Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,424 members • 8,096 posts

All posts for June 2024

Elafibranor

I’m almost a little reluctant to ask this question, but is anyone taking this new drug? My hepatologist would like me to try it considering Ocaliva isn’t...

I’m almost a little reluctant to ask this question, but is anyone taking this ne...

gwillistexas

•4 hours ago

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Do you know about all the PBC events?

https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.pbcfoundation.org.uk%2Fevents%2F%3Ffbclid%3DIwZXh0bgNhZW0CMTAAAR2_7kngy4uDqwXHvNMa_H-f6QhxlXduIffOIzuplW8D7Sjc1

https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.pbcfoundation.org.uk%2Fevents%2...

DonnaBoll

Administrator•15 hours ago

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Fenofibrate for cholesterol

I have high cholesterol , at 8 , i have tried all statins and cannot tolerate any of them.My main worry is i have had clots in the past and had a...

I have high cholesterol , at 8 , i have tried all statins and cannot tolerate an...

lcunliffegizmo123

•19 hours ago

3 Replies

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Some 'itch' suggestions

Regarding itching…. DO’S Tepid showers Dove or baby soap/shower gels Exfoliating gloves using quick, easy strokes Coconut oil in the shower – and...

Regarding itching…. DO’S Tepid showers Dove or baby soap/shower gels Exfolia...

DonnaBoll

Administrator•2 days ago

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Friday Fun question!

What movie do you feel (on TV or in the theatre) was a total waste of your time? I walked out of seeing Disney's Fantasia years ago.....

What movie do you feel (on TV or in the theatre) was a total waste of your time?...

DonnaBoll

Administrator•2 days ago

3 Replies

Itch recommendations from Dr. Gish

www.robertgish.com/blog/the-pruritis-sheet This is a sheet of 'itch' information from one of the Q&A sessions held this week with Dr. Gish. In the search bar...

www.robertgish.com/blog/the-pruritis-sheet This is a sheet of 'itch' informatio...

DonnaBoll

Administrator•2 days ago

5 Replies

Thursday's Thoughts

Do you and your husband ( or significant other) really ever talk about your diagnosis? I know for me, my husband rarely spoke about it....

Do you and your husband ( or significant other) really ever talk about your dia...

DonnaBoll

Administrator•3 days ago

13 Replies

I'm back..

Arrived home last afternoon around 3. Laundry and unpacking all done... felt good to be in my own bed though. Had a great little trip to Ozark area of...

Arrived home last afternoon around 3. Laundry and unpacking all done... felt goo...

DonnaBoll

Administrator•3 days ago

4 Replies

MRI with/without contrast anyone?

Hello friends I hope you’re doing well! I’m booked to have a liver MRI ‘with contrast’ which I’m fairly sure uses Gadolinium as the contrast medium, at an NHS...

Hello friends I hope you’re doing well! I’m booked to have a liver MRI ‘with co...

Skypony

•3 days ago

19 Replies

It's Monday ' Me '

What have you done to take care of you recently? We all deserve - and need - to take time to just do what makes us happy. Regroup, recharge...

What have you done to take care of you recently? We all deserve - and need - to...

DonnaBoll

Administrator•6 days ago

1 Reply

Out of Town

I'm going out of town for just a couple days Monday afternoon through Wednesday. I'll be in the Branson, MO and Dogwood Canyon area if anyone lives down that...

I'm going out of town for just a couple days Monday afternoon through Wednesday....

DonnaBoll

Administrator•7 days ago

7 Replies

smoothies

Hi everyone, I mentioned that in some ways, my PBC diagnosis was a blessing in that it’s led me down a healthier path with better eating choices. I now enjoy...

Hi everyone, I mentioned that in some ways, my PBC diagnosis was a blessing in ...

lovesoccer

•8 days ago

10 Replies

Friday Fun Question

What would the title of your autobiography be?

DonnaBoll

Administrator•9 days ago

8 Replies

Please read...

I hope you all take the time to read Ipsen Pharmaceutical's announcements concerning PBC drugs.. Just google ' Ipsen Pharmaceutical announcement' ...........

I hope you all take the time to read Ipsen Pharmaceutical's announcements concer...

DonnaBoll

Administrator•9 days ago

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Do you belong to The PBC Foundation?

this email is from The Foundation.... check their website as well. Hi everyone The next virtual meeting for the PBC community will take place on Friday...

this email is from The Foundation.... check their website as well. Hi everyon...

DonnaBoll

Administrator•9 days ago

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Sharing in helpful

Over the past couple weeks the topics of several aspects of PBC have come up - brain fog and how to deal with it - + AMA and normal liver enzymes - itching...

