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PBC Foundation

9,388 members • 7,992 posts

All posts for February 2018

Diet for Liver Disease

Doctors never tell you to change your diet because people tend to make excuses and argue with them about it. So I went to a dietician who said to stick to more...

Doctors never tell you to change your diet because people tend to make excuses a...

GhostHunter

•6 years ago

87 Replies

Sitting here waiting

Waiting for my dr to call me about my blood work from yesterday. Question is the stress that my adult children causing me going to win They think I’m made of...

Waiting for my dr to call me about my blood work from yesterday. Question is th...

Hidden

•6 years ago

4 Replies

Hate the pain!

I never had any pain in my right side until I started taking Ursodiol, now it hurts all the time only been on 500 a day for three months anyone have pain all...

I never had any pain in my right side until I started taking Ursodiol, now it hu...

Cathyjo

•6 years ago

2 Replies

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Sleeping position...

Do you find you have pain when sleeping on right side where liver is?I did a few times so I know sleep on my left side.My Hubby thinks I am crazy with my...

Do you find you have pain when sleeping on right side where liver is?I did a few...

PBCTracy

•6 years ago

9 Replies

im scared and dont know what to do

i ned some feed back...was diagnosed with pbc 09/2016 since then all test have come back ok blood,scans,ect..i always felt dr made a mistake when he told me my...

i ned some feed back...was diagnosed with pbc 09/2016 since then all test have c...

Hidden

•6 years ago

20 Replies

Helping the cause.

Is thete information. We can put at doctors office or something to give them this site?

Is thete information. We can put at doctors office or something to give them thi...

My-life

•6 years ago

6 Replies

Liver not good after stopping Urso

Hi everyone. I said before I’ll keep you posted about the result of stopping Urso, generally after six weeks without it I felt much better but tested proved...

Hi everyone. I said before I’ll keep you posted about the result of stopping Urs...

Evaibrahim60

•6 years ago

7 Replies

Can you feel when your immune system goes on the attack?

I get severe hot flashes, run a low grade fever, tremors, extreme dizziness, and dehydration, then within 15 minutes I get pains in the organs which I believe...

I get severe hot flashes, run a low grade fever, tremors, extreme dizziness, and...

GhostHunter

•6 years ago

1 Reply

Enlarged lymph nodes

I was diagnosed in November with PBC. Since then I have had 3 Ct scans an ultrasound and a endoscope. At first they thought I had a cyst on my pancreas at...

I was diagnosed in November with PBC. Since then I have had 3 Ct scans an ultras...

Tootoot

•6 years ago

4 Replies

Fatty liver diet

Hi, I was diagnosed with PBC 6 years ago and taking urso. Was also told I had a fatty liver. My levels are getting worse despite increasing my urso and...

Hi, I was diagnosed with PBC 6 years ago and taking urso. Was also told I had a ...

Catherine3883

•6 years ago

19 Replies

biopsy said early stage, elastography says stage four which is cirrhosis?

Has anyone else been diagnosed by biopsy as early stage pbc then only a year later had elastography say stage four which is cirrhosis? My bloods are barely out...

Has anyone else been diagnosed by biopsy as early stage pbc then only a year lat...

Aussielouise

•6 years ago

64 Replies

Anxious and confused

I already has PTSD, Post Concussion Syndrome from 2 Traumatic Brain injuries with cognitive and executive deficits, I also have ADHD. My anxiety already never...

I already has PTSD, Post Concussion Syndrome from 2 Traumatic Brain injuries wit...

HeadMinion

•6 years ago

7 Replies

Night sweats

Does anybody get really hot of a night just my body not my face as that is out of the bed its almost like night a menopause) (excuse spelling) but im well over...

Does anybody get really hot of a night just my body not my face as that is out o...

kingsnorth

•6 years ago

16 Replies

Email question

Does anyone know why I have to continuously log in to email every time I want to read a post? I am having to constantly enter my email and password over and...

Does anyone know why I have to continuously log in to email every time I want t...

LKoewler

•6 years ago

5 Replies

Bezafibrate

My consultant has just suggested that I should take 400mg Bezafibrate modified release tablet once a day. It is not something I have heard of and was just...

My consultant has just suggested that I should take 400mg Bezafibrate modified r...

IOW-gal

•6 years ago

12 Replies

Lonely

I became very sick in 2008 with acute renal failure and raised LFT Very high. I had temp confusion difficulty with so each and walking. Not to mention my...

I became very sick in 2008 with acute renal failure and raised LFT Very high. I...

