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PBC Foundation

9,389 members • 7,993 posts

All posts for September 2012

i apealed against losing my full e.s.a in july 2011 after atos said i was fit for work,my tribunal is 19th of oct, continued below

could any one tell me if i win how long would it be backdated for? thanks

misterm

•12 years ago

5 Replies

To those with AMA positive, normal LFT and no symptoms, is there any medical intervention could be done? Anybody who has the experience?

zhupa

•12 years ago

10 Replies

Sounding off.

Just wanted to av a moan,not been too well these last few weeks had to go to the hospital while on holiday in greece as i had a kidney infection,came back home...

Just wanted to av a moan,not been too well these last few weeks had to go to the...

donnathompson

•12 years ago

4 Replies

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So this is all new!

I am new to the PBC foundation website so thought I would share a little about myself on here. I am 41 and was diagnosed in 2011, after being treated for a...

I am new to the PBC foundation website so thought I would share a little about m...

Dinky666

•12 years ago

4 Replies

Who do the NHS doctors think they are refusing me an MRI scan? Bet they would bite my hand off if I paid for one!!!!!

I need peace of mind knowing I am AMA positive and itch and suffer with fatigue really bad sometimes, but they want to just keep an eye on my liver function...

I need peace of mind knowing I am AMA positive and itch and suffer with fatigue ...

skywalker

•12 years ago

6 Replies

Decided to go private

I have lost patience with NHS waiting list since finding out urgent list is now 3 months long and not 8 weeks. Since having a positive AMA test yet no...

I have lost patience with NHS waiting list since finding out urgent list is now ...

hannah1973

•12 years ago

14 Replies

PBC diagnoised yesterday started my URSO today should i be worried about possible side effects

lizzylou

•12 years ago

17 Replies

I was diagnosed with PBC some eight weeks ago so finding this Forum very interesting.

However I would like to enquire whether any others suffer from a dry mouth syndrome? I have had a biopsy for Sjogrens which proved negative but I still have a...

However I would like to enquire whether any others suffer from a dry mouth syndr...

Cavalier

•12 years ago

5 Replies

"Omega-3 Fatty Acids in Inflammation and Autoimmune Diseases"Journal of the American College of Nutrition

http://www.jacn.org/content/21/6/495.full Search the text at least for where it says about inflammatory, autoimmune, liver...

http://www.jacn.org/content/21/6/495.full Search the text at least for where ...

Cristina_Romania

•12 years ago

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Aspartame & MSG and autoimmune conditions. http://www.naturalnews.com/020550_excitotoxins_MSG.html

"Monosodium Glutamate - promoter of liver inflammation" http://www.ncbi.nlm.nih.gov/pubmed/18178378 There is a big amount of research out there, studies...

"Monosodium Glutamate - promoter of liver inflammation" http://www.ncbi.nlm.nih...

Cristina_Romania

•12 years ago

7 Replies

I have PBC. A trusted naturopath prescribed supplements. My GP is against .Liver specialist ambivalent. Im stuck in the middle. Advice pls

The naturopath is my sister. She has researched my condition in depth. My GP says it might interfere with Urso . My liver specialist wrote down what was...

The naturopath is my sister. She has researched my condition in depth. My GP say...

boneytoys

•12 years ago

17 Replies

tired and a bit fed up

I was diagnosed 3 weeks ago after a year or more of quite severe symptoms - particularly tiredness and real difficulties with my head (mostly inability to...

I was diagnosed 3 weeks ago after a year or more of quite severe symptoms - part...

SC49

•12 years ago

28 Replies

I have been feeling constipated, although I still go everyday. I think I just need to 'clean out', I eat fiber,

however cannot go crazy on water because of ascites which I take water pills for. Any ideas?

however cannot go crazy on water because of ascites which I take water pills for...

sistergoldenhair

•12 years ago

21 Replies

Forsteo injection

Is anyone using or used this in the UK I am interested in whether GPs will prescribe it,I have read the side effects pretty similar to alendronic acid just...

Is anyone using or used this in the UK I am interested in whether GPs will p...

Neata

•12 years ago

4 Replies

When do my es payments stop if i am appealing.

Hi i went for an esa medical and didnt get any points so i appealed and sent in sicknotes my appeal was upheld and sent to the tribunal. I havent been to...

Hi i went for an esa medical and didnt get any points so i appealed and sent in ...

paulno

•12 years ago

2 Replies

Is loss of taste or funny taste in mouth linked to pbc ?

hannah1973

•12 years ago

7 Replies

How to find the words to explain to someone without PBC who doesn't know or understand how it feels like to have symptoms of PBC.

Having another crappy night unable to sleep, constant pain, ears itching, mind working overtime, thoroughly exhausted.... at the end of my tether!! Have...

Having another crappy night unable to sleep, constant pain, ears itching, mind w...

mumofthree

•12 years ago

15 Replies

"Omega-3 fatty acids in inflammation and autoimmune diseases""(a study of The Center for Genetics, Nutrition and Health, Washington)

http://www.ncbi.nlm.nih.gov/pubmed/12480795 Maybe worth asking your doctor about this. Also, in case you can take Omega 3 supplements, ask whether it is...

http://www.ncbi.nlm.nih.gov/pubmed/12480795 Maybe worth asking your doctor ab...

