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PBC Foundation

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All posts for March 2017

Tamoxifen and pbc

Hi just wondered if anyone else out there is taking tamoxifen for breast cancer? Has it caused you any problems with your liver etc. I have pbc and SOD and...

Hi just wondered if anyone else out there is taking tamoxifen for breast cancer?...

Aussielouise

•7 years ago

16 Replies

dilated bile duct

Does anyone have dilated bile duct? Mine is 8 mm on the MRCP report. I wonder how bad this means. Does Urso keep it under control? --Jane

Does anyone have dilated bile duct? Mine is 8 mm on the MRCP report. I wonder ho...

JaneIng

•7 years ago

5 Replies

anyone with any info plz

i went to a different dr mine wasnt there and i figured it was ok coz i only wanted answers to some questions i had she made me feel so disrespected ill never...

i went to a different dr mine wasnt there and i figured it was ok coz i only wan...

Hidden

•7 years ago

17 Replies

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Question. Can a physical trauma bring on an episode of severe fatigue ?

I'm 63 yrs old, & although I've only been officially diagnosed with PBC two & half years ago, I believe I've had it at least 20yrs ( when a blood test carried...

I'm 63 yrs old, & although I've only been officially diagnosed with PBC two & ha...

Dieselwales

•7 years ago

8 Replies

Itchy eyelids

Hello everyone, I tested positive for AMA's in November. At the time I had elevated bilirubin and elevated liver enzymes. I had a liver biopsy and it came...

Hello everyone, I tested positive for AMA's in November. At the time I had elev...

Autumnelmore

•7 years ago

9 Replies

listing

hi all for all those that have chatted to me before i just wanted to say that I am going to be put on the transplant list its been a difficult time knowing if...

hi all for all those that have chatted to me before i just wanted to say that I ...

cazer

•7 years ago

15 Replies

Pbc/Aih

Well feel all i do is moan. Can not believe how warn out i feel. Does anyone else.

Well feel all i do is moan. Can not believe how warn out i feel. Does anyone els...

janine541

•7 years ago

5 Replies

Helping a study on ursodeoxycholic

Hi everybody. I received a letter today from a health team asking me if I would like to take part in a study to try and find out why some pbc sufferers...

Hi everybody. I received a letter today from a health team asking me if I would...

Lcagar63

•7 years ago

28 Replies

Urso side effects

Hi All, I started Urso about five/six weeks ago and have been feeling okay until the last few days. I feel very achy and with a headache. Has anyone...

Hi All, I started Urso about five/six weeks ago and have been feeling okay unti...

youaremysunshine

•7 years ago

13 Replies

Feelings of sadness with pbc stage 4

Hi all Lately I have been feeling sad and angry about having cirhossis. My last endoscopy showed varices were hardly visable so no banding needed and no...

Hi all Lately I have been feeling sad and angry about having cirhossis. My last...

bobbycat

•7 years ago

26 Replies

Blood work ??

F Mitochondrial (M2) Antibody 3.3 Is this positive or negitive

Lynnette-G

•7 years ago

3 Replies

No sugar diet for pbc?

I've been looking into which foods i should be eating / avoiding for liver benefit, I'm thinking about going sugar free again (I did cut out sugar years ago...

I've been looking into which foods i should be eating / avoiding for liver benef...

Harley2016

•7 years ago

35 Replies

Pbc/Aih

I would love to be able to explain to people and family how tired i feel without the constant battle of being asked to go here and there. Io work all week and...

I would love to be able to explain to people and family how tired i feel without...

janine541

•7 years ago

10 Replies

My wife update

Hello, I wanted to thank everyone who took the time to answer my first post (titled my wife) it made such a difference knowing people cared and had good advice...

Hello, I wanted to thank everyone who took the time to answer my first post (tit...

Mark01823

•7 years ago

14 Replies

PBC or Something Else?

Hi, all, it’s been 4+ years since my puzzling illness. I wonder if anyone here has similar experience before the PBC diagnosis. It all started with multiple...

Hi, all, it’s been 4+ years since my puzzling illness. I wonder if anyone here h...

JaneIng

•7 years ago

2 Replies

NEW TONIGHT X

I'M NEW HERE TONIGHT... FEELING SLIGHTLY SCARED ABOUT THE NEW DIAGNOSES OF PBC MY CONSULTANT TOLD ME ITS NOT SERIOUS BUT I'M READING SERIOUS STUFF!!

