Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,383 members • 7,980 posts

All posts for March 2020

Every single day

4pm UK time. We are having a light chat on facebook live. We have chatted nonsense; had a quiz; explored “The Invitation”, a poem by Oriah Mountain Dreamer;...

4pm UK time. We are having a light chat on facebook live. We have chatted non...

PBCRobert

Partner•4 years ago

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Pbc

Thankyou to all who applied take care x

Purdy2017

•4 years ago

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Kindness

Hey everyone, just wanted to say I’m feeling a bit ‘down’ after the recent events of the day. I’m sure things will sort themselves out. In the meantime, please...

Hey everyone, just wanted to say I’m feeling a bit ‘down’ after the recent event...

P13jne

•4 years ago

12 Replies

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Risks from Corvid19

Does PBC put us more at risk from the Corvid19 . Also is URSO an immunosuppressant.

Does PBC put us more at risk from the Corvid19 . Also is URSO an immunosuppressa...

Philippastcarin

•4 years ago

6 Replies

Can’t turn on location on iPhone

Guys why are my location services turned off on my iPhone. Someone high up turned it off

Guys why are my location services turned off on my iPhone. Someone high up turne...

Kushwaffles

•4 years ago

2 Replies

Pbc

Hi help are we going to be getting letters to self isolate whith pbc

Purdy2017

•4 years ago

17 Replies

Do I need to self isolate with pbc

Deaks

•4 years ago

7 Replies

Neglected you all

Hi everyone I’m so sorry I’ve not been on very much lately. I’m such a poor pen friend to you all. 😔 I hope you’re all coping with the complete madness that’s...

Hi everyone I’m so sorry I’ve not been on very much lately. I’m such a poor pen ...

P13jne

•4 years ago

6 Replies

COVID-19 Statement 18 March 2020

For those of you who are not using our website or facebook page, here is a link to the latest statement from our Medical Advisory Board....

For those of you who are not using our website or facebook page, here is a link ...

PBCRobert

Partner•4 years ago

24 Replies

Cold or something else.

Hi everyone I need to ask an opinion. I know none of us are medically qualified but...I have a cold, I have headache and a sometimes runny nose. I don't have...

Hi everyone I need to ask an opinion. I know none of us are medically qualified ...

Alley27

•4 years ago

9 Replies

PBC & Corona risks

I have PBC I’m 51 stage 2-3 6 years ago. I’m a nurse and now feel like it’s time to get out of the industry with corona virus. Does having PBC increase risks?

I have PBC I’m 51 stage 2-3 6 years ago. I’m a nurse and now feel like it’s time...

Jjune23

•4 years ago

2 Replies

Coronovirus

Should we be self isolating?

BabyK

•4 years ago

3 Replies

Coronavirus

Are we at a higher risk with PBC?

Milestone7

•4 years ago

14 Replies

Pain reliever

What otc pain reliever can you take with PBC Advil, Tylenol, or Aleve?

Milestone7

•4 years ago

16 Replies

Urso and putting weight on

Hi, I was diagnosed with pbc September 2018 I was given Urso 1x4 times daily, I have noticed since being on this medication that I have put on a stone in...

Hi, I was diagnosed with pbc September 2018 I was given Urso 1x4 times daily, I ...

Chickadee69

•4 years ago

8 Replies

Coronoviris

Are people with pbc at a higher risk of catching the coronovirus?

BabyK

•4 years ago

7 Replies

Is it ok to take iron supplements with PBC?

My gastroenterologist diagnosed PBC in 2016 and has not given me any other information about how to take care of myself other than be careful with supplements....

My gastroenterologist diagnosed PBC in 2016 and has not given me any other infor...

KristinCC

•4 years ago

53 Replies

Corona virus

Are we with pBC at risk if we get Corona virus?

SharonM69

•4 years ago

31 Replies

Journal of Gastroenterology about Bezafibrate

PBC-ers who want to stay informed with new articles about the promising Bezafibrate, please check:...

