Posts - PBC Foundation | HealthUnlocked

PBC Foundation

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All posts for November 2015

itching

Is the itching deep or superficial? In a particular part of the body or the whole body? I 'been itch twice where it hurts. (Upper side quadrant)

Is the itching deep or superficial? In a particular part of the body or the whol...

odchacon

•9 years ago

6 Replies

Follow Up After Diagnosis

Here's the update to my previous post (https://healthunlocked.com/pbc-foundation/posts/132591309/diagnosis-today). Just following through with the treatment...

Here's the update to my previous post (https://healthunlocked.com/pbc-foundation...

chynablue

•9 years ago

5 Replies

Sphincter of Oddi Dysfuntion

Have any of you heard about Sphincter of Oddi Dysfuntion? That's why I went to see the GI doctor before he came up with the idea of PBC

Have any of you heard about Sphincter of Oddi Dysfuntion? That's why I went to s...

odchacon

•9 years ago

8 Replies

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Not missed alcohol

After a full weekend out partying and only drinking water and non alcoholic cocktails I can say I didn't miss it one bit and felt great next morning. I don't...

After a full weekend out partying and only drinking water and non alcoholic cock...

Bellalou10

•9 years ago

9 Replies

Prednisolone and pbc

Hi have just picked up somewhere that prednisolone which I am prescribed for POlymyalgia is v toxic for the liver. I realise that the liver has to work...

Hi have just picked up somewhere that prednisolone which I am prescribed for POl...

Wispa123

•9 years ago

5 Replies

More confuse than ever!

I tested positive for AMA M2. My Alkaline phosphatase is mild elevated. I have fatigues. I have terrible right upper quadrant and lower back pain. However my...

I tested positive for AMA M2. My Alkaline phosphatase is mild elevated. I have f...

odchacon

•9 years ago

26 Replies

Vitamin B12

Does anyone have raised Vitamin B12 levels with PBC? My levels are going up. Does anyone know what this means?

Does anyone have raised Vitamin B12 levels with PBC? My levels are going up. D...

tinypixie

•9 years ago

2 Replies

Urso Questions

Hi, Everyone, I've been on Urso for 9 weeks and I've been fortunate to have good results already: GGT - from 750 to 164 ALT - from 450 to 35 ALP - from 513...

Hi, Everyone, I've been on Urso for 9 weeks and I've been fortunate to have goo...

tinypixie

•9 years ago

5 Replies

Itch and coffee

I am sure someone has posted something about coffee on here. What does it do? How does it help? Anything to help itch is appreciated!

I am sure someone has posted something about coffee on here. What does it do? Ho...

Goldsworthyhelen

•9 years ago

8 Replies

Itching!!!!!

Because a lot of people have never heard of PBC, I find I am making excuses for myself, especially the tiredness and itching, they say I look so healthy, but I...

Because a lot of people have never heard of PBC, I find I am making excuses for ...

Sandie1

•9 years ago

7 Replies

Alcohol and pbc

Hello all Does anyone know if you can drink alcohol with Pbc? As the party season is upon us and I'm going to my first Xmas party tomorrow night I wondered if...

Hello all Does anyone know if you can drink alcohol with Pbc? As the party seaso...

Bellalou10

•9 years ago

19 Replies

Diet

I am newly diagnosed but tbc (was told by Consultant but alas GP still awaiting confirmation - letter seems to have gone astray). In short-term, can someone...

I am newly diagnosed but tbc (was told by Consultant but alas GP still awaiting ...

YummyBear

•9 years ago

5 Replies

Increased itch

Hi started taking Urso and itch driving me mad,worse than before . Any one else had this ? I did wonder if it was in my mind.

Hi started taking Urso and itch driving me mad,worse than before . Any one else ...

Goldsworthyhelen

•9 years ago

38 Replies

Leg cramp

I have been getting lots of cramps in my legs and feet lately and have just read this is a possible symptom of liver disease. This is the first time in 14...

I have been getting lots of cramps in my legs and feet lately and have just read...

dianemle

•9 years ago

8 Replies

hello

Good morning everyone , is anyone on Personal Independence Payment for primary biliary cirrhosis ,if so did you find it hard to get it

Good morning everyone , is anyone on Personal Independence Payment for primary b...

janejulie

•9 years ago

4 Replies

Pain

I have been having pain in liver area that starts out like heartburn then intensifies something awful. I feel it in my upper back also. It only lasts about 10...

I have been having pain in liver area that starts out like heartburn then intens...