Colryan

•6 years ago

3 Replies

Meds

2 weeks in with correct dose of urso for pbc and steroids for newly diagnosed aih and I feel like a new woman 😄. Muscle pain reduced within 24 hrs from a pain...

2 weeks in with correct dose of urso for pbc and steroids for newly diagnosed ai...

Louisethew

•6 years ago

12 Replies

PBC

On line assessment

Colryan

•6 years ago

Be the first to reply

My life

My doctor told me they do not do bi-opsies on the liver becouse differnt areas of the liver can give out differnt readings. I have tried B12 to help with...

My doctor told me they do not do bi-opsies on the liver becouse differnt areas ...

My-life

•6 years ago

11 Replies

Can PBC patients donate their organs safely?

Hi, We all hope if it is medically time for us to get a liver transplant that we are lucky enough to get one. Can we look at the flip side of that for a...

Hi, We all hope if it is medically time for us to get a liver transplant that we...

Q8Cooper

•6 years ago

2 Replies

28 weeks.....6 months

Ok so I have telephoned the appointment centre for my appointment to see a liver consultant...28 weeks waiting list which is 6 months. I wonder if my GP will...

Ok so I have telephoned the appointment centre for my appointment to see a liver...

Alley27

•6 years ago

4 Replies

Severe Joint Pain with PBC

Hi Everyone! It’s been awhile since I last posted. I have been getting aches in my bones kinda like when your getting the flu. But in the past two months I am...

Hi Everyone! It’s been awhile since I last posted. I have been getting aches in ...

Alishav2003

•6 years ago

12 Replies

Ascites

At what stage of liver failure do you get ascites?

AuntDeeDee

•6 years ago

3 Replies

Positive Ama, NAFLD, weak positive F-Actin and two positive ANA's, liver ensyme test elevated off and on for years.

Hello, I have been being tested for two years by my doctors for autoimmune diseases. I have had high liver enzymes for some 6 or more years and upper right...

Hello, I have been being tested for two years by my doctors for autoimmune disea...

AuntDeeDee

•6 years ago

4 Replies

Highly positive AMA turning up now as Negative?

Hi All, Early on when first diagnosed with PBC I had a negative AMA which confused my doctor. Within a month or so I had my labs again in a few weeks and I was...

Hi All, Early on when first diagnosed with PBC I had a negative AMA which confus...

Q8Cooper

•6 years ago

15 Replies

Can I donate. To non hopkins liphoma? My sister has this and I would love to help her.

What can you donate?

My-life

•6 years ago

Be the first to reply

...PBC plus another autoimmune disease?

so glad i found you. OCALIVA is tremendously expensive, and it might not work for me! many questions, but 1st: how many of you have PBC in addition to an...

so glad i found you. OCALIVA is tremendously expensive, and it might not work fo...

divinemizm

•6 years ago

28 Replies

Autoimmune lung issues?

I have been undergoing treatment for pneumonia this past weekend . A cat scan was taken and radiologist was undecided about a “mass” in my lower right lobe....

I have been undergoing treatment for pneumonia this past weekend . A cat scan wa...

Nanajo1962

•6 years ago

6 Replies

Igg

I have high Igm blood test. Anybody experience this?

KevinHall10_

•6 years ago

6 Replies

Newby

Hi im Christine 67 and was dianosed with pbc 2 weeks ago by way of biopsy l also have lupus and sjogrens l started urso 2 weeks ago and got to see my...

Hi im Christine 67 and was dianosed with pbc 2 weeks ago by way of biopsy l also...

kingsnorth

•6 years ago

28 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for February 2018

Diet for Liver Disease

Sitting here waiting

Hate the pain!

Sleeping position...

im scared and dont know what to do

Helping the cause.

Liver not good after stopping Urso

Can you feel when your immune system goes on the attack?

Enlarged lymph nodes

Fatty liver diet

biopsy said early stage, elastography says stage four which is cirrhosis?

Anxious and confused

Night sweats

Email question

Bezafibrate

Lonely

Meds

PBC

My life

Can PBC patients donate their organs safely?

28 weeks.....6 months

Severe Joint Pain with PBC

Ascites

Positive Ama, NAFLD, weak positive F-Actin and two positive ANA's, liver ensyme test elevated off and on for years.

Highly positive AMA turning up now as Negative?

Can I donate. To non hopkins liphoma? My sister has this and I would love to help her.

...PBC plus another autoimmune disease?

Autoimmune lung issues?

Igg

Newby

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