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PBC Foundation

9,384 members • 7,989 posts

All posts for January 2016

Amount of urso taken

I was diagnosed in June 2015 after having liver biopsy started on urso,I did,not have any symptoms before biopsy just blood test showing something wrong ,when...

I was diagnosed in June 2015 after having liver biopsy started on urso,I did,not...

Mozzamo

•8 years ago

15 Replies

CDN Lady REC'D PBC DVD!!

Just wanted to give a huge shout out of thanks to LIVER NORTH for sending me the PBC DVD!! I received it today in the mail ( must admit I felt a little extra...

Just wanted to give a huge shout out of thanks to LIVER NORTH for sending me th...

Seajeanie

•8 years ago

2 Replies

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PBC

I have been diagnosed with PBC recently and am terrified I am going to die. I am very emotional and cry when ever I talk about it. I don't understand the blood...

I have been diagnosed with PBC recently and am terrified I am going to die. I am...

Twill

•8 years ago

26 Replies

ultra sound scan

hi I had a phone call today t0 go for a ultrasound scan next Monday ive already had a fibroscan so why do they need an ultrasound as well now I find all this...

hi I had a phone call today t0 go for a ultrasound scan next Monday ive already ...

hd_60

•8 years ago

7 Replies

Have PBC. Can I take antibiotics and/or Advil?

I have chronic sinusitis, had three surgeries on the sinuses in the early 1990s, but still experience on going sinus infections. Is it safe for those of us...

I have chronic sinusitis, had three surgeries on the sinuses in the early 1990s...

Seajeanie

•8 years ago

6 Replies

How did you get diagnosed?

Hi, I'm still in the diagnosis process. AMA and ANA positive and symptomatic. I'm just wondering how did others get diagnosed? What investigations did you...

Hi, I'm still in the diagnosis process. AMA and ANA positive and symptomatic. ...

Lauralee851

•8 years ago

29 Replies

Concerned

I was diagnosed with PBC in 2010, my feet, hands and stomach area feel swollen always at the ending of the day. i workout 4x a week and im very active, even...

I was diagnosed with PBC in 2010, my feet, hands and stomach area feel swollen a...

Rosairobles

•8 years ago

9 Replies

Feeling lost

I don't understand all the abbreviations everyone uses yet. I know what ama, is. And I know what Lft's are, but I don't know what a lot more are yet. I know...

I don't understand all the abbreviations everyone uses yet. I know what ama, i...

krazy-girl

•8 years ago

11 Replies

Diet

Are there any foods/drinks which would be harmful, or unhelpful with having PBC

Sandie1

•8 years ago

17 Replies

Awaiting liver biopsy ? AIH/PBC crossover

Hi everyone, me again.... Had a busy few weeks. Started on thyroxine as been diagnosed with hypothyroidism now. Following consultant apt she wants to organise...

Hi everyone, me again.... Had a busy few weeks. Started on thyroxine as been dia...

Mumoftwo81

•8 years ago

12 Replies

Struggling waiting for diagnosis

Hi, I tested positive for AMA M2 and ANA in March but as I moved house the transfer between specialists meant that I didn't find out what that meant until...

Hi, I tested positive for AMA M2 and ANA in March but as I moved house the tra...

Lauralee851

•8 years ago

7 Replies

Hello! First post...

Hi everyone! I've been a lurker for a couple months as I await a follow up with my Gastro; however I decided to write. Back in November, I tested positive for...

Hi everyone! I've been a lurker for a couple months as I await a follow up with ...

Galintx

•8 years ago

11 Replies

New here

Hi, my name is Linda Villanova and I'm from Uxbridge, Ont. Canada and I'm 55. Diagnosed with PBC Jun 2015. Came back from vacation in Feb and got shingles...

Hi, my name is Linda Villanova and I'm from Uxbridge, Ont. Canada and I'm 55. D...

LindaVillanova

•8 years ago

16 Replies

new to pbc

Thank you everyone that replied to my earlier post it was very kind of you all as it has only been months since being diagnosed I still have a lot to learn I...

Thank you everyone that replied to my earlier post it was very kind of you all a...

hd_60

•8 years ago

1 Reply

Migraine

Can anyone help with what to take for a migraine. Doc told me not to take anything stronger than 4 paracetamols a day without asking. I have PBC. paracetamol...

Can anyone help with what to take for a migraine. Doc told me not to take anythi...

Louedwards

•8 years ago

2 Replies

Twill

I have recently been diagnosed with PBC and didn't know anything about the illness. Two years ago I was told I had auto immune disorder but was never told how...

