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PBC Foundation

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All posts for July 2015

Fibrosis results

I have just been diagnosed with cirrhosis of the liver. Apparently due to alcohol which I am unsure of as I haven't drank alcohol now for over four years and...

I have just been diagnosed with cirrhosis of the liver. Apparently due to alcoho...

l13d

•9 years ago

6 Replies

Pain relievers

has anyone been told which pain reliever is better for us with PBC? Tylenol or Aleve? And any special dosage. I've heard that one of them can be bad for the...

has anyone been told which pain reliever is better for us with PBC? Tylenol or A...

GigiC

•9 years ago

10 Replies

Worried

Hi, I was diagnosed in 2011/12, started Urso but LFTs have never got back to normal. I've had an ultrasound which showed enlarged spleen and dilated bile...

Hi, I was diagnosed in 2011/12, started Urso but LFTs have never got back to no...

fifi61

•9 years ago

11 Replies

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Worried and Confused

I don't understand what is going on and I was hoping someone here could help. My GP told me I have PBC after several blood tests were my alkaline was high and...

I don't understand what is going on and I was hoping someone here could help. My...

Lisa15

•9 years ago

15 Replies

Headaches and PBC

Hi just wondering if any other PBC sufferers get severe headaches ? I get them every now and then. I'm not dehydrated I just got up with s headache and...

Hi just wondering if any other PBC sufferers get severe headaches ? I get them ...

Tleeoliver

•9 years ago

9 Replies

ive got diverticular decease and acid reflux

hi last 3 weeks ive had nausea smelly gas and burping i do suiffer from diverticular decease and acid reflux ive been to gp whos going to do endscopy and a...

hi last 3 weeks ive had nausea smelly gas and burping i do suiffer from divertic...

ritah

•9 years ago

6 Replies

Medical Retirement

Hi, been diagnosed since June 2014 though had fatigue since 2010, that I can remember anyway as have cognitive problems. I am due to see a Dr on Thursday 30th...

Hi, been diagnosed since June 2014 though had fatigue since 2010, that I can rem...

scottiegirl

•9 years ago

13 Replies

High white blood cell count

Hi been diagnosed for 5 yrs now had gall bladder out after 2 yrs then diagnosed with ibs I now have terrible fatigue all I want to do is sleep so much so that...

Hi been diagnosed for 5 yrs now had gall bladder out after 2 yrs then diagnosed ...

cowre

•9 years ago

11 Replies

Pain

Hi I have not posted for a while but I do read others posts on a daily basis. On Friday I went to a wedding, I had one glass of wine to toast the bride and...

Hi I have not posted for a while but I do read others posts on a daily basis. On...

Alley27

•9 years ago

9 Replies

Another liver biospy

Hi I have had pbc for the past 6 years, I had a liver biospy at the beginning....I recently had ultrasound they found enlarged nodes in stomach and pancreas,...

Hi I have had pbc for the past 6 years, I had a liver biospy at the beginning......

Dibbs64

•9 years ago

1 Reply

4th Transplant

On today's local newspaper ( Birmingham Mail ) there is a a story of a young 22yr old girl who is now seriously ill in The Queen Elizabeth hospital Birmingham...

On today's local newspaper ( Birmingham Mail ) there is a a story of a young 22y...

Brummi

•9 years ago

2 Replies

Omega 3

Hi Just wondering if anyone here would know if Omega 3 has any bad effect on PBC/ liver? After a heart attack sep 2014 I was prescribed Atorvastatin amongst...

Hi Just wondering if anyone here would know if Omega 3 has any bad effect on PBC...

emerich

•9 years ago

5 Replies

Primary biliary cirrhosis

I was told I have Primary biliary cirrhosis in June 2015 and prescribed ursofalk 500 twice a day. I am struggling to take the full amount because of the side...

I was told I have Primary biliary cirrhosis in June 2015 and prescribed ursofalk...

Moppit

•9 years ago

15 Replies

Guide to buying supplements in UK

Interesting programme on TV last week, BBC's 'Trust Me I'm a Doctor', that is relevant for anyone buying supplements in the UK....

Interesting programme on TV last week, BBC's 'Trust Me I'm a Doctor', that is re...

badpiglet

•9 years ago

2 Replies

Liver Transplant

Had PBC for eighteen months then in October 2014 had a transplant. Can PBC come back. Also is PBC related to stress in anyway ?

Had PBC for eighteen months then in October 2014 had a transplant. Can PBC come...

26smith

•9 years ago

9 Replies

Stress and liver pain

I know the answer to this already, but not sure what to do about it. I have been through a great deal of stress over the past three months. I was diagnosed...

I know the answer to this already, but not sure what to do about it. I have bee...

