Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,387 members • 7,990 posts

All posts for July 2012

STIGMA

I applied to do a college course two weeks ago, swedish body massage...had a letter this afternoon asking for more information from my consultant so I rang the...

I applied to do a college course two weeks ago, swedish body massage...had a let...

Alley27

•12 years ago

2 Replies

Has anyone gained weight on Urso?

I was given urso to take for itching at night. At first I refused to take it because it stated on the info slip not to take if there is another liver condition...

I was given urso to take for itching at night. At first I refused to take it bec...

Alley27

•12 years ago

3 Replies

Has anyone gained weight on Urso?

I was given urso to take for itching at night. At first I refused to take it because it stated on the info slip not to take if there is another liver condition...

I was given urso to take for itching at night. At first I refused to take it bec...

Alley27

•12 years ago

8 Replies

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Does anyone have pain in upper left abdomen and is this related to the liver?

For over two weeks now I have had this pain in my left upper abdomen..usually I feel it in my right side. It radiates from front to back and with AIH/PBC...you...

For over two weeks now I have had this pain in my left upper abdomen..usually I ...

Alley27

•12 years ago

1 Reply

Has anyone been taking a Tumeric (Curcumin) supplement?

If so, have you received any favorable test results that would indicate it is helping your condition?

If so, have you received any favorable test results that would indicate it is he...

KarenRL

•12 years ago

5 Replies

Has anyone tried a Liver cleanse?

I was recently diagnosed with PBC and several friends have suggested I try an organic or herbal liver cleanse or detox? I have always been a bit of a health...

I was recently diagnosed with PBC and several friends have suggested I try an or...

rdameron

•12 years ago

4 Replies

Endoscapy

Well the day is nearly here for me to av an endoscapy,there going to be looking at my spleen as its enlarged and they want to see if any off the blood vessels...

Well the day is nearly here for me to av an endoscapy,there going to be looking ...

donnathompson

•12 years ago

15 Replies

PBC/AIH, early stage of fibrosis confused.

Just seen my gastro doc on thursday for results of my biopsy. Confirmed I have pbc/aih. I asked him what state my liver is in and he said I am at early stage...

Just seen my gastro doc on thursday for results of my biopsy. Confirmed I have p...

wongie

•12 years ago

13 Replies

ATOS and ESA

OMG has any one seen this...I will certainly be watching despatches. I was turned down for ESA and DLA like many others with PBC/AIH. It stinks...

OMG has any one seen this...I will certainly be watching despatches. I was turne...

Alley27

•12 years ago

10 Replies

"THE DREADED LIST"

Fatigue Joint pain Poor concentration Bad memory Reynauds Stress depression red palms Hi all, this list describes everything that I share with so...

Fatigue Joint pain Poor concentration Bad memory Reynauds Stress depressio...

Derann

•12 years ago

3 Replies

Pbc and breathing problems

Hi everyone I was diagnosed with Pbc march 2011 I have positive AMA and normal liver function tests so not started on urso I suffer very painful salivary...

Hi everyone I was diagnosed with Pbc march 2011 I have positive AMA and normal l...

Wendom

•12 years ago

14 Replies

Purchasing an Annunity for someone with PBC. Has anyone with PBC got a better deal with annunity. Is it recognised as a health problem?

I am still working full time but am thinking of retiring in the next two years. I am paying into a pension plan which I will need to purchase an annunity...

I am still working full time but am thinking of retiring in the next two years. ...

Laurels

•12 years ago

1 Reply

Has anyone recently had a tranplant assessment done in England?

I am awaiting an appointment to go for liver transplant assessment in London and am wondering what to expect when I get there?

I am awaiting an appointment to go for liver transplant assessment in London and...

littlemo

•12 years ago

3 Replies

If you are on Rifampicin for itch what dose are you on and does it work on taking itch away completely?

I was on this drug for itch a few years back but didn't help and wonder if maybe I wasn't on the right dose or on it for long enough for it to work?

I was on this drug for itch a few years back but didn't help and wonder if maybe...

littlemo

•12 years ago

3 Replies

Has anyone who had abnormal lft,s when diagnosed with pbc had normal lfts since starting urso?

My lft's were very abnormal since the year before being diagnosed with pbc and despite being on urso more or less since then, 10yrs ago now, have never had...

My lft's were very abnormal since the year before being diagnosed with pbc and d...

littlemo

•12 years ago

11 Replies

anyone's LFT's go up and down, from mildly elevated to even normal?

Is it common with PBC for your LFT's to go up and down and even be normal at times?

Is it common with PBC for your LFT's to go up and down and even be normal at tim...

amandarosas

•12 years ago

9 Replies

Oh nooo "You Look So Well " Screeaaamm

I had all my hair cut off last Saturday as I have no strength in my arms anymore to hold the hairdryer !! Was a sad day go to work and everyone says it looks...

I had all my hair cut off last Saturday as I have no strength in my arms anymore...

cowren

•12 years ago

7 Replies

"CRASH" -:(

Well, ya'll, my computer seems to have crashed so I will be going to town to the library for a while. That being said I will probably not be on forum quite as...

Well, ya'll, my computer seems to have crashed so I will be going to town to the...

Tumbleweed41

•12 years ago

1 Reply

PBC Day

I just wanted to share with you an upcoming moment of importance. Sunday September 9th 2012 is going to be PBC Day. PBC Day will be an opprotunity to...

I just wanted to share with you an upcoming moment of importance. Sunday Sept...

