Posts - PBC Foundation | HealthUnlocked

PBC Foundation

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All posts for May 2012

Questions and answers about PBC

There's a very good website I'd like to recommend. It has questions and answers between PBC patients and doctors. Some of the same questions that some of you...

There's a very good website I'd like to recommend. It has questions and answers ...

Hidden

•13 years ago

8 Replies

Anyone suffer from headaches as a side effect to the Urso????

Judy48

•13 years ago

4 Replies

Calcium.

Just wondered if anyone had any thoughts with this being in the news this week. http://www.bbc.co.uk/news/health-18175707

Just wondered if anyone had any thoughts with this being in the news this week. ...

zipitydoo

•13 years ago

9 Replies

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Burning skin?

Hi all, Dont know how you are all coping with this warm weather but it saps what little bit of energy I have. I have noticed (and did last year aswell)...

Hi all, Dont know how you are all coping with this warm weather but it saps wha...

zipitydoo

•13 years ago

7 Replies

Warning!!

The other day I was looking for something on google and it brought up a post i had done on this site. I dont know whether anyone realised (I certainly didnt)...

The other day I was looking for something on google and it brought up a post i h...

zipitydoo

•13 years ago

14 Replies

As patients in the UK do we have the right to ask for all information pertaining to our disease...

such as blood tests, biopsies, scans. A few of us are getting frustrated by the NHS and would really appreciate some help on this. Thank you xx

such as blood tests, biopsies, scans. A few of us are getting frustrated by the...

SamT

•13 years ago

4 Replies

Is anyone else out there AMA negative. I keep getting little bits of info from my specialist and evidently I am consistently this.

I thought that PBC was usually AMA positive. Evidently I have persistently raised alkaline phosphatase. Is anybody else out there like me??

I thought that PBC was usually AMA positive. Evidently I have persistently rais...

SamT

•13 years ago

11 Replies

Does anyone else out there have difficulty in getting specialists to talk openly about blood results?

My previous consultant used to flip up a table onto the screen and then immediately flick on to the lft's which were showing to improve. I saw two lines of red...

My previous consultant used to flip up a table onto the screen and then immediat...

SamT

•13 years ago

7 Replies

gnosed with elevated platelet count.have been referred to heamatogist ,appt in june feels like I just cant win.

feel really down today,everything hurts and feel exhausted.sorry for moaning and thanks to you all take care tupence

feel really down today,everything hurts and feel exhausted.sorry for moaning and...

tuppence

•13 years ago

8 Replies

Painful big toe joints (bunions)? New symptom for me. Getting worse. Anyone else have these?

Jtxx

•13 years ago

12 Replies

AIH sufferers - How many mgs of Azathioprine are you currently maintaining on once you have come off the steroids?

Jtxx

•13 years ago

6 Replies

Dangers of Untreated hashimotos Disease

Hi All, This is my blog which I posted on thyroid uk to warn everyone about the hidden dangers of untreated hashimotos and throid diseases. Just wanted to...

Hi All, This is my blog which I posted on thyroid uk to warn everyone about the ...

Alley27

•13 years ago

20 Replies

What Questions Do I need to Ask at my Second Consultant Appointment?AIH, PBC, HASHIMOTOS Overlap.

Alley27

•13 years ago

2 Replies

THANK YOU PBC

I am newly diagnosed with AIH and PBC (8 weeks ), and I am so happy I found this site. It has informed me more than my Gp or Consultant has just by reading...

I am newly diagnosed with AIH and PBC (8 weeks ), and I am so happy I found this...

Alley27

•13 years ago

3 Replies

Anyone take generic URSO? There is a huge price difference from brand name.

pomice

•13 years ago

9 Replies

CAN INFLAMMATION BE FELT?

I've had a warm sensation in my chest for a few months, it comes and goes. It's not uncomfortable just slightly annoying and keeps me wondering if I'm feeling...

I've had a warm sensation in my chest for a few months, it comes and goes. It's ...

Hidden

•13 years ago

10 Replies

I am so moved

Hi everyone I am new to this site, and over the past few weeks Ihave really found it to be a big source of inspiration and support. I was diagnosed in April...

Hi everyone I am new to this site, and over the past few weeks Ihave really f...

busylady

•13 years ago

6 Replies

Is Arthitis part of pbc?

The joints in both my index fingers are very painful and stiff and it is becoming a problem at work. I once asked the specialist a couple of years ago but he...

The joints in both my index fingers are very painful and stiff and it is becomin...

Hidden

•13 years ago

6 Replies

Meltzer - Lyon procedure

Has anybody done this? And if so, as a test (for what) or as a method of treatment for PBC ? If so, how often? What do your doctors say about it, if they...

Has anybody done this? And if so, as a test (for what) or as a method of treatme...

Cristina_Romania

•13 years ago

8 Replies

Arginine IV ?

