Posts - PBC Foundation | HealthUnlocked

i am actually writing this for a young lady whom i found out has PBC and is a former student. She is not fifty, and seems to have an aggressive form of PBC....

Administrator•6 months ago

6 Replies

Bruising easily

i am actually writing this for a young lady whom i found out has PBC and is a fo...

Gaspereaux

•6 months ago

8 Replies

Bruising easily

i am actually writing this for a young lady whom i found out has PBC and is a former student. She is not fifty, and seems to have an aggressive form of PBC....

i am actually writing this for a young lady whom i found out has PBC and is a fo...

Gaspereaux

•6 months ago

1 Reply

Want to take advantage of all our features? Just log in!

Hints regarding itching...

DO’S Tepid showers Dove or baby soap/shower gels Exfoliating gloves using quick, easy strokes Coconut oil in the shower – and afterwards Meds –...

DO’S Tepid showers Dove or baby soap/shower gels Exfoliating gloves using qui...

What makes you think you are doing 'ok' since diagnosis? Do you feel you are 'ok'? By 'ok, that includes mentally as well as...

Administrator•6 months ago

2 Replies

Thursday's Thoughts

What makes you think you are doing 'ok' since diagnosis? Do you feel you are ...

Administrator•6 months ago

i am at wit’s end with this pain, that appears much worse at night~. Is this a symptom? I am in agony

Pain upper thighs, lower back

i am at wit’s end with this pain, that appears much worse at night~. Is this a s...

Gaspereaux

•6 months ago

20 Replies

Sorry...

I have to apologize to the group for being so lax about posting some key points from Dr. Jones's book The Definitive Guide for the Patient With Primary...

I have to apologize to the group for being so lax about posting some key points...

Second line therapy This a term used In PBC a patient does not respond to Urso - usually within a year's time from the...

Administrator•6 months ago

7 Replies

Wednesday's Word

Second line therapy This a term used In PBC a patient does not respond to Urs...

Administrator•6 months ago

Hello everyone! I recently started taking ocaliva. I don't know if they help, I'm due to go and have some blood tests done. Pros...the sharp pain I used to...

Ocaliva and side effects

Hello everyone! I recently started taking ocaliva. I don't know if they help, I'...

Beatris03

•6 months ago

13 Replies

Tuesday's Tips

Who or what helped you the most getting over the initial shock of your diagnosis?

Who or what helped you the most getting over the initial shock of your diagnosis...

Here in the states we are celebrating Memorial Day.. a day to remember all of those who gave their lives for our country. Gorgeous sunny day.....I hope we all...

Administrator•6 months ago

4 Replies

Today..

Here in the states we are celebrating Memorial Day.. a day to remember all of th...

Administrator•6 months ago

PRACTICE GUIDANCE Primary biliary cholangitis: 2021 practice guidance update from the American Association for the Study of Liver Diseases Lindor, Keith...

Two updates in the Guidelines for PBC

PRACTICE GUIDANCE Primary biliary cholangitis: 2021 practice guidance update ...

Administrator•6 months ago

It's 'ok'.....

Be kind to yourself....

Administrator•6 months ago

What song do you think could be your life's theme song?

Friday Fun Question

Administrator•6 months ago

Over the next week or so, I'd like to familiarize you with the guidelines officially established regarding PBC. I will post of a section of the Guidelines....

One piece at a time.....

Over the next week or so, I'd like to familiarize you with the guidelines offici...

Administrator•6 months ago

What aspect of PBC would you like to learn more about?

Thursday Thoughts

Administrator•6 months ago

Hello Everyone, I was diagnosed in 2018 and have had no issues, as bloodwork abnormalities led to my diagnosis, rather than symptoms. Fortunately for me,...

Which tests do your providers recommend annually?

Hello Everyone, I was diagnosed in 2018 and have had no issues, as bloodwork ab...

SciFiWriter

•7 months ago

23 Replies

for our 'newest' members....

Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all,...

Hi - and welcome! My name is Donna - I facilitate this support group for The PB...

Administrator•7 months ago

Interesting read...Autoimmune Disease: Why Is My Immune System Attacking Itself?Reviewed By: Ana-Maria Orbai, M.D., M.H.S. Autoimmune disease affects 23.5...

What Causes Autoimmune Diseases?

Interesting read...Autoimmune Disease: Why Is My Immune System Attacking Itself?...

Administrator•7 months ago

autoimmune - This word refers to a disease in which the body's immune (protection or resistance) system attacks healthy cells....

Wednesday's 'Word'

autoimmune - This word refers to a disease in which the body's immune (prot...

Hi there I was wondering if anyone has this in whitehaven workington Area

Administrator•7 months ago

1 Reply

Pbc newly diagnosed

Stlucia1936

•7 months ago

14 Replies

Disability information

Biliary CirrhosisPrimary Biliary Cirrhosis – Condition and Symptoms The liver secretes bile, a bodily fluid that is essential for the body to digest fats. It...

Biliary CirrhosisPrimary Biliary Cirrhosis – Condition and Symptoms The liver se...

Administrator•7 months ago

www.disability-benefits-help.org The PBC Foundation has support services 24/7 for those who belong to The Founation. If you haven't joined, please think about...

help with disability questions

www.disability-benefits-help.org The PBC Foundation has support services 24/7 f...

Administrator•7 months ago

How do you manage best to get thru those 'not so good' days? ones with the joint pain, itching, fatigue.... or however you are feeling...

Tuesday 'Tips'

How do you manage best to get thru those 'not so good' days? ones with the jo...

Administrator•7 months ago

hi I’am just wondering if anyone has retired early due to the extreme fatigue and brain fog caused by pbc. I am a practice nurse and I’am 63 I feel that as...

early retirement due to ill health

hi I’am just wondering if anyone has retired early due to the extreme fatigue ...

Cumbria7

•7 months ago

19 Replies

it's 'Monday Me!' day

What have you done for yourself lately? Never think you don't matter enough to make time for 'you'. I bought myself some new clothes.. although...

What have you done for yourself lately? Never think you don't matter enough to m...

Administrator•7 months ago

" Before you judge an older person for their limitations, reflect on the strength it takes for them to face these changes every day." I...

Be kind

" Before you judge an older person for their limitations, reflect on the strengt...

Administrator•7 months ago

I have PBC and am in 70s. Does anyone else have terrible muscle spasms, cramps in legs and hands? These seem to be worse at night or after relaxing on a...

Cramps

I have PBC and am in 70s. Does anyone else have terrible muscle spasms, cramps...

234WARD03

•7 months ago

10 Replies

Friday Fun question

What did you want to be when you 'grew up'? Did that dream come true for you?

What question (s) do you wish your doctor would at least ask you? Even after all this time, my hep doc has never once asked me how my...

Administrator•7 months ago

10 Replies

Thursday's Thoughts....

What question (s) do you wish your doctor would at least ask you? Even after a...

Administrator•7 months ago