NotorDJP

•9 years ago

5 Replies

Lft's & ketones

Just a quick question. Been feeling unwell since yesterday just came out if the blue, having serve pains around my the back of my rib cage then spreads...

Just a quick question. Been feeling unwell since yesterday just came out if the ...

lynda75

•9 years ago

6 Replies

Shell shocked

Hello, Having been diagnosed with PBC for about 8 years I've had regular LFTs done and a couple of scans which showed no scarring or fatty deposits so I...

Hello, Having been diagnosed with PBC for about 8 years I've had regular LFTs d...

Wingding

•9 years ago

16 Replies

Removal of Gallbladder

On the 17 June I had my gallbladder removed key hole all went well till late afternoon and my wound started to bleed ,I was taken back to theatre from HDU at...

On the 17 June I had my gallbladder removed key hole all went well till late aft...

Cat19

•9 years ago

33 Replies

Extreme treidness

Hi my namescharlie I suffer from extreme fatigue to point I will sleep all day get up for 5 10 mins then sleep all night just wondered if anyone else has...

Hi my namescharlie I suffer from extreme fatigue to point I will sleep all d...

Charlierose

•9 years ago

8 Replies

Carol

Is there anyone who is suffering like me in upper right pain in abdomen and not getting any help from doctors or hospital they thing it is all in the head...

Is there anyone who is suffering like me in upper right pain in abdomen and not ...

Mead7carol

•9 years ago

11 Replies

Supplement's

Hi Everyone, Was thinking of adding a few supplements to my daily routine, think anything is worth a go to improve quality of life. I was unsure of the best...

Hi Everyone, Was thinking of adding a few supplements to my daily routine, thin...

Hidden

•9 years ago

3 Replies

What now?

I have been told a blood test found the antibody. Now going for a scan. Previous scan found enlargement after bloods repeatedly show signs of liver damage. I...

I have been told a blood test found the antibody. Now going for a scan. Previous...

Cymru2009

•9 years ago

4 Replies

Leg cramps? Another new symptom for me....

Leg cramps ?? Had to go to my gp today to try and get meds to control my itching it's driving me insane right now 😣😣!!! Then with the last week I keep...

Leg cramps ?? Had to go to my gp today to try and get meds to control my itchi...

lynda75

•9 years ago

8 Replies

PBC / AIH overlap?

Hi all. I have been taking Urso for 18 months since diagnosis of PBC and generally feeling ok. Some stomach problems but manageable. A few months back I...

Hi all. I have been taking Urso for 18 months since diagnosis of PBC and genera...

CheshireEm

•9 years ago

5 Replies

Naltrexone

Wondering if anyone has been put on this drug, it's from a study regarding Opiate Antagonists. I suffer horrendous itch 90% of the day and night and only sleep...

Wondering if anyone has been put on this drug, it's from a study regarding Opiat...

Bookworm7

•9 years ago

4 Replies

Isagenix

Has anyone heard of Isagenix and if so do you think it's good to try if you have PBC?

Has anyone heard of Isagenix and if so do you think it's good to try if you have...

sboykin

•9 years ago

5 Replies

PBC: Eye problems and scarring on skin?

I was recently diagnosed with PBC - June 2015. Prior to the diagnosis I had been itching for about 18months but I put it down to other things - as my itch is...

I was recently diagnosed with PBC - June 2015. Prior to the diagnosis I had bee...

jb06

•9 years ago

14 Replies

Just been diagnosed today

It's been so great to read your posts, it does make you feel you are not alone in this. I have just been diagnosed today and given URSO. As I am both ANA and...

It's been so great to read your posts, it does make you feel you are not alone i...

krista10_ro

•9 years ago

8 Replies

Painful aching legs

Hi I am hoping that someone could help me with any ideas as to how I can ease the pain and aches that I have in my legs. It starts at my hips and goes all the...

Hi I am hoping that someone could help me with any ideas as to how I can ease th...

Jayne1863

•9 years ago

9 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for July 2015

Fibrosis results

Pain relievers

Worried

Worried and Confused

Headaches and PBC

ive got diverticular decease and acid reflux

Medical Retirement

High white blood cell count

Pain

Another liver biospy

4th Transplant

Omega 3

Primary biliary cirrhosis

Guide to buying supplements in UK

Liver Transplant

Stress and liver pain

Lft's & ketones

Shell shocked

Removal of Gallbladder

Extreme treidness

Carol

Supplement's

What now?

Leg cramps? Another new symptom for me....

PBC / AIH overlap?

Naltrexone

Isagenix

PBC: Eye problems and scarring on skin?

Just been diagnosed today

Painful aching legs

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