Posts - PBC Foundation | HealthUnlocked

Administrator•2 months ago

Hi just had my 6 months US Scan the report says Prominent Vessels in Hilum Spleen size 19 .3 not heard from Consultant from Q E since Scan in January 2024...

Prominent Vessels

Hi just had my 6 months US Scan the report says Prominent Vessels in Hilum Spl...

Archie2234

•2 months ago

1 Reply

Rare Disease Day 2024

Rare Disease Day

PhyllisL

•2 months ago

1 Reply

Want to take advantage of all our features? Just log in!

It's Rare Disease Day!

We all share a disease that so few know about. We all have a responsibility to ourselves and to others to let them know what we face each and every day....

We all share a disease that so few know about. We all have a responsibility to o...

Administrator•2 months ago

What were your initial reactions after your diagnosis?

Thursday Thoughts

New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon...

Administrator•2 months ago

19 Replies

Hope for the future

New research into autoimmune liver condition suggests unique cell movements ma...

So…after my recent diagnosis last fall I posted a short description from the liver foundation in Canada and attached it to a pic and posted it to Facebooks so...

Administrator•2 months ago

8 Replies

Rare???? What are these chances?

So…after my recent diagnosis last fall I posted a short description from the liv...

Gaspereaux

•2 months ago

6 Replies

Wednesday Words

The words this week I want to define are alkaline phosphatase. Alkaline phosphatase (ALP) is an enzyme that is released by the bile ducts...

The words this week I want to define are alkaline phosphatase. Alkaline phospha...

Administrator•2 months ago

Rare Disease Day is this Thursday The theme this year is #lightupforrare check out the website What is a rare disease? - Rare Disease Day 2024 The PBC...

Rare Disease Day participation

Rare Disease Day is this Thursday The theme this year is #lightupforrare check o...

Administrator•2 months ago

In the article that was posted below, I know this is not something many of us want to face at anytime in our PBC journey. This is, however, a reality for some...

all aspects of liver research

In the article that was posted below, I know this is not something many of us wa...

Administrator•2 months ago

What general piece of advice would you give to a newly diagnosed member?

Tuesday 'Tips'

In my message on Monday I shared with you that I wanted to post a thought provoking question/message on certain days of the week. I'm hoping that your posts...

Administrator•2 months ago

12 Replies

Questions of the Day ....

In my message on Monday I shared with you that I wanted to post a thought provok...

https://healthunlocked.com/redirect?url=https%3A%2F%2Fl.facebook.com%2Fl.php%3Fu%3Dhttps%253A%252F%252Fmiami.cloud-cme.com%252Fcourse%252Fcourseoverview%253FP%2

Administrator•2 months ago

2 Replies

Upcoming Florida event

https://healthunlocked.com/redirect?url=https%3A%2F%2Fl.facebook.com%2Fl.php%3Fu...

Administrator•2 months ago

Hello everyone! Well, it’s been nearly a month since I’ve begun to facilitate this group. The very first thing I want to say is how I am overwhelmed by the...

Monday message

Hello everyone! Well, it’s been nearly a month since I’ve begun to facilitate t...

Administrator•2 months ago

https://l.facebook.com/l.php?u=https%3A%2F%2Fmiami.cloud-cme.com%2Fcourse%2Fcourseoverview%3FP%3D5%26EID%3D16463%26fbclid%3DIwAR09E61oWMHukJBTJpI7--Jot0PGTARtQW

Upcoming event in Florida

https://l.facebook.com/l.php?u=https%3A%2F%2Fmiami.cloud-cme.com%2Fcourse%2Fcour...

Hi, I have been diagnosed with pbc and overactive thyroid within the same month. I know it's common to get under active thyroid with pbc but haven't seen...

Administrator•2 months ago

5 Replies

Pbc and over active hydroid

Hi, I have been diagnosed with pbc and overactive thyroid within the same month....

Natashaw88

•2 months ago

Hello Friends, just curious what people in our group are taking urso capsules or tablets?

curious capsules or tablets

Hello Friends, just curious what people in our group are taking urso capsules or...

Samanthaann

•2 months ago

11 Replies

great news!

https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.uhn.ca%2Fcorporate%2Fnews%2Fpages%2FBreakthrough_in_managing_liver_related_autoimmune_disease.aspx%3Ffbclid%3DI

https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.uhn.ca%2Fcorporate%2Fnews%2Fpag...

Earlier today I posted the link to the PBC Foundaton's Urso calculator. There are so many posts and questions relating to Urso that I thought it was important...

Administrator•2 months ago

7 Replies

Please check!

Earlier today I posted the link to the PBC Foundaton's Urso calculator. There ar...

Administrator•2 months ago

since 2021 I’ve had high liver levels starting from alt 800 odd alp 1300 had yellow eyes! They first said I had dilli from antibiotics I had taken for a skin...

still none the wiser

since 2021 I’ve had high liver levels starting from alt 800 odd alp 1300 had yel...

Lena2011

•2 months ago

3 Replies

Urso calculator

I've asked Robert to post the image of the Urso dosage calculator here. Please make sure you are on the right dose. This is so important! Dosage is ONLY based...

I've asked Robert to post the image of the Urso dosage calculator here. Please m...

Administrator•2 months ago

Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor who recommended I start taking URSO. My bloodwork shows an elevated alk phos...

New Diagnosis of PBC and Prescribed URSO

Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor ...

Toddyboo

•2 months ago

26 Replies

Anyone?

Is there any 'self care' going on out here from anyone?

Good morning or afternoon!Another week ahead if us. I hope more of you take the time to do something for yourselves over the next 7 days. We all need to take...

Administrator•2 months ago

13 Replies

Another week

Good morning or afternoon!Another week ahead if us. I hope more of you take the ...

I was diagnosed with PBC in 2000 and am doing relatively well with PBC (just little deterioration ). I have been on Urso since.

Administrator•2 months ago

2 Replies

Has any of you with PBC taken Sulfasalazine ( for RA). If so what has been your experience.? Thank you!

I was diagnosed with PBC in 2000 and am doing relatively well with PBC (just lit...

jnblack

•2 months ago

1 Reply

PBC and nails / gel polish / acrylic

hi everyone, just a quick question.. I wondered has anyone had any issues with having their nails done with gel polish. I had to switch from gel polish to...

hi everyone, just a quick question.. I wondered has anyone had any issues with ...

Deemum

•2 months ago

8 Replies

Cholesterol question

I happened to be at a cardiologist appt the other day. I read an article there about cholesterol. Hope you can access an article in the Journal of the...

I happened to be at a cardiologist appt the other day. I read an article there a...

Administrator•2 months ago

https://l.facebook.com/l.php?u=http%3A%2F%2Fpbc-society.ca%2Fai.php%3Fcard%3Dkkj5gv%26fbclid%3DIwAR14Ybo7D_2E-gSYYtCNmFPxenFEI1Jh03LvcAYlPEnxVvPpejQoREtjSrw&h=A

common questions

https://l.facebook.com/l.php?u=http%3A%2F%2Fpbc-society.ca%2Fai.php%3Fcard%3Dkkj...

Administrator•2 months ago

So many of your posts concern the fatigue and trying to explain it to friends and family. One thing I have found helpful for myself is The Spoon Theory, If you...

It's real

So many of your posts concern the fatigue and trying to explain it to friends an...

Administrator•2 months ago

Earlier in the week, I talked about how important it was to take time to take care of yourself -not only mentally but also physically. Taking time for you! I...

Follow up on Self Care

Earlier in the week, I talked about how important it was to take time to take ca...