PBCRobert

Partner•12 years ago

4 Replies

Cholestasis...any one else????

This is what I found under causes of cholestasis...... Within the Liver: Causes include acute hepatitis, alcoholic liver disease, primary biliary...

This is what I found under causes of cholestasis...... Within the Liver: ...

amandarosas

•12 years ago

1 Reply

Who else had a liver biopsy show " INTRAHEPATIC CHOLESTASIS"????

Hi everyone, Im just curious to see what other peoples liver biopsy showed. Has anyone's showed cholestasis?

Hi everyone, Im just curious to see what other peoples liver biopsy showed. Has ...

amandarosas

•12 years ago

Be the first to reply

Does anyone suffer with profuse sweating?

I thought at age 48 it could be onset of menopause, but there are no hot flashes, just extreme sweating with the slightest of movement....I was soak wet...

I thought at age 48 it could be onset of menopause, but there are no hot flashes...

Alley27

•12 years ago

16 Replies

Anyone out there ever experienced BRIGHT YELLOW stool with PBC? ( I know a lil gross)

I've had bright yellow stool for almost two months now. Its constant, at least 5 times a day. ( I had a subtotal colectomy so I have alot of movements). I was...

I've had bright yellow stool for almost two months now. Its constant, at least 5...

amandarosas

•12 years ago

9 Replies

How many of you had Dr's push aside your medical problems, and not accept you had liver disease?

I think I've had the worst medical care in the world from my primary care Dr. I have a biopsy showing liver disease, my LFT's have been abnormal for almost two...

I think I've had the worst medical care in the world from my primary care Dr. I ...

amandarosas

•12 years ago

4 Replies

Hashimotos/AIH/PBC...how many more can one have.

Hi, sorry not been active as much as I would like on here have been in hibernation..too fatigued to try. Just a short update. As I blogged before I have...

Hi, sorry not been active as much as I would like on here have been in hibernati...

Alley27

•12 years ago

4 Replies

Am now on the transplant list

Hi folks just a quicky, sorry not to have been active on the site for a while but have been busy. Been abck to transplant centre for second assessment and I...

Hi folks just a quicky, sorry not to have been active on the site for a while b...

busylady

•12 years ago

9 Replies

OBETICHOLIC ACID SAFE AND EFFECTIVE AGAINST PRIMARY BILIARY CIRRHOSIS

Just diagnosed with this, be aware there is PBC hope, see links below: 2011.04.01 (01.04.2011)...

Just diagnosed with this, be aware there is PBC hope, see links below: 2011.0...

mia2u

•12 years ago

4 Replies

OBETICHOLIC ACID SAFE AND EFFECTIVE AGAINST PRIMARY BILIARY CIRRHOSIS

OBETICHOLIC ACID SAFE AND EFFECTIVE AGAINST PRIMARY BILIARY CIRRHOSIS Just diagnosed, be aware there is PBC hope, see links below: 2011.04.01...

OBETICHOLIC ACID SAFE AND EFFECTIVE AGAINST PRIMARY BILIARY CIRRHOSIS Just di...

mia2u

•12 years ago

9 Replies

PBC and AMA negative... how many of you are out there?

So I know the research says, most 95% of people with PBC are AMA +......but what about the ones who are negative?? How did your Dr diagnose it? Also what about...

So I know the research says, most 95% of people with PBC are AMA +......but what...

amandarosas

•12 years ago

5 Replies

Im confused about liver biopsy results????? HELP

Ok so I just found out I have PBC, with intrahepatic cholestasis. The confusing part of the pathology report is as follows. Negative for increased iron...

Ok so I just found out I have PBC, with intrahepatic cholestasis. The confusing ...

amandarosas

•12 years ago

4 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for July 2012

STIGMA

Has anyone gained weight on Urso?

Has anyone gained weight on Urso?

Does anyone have pain in upper left abdomen and is this related to the liver?

Has anyone been taking a Tumeric (Curcumin) supplement?

Has anyone tried a Liver cleanse?

Endoscapy

PBC/AIH, early stage of fibrosis confused.

ATOS and ESA

"THE DREADED LIST"

Pbc and breathing problems

Purchasing an Annunity for someone with PBC. Has anyone with PBC got a better deal with annunity. Is it recognised as a health problem?

Has anyone recently had a tranplant assessment done in England?

If you are on Rifampicin for itch what dose are you on and does it work on taking itch away completely?

Has anyone who had abnormal lft,s when diagnosed with pbc had normal lfts since starting urso?

anyone's LFT's go up and down, from mildly elevated to even normal?

Oh nooo "You Look So Well " Screeaaamm

"CRASH" -:(

PBC Day

Cholestasis...any one else????

Who else had a liver biopsy show " INTRAHEPATIC CHOLESTASIS"????

Does anyone suffer with profuse sweating?

Anyone out there ever experienced BRIGHT YELLOW stool with PBC? ( I know a lil gross)

How many of you had Dr's push aside your medical problems, and not accept you had liver disease?

Hashimotos/AIH/PBC...how many more can one have.

Am now on the transplant list

OBETICHOLIC ACID SAFE AND EFFECTIVE AGAINST PRIMARY BILIARY CIRRHOSIS

OBETICHOLIC ACID SAFE AND EFFECTIVE AGAINST PRIMARY BILIARY CIRRHOSIS

PBC and AMA negative... how many of you are out there?

Im confused about liver biopsy results????? HELP

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