I have recently been diagnosed with PBC and didn't know anything about the illne...

Twill

•8 years ago

6 Replies

Support NE Scotland

I have been researching all information I can for my sister who was diagnosed 18 months ago. She is struggling along and feeling quite isolated as doesn't have...

I have been researching all information I can for my sister who was diagnosed 18...

coutryquine

•8 years ago

4 Replies

PBC Australia

Hi, ive just been newly diagnosed with PBC. Though im thankful for all the information and support from the PBC Foundation Id love to meet people in Australia....

Hi, ive just been newly diagnosed with PBC. Though im thankful for all the infor...

ValerieSlavin

•8 years ago

11 Replies

im new to pbc

hi I was diagnosed with pbc last august I had a fibroscan in December it was 9.5 (don't really understand what that means ) I have suffered with itching,...

hi I was diagnosed with pbc last august I had a fibroscan in December it was 9.5...

hd_60

•8 years ago

14 Replies

First group pbc meeting, london

Hi I attended my first London meeting yesterday, and it was nice to see so many people with pbc, this sounds strange to say, but you know what I mean lol. I...

Hi I attended my first London meeting yesterday, and it was nice to see so many ...

Twinkle26

•8 years ago

24 Replies

PBC DVD for CDN Lady

I've heard mention of a DVD on this site for those of us with PBC. I live in Ontario, Canada, was diagnosed in 2013 but have received very little information...

I've heard mention of a DVD on this site for those of us with PBC. I live in Ont...

Seajeanie

•8 years ago

21 Replies

scared the urso will make me gain weight

I was diagnosed with PBC 3 years ago. I don't always take my urso because I feel the side effect of weight gain is too scary for me. I had a gastric sleeve...

I was diagnosed with PBC 3 years ago. I don't always take my urso because I feel...

sherikaye

•8 years ago

27 Replies

Travel Insurance

When are the insurance companies going to change their matrix for PBC? They still use Cirhossis and not Collingitis (sorry about the spelling). The best...

When are the insurance companies going to change their matrix for PBC? They sti...

June9961

•8 years ago

23 Replies

Research Participation

Hi everyone! I have been asked to participate in a research project to study a potential new drug for the treatment of PBC. The new drug is MBX-8025. I reside...

Hi everyone! I have been asked to participate in a research project to study a ...

LeanCat

•8 years ago

13 Replies

PBC

Hi was just wondering if anyone gets itchy palms and it goes down to my fingers mine itchs so bad that Ive make them sore from scratching one hand is worse...

Hi was just wondering if anyone gets itchy palms and it goes down to my fingers ...

Dese

•8 years ago

13 Replies

Scan today

Hi all I am going for my liver ultrasound scan today and I am so scared what they may say to me or what they may find ?

Hi all I am going for my liver ultrasound scan today and I am so scared what the...

Cherry69

•8 years ago

6 Replies

Dealing with bad itiching

Hi, I am new to this community. I was diagnosed with PBS 2 months ago. I have had many questions. I deal with the fatigue occasionally, but am currently...

Hi, I am new to this community. I was diagnosed with PBS 2 months ago. I have h...

krazy-girl

•8 years ago

12 Replies

Janj

So so worried I can hardly function and wondering if anyone can help alleviate my troubles. I recently had ANA test for lupus by my Dermatoligist to rule out...

So so worried I can hardly function and wondering if anyone can help alleviate m...

Olivia1253

•8 years ago

8 Replies

Using sudafed naaal spray

Hi everyone was diagnosed wth pbc around 6 month ago iv came down wth the flu virus last wk now I thnk my sinis are infected can I use sudafed nasal spray. New...

Hi everyone was diagnosed wth pbc around 6 month ago iv came down wth the flu vi...

jordan6

•8 years ago

6 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for January 2016

Amount of urso taken

More questions and no answers

CDN Lady REC'D PBC DVD!!

PBC

ultra sound scan

Have PBC. Can I take antibiotics and/or Advil?

How did you get diagnosed?

Concerned

Feeling lost

Diet

Awaiting liver biopsy ? AIH/PBC crossover

Struggling waiting for diagnosis

Hello! First post...

New here

new to pbc

Migraine

Twill

Support NE Scotland

PBC Australia

im new to pbc

First group pbc meeting, london

PBC DVD for CDN Lady

scared the urso will make me gain weight

Travel Insurance

Research Participation

PBC

Scan today

Dealing with bad itiching

Janj

Using sudafed naaal spray

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