Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,476 members•8,330 posts

All posts for January 2013

What do other people find helpful for bone and muscle pain.I have pain in my hips and legs that keeps me awake at night. Brufen doesn't help

fudge13

•12 years ago

20 Replies

Full blown diahroea with PBC

Is diahroea associated with PBC by any chance? I can lurch from constipation to diahroea within hours. I do however have IBS any help or suggestions would be...

Is diahroea associated with PBC by any chance? I can lurch from constipation to ...

susanuwdc

•12 years ago

2 Replies

Does anyone suffer with neck pain?

Does anybody suffer with neck pain? I have been diagnosed with PBC for a couple of years and apart from a very dry mouth haven't suffered with much at all....

Does anybody suffer with neck pain? I have been diagnosed with PBC for a couple ...

roseter

•12 years ago

7 Replies

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Gallbladder

Hi all just wanted to ask a question. Not been very well over the last few days resulting in being in hospital.:( Wanting to see another doctor now to have...

Hi all just wanted to ask a question. Not been very well over the last few days...

donnathompson

•12 years ago

4 Replies

Urso - (whether to take four tablets a day a night or not)

I would like to thank everybody so much for their responses to my question regarding whether or not to take Urso in two split doses or all four at night time....

I would like to thank everybody so much for their responses to my question regar...

MoPo

•12 years ago

6 Replies

Has anyone given up alcohol due to PBC?

I have!! Although I wasn't a massive drinker I could be classed as weekend binge drinker a few years ago. From the outset my consultant told me that drink...

I have!! Although I wasn't a massive drinker I could be classed as weekend binge...

SamT

•12 years ago

9 Replies

Alcohol

Does anyone have real bad intolerence to alcohol ,like half a glass of wine and I have headache and feel ill the day after like realyl hungover,

Does anyone have real bad intolerence to alcohol ,like half a glass of wine and ...

haventaclue

•12 years ago

9 Replies

Is it ok to become a blood donor with PBC?

Wingding

•12 years ago

6 Replies

PBC First Tiimers

Hi everyone! I am Mary and would like to share this info. with you all. I am 64 years old and was dianosed with PBC in June of this year 2012. I had been...

Hi everyone! I am Mary and would like to share this info. with you all. I am...

thatgirl

•12 years ago

6 Replies

Once diagnosed with pbc how often are blood tests done?

Hidden

•12 years ago

10 Replies

does anyone have gallstones and take urso

although having been disgnosed with PBC for 4 years today I fetched my first prescription for URSO on reading the instructions i note it says that not to be...

although having been disgnosed with PBC for 4 years today I fetched my first pre...

jennyspringer

•12 years ago

6 Replies

Can this site connect you with otner people in the same area that have this disease?

I treid to find out if anyone eles in my area has PBC with no reply or answer. I live around the Fort Polk base area in Leesville, LA.

I treid to find out if anyone eles in my area has PBC with no reply or answer. I...

thatgirl

•12 years ago

2 Replies

Is it safe to drink alcohol with pbc

Can I drink alcohol or not?? When I have attended hospital appointments I have seen different doctors each time and each one seems to give different answers...

Can I drink alcohol or not?? When I have attended hospital appointments I have...

Gilz1702

•12 years ago

11 Replies

Frequency of hospital appointments

How often do you have check up appointments with consultant (or their team).

Hidden

•12 years ago

5 Replies

What are the benefits of lansoprazole in Pbc and should I be on it?

Gilz1702

•12 years ago

6 Replies

Urso side effects?

Does anyone experience side effects from Urso. Particularly hair loss or weight gain? The phamplet names diarhhea as a common effect, but does anyone have...

Does anyone experience side effects from Urso. Particularly hair loss or weight ...

WendyMarie

•12 years ago

14 Replies

What's your LFT (gamma gt) history?

2 years ago 290 1 year ago 600, referred to liver specialist. 6 months ago 280 6 weeks ago 190 2 weeks ago diagnosed PBC Have been taking 750mg...

2 years ago 290 1 year ago 600, referred to liver specialist. 6 months ago...

berg944

•12 years ago

8 Replies

URSO

When I was first prescribed URSO in December 2010 I was told to take two tablets in the day and two at night. I noticed on the leaflet that came with my...

When I was first prescribed URSO in December 2010 I was told to take two tablets...

MoPo

•12 years ago

13 Replies

Dieting dizziness Anyone?

Like everyone, I've been gradually gaining weight since starting Urso so (rather than being on a strict diet) I have started to carefully watch what I eat. But...

Like everyone, I've been gradually gaining weight since starting Urso so (rather...

