Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,484 members•8,374 posts

All posts for June 2024

PBC/AIH

hi I have pbc/aih stage 4 cirrhosis. On the usual meds ….. Go on my hols at the end of the month to Turkey , my feet always puff up when I’m there … are...

hi I have pbc/aih stage 4 cirrhosis. On the usual meds ….. Go on my hols at th...

She-66

•5 months ago

3 Replies

Take Note!!

We are both proud and excited to announce that registration for the PBC Patient Conference 2024 is now open! For more information and how can reserve your...

We are both proud and excited to announce that registration for the PBC Patient ...

DonnaBoll

Administrator•5 months ago

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Unplanned trip

I am leaving for Tuscon, AZ this morning - returning late Sunday evening. My husband's best friend from high school, enlisted together, and were each others'...

I am leaving for Tuscon, AZ this morning - returning late Sunday evening. My hu...

DonnaBoll

Administrator•5 months ago

6 Replies

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Friday 'Just for Fun' Question

What was your first car?

DonnaBoll

Administrator•5 months ago

7 Replies

Thursday's Thoughts

What have you found that helps you manage your stress?

DonnaBoll

Administrator•5 months ago

1 Reply

How are you doing?

Here in the Midwest we are suffering with some awful heat and high heat indexes - yesterday 107. I was wondering if the heat affects your level of fatigue?...

Here in the Midwest we are suffering with some awful heat and high heat indexes ...

DonnaBoll

Administrator•5 months ago

6 Replies

Wednesday's Word

AMA - Anti - mitochrondial Antibody This classic antibody type is seen in PBC. Combined with elevated alkaline phosphatase, part of...

AMA - Anti - mitochrondial Antibody This classic antibody type is seen in PBC. ...

DonnaBoll

Administrator•5 months ago

1 Reply

AMA M2 antibody, 26 years on told no sign of PBC - but life limited by extreme fatigue

Hello all. I just wanted to share my experience and ask if there is anyone out there with a similar profile? In the 1990s I had a lot of symptoms which are...

Hello all. I just wanted to share my experience and ask if there is anyone out ...

Wilderswimmer

•5 months ago

7 Replies

Did you know?

Choose Me Tuesday is an online service where people can talk about how #PBC affects them and what they would like to do better. We are hear to listen and maybe...

Choose Me Tuesday is an online service where people can talk about how #PBC affe...

DonnaBoll

Administrator•5 months ago

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Want everyone to know about this....

Friends and family catch taking place on Tuesday 25th June at 7pm UK time. Click this link to register and login:...

Friends and family catch taking place on Tuesday 25th June at 7pm UK time. Click...

DonnaBoll

Administrator•5 months ago

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Tuesday's 'Tip'

I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips' These are all from his book The Definitive Guide for Patients Who Have...

I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips'...

DonnaBoll

Administrator•5 months ago

9 Replies

It's ' Monday Me!' Day

How have you taken time just to do something for you lately? Self care is crucial for us to stay healthy both mentally as well as...

How have you taken time just to do something for you lately? Self care is cruc...

DonnaBoll

Administrator•5 months ago

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I am a type 2 patient, but I always try to be positive about life.

"Due to family genetic problems, I was diagnosed with type 2 diabetes in 2020. Coupled with some of the things I experienced at the time, I felt like the whole...

"Due to family genetic problems, I was diagnosed with type 2 diabetes in 2020. C...

MartinaT

•5 months ago

4 Replies

palpitations.

Does Anyone get palpitations and does anyone know if this is related to PBC?

Wocket

•5 months ago

15 Replies

Elafibranor

I’m almost a little reluctant to ask this question, but is anyone taking this new drug? My hepatologist would like me to try it considering Ocaliva isn’t...

I’m almost a little reluctant to ask this question, but is anyone taking this ne...

gwillistexas

•5 months ago

17 Replies

Do you know about all the PBC events?

https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.pbcfoundation.org.uk%2Fevents%2F%3Ffbclid%3DIwZXh0bgNhZW0CMTAAAR2_7kngy4uDqwXHvNMa_H-f6QhxlXduIffOIzuplW8D7Sjc1

https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.pbcfoundation.org.uk%2Fevents%2...

DonnaBoll

Administrator•5 months ago

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Fenofibrate for cholesterol

I have high cholesterol , at 8 , i have tried all statins and cannot tolerate any of them.My main worry is i have had clots in the past and had a...

I have high cholesterol , at 8 , i have tried all statins and cannot tolerate an...

lcunliffegizmo123

•6 months ago

10 Replies

Some 'itch' suggestions

Regarding itching…. DO’S Tepid showers Dove or baby soap/shower gels Exfoliating gloves using quick, easy strokes Coconut oil in the shower – and...

