Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,384 members • 7,989 posts

All posts for February 2012

My grandma had this disease, is it hereditory?

mandijt

•12 years ago

8 Replies

Mitochondria cells

If this is the meaning (I quote from a biology site):- 'Mitochondria are the cell's power producers. They convert energy into forms that are usable by the...

If this is the meaning (I quote from a biology site):- 'Mitochondria are the ce...

Hidden

•12 years ago

11 Replies

Appointment with liver specialist

I was really good wrote a list of questions took my husband but still managed to come home without all the answers! Question : what stage am I at ? Reply :...

I was really good wrote a list of questions took my husband but still managed to...

cowren

•12 years ago

11 Replies

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How is it possible to be AMA negative and still have PBC?

Jtxx

•12 years ago

5 Replies

Does anyone know how long you can have PBC for before it is diagnosed? Can you be born with it and it just needs something to trigger it?

Jtxx

•12 years ago

15 Replies

DIET & PBC: What makes you feel good / alleviates some PBC-related symptoms and what does not?

1) Food - What and also When/ How do you eat - with what good or bad results for your general well-being? 2) Drinking water - how much / when - how do...

1) Food - What and also When/ How do you eat - with what good or bad results for...

Cristina_Romania

•12 years ago

26 Replies

IRREGULAR PERIODS

Intressted to know if any ladies with PBC ever experienced any irregular vaginal bleeding? I misscarried at 14wks in Oct 2010 which led to me developing...

Intressted to know if any ladies with PBC ever experienced any irregular vaginal...

Cherry17

•12 years ago

6 Replies

Am I the only one not taking URSO with a PBC diagnosis?

Should everyone with a PBC diagnosis be taking URSO? Whilst being investigated for a myriad of symptons (turns out at 52 I am menopausal and am now on high...

Should everyone with a PBC diagnosis be taking URSO? Whilst being investigated ...

nearlyThere

•12 years ago

15 Replies

Is this not a closed group? I'm seeing my questions on my browser.

Magnolia

•12 years ago

2 Replies

Siblings with PBC ?

I have recently identified such a case in Romania, two sisters. I know it's a pretty rare situation.. anubody has experience or information on such cases?...

I have recently identified such a case in Romania, two sisters. I know it's a pr...

Cristina_Romania

•12 years ago

12 Replies

newly diaognoised

well hello to all i have joined this site to try and help me with understanding wot pbc is and how it will affect me in the future....

well hello to all i have joined this site to try and help me with u...

michalax

•12 years ago

12 Replies

look so well

How many other members Family, Friends,ETC find it hard to believe there is anything wrong with you when you know you feel dreadfull.

How many other members Family, Friends,ETC find it hard to believe there is anyt...

Hidden

•12 years ago

9 Replies

Insomnia?

Is this something that is related to PBC or is it as a result of extra rest taken in the day? I need to sleep or rest every day and still feel tired at bed...

Is this something that is related to PBC or is it as a result of extra rest tak...

itchyandscratchy

•12 years ago

10 Replies

Do colds etc affect pbc?

I have had a terrible cough now for two weeks as well as a sniffle and a sore throat on and off, i feel terrible. My husband has taken time off this week to...

I have had a terrible cough now for two weeks as well as a sniffle and a sore th...

Lisa30

•12 years ago

7 Replies

Does anyone suffer from poor eyesight on a bad day my distance vision is poor

Jgreen46

•12 years ago

5 Replies

anemia??

Hi -- I am a life-long borderline anemic gal -- always, on and off, all my 54 years --- wondering how many others Are either borderline or Are anemic? -- In...

Hi -- I am a life-long borderline anemic gal -- always, on and off, all my 54 ye...

Hidden

•12 years ago

11 Replies

Is anyone being treated with Azathioprine for PBC as I thought this was just a treatement for AIH & Urso was the only drug available for PBC

Jtxx

•12 years ago

3 Replies

Vitamin Supplements?

Does anyone take vitamin supplements? If so, which ones. My GP doesn't seem to think this is necessary but keep reading that PBC sufferers may benefit from...

Does anyone take vitamin supplements? If so, which ones. My GP doesn't seem to t...

jrobertson1

•12 years ago

10 Replies

Irritable more than usually?

With all due respect for everybody. I have experienced from my mother and also read quite a few things on this subject: Liver patients generally are said,...

With all due respect for everybody. I have experienced from my mother and also r...

Cristina_Romania

•12 years ago

17 Replies

advanced stage, what does that mean for me?

I was diagnosed in 2009 after severe itching for just under a year, and numerous other symptoms-fatigue, unexplained bruising etc. I have twice reacted badly...

I was diagnosed in 2009 after severe itching for just under a year, and numerous...

itchyandscratchy

•12 years ago

13 Replies

DIZZINESS

Hi I`ve had pbc since 2001 but would love to know if anyone suffers from dizziness I`ve had them for about 3 years been sent to hospital for tests. Thanks

Hi I`ve had pbc since 2001 but would love to know if anyone suffers from dizzin...

ginag

•12 years ago

16 Replies

GP problems?

Only recently diagnosed with PBC but had symptoms long before. Thought I was just getting older and menopausal. My GP doesn't seem to think that any of my...

Only recently diagnosed with PBC but had symptoms long before. Thought I was jus...

jrobertson1

•12 years ago

20 Replies

Looking for info on Naltrexone please.

I have had the 'dreaded itch' for 7 months now, antihistamines give slight relief as does Aveeno moisturiser. I have tried Questran which didnt work,...

I have had the 'dreaded itch' for 7 months now, antihistamines give slight relie...

Jill68

•12 years ago

11 Replies

PBC GENETICS STUDY.... I am

I have just received my pack... now to et a apt with the bloods nurse... http://public.ukcrn.org.uk/search/StudyDetail.aspx?StudyID=5630

I have just received my pack... now to et a apt with the bloods nurse... htt...

Dina

•12 years ago

5 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for February 2012

My grandma had this disease, is it hereditory?

Mitochondria cells

Appointment with liver specialist

How is it possible to be AMA negative and still have PBC?

Does anyone know how long you can have PBC for before it is diagnosed? Can you be born with it and it just needs something to trigger it?

DIET & PBC: What makes you feel good / alleviates some PBC-related symptoms and what does not?

IRREGULAR PERIODS

Am I the only one not taking URSO with a PBC diagnosis?

Is this not a closed group? I'm seeing my questions on my browser.

Siblings with PBC ?

newly diaognoised

look so well

Insomnia?

Do colds etc affect pbc?

Does anyone suffer from poor eyesight on a bad day my distance vision is poor

anemia??

Is anyone being treated with Azathioprine for PBC as I thought this was just a treatement for AIH & Urso was the only drug available for PBC

Vitamin Supplements?

Irritable more than usually?

advanced stage, what does that mean for me?

DIZZINESS

GP problems?

Looking for info on Naltrexone please.

PBC GENETICS STUDY.... I am

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