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PBC Foundation

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All posts for August 2016

Had an endoscopy for varices banding and have pressure in chest and throat

Anyone had the above? I think it might be just the air they pumped in but haven't had this before

Anyone had the above? I think it might be just the air they pumped in but haven'...

bobbycat

•8 years ago

3 Replies

To be blunt - constipation

Hey. Can't seem to lose weight no matter what I do. I'm in slimming world and if I eat too much I feel too full and don't want to eat but the more I eat of...

Hey. Can't seem to lose weight no matter what I do. I'm in slimming world and if...

kingerm

•8 years ago

4 Replies

Bloatedness

Been taking Questran for almost two months now and it has worked a treat with my itch, I feel like a different person. Only downside is that I am now...

Been taking Questran for almost two months now and it has worked a treat with my...

jayneypickles

•8 years ago

8 Replies

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Pbc cirhossis and restless legs..advice please

Hi all I have now developed restless legs at night..came on about two weeks ago and is keeping me awake nearly all night, that coupled with my diagnosis of...

Hi all I have now developed restless legs at night..came on about two weeks ago ...

bobbycat

•8 years ago

13 Replies

side effects of having PBC

Hi, I have only had PBC for about 6 months and have done a lot of reading up on this but i would like see if anyone can help with symptoms that i seem to be...

Hi, I have only had PBC for about 6 months and have done a lot of reading up on ...

tinajohnston

•8 years ago

10 Replies

Flu jab

Hi everyone I hope you are having a good day today. I was diagnosed with pbc in early July and I am currently adjusting to taking Urso. I have an appointment...

Hi everyone I hope you are having a good day today. I was diagnosed with pbc in ...

jemlola

•8 years ago

13 Replies

Falling down for no and don't know why

hi, im a 54 yr old female with many physical issues. but the latest is falling down and drs don't understand why yet,,going to see my neurologist who treats me...

hi, im a 54 yr old female with many physical issues. but the latest is falling d...

tookie62

•8 years ago

2 Replies

Digestive Problems?

Hi - I know that having PBC means also having digestive problems - but lately they've been horrible! I was diagnosed with IBS almost 20 years ago, but haven't...

Hi - I know that having PBC means also having digestive problems - but lately th...

Becca75

•8 years ago

24 Replies

PIP tribunal

Oh well, here goes. I was on high care rate DLA for 10 yrs, now they have awarded me just 7 points. Doesn't matter that I have R.A, PBC, Raynauds,...

Oh well, here goes. I was on high care rate DLA for 10 yrs, now they have awarde...

Hidden

•8 years ago

4 Replies

Jackie - new member

Hi. Was thought to have PBC back in 2005 but nobody followed it up. After having further regular blood tests a couple of years back PBC was immediately...

Hi. Was thought to have PBC back in 2005 but nobody followed it up. After having...

Mollymoo50

•8 years ago

6 Replies

Information on pbc

New to this site. Recently diagnosed with stage 1 pbc.

Jlee1912

•8 years ago

6 Replies

Struggling with swelling feet and legs?

I was diagnosed with PBC, and a liver biopsy shortly after found cirrohossis. I have been following a low fat, low salt 1200 calorie diet. A week into it, i...

I was diagnosed with PBC, and a liver biopsy shortly after found cirrohossis. I ...

gmo3352

•8 years ago

7 Replies

Update: platelets dangerously low

I posted Thursday I had blood work after being on Ursodiol for one month. Platelets were 11000, should be above 150000. Was put in the hospital. They took...

I posted Thursday I had blood work after being on Ursodiol for one month. Plate...

KansasJan

•8 years ago

5 Replies

Bleeds & shunts

Hi there I'm new here and have been busy reading posts & thought I'd share some of my concerns too. I was diagnosed with pbc July 2015. In August it was...

Hi there I'm new here and have been busy reading posts & thought I'd share some ...

Moopie

•8 years ago

16 Replies

Feeling good!

Just like to say I have been diagnosed with pbc since June. Have been taking urso 1000mg a day.in the last week or so I have felt really good.my bowels have...

Just like to say I have been diagnosed with pbc since June. Have been taking urs...

Lcagar63

•8 years ago

3 Replies

Is anyone on the new drug Ocaliva?

I went to my doctor today and he was very excited to tell me about this new drug Ocaliva for PBC that got FDA approved at the end of May and available since...

I went to my doctor today and he was very excited to tell me about this new drug...

Pea1234

•8 years ago

4 Replies

Platelet count dangerously low

I have been on Ursodiol for a month. Doctor wanted me to have blood work after one month so went this morning for blood work. Nurse called and my platelet...

