It's Thanksgiving here and I wanted to express my gratitude for all of you! What a gift to have this space where we can share our ups and downs and our questions and concerns. Having a rare chronic condition can sometimes be isolating BUT we know that we will be understood and heard here. When I was first diagnosed this site was a real lifeline. Forever grateful.
May everyone have some time of joy and connection today. Sending love and hugs to all. 😘
Eileen
p.s. Big shout out of thanks to Robert and the PBC Foundation for sponsoring this site and to all their hard work on supporting research and spreading the word about PBC. God bless.
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EileenUSA
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Hugs to all. I also really appreciate the global reach that our group has. This is one of the positives of the Internet. We can cross oceans and geographical lines and connect. ❤️
Hey Robert! yes-- yes thank you. All the work you do helps ALL of us.. no matter the country. I believe this is the document you are referring to. Great document for patients to have for discussions with doctors and especially helpful for newly diagnosed.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Lack of support for PBC cirhossis....and venting feelings.
Are we ALL mad???
Irish liver specialist 
PBC Name Change notice released via PBCers.org (* Partially repetitive to what's been posted here and with a few diifferent details)
