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PBC Foundation

9,389 members • 7,995 posts

All posts for February 2017

And another

I stared taking ursofalk ( liquid ) on the 1 st Feb 2017 but after a week I started developing headaches daily, and two weeks on it was unbearable, so I have...

I stared taking ursofalk ( liquid ) on the 1 st Feb 2017 but after a week I sta...

Mrsfancypants

•7 years ago

6 Replies

Advice please

I don't know what to eat/ drink plus I have a case of a very bad flu. I've had to take lemsips and ibuprophen I just don't know what to do, my dr doesn't...

I don't know what to eat/ drink plus I have a case of a very bad flu. I've had t...

Mrsfancypants

•7 years ago

6 Replies

New

Scared and very upset and can't accept it

Mrsfancypants

•7 years ago

6 Replies

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Can anyone shed some positivity?

Hi, I am just wondering if anyone has had PBC for a long time without advancing or without many symptoms? Everything I read is so negative, and I just want...

Hi, I am just wondering if anyone has had PBC for a long time without advancin...

youaremysunshine

•7 years ago

29 Replies

Fibroscan results

Hi, can any one interpret fibroscan results ? Had my results today, 6.8kPa, Interquartile range 0.6 ? The KPa thing has dropped since the last one from 11.6 so...

Hi, can any one interpret fibroscan results ? Had my results today, 6.8kPa, Inte...

AmandaSlater

•7 years ago

3 Replies

Perfumes & cleaning products

Good afternoon everyone, I am a diagnosed sufferer of PBC & I am beginning to get vibes from things I have read on this site & read on the internet ( Although...

Good afternoon everyone, I am a diagnosed sufferer of PBC & I am beginning to ge...

Sallam

•7 years ago

21 Replies

Ocaliva UK

Hi there. 🙋 I was diagnosed with PBC last June at 44yrs old and although my LFT have improved on Urso, my AST,ALP remain in 400s + My consultant is starting...

Hi there. 🙋 I was diagnosed with PBC last June at 44yrs old and although my LFT...

Starfish72

•7 years ago

22 Replies

Anti malaria medication

Hi all I've avoided taking any medication (besides Urso) since being diagnosed with PBC three years ago. I am perhaps over cautious but am always nervous that...

Hi all I've avoided taking any medication (besides Urso) since being diagnosed w...

Itchy111

•7 years ago

2 Replies

Biopsy Results

Need questions answered. According to results my biopsy contained suboptimal hepatic parenchyma with three portal tracts with focal (only one portal tract)...

Need questions answered. According to results my biopsy contained suboptimal hep...

mrigg1

•7 years ago

1 Reply

Healthunloked app

We need app.

Mysa1981

•7 years ago

2 Replies

Intense non-stop itching

I was diagnosed over 2 years ago with PBC. Up til recently I have been symptom free except for eyes and mouth. the last 3 days and nights I have had severe...

I was diagnosed over 2 years ago with PBC. Up til recently I have been symptom f...

krazy-girl

•7 years ago

19 Replies

PBC Foundation Webinars

We are delighted to announce that we are hosting a series of 2-hour webinars on different aspects of living with PBC. The webinars are free to join. They...

We are delighted to announce that we are hosting a series of 2-hour webinars on ...

PBCRobert

Partner•7 years ago

15 Replies

Reaching out

Good morning all, I am new to this. I do nit use social networking sites at all generally. So if I go on a bit & bore you to bits I apologise in advance....

Good morning all, I am new to this. I do nit use social networking sites at all ...

Sallam

•7 years ago

4 Replies

Yorkshire

Morning all I live in West Yorkshire, close to Wakefield and would love to know if there are anymore folks with PBC local to me. I was diagnosed in 2014 and so...

Morning all I live in West Yorkshire, close to Wakefield and would love to know ...

AmandaSlater

•7 years ago

34 Replies

Advice needed please!

Hi my name is Sara and I'm a working mum of 4, my children range from 22 down to 1, my confusion is that I have recently been told I'm positive ama with a high...

Hi my name is Sara and I'm a working mum of 4, my children range from 22 down to...

Saralou73

•7 years ago

16 Replies

I'm new here!

Hi everybody! My name is Kati, I'm from Romania and I'm new registered into PBC Foundation. I have this diagnosis from November, 2015 and I'm very scared about...

Hi everybody! My name is Kati, I'm from Romania and I'm new registered into PBC ...

katim

•7 years ago

6 Replies

The link between Polycythemia Vera Antiphospholipid Antibidy Syndrome/APS/Hughes Syndrome/Sticky Blood and Budd Chiari Syndromes!!!