Over the past couple weeks the topics of several aspects of PBC have come up - ...

DonnaBoll

Administrator•9 days ago

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Thursday's Thoughts

What causes you the most stress since your diagnosis? How do you manage your stress?

What causes you the most stress since your diagnosis? How do you manage your ...

DonnaBoll

Administrator•10 days ago

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Positive mitochondrial antibodies m2 but normal liver enzymes

Hi members, just after a bit of advice please. I have hashimoto's and due to blood tests which were requested by my endocrinologist, positive mitochondrial...

Hi members, just after a bit of advice please. I have hashimoto's and due to blo...

Ladysmith53

•10 days ago

14 Replies

Thank you !

Thank you so much to those of you that responded to 'Tuesday Tip' regarding brain fog. I hope to read more of your stories and experiences. If you have found...

Thank you so much to those of you that responded to 'Tuesday Tip' regarding brai...

DonnaBoll

Administrator•10 days ago

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Wednesday's Word

platelets These are very small blood cells (really fragments of cells) that are responsible for clotting of our blood. In PBC, they help...

platelets These are very small blood cells (really fragments of cells) that ar...

DonnaBoll

Administrator•10 days ago

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Tuesday 'Tips'

Who is dealing with brain fog? What are you experiencing? How are you dealing with it?

Who is dealing with brain fog? What are you experiencing? How are you dealing wi...

DonnaBoll

Administrator•12 days ago

14 Replies

more of Dr. Jones' '2 minutes versions'

from Dr Jones' book - Cholestyramine (Questran) is the first line treatment for the itching. If this doesn't work, then taking Rifampicin is the next line...

from Dr Jones' book - Cholestyramine (Questran) is the first line treatment fo...

DonnaBoll

Administrator•12 days ago

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Monday "Me"

Oh my, I am so sorry I nearly forgot post this. No excuses... What have you done lately to take care of yourself mentally and/or physically?...

Oh my, I am so sorry I nearly forgot post this. No excuses... What have you d...

DonnaBoll

Administrator•12 days ago

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Random liver discomfort

Curious if anyone experiences random liver area discomfort. Not pain, just a tender discomfort. Last usually 7 or so hours, then its good. Causes? PBC since...

Curious if anyone experiences random liver area discomfort. Not pain, just a te...

TanGram

•13 days ago

8 Replies

anybody?

Someone who facilitates another support group is looking for someone from Algeria - or someone who speaks Arabic or French. We just need to connect some folks...

Someone who facilitates another support group is looking for someone from Algeri...

DonnaBoll

Administrator•14 days ago

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Important from The PBC Foundation....

We are asking for your help. 4/6/2024 Very directly. Very succinctly. We need your help. This is the most important thing the Foundation has ever worked...

We are asking for your help. 4/6/2024 Very directly. Very succinctly. We need...

DonnaBoll

Administrator•15 days ago

13 Replies

Please Read!

from the PBC Foundation...... We Need You! We are calling for change and your voice must be heard . If you are part of the #PBCCommunity a patient, family...

from the PBC Foundation...... We Need You! We are calling for change and yo...

DonnaBoll

Administrator•15 days ago

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Friday Fun question

If you could only listen to one song for the rest of your life, what would it be?

If you could only listen to one song for the rest of your life, what would it be...

DonnaBoll

Administrator•16 days ago

5 Replies

Lichen Planus

Can lichen planus affect your skin ? I do not have anything orally, but this sure look suspicious.

Can lichen planus affect your skin ? I do not have anything orally, but this su...

Gaspereaux

•16 days ago

4 Replies

Thursday's Thoughts

What - if anything - has been positive about being diagnosed with PBC?

DonnaBoll

Administrator•17 days ago

9 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for June 2024

Elafibranor

Do you know about all the PBC events?

Fenofibrate for cholesterol

Some 'itch' suggestions

Friday Fun question!

Itch recommendations from Dr. Gish

Thursday's Thoughts

I'm back..

MRI with/without contrast anyone?

It's Monday ' Me '

Out of Town

smoothies

Friday Fun Question

Please read...

Do you belong to The PBC Foundation?

Sharing in helpful

Thursday's Thoughts

Positive mitochondrial antibodies m2 but normal liver enzymes

Thank you !

Wednesday's Word

Tuesday 'Tips'

more of Dr. Jones' '2 minutes versions'

Monday "Me"

Random liver discomfort

anybody?

Important from The PBC Foundation....

Please Read!

Friday Fun question

Lichen Planus

Thursday's Thoughts

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