Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,383 members • 7,978 posts

All posts for March 2013

Have any other PBCers found they put on weight really easily and even with dieting and exercise it takes so much longer to lose?

mimib

•11 years ago

7 Replies

Happy Easter everyone, has anyone noticed increase in headaches since diagnosis? I seem to have them everyday!

Nerry

•11 years ago

7 Replies

Does anyone have any views about drinking alcohol. The consultant has not suggested I should not. What do people think?

Mememememe

•11 years ago

14 Replies

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How can familly be so cruel

Has any else experianced rejection from familly members and lack of under standing

Has any else experianced rejection from familly members and lack of under standi...

lainey67

•11 years ago

26 Replies

Just some info please.

I have aih/pbc overlap. Taking mercaptopurine for antibodies and have been on steroids as well. Consultant is tapering steroids and am currently on 7.5 mg,...

I have aih/pbc overlap. Taking mercaptopurine for antibodies and have been on st...

Alley27

•11 years ago

6 Replies

I think I know!

I posted a question this week does Amitriptyline make you gain weight? Thansk for all the advise. BUT at the same time I was put on Domperidone for nausea. I...

I posted a question this week does Amitriptyline make you gain weight? Thansk fo...

Lisacj

•11 years ago

2 Replies

liver biopsy

I am scheduled to have a liver biopsy on Tuesday. I know most of you have had this done. I find that I am really freaked out about it!! I have a fear of...

I am scheduled to have a liver biopsy on Tuesday. I know most of you have had t...

engasser

•11 years ago

18 Replies

Re; Your curry.

My recipe uses sultanas for sweetening, and using single cream ,Yoghourt, or just the top of the milk. Hope this is of some use, though since your post is now...

My recipe uses sultanas for sweetening, and using single cream ,Yoghourt, or jus...

Hidden

•11 years ago

5 Replies

AMA question

Hi, I saw my consultant a few days ago and he reported that my latest blood tests from December 2012 show that my AMA is now negative but previously it has...

Hi, I saw my consultant a few days ago and he reported that my latest blood t...

Lammasue

•11 years ago

2 Replies

What is Igm? And what do the stages mean?

Mememememe

•11 years ago

5 Replies

This is in reply to Peridot's interest in Anti-mitochondria.

I also listened to reference made to mitochondria. The discussion surrounded the argument for weeding out mitochondrial disease/s in unborn children. I have...

I also listened to reference made to mitochondria. The discussion surrounded the...

Hidden

•11 years ago

5 Replies

Amitriptyline

Hi All, Need some advise, so here I go with my question. As well as PBC I have chronic sinus, so have been give Amitriptyline to help with daily headaches and...

Hi All, Need some advise, so here I go with my question. As well as PBC I have c...

Lisacj

•11 years ago

7 Replies

P.B.C a newbie!

Hi im new to this site and have posted a question in the question part ,not on the blog.Not sure if this correct! Please could someone look at my question...

Hi im new to this site and have posted a question in the question part ,not on t...

shakira10

•11 years ago

5 Replies

p.b.c

Im a little confused.I have been diagnosed with p.b.c with a positive ama of 1:640.On seeing my consultant for the first time he has informed me that the drug...

Im a little confused.I have been diagnosed with p.b.c with a positive ama of 1:6...

shakira10

•11 years ago

38 Replies

Easter Wish

I dont know how many people celebrate Easter! I wanted to pop on here and wish everyone a Blessed Easter Day! Im cooking and having lots of family and kids...

I dont know how many people celebrate Easter! I wanted to pop on here and wish e...

sandrakay

•11 years ago

13 Replies

Anyone every been told in years how much the Urso can slow down the progression of PBC?

The reason I ask is that I was told at my last appointment when I asked if I needed to go back on Urso( due to my Lft enymes being very elevated though Albumen...

The reason I ask is that I was told at my last appointment when I asked if I nee...

littlemo

•11 years ago

8 Replies

New to PBC

It all started with the blood tests, showing elevated liver enzymes, that was 3 years ago, I had ultrasound, endoscopy and a liver biopsy, none of which was...

It all started with the blood tests, showing elevated liver enzymes, that was 3 ...

Mememememe

•11 years ago

3 Replies

Esa Tribunal awaited but now have clarification on my heart problem

I was refused Esa after atos medical although they new I was due to see consultant again within 2 weeks of the medical. Have now seen consultant and will...

I was refused Esa after atos medical although they new I was due to see consulta...

JackF

•11 years ago

10 Replies

I am in the process of being diagnosed with PBC. Everything is positive except my IgM levels are normal. Can I still have PBC?

engasser

•11 years ago

5 Replies

Curry!!!!

I am looking at making a healthy mushroom curry but the recipe whch a friend of mine gave me eays to use coconut milk. . . .but how high is that in saturated...