Lisa15

•9 years ago

5 Replies

Vitamin D Deficiency

After diagnosing me with PBC, my doctor ran a Vitamin D 25 Hydroxy blood test, and it came back too low. I started a medication last night. It's once a week...

After diagnosing me with PBC, my doctor ran a Vitamin D 25 Hydroxy blood test, a...

chynablue

•9 years ago

23 Replies

New Urso RX

Just picked up RX to start Urdo and was shocked at the # of pills for a one month supply, 270. 3 pills, 3 times a day, forever. I have PBC but no cirrhosis. Is...

Just picked up RX to start Urdo and was shocked at the # of pills for a one mont...

Love4Liver

•9 years ago

13 Replies

Just Diagnosed

Hi All I was diagnosed with PBC on Thursday, this was after seeing a gastroenterologist for, I think, about 4 years. I was referred to him from the...

Hi All I was diagnosed with PBC on Thursday, this was after seeing a gastroenter...

Heleno

•9 years ago

12 Replies

Upset stomach

Hi everyone I am just wondering start my urso lady week and have had upset stomach since will it settle down in time xxx

Hi everyone I am just wondering start my urso lady week and have had upset stoma...

Kimmy1972

•9 years ago

7 Replies

Urso and hair loss

Hi Is there anyone out there that can tell me if they are taking urso and it is having NO effect on their hair? I'm reading stories about hair thinning and...

Hi Is there anyone out there that can tell me if they are taking urso and it is...

Bellalou10

•9 years ago

48 Replies

Diagnosis Today

I went to the Gastroenterologist today to follow up after my MRI. Here's a little history and the results of today's visit: AST and ALT have been elevated...

I went to the Gastroenterologist today to follow up after my MRI. Here's a litt...

chynablue

•9 years ago

43 Replies

Advice

Please can you advise me what LFTS are high with PBC and what liver biopsy will show with Pbc Many thanks

Please can you advise me what LFTS are high with PBC and what liver biopsy will ...

Hidden

•9 years ago

3 Replies

Chronic fatigue and medication

Hi everyone, I visited my GP yesterday after being gripped by fatigue and joint pain for many months. He has diagnosed chronic fatigue syndrome (ME) and...

Hi everyone, I visited my GP yesterday after being gripped by fatigue and joint ...

Shiloh119

•9 years ago

3 Replies

Pbc

Hi I was diagnosed yesterday with Pbc and I am absolutely terrified. My alt has got worse with every blood test this year and is now 421. I need all the advice...

Hi I was diagnosed yesterday with Pbc and I am absolutely terrified. My alt has ...

Bellalou10

•9 years ago

25 Replies

Hereditary

Hi is it true having a close relative with PBC means you are more likely to develop the condition yourself. My Mum was diagnosis with PBC 23 years ago, she...

Hi is it true having a close relative with PBC means you are more likely to deve...

ellesawyer

•9 years ago

11 Replies

New to this whole PBC idea!

Hi everyone, as yet I have not been officially diagnosed with pbc but my lfts are abnormal and I have got the most debilitating chronic fatigue to the point I...

Hi everyone, as yet I have not been officially diagnosed with pbc but my lfts ar...

MissT137

•9 years ago

7 Replies

Pbc

I am waiting for a biopsy for suspected Pbc, I am very scared about my future as I am 42 with a husband and two children. My liver results came back yesterday...

I am waiting for a biopsy for suspected Pbc, I am very scared about my future as...

Bellalou10

•9 years ago

27 Replies

MRI looks good... am I in the clear?

My MRI results are in! I have fatty deposits in my liver, but no bile duct damage or scarring and everything else looks ok. My blood work showed elevated AST...

My MRI results are in! I have fatty deposits in my liver, but no bile duct dama...

chynablue

•9 years ago

12 Replies

Varices

I have had pbc for 6 years with virtually no problems/symptoms. I have recently had a scan which shows I have a large amount of varices in my oesophagus....

I have had pbc for 6 years with virtually no problems/symptoms. I have recently...

roseter

•9 years ago

4 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for November 2015

itching

Follow Up After Diagnosis

Sphincter of Oddi Dysfuntion

Not missed alcohol

Prednisolone and pbc

More confuse than ever!

Vitamin B12

Urso Questions

Itch and coffee

Itching!!!!!

Alcohol and pbc

Diet

Increased itch

Leg cramp

hello

Pain

Vitamin D Deficiency

New Urso RX

Just Diagnosed

Upset stomach

Urso and hair loss

Diagnosis Today

Advice

Chronic fatigue and medication

Pbc

Hereditary

New to this whole PBC idea!

Pbc

MRI looks good... am I in the clear?

Varices

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