Has anybody been given this in the hospital? It is an amino acid that I know is being administered in various liver conditions in Romania.

Has anybody been given this in the hospital? It is an amino acid that I know is ...

Cristina_Romania

•13 years ago

2 Replies

Update after seeing neurologist today.

I saw the neurologist today regarding my memory/concentration issues that I told the hepatologist about. The neurologist did not think that they were liver...

I saw the neurologist today regarding my memory/concentration issues that I told...

zipitydoo

•13 years ago

11 Replies

Does anyone have problems taking Urso, I am having mega problems with diarrohea and stomach pain,

I stopped taking the tablets and within 2 days I started to improve, I decided to retake them after a week and within 2 hours the problems returned, now I...

I stopped taking the tablets and within 2 days I started to improve, I decided t...

Jaycee

•13 years ago

12 Replies

Hi I'm new to this site BUT NOT the disease. I have been dealing with PBC for 10 years now.Anyone live in Sydney Australia out there?

I am just starting a new drug trial ,Colchicine and Methotrexate plus Folate to settle side effects (has anyone tried these?)This is sort of a last ditch...

I am just starting a new drug trial ,Colchicine and Methotrexate plus Folate to ...

SNOOZY

•13 years ago

19 Replies

Should everyone routinely be offered an endoscopy. Was not mentioned to me by my consultant when i was diagnosed in March this year.

mojo62

•13 years ago

26 Replies

Auto immune stuff.

i read this today and just thought I would share as it put things so well and made a lot of sense. Facts about Autoimmune Disease by Glenn Ellis NNPA...

i read this today and just thought I would share as it put things so well and ma...

zipitydoo

•13 years ago

9 Replies

anyone out there been referred for transplant assessment twice ( or more?)

Hi to all my fellow PBC'ers, I have just got back from another endoscopy, where they have tied off 5 more varicies ( this subsequent to the last five I had...

Hi to all my fellow PBC'ers, I have just got back from another endoscopy, whe...

busylady

•13 years ago

10 Replies

AHHHHHHHHHHHHHHHHHHHH!!!!!!!!!!!!!!!!!

I recently after being diagnosed with pbc, underwent an enoscopy. They discovered that i also had a hiatus hernia, and a tear in my oesophagus. I therefore had...

I recently after being diagnosed with pbc, underwent an enoscopy. They discovere...

posh

•13 years ago

16 Replies

Hi new to site

I am new to the PBC foundation but am part of thyroid one. I am also newly diagnosed with AIH and PBC on top of hashimotos disease. I am confused as I have so...

I am new to the PBC foundation but am part of thyroid one. I am also newly diagn...

Alley27

•13 years ago

12 Replies

Does anyone have problems with wind, either up or down?

Jtxx

•13 years ago

27 Replies

Sjogrens (dry eye/mouth)

I have Preclinical PBC, plus Scleroderma & Hypothyroidism and over the past couple of years have developed very dry eyes and my mouth has got a bit dry. I went...

I have Preclinical PBC, plus Scleroderma & Hypothyroidism and over the past coup...

Hidden

•13 years ago

10 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for May 2012

Questions and answers about PBC

Anyone suffer from headaches as a side effect to the Urso????

Calcium.

Burning skin?

Warning!!

As patients in the UK do we have the right to ask for all information pertaining to our disease...

Is anyone else out there AMA negative. I keep getting little bits of info from my specialist and evidently I am consistently this.

Does anyone else out there have difficulty in getting specialists to talk openly about blood results?

gnosed with elevated platelet count.have been referred to heamatogist ,appt in june feels like I just cant win.

Painful big toe joints (bunions)? New symptom for me. Getting worse. Anyone else have these?

AIH sufferers - How many mgs of Azathioprine are you currently maintaining on once you have come off the steroids?

Dangers of Untreated hashimotos Disease

What Questions Do I need to Ask at my Second Consultant Appointment?AIH, PBC, HASHIMOTOS Overlap.

THANK YOU PBC

Anyone take generic URSO? There is a huge price difference from brand name.

CAN INFLAMMATION BE FELT?

I am so moved

Is Arthitis part of pbc?

Meltzer - Lyon procedure

Arginine IV ?

Update after seeing neurologist today.

Does anyone have problems taking Urso, I am having mega problems with diarrohea and stomach pain,

Hi I'm new to this site BUT NOT the disease. I have been dealing with PBC for 10 years now.Anyone live in Sydney Australia out there?

Should everyone routinely be offered an endoscopy. Was not mentioned to me by my consultant when i was diagnosed in March this year.

Auto immune stuff.

anyone out there been referred for transplant assessment twice ( or more?)

AHHHHHHHHHHHHHHHHHHHH!!!!!!!!!!!!!!!!!

Hi new to site

Does anyone have problems with wind, either up or down?

Sjogrens (dry eye/mouth)

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