Cristina_Romania

•12 years ago

1 Reply

Probiotics & Autoimmunity (a study)

From US National Library of Medicine National Institutes of Health Mexican study http://www.ncbi.nlm.nih.gov/pubmed/17720327 (Probiotics are found most...

From US National Library of Medicine National Institutes of Health Mexican s...

Cristina_Romania

•12 years ago

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Diagnosed in June - update

Hi there. I had my third clinic visit (to my gastro consultant) today since being diagnosed in June with PBC. (I had three weeks in hospital of tests...

Hi there. I had my third clinic visit (to my gastro consultant) today since...

Junolee

•12 years ago

2 Replies

Nutrition for PBC/ PSC Patients

University of Virginia, School of Medicine article. What and how one eats (be it a PBC/PSC patient, or not) does make a big difference. Hope you find it...

University of Virginia, School of Medicine article. What and how one eats (be i...

Cristina_Romania

•12 years ago

5 Replies

Does having pbc now mean i can get free prescriptions i on so many prescription drugs, not including pbc ones yet it costs a fortune.

giggles12

•12 years ago

7 Replies

diagnosed 17th sept '12

My world has just crashed been in la la land since monday really and my sister law found this website and posted it on my fb page so just had look around and...

My world has just crashed been in la la land since monday really and my sister l...

giggles12

•12 years ago

13 Replies

Giving blood?????

HI Everyone Can you give blood with the AMA antibody?

skywalker

•12 years ago

3 Replies

6monthly check up

routine 6monthly check up with. Lovely chap who has been looking after me for 10 years,we ended up discussing how to keep fit as I can't use my legs (hips...

routine 6monthly check up with. Lovely chap who has been looking after me for 10...

Neata

•12 years ago

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PBC Foundation, Edinburgh UK

There are so many interesting / important questions aqnd topics around here, it is saddening that there are no answers for all of them from a medical...

There are so many interesting / important questions aqnd topics around here, it ...

Cristina_Romania

•12 years ago

2 Replies

Does it mean that AMA will definitely lead to PBC or there's any other explanation?

I'm very confused that if AMA is so important to diagnose with PBC, and if many people are diagnosed with PBC with AMA positive and LFT normal, does a single...

I'm very confused that if AMA is so important to diagnose with PBC, and if many ...

zhupa

•12 years ago

7 Replies

Has anyone been diagnosed in their early 30's or is it generally later in life? Does it make it more or less likely to be life threatening

Katep1980

•12 years ago

5 Replies

AMA-M2 abnormal

I was found AMA-M2 abnormal in a routine body check in China and from the websites I learned that this will very likely lead to PBC, if not now. Quite don't...

I was found AMA-M2 abnormal in a routine body check in China and from the websit...

zhupa

•12 years ago

9 Replies

GAS PROBLEMS

Found out I had PBC about 2years ago stage 4, two months ago found out I have celiac disease,so I eat no gluten I'm also a vegan but lately everything I eat...

Found out I had PBC about 2years ago stage 4, two months ago found out I have ce...

BECCAFROMWISCONSIN

•12 years ago

5 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for September 2012

i apealed against losing my full e.s.a in july 2011 after atos said i was fit for work,my tribunal is 19th of oct, continued below

To those with AMA positive, normal LFT and no symptoms, is there any medical intervention could be done? Anybody who has the experience?

Sounding off.

So this is all new!

Who do the NHS doctors think they are refusing me an MRI scan? Bet they would bite my hand off if I paid for one!!!!!

Decided to go private

PBC diagnoised yesterday started my URSO today should i be worried about possible side effects

I was diagnosed with PBC some eight weeks ago so finding this Forum very interesting.

"Omega-3 Fatty Acids in Inflammation and Autoimmune Diseases"Journal of the American College of Nutrition

Aspartame & MSG and autoimmune conditions. http://www.naturalnews.com/020550_excitotoxins_MSG.html

I have PBC. A trusted naturopath prescribed supplements. My GP is against .Liver specialist ambivalent. Im stuck in the middle. Advice pls

tired and a bit fed up

I have been feeling constipated, although I still go everyday. I think I just need to 'clean out', I eat fiber,

Forsteo injection

When do my es payments stop if i am appealing.

Is loss of taste or funny taste in mouth linked to pbc ?

How to find the words to explain to someone without PBC who doesn't know or understand how it feels like to have symptoms of PBC.

"Omega-3 fatty acids in inflammation and autoimmune diseases""(a study of The Center for Genetics, Nutrition and Health, Washington)

Probiotics & Autoimmunity (a study)

Diagnosed in June - update

Nutrition for PBC/ PSC Patients

Does having pbc now mean i can get free prescriptions i on so many prescription drugs, not including pbc ones yet it costs a fortune.

diagnosed 17th sept '12

Giving blood?????

6monthly check up

PBC Foundation, Edinburgh UK

Does it mean that AMA will definitely lead to PBC or there's any other explanation?

Has anyone been diagnosed in their early 30's or is it generally later in life? Does it make it more or less likely to be life threatening

AMA-M2 abnormal

GAS PROBLEMS

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