I have been on Ursodiol for a month. Doctor wanted me to have blood work after ...

KansasJan

•8 years ago

3 Replies

Hair loss with PBC anyone else?

Hair loss with PBC anyone else experience this ?

Michiganpbc

•8 years ago

13 Replies

Wondering..

I was diagnosed with PBC in 2010 only from having found ama in my blood. I have read a few things that state there should be more than only one indication to...

I was diagnosed with PBC in 2010 only from having found ama in my blood. I have ...

Dawnmarieg

•8 years ago

4 Replies

Finally saw the liver specialist

Hi all, So 2 years after testing positive for AMA's and ANA's I finally saw the liver specialist. I have a lot of symptoms and am undera gastro, neuro,...

Hi all, So 2 years after testing positive for AMA's and ANA's I finally saw th...

Lauralee851

•8 years ago

3 Replies

Whats gonna happen next?

Okay so last month i tested positive on my AMA levels. I was recently sent to a rheumatologist from my g.i dr and the rheumatologist ordered me to be checked...

Okay so last month i tested positive on my AMA levels. I was recently sent to a ...

nessarose714

•8 years ago

7 Replies

Neck pain

Hi all Can I ask does anyone get Nick pain sorry to be a pain!!

Cherry69

•8 years ago

4 Replies

More news :(

Another letter from consultant. I do have the AMA M2 antibody but doesn't feel my lft are raised to be of concern. So do have PBC but at early stage. Now...

Another letter from consultant. I do have the AMA M2 antibody but doesn't feel m...

Chazzy

•8 years ago

14 Replies

Living with pbc and under active thyroid and hopefully nothing else!!!!

I am a 53 year old woman from London.was feeling ill for over 2 years. Feeling tired washed out depressed and angry. A routine hospital appointment picked up...

I am a 53 year old woman from London.was feeling ill for over 2 years. Feeling t...

Lcagar63

•8 years ago

6 Replies

Confused

I was diagnosed with PBC last year been taking ursofalk twice daily. Anyway after 4 cancelled appointments I got to see him today got really confused I told...

I was diagnosed with PBC last year been taking ursofalk twice daily. Anyway afte...

Dese

•8 years ago

18 Replies

Weight gain

Hi I was diagnosed with pbc in June but been on ursofalk since April in June my dose was higered to 500mg twice a dau and I weighed 10 stone but since then my...

Hi I was diagnosed with pbc in June but been on ursofalk since April in June my ...

Lilbear89

•8 years ago

2 Replies

Diagnosed with PBC, July 2016

After having elevated enzymes for at least a year and a half, I saw a liver specialist on July 6th. I was leaving for a three week vacation in Hawaii the next...

After having elevated enzymes for at least a year and a half, I saw a liver spec...

KansasJan

•8 years ago

4 Replies

Would like to hear from members who have pbc with cirhossis

Hi I really would like to chat with someone who has cirrhosis. I have been diagnosed with cirrhosis after 20 years with PBC .......unfortunately it has come...

Hi I really would like to chat with someone who has cirrhosis. I have been diag...

Bobbycat12

•8 years ago

16 Replies

Finally have a diagnosis.

I Had my biopsy on June 28th and it was an awful experience, the Dr apparently did not take a big enough piece and although they can confirm that it is pbc...

I Had my biopsy on June 28th and it was an awful experience, the Dr apparently ...

AllieCraw

•8 years ago

15 Replies

Been MIA but I'm back

Hi everyone, Sorry for not being around much. My son and I had our Disneyland Vacation (it was beyond amazing) and since we've been back I've just been...

Hi everyone, Sorry for not being around much. My son and I had our Disneyland V...

Becca75

•8 years ago

14 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for August 2016

Had an endoscopy for varices banding and have pressure in chest and throat

To be blunt - constipation

Bloatedness

Pbc cirhossis and restless legs..advice please

side effects of having PBC

Flu jab

Falling down for no and don't know why

Digestive Problems?

PIP tribunal

Jackie - new member

Information on pbc

Struggling with swelling feet and legs?

Update: platelets dangerously low

Bleeds & shunts

Feeling good!

Is anyone on the new drug Ocaliva?

Platelet count dangerously low

Hair loss with PBC anyone else?

Wondering..

Finally saw the liver specialist

Whats gonna happen next?

Neck pain

More news :(

Living with pbc and under active thyroid and hopefully nothing else!!!!

Confused

Weight gain

Diagnosed with PBC, July 2016

Would like to hear from members who have pbc with cirhossis

Finally have a diagnosis.

Been MIA but I'm back

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