ago

2 Replies

kathleen

have pain in right side going into back what could be?

paulamckay1

•9 years ago

1 Reply

Severe pain

Hi peeps, hope today finds everyone ok, I just wanting rack your brains for those of you suffer from pbc like I do. The past week has been hell, and ive had...

Hi peeps, hope today finds everyone ok, I just wanting rack your brains for thos...

fluffpuff64

•9 years ago

5 Replies

Test results

I went back to specialist today for my liver biopsy results. I have PBC stage 1-2 and was put on urso twice a day. I have to go for an ultrasound next month...

I went back to specialist today for my liver biopsy results. I have PBC stage 1-...

Lisa15

•9 years ago

3 Replies

Please help, ESA claim Apr 2014, medical Apr 2015, Tribunal win Sept 2015, confusion over back pay.

Wondering if anyone can help, I was originally on ESA back in 2013 in the Wragby group to which I had the usual medical in April 2014 which I failed on 12...

Wondering if anyone can help, I was originally on ESA back in 2013 in the Wragby...

Serenityx

•9 years ago

5 Replies

New PBC Education site

Just came across this on Facebook tonight. Might be of interest to some. Appears to be new but notice they are unfortunately still using the old name:...

Just came across this on Facebook tonight. Might be of interest to some. Appears...

LisaC22

•9 years ago

7 Replies

Dark patches all over my face

Has anyone else with pbc have these awful brown patches on face they are more noticeable around my eye area if so is there anything to get right of them cream...

Has anyone else with pbc have these awful brown patches on face they are more no...

Kimmy1972

•9 years ago

18 Replies

Cure for Hot Flushes?

I've been taking milled Flaxseed now for 3 months and my severe hot flushes have stopped completely, not a single flush or sweat for 3 whole months! I'm not...

I've been taking milled Flaxseed now for 3 months and my severe hot flushes have...

badpiglet

•9 years ago

5 Replies

Hi I have just been diagnosed with pbc

Hi I am 43 with 2 children and have just been diagnosed with pbc I feel so worried and frightened did any one else feel like that x

Hi I am 43 with 2 children and have just been diagnosed with pbc I feel so worri...

Kimmy1972

•9 years ago

17 Replies

hi every one,is anyone out there a non responding,AMA/210 POSITIVE PBCer?

would be grateful for more information if anyone can help please,thankyou denise xx

would be grateful for more information if anyone can help please,thankyou denise...

denise1

•9 years ago

5 Replies

PTSD with autoimmune disease in family

I have PTSD and I have for the last year been having really weird symptoms, chronic ear infections treated with antihistamines and antibiotics. It still keeps...

I have PTSD and I have for the last year been having really weird symptoms, chro...

Jjd421

•9 years ago

7 Replies

Not a nice subject but need answers

I stopped steroids 2 weeks ago since I have had an asthma attack, a chest infection and now 2 lots of antibiotics, and this morning had chest xray; but besides...

I stopped steroids 2 weeks ago since I have had an asthma attack, a chest infect...

Alley27

•9 years ago

7 Replies

Phosphates

Hi Just had blood test and told results were borderline. Ggt up and phosphares up, although better than last test. Phosphates down from 225 to 187. Can anyone...

Hi Just had blood test and told results were borderline. Ggt up and phosphares u...

emerich

•9 years ago

5 Replies

Shingles!!!!

Hi everybody Here I am into the second week of shingles, so painful, I am taking 3 lots of tablets and cream, I have booked to see my doctor to ask for...

Hi everybody Here I am into the second week of shingles, so painful, I am takin...

Sandie1

•9 years ago

5 Replies

pneumonia vaccination

Hello, went into surgery for routine blood tests to be told I was eligible for pneumonia vaccination (one off) as well as for flu (this in UK ) This was new...

Hello, went into surgery for routine blood tests to be told I was eligible for ...

Wispa123

•9 years ago

14 Replies

Hi everyone,

Please could anyone explain what the figure of 552 means with regards to my recent alp-1 test? Thankyou x

Please could anyone explain what the figure of 552 means with regards to my rece...

denise1

•9 years ago

2 Replies

GP

Went to see GP today regarding several things related to PBC. Told that all symptoms pertaining to this should be dealt with by my Hepatology Consultant....

Went to see GP today regarding several things related to PBC. Told that all sym...

Mary48

•9 years ago

14 Replies

FDA Grants Priority Review for Intercept's Obeticholic Acid for the Treatment of Primary Biliary Cirrhosis. See link below

ir.interceptpharma.com/releasedetail.cfm?ReleaseID=929359

Karaliz

•9 years ago

12 Replies

PBC Awareness Day Sep.13

Thought some of you might like this!

Zelda5

•9 years ago

10 Replies

Update on Me, Cancer, and PBC

Wanted to give you an update on my condition. I had my Total Thyroidectomy on June 11 and the surgery went pretty well. I didn't have to have the radiation...

Wanted to give you an update on my condition. I had my Total Thyroidectomy on J...

NotorDJP

•9 years ago

7 Replies

Thank-you

Thank-you everybody for your reply, I still feel confused. I am going to my doctors tomorrow as I think I have Shingles !!! My doctor is away so I am seeing...

Thank-you everybody for your reply, I still feel confused. I am going to my doct...

Sandie1

•9 years ago

Be the first to reply

pbc new name. cholangitis.

It will be interesting to see how the insurance companies deal with the new name. Will it bring the cost down? or will they just carry on with the same price...

It will be interesting to see how the insurance companies deal with the new name...

casapino5-3

•9 years ago

5 Replies

International PBC Day 2015

International PBC Day 2015 is Sunday 13th Sept, 2015. Our theme this year is Movement as Medicine. With this in mind, we are encouraging our members, their...

International PBC Day 2015 is Sunday 13th Sept, 2015. Our theme this year is Mov...

PBCFoundation

PBC Foundation•9 years ago

2 Replies

Compendium Poll

The PBC Foundation are looking for your thoughts to having our new compendium, Living with PBC in an app version. Your thoughts are important to us, with this...

The PBC Foundation are looking for your thoughts to having our new compendium, L...

PBCFoundation

PBC Foundation•9 years ago

7 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for September 2015

Non responder/clinical trial

Upset and confused 😭

Help! I'm feeling drunk all the time.

Questions?

pbc

Received letter to make appointment to see my gp after kidney scan?

Tribunal for ESA

kathleen

Severe pain

Test results

Please help, ESA claim Apr 2014, medical Apr 2015, Tribunal win Sept 2015, confusion over back pay.

New PBC Education site

Dark patches all over my face

Cure for Hot Flushes?

Hi I have just been diagnosed with pbc

hi every one,is anyone out there a non responding,AMA/210 POSITIVE PBCer?

PTSD with autoimmune disease in family

Not a nice subject but need answers

Phosphates

Shingles!!!!

pneumonia vaccination

Hi everyone,

GP

FDA Grants Priority Review for Intercept's Obeticholic Acid for the Treatment of Primary Biliary Cirrhosis. See link below

PBC Awareness Day Sep.13

Update on Me, Cancer, and PBC

Thank-you

pbc new name. cholangitis.

International PBC Day 2015

Compendium Poll

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