Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,484 members•8,374 posts

All posts for January 2024

It’s “BACK” again…Ugh

Six days ago i thought the back pain was, after three months, fading away. Not so, unfortunately. I am writing down everything I eat to see if a new friend...

Six days ago i thought the back pain was, after three months, fading away. Not ...

Gaspereaux

•10 months ago

3 Replies

RA overlap just diagnosed. Who else? Tips?

I have had PBC since 2009. I have just been diagnosed with overlap rheumatoid arthritis. UGH! I know some of you have too. Would appreciate any tips....

I have had PBC since 2009. I have just been diagnosed with overlap rheumatoid a...

CeeCee101

•10 months ago

3 Replies

an introduction...

Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online...

Hello everyone! Let me introduce myself. My name is Donna Boll. I have been giv...

DonnaBoll

Administrator•10 months ago

17 Replies

Want to take advantage of all our features? Just log in!

Joint/Muscle Pain

i have been experiencing this ever since I began my Urso journey three months ago. I am wondering if it takes longer than this to adjust? I have no other...

i have been experiencing this ever since I began my Urso journey three months ag...

Gaspereaux

•10 months ago

8 Replies

check up

not had a check up in two years? Should I get in touch with my gp Or hospital?

not had a check up in two years? Should I get in touch with my gp Or hospital? ...

Jnuttall

•10 months ago

15 Replies

numb hands

hi Just wondering if anyone gets pins and needles and numb hands, I wake up every night with pins and needles in both hands and then they are conpletely...

hi Just wondering if anyone gets pins and needles and numb hands, I wake up e...

Cumbria7

•10 months ago

4 Replies

PBC/AIH

Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my...

Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can ru...

She-66

•10 months ago

9 Replies

artichoke supplement

hi, I’ve heard of a lot of benefits from taking artichoke. Does anyone take it and let me know if it’s helped with bloating? thanks everyone

hi, I’ve heard of a lot of benefits from taking artichoke. Does anyone take it a...

Sunliver

•10 months ago

4 Replies

Question about urso

hello, I’m starting to get many answers. But still have a little more to do. Diagnosed in past year with sjorgrens and pbc. I’ve been on urso 10 months....

hello, I’m starting to get many answers. But still have a little more to do. D...

Artsy123

•11 months ago

14 Replies

Sciatica

I have recently developed quite an acute bout of sciatica-type pain as well as back issues. Going to go to doctor, try to get into PT etc. But, at 65, never...

I have recently developed quite an acute bout of sciatica-type pain as well as b...

Sister65

•11 months ago

3 Replies

Urso Side effect?

Hello, it is early morning here, but I wanted to share this. Ever since I started Urso (November 2nd), i have been experiencing terrible lower back pain,...

Hello, it is early morning here, but I wanted to share this. Ever since I start...

Gaspereaux

•11 months ago

5 Replies

Immune suppression caused by Urso

Hi all, I only recently learned that Urso has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects -...

Hi all, I only recently learned that Urso has suppressive effects on the immune ...

Skypony

•11 months ago

28 Replies

Creatine

I am on Ursofalk and very well fortunately. I take Bezafibrate for itch (life saver). I have embark on a fitness journey of Crossfit and after 12 months wish...

I am on Ursofalk and very well fortunately. I take Bezafibrate for itch (life s...

amt50

•11 months ago

3 Replies

prescription

hi Every time I collect my prescription they give me my urso like this I was seeing if anybody else has this? I feel like when I change too the next box I get...

hi Every time I collect my prescription they give me my urso like this I was see...

Lena2011

•11 months ago

6 Replies

Red Palms

Good evening, everyone, I have a question about red palms. Do red palms indicate any particular stage of PDC? Or is it one of those things, that some...

Good evening, everyone, I have a question about red palms. Do red palms indi...

Gaspereaux

•11 months ago

9 Replies

ginger shots

recently I have been taking Ginger and turmeric shots as I had been told they help with several health issues including stomach problems and arthritis....

recently I have been taking Ginger and turmeric shots as I had been told they he...

Biddyb

•11 months ago

3 Replies

Ursofalk

Years ago I had generic Urso and was quite poorly. I changed to Ursofalk and have been happy with it for over 20 years. Today the generic was dispensed and I...

Years ago I had generic Urso and was quite poorly. I changed to Ursofalk and hav...

Oidra

•11 months ago

10 Replies

Liver TIPS test

I was due to have an operation on my bowel but they think my liver is too stressed to risk it. They want me to have a TIPS test. Has anyone experienced this,...

I was due to have an operation on my bowel but they think my liver is too stress...

roseter

•11 months ago

2 Replies

interesting convo with Rheumatologist

Been sent to new rheumatologist to determine if I have any overlap A/I conditions on top of PBC. Was talking to her generally about symptoms getting more...

Been sent to new rheumatologist to determine if I have any overlap A/I condition...

CeeCee101

•11 months ago

10 Replies

Father has had PBC for 16 years - Odd complications since COVID?

Hello all, I wonder if anyone here who has PBC (or has a family member with PBC) has had similar experiences post covid? My father was diagnosed 16 years...

Hello all, I wonder if anyone here who has PBC (or has a family member with PBC...

Kylewillmott

•11 months ago

1 Reply

Vanishing Bile Duct Syndrome

Hi, I was just wondering if anyone on here has been diagnosed Vanishing Bile Duct Syndrome (Ductopenia)? I'm in the process of being tested for this. Thanks

Hi, I was just wondering if anyone on here has been diagnosed Vanishing Bile Duc...

MSJT

•11 months ago

6 Replies

Fibroscan

My Fibroscan score has increased from 5.9 to 7.9 in a year my consultant doesn’t seem concerned as my blood results are normal and a recent ultrasound on my...

My Fibroscan score has increased from 5.9 to 7.9 in a year my consultant doesn’t...

kingsnorth

•11 months ago

4 Replies

Taking Urso

Good morning, everyone! I have a question about Urso. Is it fine to take your Urso in one dose instead of two? I never forget mornings. I also have no...

Good morning, everyone! I have a question about Urso. Is it fine to take your U...

Gaspereaux

•11 months ago

40 Replies

ama titre

Hi Was just wondering what is considered a high ama titre test and what the significance of this is in terms of pbc xx

Hi Was just wondering what is considered a high ama titre test and what the si...

Cumbria7

•11 months ago

7 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for January 2024

It’s “BACK” again…Ugh

RA overlap just diagnosed. Who else? Tips?

an introduction...

Joint/Muscle Pain

check up

numb hands

PBC/AIH

artichoke supplement

Question about urso

Sciatica

Urso Side effect?

Immune suppression caused by Urso

Creatine

prescription

Red Palms

ginger shots

Ursofalk

Liver TIPS test

interesting convo with Rheumatologist

Father has had PBC for 16 years - Odd complications since COVID?

Vanishing Bile Duct Syndrome

Fibroscan

Taking Urso

ama titre

Search posts

Pinned Posts

Latest poll

Where in the world are you? Please select an option, but feel free to tell us specifically which country you are in, if you would like. No more detail than that, however. Thank you.

Topics

Archive