I am looking at making a healthy mushroom curry but the recipe whch a friend of ...

gracesofia

•11 years ago

3 Replies

Should I have a biopsy or scan?

I was diagnosed two and a half years ago with PBC (doctor told me over the phone!) - by positive AMA and I saw a gastro about 2 months later. I was not given...

I was diagnosed two and a half years ago with PBC (doctor told me over the phone...

swmartin

•11 years ago

16 Replies

Food as Medicine

Does anyone have a really clean diet here, trying to concentrate on using food as medicine for this condition? I'm interested to learn if one sticks to a...

Does anyone have a really clean diet here, trying to concentrate on using food a...

SuziS

•11 years ago

13 Replies

I HAVE JUST RECEIVED NEWS OF MY ESA APPEAL --- BEEN MOVED FROM WRAG TO SUPPORT GROUP BY DECISION MAKER JOAN AT BURNLEY OVER THE MOON

QUESTION - I HAD MY ATOS ASSESSMENT BACK IN OCTOBER 2012 AND GOT NEWS IN NOVEMBER THAT I WAS PLACED IN WRAG I WROTE BACK ASKING FOR AN EXPLANATION AND RECEIVED...

QUESTION - I HAD MY ATOS ASSESSMENT BACK IN OCTOBER 2012 AND GOT NEWS IN NOVEMBE...

BOFFY

•11 years ago

1 Reply

Going red in bath

hi, does anyone else have this problem? When I have a bath the bits which are still dry (my upper arms and face) go lobster red. I thought it was the heat...

hi, does anyone else have this problem? When I have a bath the bits which are ...

June9961

•11 years ago

5 Replies

Just want to say hello

My journey began about 6 months ago when after a 10 day course of Augmentin I noticed that my urine was a bright orange and I was itching all over my body. I...

My journey began about 6 months ago when after a 10 day course of Augmentin I no...

bbobb55

•11 years ago

2 Replies

Treatment for AIH-has anyone had it?

I saw my consultant today and he wants me to have a liver biopsy to confirm Auto immune hepatitis, which the bloods are strongly suggesting and which he says...

I saw my consultant today and he wants me to have a liver biopsy to confirm Auto...

crundalite

•11 years ago

9 Replies

What is your Total Billirubin & Albumin

If you don't mind me asking,need to know if mine in ok range,Doctor says its ok but would like to know what others are on here.Are these two results what they...

If you don't mind me asking,need to know if mine in ok range,Doctor says its ok ...

cavi

•11 years ago

6 Replies

Does anyone suffer from thrush?

Does anyone suffer from oral thrush? I have had this many times and it starts by feeling extremely tired, heartburn, fuzzy feeling on my tongue then white...

Does anyone suffer from oral thrush? I have had this many times and it starts by...

Dower

•11 years ago

5 Replies

Questions to ask my consultant?

Hi all, I just wanted to ask what would be the best questions to ask my consultant when I go to see him next week? I haven't seen him for 2 years and I want...

Hi all, I just wanted to ask what would be the best questions to ask my consult...

Fudger126

•11 years ago

2 Replies

Bile Drainage?

I have been to see my specialist today and because my itch has been horrendous for the last few months and the side effects from Rifampasin were causing my...

I have been to see my specialist today and because my itch has been horrendous f...

Bookworm7

•11 years ago

18 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for March 2013

Have any other PBCers found they put on weight really easily and even with dieting and exercise it takes so much longer to lose?

Happy Easter everyone, has anyone noticed increase in headaches since diagnosis? I seem to have them everyday!

Does anyone have any views about drinking alcohol. The consultant has not suggested I should not. What do people think?

How can familly be so cruel

Just some info please.

I think I know!

liver biopsy

Re; Your curry.

AMA question

What is Igm? And what do the stages mean?

This is in reply to Peridot's interest in Anti-mitochondria.

Amitriptyline

P.B.C a newbie!

p.b.c

Easter Wish

Anyone every been told in years how much the Urso can slow down the progression of PBC?

New to PBC

Esa Tribunal awaited but now have clarification on my heart problem

I am in the process of being diagnosed with PBC. Everything is positive except my IgM levels are normal. Can I still have PBC?

Curry!!!!

Should I have a biopsy or scan?

Food as Medicine

I HAVE JUST RECEIVED NEWS OF MY ESA APPEAL --- BEEN MOVED FROM WRAG TO SUPPORT GROUP BY DECISION MAKER JOAN AT BURNLEY OVER THE MOON

Going red in bath

Just want to say hello

Treatment for AIH-has anyone had it?

What is your Total Billirubin & Albumin

Does anyone suffer from thrush?

Questions to ask my consultant?

Bile Drainage?

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