Posts - PBC Foundation | HealthUnlocked

Administrator•3 months ago

What do you feel is your best personality trait? For me, I really believe I am a good listener. I also try very hard to stay in contact with...

Friday Fun Question

What do you feel is your best personality trait? For me, I really believe I am ...

Are you a 'spoonie'? https://health.clevelandclinic.org/spoon-theory-chronic-illness I'm not sure how many of you are familiar with this. I...

Administrator•3 months ago

8 Replies

Thursday's Thoughts

Are you a 'spoonie'? https://health.clevelandclinic.org/spoon-theory-chronic-i...

Administrator•3 months ago

PBC Foundation is live now. Mo Christie & Professor David Jones answer your questions

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Please take advantage of this opportunity...

PBC Foundation is live now. Mo Christie & Professor David Jones answer your que...

PBC Foundation We’re delighted to announce the new #ProvidingBetterCare campaign will be launching on #PBCDay2024. Watch this space for more information on...

Administrator•3 months ago

5 Replies

Watch for further updates...

PBC Foundation We’re delighted to announce the new #ProvidingBetterCare campaig...

Administrator•3 months ago

Hi, I was diagnosed with PBC a few years ago although no liver damage and mostly asymptomatic. A couple of weeks ago my consultant put me on Cholurso tablets 3...

Cholurso side effects

Hi, I was diagnosed with PBC a few years ago although no liver damage and mostly...

Citylady33

•3 months ago

1 Reply

Wednesday's Word

fibrosis This refers to the development of scar tissue. Our body naturally wants to return our tissue and repair it to its normal structure....

fibrosis This refers to the development of scar tissue. Our body naturally wan...

Administrator•3 months ago

First time having any abnormality on my ultrasound for PBC check up. I was diagnosed about 7 years ago labs mostly within normal range with slight elevations...

mildly heterogeneous parenchymal echotexture ultrasound results

First time having any abnormality on my ultrasound for PBC check up. I was diag...

Michiganpbc

•3 months ago

3 Replies

all over pain

hi I’ve had pbc since 2015 I think? Over the years my pain all I’ve body has got worse. Wonder if connection hands arms legs hips and feet. Had bloods done...

hi I’ve had pbc since 2015 I think? Over the years my pain all I’ve body has go...

Deaks

•3 months ago

Hello everyone, I have been diagnosed with PBC over 7 years ago. I just joined and read a few comments about feeling, looking bloated and weight gain. I went a...

Bloating in stomach area, weight gain

Hello everyone, I have been diagnosed with PBC over 7 years ago. I just joined a...

6grand

•3 months ago

4 Replies

Tuesday's Tips

Dr. Jones makes it quite a point by saying that " there are 2 people in the room and one is much more invested in the conversation than the other". Wow is this...

Dr. Jones makes it quite a point by saying that " there are 2 people in the room...

Administrator•3 months ago

It's that time again.. what have you done just for you lately? It's not selfish, it's not conceited, it's not taking time from someone else. We can't...

It's 'Monday Me'

It's that time again.. what have you done just for you lately? It's not selfish...

Administrator•3 months ago

I really liked these.. hope you do too.

just wanted to share this with you

Administrator•3 months ago

Hello. I read about PBC and i found this foundation where i read about these diagnose. I do not have PBC but we suspect my mother has it. For some other...

Hello everyone 🍀

Hello. I read about PBC and i found this foundation where i read about these dia...

Justiceandlaw

•3 months ago

7 Replies

Sorry...

I just wanted you all to know that I didn't forget my 'Friday Fun' question. I had an unexpected trip to the ER early Friday morning. I had what's called a...

I just wanted you all to know that I didn't forget my 'Friday Fun' question. I ...

https://www.ccjm.org/content/89/6/315

Administrator•3 months ago

28 Replies

regarding common bile duct dilatation

Administrator•3 months ago

Hello, everyone. I had my Ultrasound last week, My CBD diameter is prominent measuring 12.1 cm. Is this finding worrying? Also my weight is 50 kilos...

Common Bile Duct

Hello, everyone. I had my Ultrasound last week, My CBD diameter is prominent ...

barotacnuevo

•3 months ago

15 Replies

Thursday Thoughts

"ok really or the standard ok?" This is part of a messenger chat I had a week or so ago with a good friend who also has PBC. In thinking of what I...

"ok really or the standard ok?" This is part of a messenger chat I had a week o...

Administrator•3 months ago

PBC Foundation · Prof David Jones will be here to answer your #PBC questions tomorrow at 2pm. You can take part in the private room or on Facebook live....

Hope you can take advantage of this...

PBC Foundation · Prof David Jones will be here to answer your #PBC questions ...

Administrator•3 months ago

osteoporosis This is a process of bone thinning that can easily lead to fractures, especially of the hip and spine. It happens...

Wednesday's Word

osteoporosis This is a process of bone thinning that can easily lead to frac...

Administrator•3 months ago

PBC Foundation 2 rooms have become available for our #PBC Patient Conference starting 7 September. For more information and how to take up this option click...

PBC Patient Conference

PBC Foundation 2 rooms have become available for our #PBC Patient Conference s...

Administrator•4 months ago

https://my.clevelandclinic.org/health/diagnostics/10683-dexa-dxa-scan-bone-density-test

Information regarding DEXA scans

https://my.clevelandclinic.org/health/diagnostics/10683-dexa-dxa-scan-bone-densi...

Administrator•4 months ago

So often I hear that " I'm a different person since my diagnosis". What would you say to someone who feels this way? Did you? Is it a bad thing...

Tuesday's Tips

So often I hear that " I'm a different person since my diagnosis". What would yo...

In 2021 I had a Dexa scan because I was having a little back pain, nothing too bad and still working at the time, I was absolutely shocked to be told I had not...

Administrator•4 months ago

11 Replies

Fragility fractures in spine while mild Osteopenia

In 2021 I had a Dexa scan because I was having a little back pain, nothing too b...

shadowme2

•4 months ago

10 Replies

fibroscan results

hi just had the results of my Fibroscan and it is 10.6 she didn’t seem unduly worried so is it ok

hi just had the results of my Fibroscan and it is 10.6 she didn’t seem unduly w...

Kieraferret

•4 months ago

10 Replies

It's 'Monday Me'

from the PBC Foundation · Self-care is taking time to do things that help you live well and improve both your physical health and mental health. This can...

from the PBC Foundation · Self-care is taking time to do things that help yo...

Administrator•4 months ago

My total cholesterol level has shot up to 6.39. My internist wants me on a statin (Atorvastatin) with it's many negative side effects. I've been researching...

PBC and Cholesterol

My total cholesterol level has shot up to 6.39. My internist wants me on a stati...

Carly92

•4 months ago

29 Replies

yeah!

I just read that Gilead got approval from the FDA to put new drug on the market for PBC. gilead.com near the bottom of the website click on 'press...

I just read that Gilead got approval from the FDA to put new drug on the market ...

Administrator•4 months ago

What piece of clothing should you throw out - but just can't.

Friday Fun Question