Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,387 members • 7,990 posts

All posts for June 2015

Sick

Starting to feel really nausea

sboykin

•9 years ago

1 Reply

Teeth

I know it's bad about google everything, but I am now stressed about the fact that you can loose your teeth with PBC. Is this accurate?

I know it's bad about google everything, but I am now stressed about the fact th...

sboykin

•9 years ago

13 Replies

Meals

What is everyone eating for breakfast lunch and dinner. Trying to get a handle on this. Just been diagnosed with PBC.

What is everyone eating for breakfast lunch and dinner. Trying to get a handle ...

sboykin

•9 years ago

6 Replies

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Consultants

Recently moved to Southend area. Can anyone recommend consultant here. Got one in London who is fantastic but considering local if good. Know this is a...

Recently moved to Southend area. Can anyone recommend consultant here. Got one...

Mary48

•9 years ago

2 Replies

Travel insurance

Hi all I'm going to Cyprus next year is travel insurance expensive with pbc xx

Hi all I'm going to Cyprus next year is travel insurance expensive with pbc ...

sophie666

•9 years ago

12 Replies

Endoscopy?

Morning all, I have an endoscopy procedure booked for tomorrow ( check for varices ) I am quite anxious, can anyone enlighten me, as to what to expect ? Thanks

Morning all, I have an endoscopy procedure booked for tomorrow ( check for varic...

Hidden

•9 years ago

15 Replies

Doctors Answer to FAQ

Copied these links into a fresh post, as I thought they were too interesting to be lost within another post. http://pbcers.org/support/drpanel/Ursotreat.php...

Copied these links into a fresh post, as I thought they were too interesting to ...

badpiglet

•9 years ago

4 Replies

Positive AMA M2

I am a 42 yr old male. Have hx of mildly elevated ALT. (around 60). Last year physician ordered several test. Hep panel all negative. Liver ultrasound...

I am a 42 yr old male. Have hx of mildly elevated ALT. (around 60). Last year...

jonathan23

•9 years ago

12 Replies

Twitching

Started having twitches/spasms in front liver area.feels quite odd!doesn't hurt .sometimes single pulse or multiple ripple effects.does anyone else get this...

Started having twitches/spasms in front liver area.feels quite odd!doesn't hurt ...

cazer

•9 years ago

12 Replies

panic attacks

started having panic attacks try to cross street and freeze anyone heard of stiff person syndrome?

started having panic attacks try to cross street and freeze anyone heard of stif...

dorisdaydream

•9 years ago

7 Replies

Cold.

Hi is it just me or does anyone else feel the cold easily? I am wearing a jumper today and had a jacket on as well when I went out earlier. I wonder if it...

Hi is it just me or does anyone else feel the cold easily? I am wearing a jumper...

Alley27

•9 years ago

15 Replies

Modafinil ( Provigil) Update

After taking Modafinil for two weeks I thought I would give an update as promised,.so far I've had no side effects and the results are really good , although...

After taking Modafinil for two weeks I thought I would give an update as promise...

Kieraferret

•9 years ago

11 Replies

PBC waiting to find out....

Hi All! I'm 25 and had my 2nd baby 6 weeks ago. I suffered terribly with obstretic cholestatis from 32 weeks. My symptoms haven't cleared up like they...

Hi All! I'm 25 and had my 2nd baby 6 weeks ago. I suffered terribly with obs...

cheermel89

•9 years ago

7 Replies

PBC and smoking

I've been doing some research and can't seem to find a definitive response. Now, I know that smoking is terrible.. for anyone, especially someone with PBC (I...

I've been doing some research and can't seem to find a definitive response. Now,...

emetobella1229

•9 years ago

10 Replies

Early pbc

Hi i was diagnosed with suspected early pcb 2years ago,my doctor feels its too early in the desease to suffer symptoms!the trouble is i have been suffering...

Hi i was diagnosed with suspected early pcb 2years ago,my doctor feels its too ...

Joelphine

•9 years ago

10 Replies

Pbc with AIH

My question is I was diagnosis with PBC back in 2001 I then was told I have overlap AIH , I would like to know did this occur ? Any info will help? Thanks Sap

My question is I was diagnosis with PBC back in 2001 I then was told I have over...

sap7649

•9 years ago

5 Replies

Just a question... about stopping ursodiol

I am taking Urso for PBC. I am curious what would happen if I just stopped taking it. Before you start shaking your head I know the Ursodiol is supposed to be...

