Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,389 members • 7,995 posts

All posts for October 2015

Still not listening

Been for my 6 month check-why bother.although I weigh 13 stone(overweight for sure) my docs refuse to give me anymore than450 mg of urso as it has got my blood...

Been for my 6 month check-why bother.although I weigh 13 stone(overweight for su...

cazz22

•8 years ago

7 Replies

Positive for Mitochondrial (M2) Antibodies

I wanted to share my experience in case it helps. 2 years ago, I had routine blood work done so that I could refill my blood pressure medication and the...

I wanted to share my experience in case it helps. 2 years ago, I had routine bl...

chynablue

•9 years ago

15 Replies

Osteoporosis

Hi There, was wondering if anyone in the community has osteo as well as PBC, I can't take the oral medication for the Osteo or the PBC, so now I have been...

Hi There, was wondering if anyone in the community has osteo as well as PBC, I c...

Jaycee

•9 years ago

9 Replies

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Pbc porphyrya

Hey,, how are you all?? Met up with candy couple days ago.. Very nice lady and was glad to actually discuss this disease with someone who has it for 6 years...

Hey,, how are you all?? Met up with candy couple days ago.. Very nice lady and ...

Anne-laure_

•9 years ago

6 Replies

Shake or quiver in hand PBC

My thumb & right hand shakes - any ideas?

Ohio82

•9 years ago

9 Replies

Vitamins

What does anyone take? Do you take probiotics E D A I take Biotin and a multi vitamin Omega 3

What does anyone take? Do you take probiotics E D A I take Biotin and a mul...

Ohio82

•9 years ago

5 Replies

PBC and lactic acid overload

Does anyone have any information in regards to lactic acid overload and severe fatigue? Do you have any tips on how to deal with this? Have you found...

Does anyone have any information in regards to lactic acid overload and severe f...

mobster

•9 years ago

10 Replies

Pbc porphyrya

Hey could anyone from Basingstoke give me some advice on who to c at the hospital? Got mri scan tonight due to having tremors... Rheumatologist and gastro...

Hey could anyone from Basingstoke give me some advice on who to c at the hospita...

Anne-laure_

•9 years ago

1 Reply

15 things NOT to say to someone with chronic illness

Hi All - thought some of you might find this interesting or even amusing! A few certainly struck a chord with me. PS If anyone ever does find out what a...

Hi All - thought some of you might find this interesting or even amusing! A few...

LisaC22

•9 years ago

8 Replies

Diet

Hi any of you got advice or even menus to share re diet?

Goldsworthyhelen

•9 years ago

6 Replies

How Long

Hi have been quite well with my PBC diagnosed 4 years ago but like a lot of us on here may have had it years and years before finally getting answers. I am...

Hi have been quite well with my PBC diagnosed 4 years ago but like a lot of us o...

cavi

•9 years ago

9 Replies

Trigger Finger (Locked Finger) & PBC ?

Has anyone else with liver issues experienced Trigger Finger? (When I wake in morning I have 2 middle fingers curled up and am unable to straighten them...

Has anyone else with liver issues experienced Trigger Finger? (When I wake in mo...

PCBnPBC

•9 years ago

13 Replies

Itching

Been itching a lot this week but getting little lumps like bite marks is this normal ? Haven't itched since been diagnosed with PBC , before I knew they was...

Been itching a lot this week but getting little lumps like bite marks is this no...

Steelie

•9 years ago

14 Replies

Denise

Hello to all that have sent me posts. I have received a letter from the doctor which says my LFTs and Gamma GT are raised in association with positive...

Hello to all that have sent me posts. I have received a letter from the doctor w...

Dese

•9 years ago

5 Replies

PBC and hypoglycemia

Hi, everyone, Does anyone have PBC and hypoglycaemia WITHOUT having diabetes? Thank you

Hi, everyone, Does anyone have PBC and hypoglycaemia WITHOUT having diabetes? ...

tinypixie

•9 years ago

31 Replies

Denise

I was told 6 weeks ago I have pbc not a clue what it was and the doctor told me nothing only that he could give me a biopsy but that could kill me and sent me...

I was told 6 weeks ago I have pbc not a clue what it was and the doctor told me ...

Dese

•9 years ago

20 Replies

Is Pbc progressing?

This may seem a strange question but can Pbc be progressing if lft s are nearly normal?mine have never been high but have dropped a lot even tho docs won't...

This may seem a strange question but can Pbc be progressing if lft s are nearly ...

cazz22

•9 years ago

28 Replies

Name Change

Can anyone please confirm whether PBC has changed now to Cholangitis instead of Cirhosis. My GP seemed to think so but I have just read on another site that...

Can anyone please confirm whether PBC has changed now to Cholangitis instead of ...

June9961

•9 years ago

20 Replies

headpain

hi im new here I have muscular dystrophy trygenial neuralgia cluster headaches real pain pain is a warning that should not be ignored nor disbelieved, to be...

hi im new here I have muscular dystrophy trygenial neuralgia cluster headaches r...

Hidden

•9 years ago

10 Replies

PBC & Ileitus

Does anyone else suffer from both? If so how are you affected & what treatment are you having?

Does anyone else suffer from both? If so how are you affected & what treatment a...

hmcd62

•9 years ago

6 Replies

ESA

does anyone else claim ESA? I have tried and failed but really am not fit for work but no one seems to understand pbc. Thanks

does anyone else claim ESA? I have tried and failed but really am not fit for w...

Jjuliettec

•9 years ago

13 Replies

Ursodiol Tabs - 500 mgs.

I just got my prescription refilled and they have switched me to another manufacturer. Have any of you had any experience with Ursodiol Tabs 500 mgs....

I just got my prescription refilled and they have switched me to another manufac...

rene_g

•9 years ago

8 Replies

Ischemic Cholangiopathy 2nd. Transplant coming up ?

I Received my (1st.) Liver Transplant 02.November 2014 At that time I struggled in first few days with reperfusion, seemed to get over this by day 7 and...

I Received my (1st.) Liver Transplant 02.November 2014 At that time I struggle...

PCBnPBC

•9 years ago

5 Replies

pbc

just wondering how many people have rhs neg blood who have pbc?

hay65

•9 years ago

23 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for October 2015

Still not listening

Positive for Mitochondrial (M2) Antibodies

Osteoporosis

Pbc porphyrya

Shake or quiver in hand PBC

Vitamins

PBC and lactic acid overload

Pbc porphyrya

15 things NOT to say to someone with chronic illness

Diet

How Long

Trigger Finger (Locked Finger) & PBC ?

Itching

Denise

PBC and hypoglycemia

Denise

Is Pbc progressing?

Name Change

headpain

PBC & Ileitus

ESA

Ursodiol Tabs - 500 mgs.

Ischemic Cholangiopathy 2nd. Transplant coming up ?

pbc

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