I'M NEW HERE TONIGHT... FEELING SLIGHTLY SCARED ABOUT THE NEW DIAGNOSES OF PBC ...

wendychalmers

•7 years ago

5 Replies

Fibroscan

Has anyone ever had a Fibroscan test that was wrong? Mine puts me in stage 4.

Hidden

•7 years ago

8 Replies

Living while waiting for the other shoe to drop!

Diagnosed 6 months ago after 7 years of "unusual" liver tests. My primary ordered the AMA test on the advice of his partner but admitted that I'd have to see...

Diagnosed 6 months ago after 7 years of "unusual" liver tests. My primary ordere...

ILik3Pizza

•7 years ago

1 Reply

I really need some advice

A year ago I was referred to gastroenterologist by my rhematologist as he suspected I could have PBC. Waited 4/5 months (Sept 2016) for appointment. Was...

A year ago I was referred to gastroenterologist by my rhematologist as he susp...

bullett

•7 years ago

12 Replies

PBC and liver function tests

Hi all. I was diagnosed with PBC 18 months ago. When I had my first consultation my liver function came in at over 1000. After my Dr took it upon himself to...

Hi all. I was diagnosed with PBC 18 months ago. When I had my first consultation...

Fifibee11

•7 years ago

22 Replies

PBC Webinars

The next one is Tue 3pm UK time (remember clocks go forward in UK on Sun so time may chanmge internationally) and is on Emotional Self-management. I just...

The next one is Tue 3pm UK time (remember clocks go forward in UK on Sun so time...

PBCRobert

Partner•7 years ago

6 Replies

Urso results

Hello All, So I've been on Urso ~4 months now since being diagnosed with stage 1 PBC and got my bloods done myself at work and I'm soon scheduled for my 6...

Hello All, So I've been on Urso ~4 months now since being diagnosed with stage ...

Emer1986

•7 years ago

2 Replies

Pbc and SOD?

Hi. Does anyone have sphincter of oddi dysfunction as well as pbc?

Aussielouise

•7 years ago

20 Replies

Feeling bloated

Hello all, Just wondered if anyone suffers from feeling bloated after eating and whether certain foods trigger it? I tend to notice these symptoms if I've had...

Hello all, Just wondered if anyone suffers from feeling bloated after eating and...

happy-days71

•7 years ago

10 Replies

Trouble with vision.

hey folks. I've found I'm having trouble with my vision in the last week or so. Everything is a bit blurry and one eye seems to be affected more than the...

hey folks. I've found I'm having trouble with my vision in the last week or so....

Angel_b

•7 years ago

17 Replies

Next Webinar: PBC Q&A

Today, 3pm UK time. I have limited access so can't copy and paste the link but it is on my post about all of the webinars. We hope to see you then.

Today, 3pm UK time. I have limited access so can't copy and paste the link but ...

PBCRobert

Partner•7 years ago

Be the first to reply

MITOCHONDRIAL AB, M2 ELEVATED

Hi, I am a 51 year old male and for the second time my Mitochondrial AB, M2 score has been elevated - both times around 30. The test report says: "Positive...

Hi, I am a 51 year old male and for the second time my Mitochondrial AB, M2 scor...

EvanB

•7 years ago

15 Replies

Just wondering.

Hello there. Recently I had dreadful itching. It was extensive and lead to a rash all over my body. The Dr did bloods and I came up as AMA pos. I've had great...

Hello there. Recently I had dreadful itching. It was extensive and lead to a ras...

cath1917

•7 years ago

6 Replies

Test for alpha fetoprotein

Hi all. When I last visited KCH for a 6 monthly consult the doctor ordered a load of blood tests (naturally). I just tend to wait for the results and see how...

Hi all. When I last visited KCH for a 6 monthly consult the doctor ordered a lo...

AdeleMalcolm

•7 years ago

15 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for March 2017

Tamoxifen and pbc

dilated bile duct

anyone with any info plz

Question. Can a physical trauma bring on an episode of severe fatigue ?

Itchy eyelids

listing

Pbc/Aih

Helping a study on ursodeoxycholic

Urso side effects

Feelings of sadness with pbc stage 4

Blood work ??

No sugar diet for pbc?

Pbc/Aih

My wife update

PBC or Something Else?

NEW TONIGHT X

Fibroscan

Living while waiting for the other shoe to drop!

I really need some advice

PBC and liver function tests

PBC Webinars

More questions than answers

Urso results

Pbc and SOD?

Feeling bloated

Trouble with vision.

Next Webinar: PBC Q&A

MITOCHONDRIAL AB, M2 ELEVATED

Just wondering.

Test for alpha fetoprotein

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