Regarding itching…. DO’S Tepid showers Dove or baby soap/shower gels Exfolia...

DonnaBoll

Administrator•6 months ago

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Friday Fun question!

What movie do you feel (on TV or in the theatre) was a total waste of your time? I walked out of seeing Disney's Fantasia years ago.....

What movie do you feel (on TV or in the theatre) was a total waste of your time?...

DonnaBoll

Administrator•6 months ago

3 Replies

Itch recommendations from Dr. Gish

www.robertgish.com/blog/the-pruritis-sheet This is a sheet of 'itch' information from one of the Q&A sessions held this week with Dr. Gish. In the search bar...

www.robertgish.com/blog/the-pruritis-sheet This is a sheet of 'itch' informatio...

DonnaBoll

Administrator•6 months ago

5 Replies

Thursday's Thoughts

Do you and your husband ( or significant other) really ever talk about your diagnosis? I know for me, my husband rarely spoke about it....

Do you and your husband ( or significant other) really ever talk about your dia...

DonnaBoll

Administrator•6 months ago

13 Replies

I'm back..

Arrived home last afternoon around 3. Laundry and unpacking all done... felt good to be in my own bed though. Had a great little trip to Ozark area of...

Arrived home last afternoon around 3. Laundry and unpacking all done... felt goo...

DonnaBoll

Administrator•6 months ago

4 Replies

MRI with/without contrast anyone?

Hello friends I hope you’re doing well! I’m booked to have a liver MRI ‘with contrast’ which I’m fairly sure uses Gadolinium as the contrast medium, at an NHS...

Hello friends I hope you’re doing well! I’m booked to have a liver MRI ‘with co...

Skypony

•6 months ago

20 Replies

It's Monday ' Me '

What have you done to take care of you recently? We all deserve - and need - to take time to just do what makes us happy. Regroup, recharge...

What have you done to take care of you recently? We all deserve - and need - to...

DonnaBoll

Administrator•6 months ago

1 Reply

Out of Town

I'm going out of town for just a couple days Monday afternoon through Wednesday. I'll be in the Branson, MO and Dogwood Canyon area if anyone lives down that...

I'm going out of town for just a couple days Monday afternoon through Wednesday....

DonnaBoll

Administrator•6 months ago

7 Replies

smoothies

Hi everyone, I mentioned that in some ways, my PBC diagnosis was a blessing in that it’s led me down a healthier path with better eating choices. I now enjoy...

Hi everyone, I mentioned that in some ways, my PBC diagnosis was a blessing in ...

lovesoccer

•6 months ago

10 Replies

Friday Fun Question

What would the title of your autobiography be?

DonnaBoll

Administrator•6 months ago

8 Replies

Please read...

I hope you all take the time to read Ipsen Pharmaceutical's announcements concerning PBC drugs.. Just google ' Ipsen Pharmaceutical announcement' ...........

I hope you all take the time to read Ipsen Pharmaceutical's announcements concer...

DonnaBoll

Administrator•6 months ago

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Do you belong to The PBC Foundation?

this email is from The Foundation.... check their website as well. Hi everyone The next virtual meeting for the PBC community will take place on Friday...

this email is from The Foundation.... check their website as well. Hi everyon...

DonnaBoll

Administrator•6 months ago

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Sharing in helpful

Over the past couple weeks the topics of several aspects of PBC have come up - brain fog and how to deal with it - + AMA and normal liver enzymes - itching...

Over the past couple weeks the topics of several aspects of PBC have come up - ...

DonnaBoll

Administrator•6 months ago

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Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for June 2024

PBC/AIH

Take Note!!

Unplanned trip

Friday 'Just for Fun' Question

Thursday's Thoughts

How are you doing?

Wednesday's Word

AMA M2 antibody, 26 years on told no sign of PBC - but life limited by extreme fatigue

Did you know?

Want everyone to know about this....

Tuesday's 'Tip'

It's ' Monday Me!' Day

I am a type 2 patient, but I always try to be positive about life.

palpitations.

Elafibranor

Do you know about all the PBC events?

Fenofibrate for cholesterol

Some 'itch' suggestions

Friday Fun question!

Itch recommendations from Dr. Gish

Thursday's Thoughts

I'm back..

MRI with/without contrast anyone?

It's Monday ' Me '

Out of Town

smoothies

Friday Fun Question

Please read...

Do you belong to The PBC Foundation?

Sharing in helpful

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