Hi All I'm a very rare and weird person so please forgive me! I'll try hard to make this short and sweet! I self diagnosed Polycythemia Vera! Went to nice...

Hi All I'm a very rare and weird person so please forgive me! I'll try hard to m...

Debbweb01

•7 years ago

2 Replies

part1 assessment done

hi all replied to me before about my questions about assessment. i had it on Monday.... it was all as okay . just now have to wait for the results to...

hi all replied to me before about my questions about assessment. i had it on ...

cazer

•7 years ago

Be the first to reply

A question of Vitamins

I have been taking a vitamin tablet which includes A D E and K as well as a small amount of other vitamins like various Bs. I was in the audience at a recent...

I have been taking a vitamin tablet which includes A D E and K as well as a smal...

butterflyEi

•7 years ago

11 Replies

Liver cancer scare

Since Nov 12 2016 I have been dealing with possibly having liver cancer as well as PBC. I have been working full time until Jan 6th when I was told it looks...

Since Nov 12 2016 I have been dealing with possibly having liver cancer as well ...

Franky007

•7 years ago

14 Replies

Nausea

Please tell me your tricks for dealing with nausea ? I use ginger pills and drink chai tea but not sure how much it helps Does anyone use tips that work for...

Please tell me your tricks for dealing with nausea ? I use ginger pills and dri...

Becca75

•7 years ago

6 Replies

Pbc/Aih

Does any body have the same!. Redness in face as though you have been burnt. And dizziness.

Does any body have the same!. Redness in face as though you have been burnt. And...

janine541

•7 years ago

5 Replies

B12 Deficiency

Could a B12 deficiency be caused by PBC?

Laura3174

•7 years ago

5 Replies

Itch helped by exfoliating gloves

Hi all I find that those scratchy nylon gloves sold for use in the bath can bring some relief without doing damage. I use them dry and keep one handy by the...

Hi all I find that those scratchy nylon gloves sold for use in the bath can brin...

Skypony

•7 years ago

5 Replies

Good diet ??

Can someone give me advice on what foods might possibly make you itch more , I've been reading some posts and it seems that what we eat could make it worse ....

Can someone give me advice on what foods might possibly make you itch more , I'v...

Loobyloo54

•7 years ago

10 Replies

UK bilirubin result

I'm new to this site. How worrying is a reading for bilirubin of 29 umol/L? I understand the "normal" range is about 0 - 21 umol? My blood pressure is normal,...

I'm new to this site. How worrying is a reading for bilirubin of 29 umol/L? I u...

Hidden

•7 years ago

10 Replies

Ursodiol prices

I live in the US. Urso is not covered by my medical insurance, because it is not considered "preventive". It is very expensive. For generic brand, I pay about...

I live in the US. Urso is not covered by my medical insurance, because it is not...

iagra

•7 years ago

59 Replies

Itching Head

Hi, Im going mad with an itching head, also my face. Its only been like this for a week or so, I dont normally suffer from the itch as most of you do. I...

Hi, Im going mad with an itching head, also my face. Its only been like this fo...

kandiepat

•7 years ago

16 Replies

Any luck with Autoimmune Paleo Diet and PBC?

Hi, I am recently diagnosed unfortunately. I have started an autoimmune paleo diet. Has anyone done this and had good results over time? Im trying to make all...

Hi, I am recently diagnosed unfortunately. I have started an autoimmune paleo di...

youaremysunshine

•7 years ago

16 Replies

Group B Strep Urine Infection

Anyone had a Group B Strep urine infection, I am on 3rd course of antibiotics and struggling to clear this.

Anyone had a Group B Strep urine infection, I am on 3rd course of antibiotics an...

nomorepies

•7 years ago

4 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for February 2017

And another

Advice please

New

Can anyone shed some positivity?

Fibroscan results

Perfumes & cleaning products

Ocaliva UK

Anti malaria medication

Biopsy Results

Healthunloked app

Intense non-stop itching

PBC Foundation Webinars

Reaching out

Yorkshire

Advice needed please!

I'm new here!

The link between Polycythemia Vera Antiphospholipid Antibidy Syndrome/APS/Hughes Syndrome/Sticky Blood and Budd Chiari Syndromes!!!

part1 assessment done

A question of Vitamins

Liver cancer scare

Nausea

Pbc/Aih

B12 Deficiency

Itch helped by exfoliating gloves

Good diet ??

UK bilirubin result

Ursodiol prices

Itching Head

Any luck with Autoimmune Paleo Diet and PBC?

Group B Strep Urine Infection

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