PBC-ers who want to stay informed with new articles about the promising Bezafibr...

gardenfun

•4 years ago

3 Replies

Bezafibrat only under supervision

Dear pbc-community, Please note that you should take Bezafibrat only under supervision of your labs. And never take Statines und Fibrates together, as this can...

Dear pbc-community, Please note that you should take Bezafibrat only under super...

gardenfun

•4 years ago

2 Replies

Referral to Haematologist

Hello, I have been diagnosed with PBC since November 2016, and been on Urso since early 2017 I saw my gastro consultant, in February this year and have...

Hello, I have been diagnosed with PBC since November 2016, and been on Urso sinc...

bullett

•4 years ago

6 Replies

Shoulders

Hi everyone hope you’re all as good as can be. Well today I went to ARI and had the steroid injection and to my utter amazement, it wasn’t too bad. What can I...

Hi everyone hope you’re all as good as can be. Well today I went to ARI and had...

P13jne

•4 years ago

7 Replies

Hair loss

My hair dresser told me that if the hair loss is due medication, it usually rights itself after 12 months. Hope this is true.

My hair dresser told me that if the hair loss is due medication, it usually righ...

Spanishnan

•4 years ago

7 Replies

Anosmia

Hi again Just wanted to share another concerns of mine with you. Have you ever lost your sense of smell?? I can barely sense any smell recently. I don’t have...

Hi again Just wanted to share another concerns of mine with you. Have you ever l...

Sona_akb

•4 years ago

8 Replies

Pain under your left breast

Hi! I have stage 4 PBC since Dec. 2017 My levels seem to be okay but I am having a lot of pain under my left breast. The doctors can't seem t o find...

Hi! I have stage 4 PBC since Dec. 2017 My levels seem to be okay but I am hav...

Kulaloke

•4 years ago

6 Replies

Biotin vs Urso

Can you take Biotin for hair loss when you take URSO ???

1155Cat

•4 years ago

34 Replies

ALP raise 😭😭😭😭😭😭😭

Hi everyone. I’m stage II pbc, diagnosed 1.5 year ago. My first ALP was 265 and went down to 133 by treatment. But in my recent lab, it jumped to 141. Also AST...

Hi everyone. I’m stage II pbc, diagnosed 1.5 year ago. My first ALP was 265 and ...

Sona_akb

•4 years ago

52 Replies

PBC exemption from ESA reassessments?

Hello all, I wondered if anyone has successfully persuaded the DWP that their PBC will not improve or go away, and therefore does not have to undergo any more...

Hello all, I wondered if anyone has successfully persuaded the DWP that their PB...

AM2016

•4 years ago

3 Replies

Liver Specialist in Seattle area?

I was diagnosed with stage 2 PBC April, 2019 and have been on Urso which is helping but recently by ALT levels were 192 and my doctor told me that was looking...

I was diagnosed with stage 2 PBC April, 2019 and have been on Urso which is help...

PacificNW

•4 years ago

13 Replies

Taking Urso first trimester of Pregnancy

Hi there, Very surprisingly we have found at 42 years old we are having a baby - not what was planned but we are happy, our last baby was 11 years ago! :-)...

Hi there, Very surprisingly we have found at 42 years old we are having a baby ...

KiwiPBC

•4 years ago

18 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for March 2020

Every single day

Pbc

Kindness

Risks from Corvid19

Can’t turn on location on iPhone

Pbc

Do I need to self isolate with pbc

Neglected you all

COVID-19 Statement 18 March 2020

Cold or something else.

PBC & Corona risks

Coronovirus

Coronavirus

Pain reliever

Urso and putting weight on

Coronoviris

Is it ok to take iron supplements with PBC?

Corona virus

Journal of Gastroenterology about Bezafibrate

Bezafibrat only under supervision

Referral to Haematologist

Shoulders

Hair loss

Anosmia

Pain under your left breast

Biotin vs Urso

ALP raise 😭😭😭😭😭😭😭

PBC exemption from ESA reassessments?

Liver Specialist in Seattle area?

Taking Urso first trimester of Pregnancy

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