Posts - PBC Foundation | HealthUnlocked

PBC Foundation
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All posts for May 2012

Questions and answers about PBC

There's a very good website I'd like to recommend. It has questions and answers ...

Anyone suffer from headaches as a side effect to the Urso????

Calcium.

Just wondered if anyone had any thoughts with this being in the news this week. ...
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Burning skin?

Hi all, Dont know how you are all coping with this warm weather but it saps wha...

Warning!!

The other day I was looking for something on google and it brought up a post i h...

As patients in the UK do we have the right to ask for all information pertaining to our disease...

such as blood tests, biopsies, scans. A few of us are getting frustrated by the...

Is anyone else out there AMA negative. I keep getting little bits of info from my specialist and evidently I am consistently this.

I thought that PBC was usually AMA positive. Evidently I have persistently rais...

Does anyone else out there have difficulty in getting specialists to talk openly about blood results?

My previous consultant used to flip up a table onto the screen and then immediat...

gnosed with elevated platelet count.have been referred to heamatogist ,appt in june feels like I just cant win.

feel really down today,everything hurts and feel exhausted.sorry for moaning and...

Painful big toe joints (bunions)? New symptom for me. Getting worse. Anyone else have these?

AIH sufferers - How many mgs of Azathioprine are you currently maintaining on once you have come off the steroids?

Dangers of Untreated hashimotos Disease

Hi All, This is my blog which I posted on thyroid uk to warn everyone about the ...

What Questions Do I need to Ask at my Second Consultant Appointment?AIH, PBC, HASHIMOTOS Overlap.

THANK YOU PBC

I am newly diagnosed with AIH and PBC (8 weeks ), and I am so happy I found this...

Anyone take generic URSO? There is a huge price difference from brand name.

CAN INFLAMMATION BE FELT?

I've had a warm sensation in my chest for a few months, it comes and goes. It's ...

I am so moved

Hi everyone I am new to this site, and over the past few weeks Ihave really f...

Is Arthitis part of pbc?

The joints in both my index fingers are very painful and stiff and it is becomin...

Meltzer - Lyon procedure

Has anybody done this? And if so, as a test (for what) or as a method of treatme...

Arginine IV ?

Has anybody been given this in the hospital? It is an amino acid that I know is ...

Update after seeing neurologist today.

I saw the neurologist today regarding my memory/concentration issues that I told...

Does anyone have problems taking Urso, I am having mega problems with diarrohea and stomach pain,

I stopped taking the tablets and within 2 days I started to improve, I decided t...

Hi I'm new to this site BUT NOT the disease. I have been dealing with PBC for 10 years now.Anyone live in Sydney Australia out there?

I am just starting a new drug trial ,Colchicine and Methotrexate plus Folate to ...

Should everyone routinely be offered an endoscopy. Was not mentioned to me by my consultant when i was diagnosed in March this year.

Auto immune stuff.

i read this today and just thought I would share as it put things so well and ma...

anyone out there been referred for transplant assessment twice ( or more?)

Hi to all my fellow PBC'ers, I have just got back from another endoscopy, whe...

AHHHHHHHHHHHHHHHHHHHH!!!!!!!!!!!!!!!!!

I recently after being diagnosed with pbc, underwent an enoscopy. They discovere...

Hi new to site

I am new to the PBC foundation but am part of thyroid one. I am also newly diagn...

Does anyone have problems with wind, either up or down?

Sjogrens (dry eye/mouth)

I have Preclinical PBC, plus Scleroderma & Hypothyroidism and over the past coup...