I am taking Urso for PBC. I am curious what would happen if I just stopped taki...

jmhaskins

•9 years ago

24 Replies

Still not prescribed urso

I am not sure what to do here. I was diagnosed last September as Asymptomatic PBC as well as Polymyalgia Rhuematica. I wrote to you all at the time as I was in...

I am not sure what to do here. I was diagnosed last September as Asymptomatic PB...

Wispa123

•9 years ago

29 Replies

New Diagnosis

I am 49 years old and have recently been diagnosed with PBC. I had never heard of PBC and it certainly came as a shock. After meeting the Hepatologist I...

I am 49 years old and have recently been diagnosed with PBC. I had never heard o...

FullEmbrace

•9 years ago

11 Replies

Anemic again

Hi all, My PBC diagnosis came from a process which was started because it was discovered I was severely anemic. I had exxtra iron, levels improved, I have...

Hi all, My PBC diagnosis came from a process which was started because it was di...

Jojowen

•9 years ago

5 Replies

Errant Results

I went to my last liver outpatients clinic on 20th April last and didn't see my usual doctor but one of his registrars. I then had the relevant blood tests...

I went to my last liver outpatients clinic on 20th April last and didn't see my ...

Wendy29

•9 years ago

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Liver pain

I have had really bad pain in my liver today, real winsing pain every time I lifted stuff at work. Has anyone else has this ?

I have had really bad pain in my liver today, real winsing pain every time I lif...

Michelle2015

•9 years ago

4 Replies

PBC & Burnout

Just been to Doc's. Been told that my body is working so hard dealing with my PBC that I've gone into Burnout. Not enough energy left for normal life!!! Had my...

Just been to Doc's. Been told that my body is working so hard dealing with my PB...

teddybear7

•9 years ago

16 Replies

transplant fears

hi all, I'm wondering if there's anyone like me who has been advised to go on transplant list but feels it is too scary . At the moment i have deferred my...

hi all, I'm wondering if there's anyone like me who has been advised to go on t...

Kate50

•9 years ago

24 Replies

PBC

Hi I am a 62 year old female living in Pennsylvania USA and just found out today that I have PBC. The posts I have read so far have made me feel better about...

Hi I am a 62 year old female living in Pennsylvania USA and just found out today...

GigiC

•9 years ago

15 Replies

Night heat, night sweats. Any advice?

I'm not in the menopause, have a while to go I think, and think the night sweats are different from menopausal hot flushes (from what I have seen and been...

I'm not in the menopause, have a while to go I think, and think the night sweats...

Shenanigans

•9 years ago

17 Replies

Burning sensation

Hi It is my 4tm month running on urso.. Everything is under control except burning sensation in my hands and feet .. It started bad as soon I started urso...

Hi It is my 4tm month running on urso.. Everything is under control except bur...

Sachin1234

•9 years ago

10 Replies

Dry Mouth (Xerostomia)

Has anyone tried using Pilocarpine or Cevimeline tablets for helping to alleviate the symptoms of dry mouth. They have been used with some success in the USA...

Has anyone tried using Pilocarpine or Cevimeline tablets for helping to alleviat...

Sweet1pea

•9 years ago

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MRCP

Hi all just got back from QE had my MRCP Scan not the best way to spend your Sunday afternoon but at least it done with now thank God have read many stories...

Hi all just got back from QE had my MRCP Scan not the best way to spend your S...

cavi

•9 years ago

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Ever Heard of the Drug AZATHIOPRINE

My mothers liver doctor just suggested that she start taking this medicine Azathioprine. Back in February of this year her liver got badily inflammed her liver...

My mothers liver doctor just suggested that she start taking this medicine Azath...

andrea042473

•9 years ago

4 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for June 2015

Sick

Teeth

Meals

Consultants

Travel insurance

Endoscopy?

Doctors Answer to FAQ

Positive AMA M2

Twitching

panic attacks

Cold.

Modafinil ( Provigil) Update

PBC waiting to find out....

PBC and smoking

Early pbc

Pbc with AIH

Just a question... about stopping ursodiol

Still not prescribed urso

New Diagnosis

Anemic again

Errant Results

Liver pain

PBC & Burnout

transplant fears

PBC

Night heat, night sweats. Any advice?

Burning sensation

Dry Mouth (Xerostomia)

MRCP

Ever Heard of the Drug AZATHIOPRINE

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