Kaywal

•12 years ago

3 Replies

Urso and hair

I have been taking URSO for 4 weeks now, I have noticed my previously dry hair is becoming a bit greasy, anyone else had this?

I have been taking URSO for 4 weeks now, I have noticed my previously dry hair i...

Hidden

•12 years ago

5 Replies

Questions

Hello I was told I had PBC early November by GP after complaining of aches and pains for years, I have first appintment with the specialist on Friday ,...

Hello I was told I had PBC early November by GP after complaining of aches and...

haventaclue

•12 years ago

10 Replies

Vitamins intake - best out of natural source (not synthesized).

http://www.thedoctorwithin.com/vitaminc/ascorbic-acid-is-not-vitamin-c/ Some interesting information for anybody needing or wishing to take vitamins...

http://www.thedoctorwithin.com/vitaminc/ascorbic-acid-is-not-vitamin-c/ S...

Cristina_Romania

•12 years ago

3 Replies

Does anyone have slightly lower red blood count and ferritin (iron) levels with PBC?

Can't help wondering. A couple of days ago I had my repeat bloods but last time they were coming up slightly below the normal range.

Can't help wondering. A couple of days ago I had my repeat bloods but last time...

Hidden

•12 years ago

4 Replies

Medication

I too take Urso and recently asked my doctor if I was a suitable candidate for a daily low dose aspirin (as my mother died of a stroke and my father from a...

I too take Urso and recently asked my doctor if I was a suitable candidate for a...

Wingding

•12 years ago

11 Replies

Fungal nail treatment

I have what I think is a fungal nail infection in one of my fingernails. I am reluctant to take yet more oral medication due to the state of my liver. Anyone...

I have what I think is a fungal nail infection in one of my fingernails. I am re...

mojo62

•12 years ago

6 Replies

Smoking and PBC

http://www.ncbi.nlm.nih.gov/pubmed/22166556 This is one of the studies (here conducted by a London doctor) stating that smoking not only favours, but it...

http://www.ncbi.nlm.nih.gov/pubmed/22166556 This is one of the studies (here ...

Cristina_Romania

•12 years ago

16 Replies

Hepatitis (A and B) Vaccines vs PBC

As far as I know there are some international recommendations regarding Hep. vaccination for PBC people (not only, but especially as there is an underlying...

As far as I know there are some international recommendations regarding Hep. vac...

Cristina_Romania

•12 years ago

7 Replies

can hypokalamia (low pottassium in blood) is associated to pbc?

can any of the sufferer or clinican guide me,i am 50 yrs old female patient of pbc diagnosed by liver biopsy,now at present,i have food allergy -to milk...

can any of the sufferer or clinican guide me,i am 50 yrs old female patient of p...

agafurc

•12 years ago

2 Replies

PBC DIAGNOSIS

Many years ago, about 14 years ago ish, aged 40 I was diagnosed with PBC. I started with horrendous itching on the soles of the feet, actually the arch of the...

Many years ago, about 14 years ago ish, aged 40 I was diagnosed with PBC. I star...

susanuwdc

•12 years ago

7 Replies

hi everyone im organising a charity night for pbc does anyone know if you can get some leaflets or anything else for the evening

off the foundation or has anyone got roberts telephone number

debg

•12 years ago

1 Reply

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for January 2013

What do other people find helpful for bone and muscle pain.I have pain in my hips and legs that keeps me awake at night. Brufen doesn't help

Full blown diahroea with PBC

Does anyone suffer with neck pain?

Gallbladder

Urso - (whether to take four tablets a day a night or not)

Has anyone given up alcohol due to PBC?

Alcohol

Is it ok to become a blood donor with PBC?

PBC First Tiimers

Once diagnosed with pbc how often are blood tests done?

does anyone have gallstones and take urso

Can this site connect you with otner people in the same area that have this disease?

Is it safe to drink alcohol with pbc

Frequency of hospital appointments

What are the benefits of lansoprazole in Pbc and should I be on it?

Urso side effects?

What's your LFT (gamma gt) history?

URSO

Dieting dizziness Anyone?

Urso and hair

Questions

Vitamins intake - best out of natural source (not synthesized).

Does anyone have slightly lower red blood count and ferritin (iron) levels with PBC?

Medication

Fungal nail treatment

Smoking and PBC

Hepatitis (A and B) Vaccines vs PBC

can hypokalamia (low pottassium in blood) is associated to pbc?

PBC DIAGNOSIS

hi everyone im organising a charity night for pbc does anyone know if you can get some leaflets or anything else for the evening

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