Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,374 members7,943 posts

All posts for May 2012

Questions and answers about PBC

There's a very good website I'd like to recommend. It has questions and answers ...
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Anyone suffer from headaches as a side effect to the Urso????

Judy48 profile image

Calcium.

Just wondered if anyone had any thoughts with this being in the news this week. ...
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Burning skin?

Hi all, Dont know how you are all coping with this warm weather but it saps wha...
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Warning!!

The other day I was looking for something on google and it brought up a post i h...
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As patients in the UK do we have the right to ask for all information pertaining to our disease...

such as blood tests, biopsies, scans. A few of us are getting frustrated by the...
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Is anyone else out there AMA negative. I keep getting little bits of info from my specialist and evidently I am consistently this.

I thought that PBC was usually AMA positive. Evidently I have persistently rais...
SamT profile image

Does anyone else out there have difficulty in getting specialists to talk openly about blood results?

My previous consultant used to flip up a table onto the screen and then immediat...
SamT profile image

gnosed with elevated platelet count.have been referred to heamatogist ,appt in june feels like I just cant win.

feel really down today,everything hurts and feel exhausted.sorry for moaning and...
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Painful big toe joints (bunions)? New symptom for me. Getting worse. Anyone else have these?

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AIH sufferers - How many mgs of Azathioprine are you currently maintaining on once you have come off the steroids?

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Dangers of Untreated hashimotos Disease

Hi All, This is my blog which I posted on thyroid uk to warn everyone about the ...
Alley27 profile image

What Questions Do I need to Ask at my Second Consultant Appointment?AIH, PBC, HASHIMOTOS Overlap.

Alley27 profile image

THANK YOU PBC

I am newly diagnosed with AIH and PBC (8 weeks ), and I am so happy I found this...
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Anyone take generic URSO? There is a huge price difference from brand name.

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CAN INFLAMMATION BE FELT?

I've had a warm sensation in my chest for a few months, it comes and goes. It's ...
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I am so moved

Hi everyone I am new to this site, and over the past few weeks Ihave really f...
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Is Arthitis part of pbc?

The joints in both my index fingers are very painful and stiff and it is becomin...
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Meltzer - Lyon procedure

Has anybody done this? And if so, as a test (for what) or as a method of treatme...

Arginine IV ?

Has anybody been given this in the hospital? It is an amino acid that I know is ...

Update after seeing neurologist today.

I saw the neurologist today regarding my memory/concentration issues that I told...
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Does anyone have problems taking Urso, I am having mega problems with diarrohea and stomach pain,

I stopped taking the tablets and within 2 days I started to improve, I decided t...
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Hi I'm new to this site BUT NOT the disease. I have been dealing with PBC for 10 years now.Anyone live in Sydney Australia out there?

I am just starting a new drug trial ,Colchicine and Methotrexate plus Folate to ...
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Should everyone routinely be offered an endoscopy. Was not mentioned to me by my consultant when i was diagnosed in March this year.

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Auto immune stuff.

i read this today and just thought I would share as it put things so well and ma...
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anyone out there been referred for transplant assessment twice ( or more?)

Hi to all my fellow PBC'ers, I have just got back from another endoscopy, whe...
busylady profile image

AHHHHHHHHHHHHHHHHHHHH!!!!!!!!!!!!!!!!!

I recently after being diagnosed with pbc, underwent an enoscopy. They discovere...
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Hi new to site

I am new to the PBC foundation but am part of thyroid one. I am also newly diagn...
Alley27 profile image

Does anyone have problems with wind, either up or down?

Jtxx profile image

Sjogrens (dry eye/mouth)

I have Preclinical PBC, plus Scleroderma & Hypothyroidism and over the past coup...
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