Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,387 members • 7,990 posts

All posts for October 2012

Advice

I was diagnosed with PBC September 2011, Not taking medication at the moment for it, but I know that my symptoms are getting worse. When I was under the care...

I was diagnosed with PBC September 2011, Not taking medication at the moment fo...

merrill16

•11 years ago

7 Replies

Has anyone been for a work group interview? What's involved?

I am currently appealing the ESA decision to put me in a work group instead of support group but I still have to go or have been told they will stop my money....

I am currently appealing the ESA decision to put me in a work group instead of s...

exy21

•11 years ago

13 Replies

Waiting for more tests...

I have all the symptoms except for jaundice. I have not been diagnosed with PBC. My doctor did some blood work today and sent it off to a lab in Califorina....

I have all the symptoms except for jaundice. I have not been diagnosed with PBC...

ratkins

•11 years ago

7 Replies

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Just a quick question to all you unfortunates with aih and pbc how was the aih diagnosed?

Just wondered to cut out a lot of trawling through all archives from each person with the two conditions, as well as how the aih was diagnosed where in world...

Just wondered to cut out a lot of trawling through all archives from each person...

littlemo

•11 years ago

17 Replies

Is there anyone on here who has had pbc for more than 10yrs, suffered with the itch but never been on urso?

I have suffered with the dreaded itch for 11yrs and have been on urso all this time (apart from first 3 months of my pregnancy 6 yrs ago). I have managed to...

I have suffered with the dreaded itch for 11yrs and have been on urso all this t...

littlemo

•11 years ago

9 Replies

Anyone else with auto-immune hepatitis concurrent with PBC?

crundalite

•12 years ago

12 Replies

Any ideas about usage of Borax?

I occasionally pick up a library book that looks interesting and read chunks of it. The subjects do vary but I was in a charity shop yesterday, picked up this...

I occasionally pick up a library book that looks interesting and read chunks of ...

Hidden

•12 years ago

Be the first to reply

losing it!!! :)

Well just thought would check in been few ups and downs just staying positive though as two week ago I joined weight watchers and lost 6 and 1/2 pound in one...

Well just thought would check in been few ups and downs just staying positive th...

giggles12

•12 years ago

4 Replies

Still waiting for date for tribunal! Seeing some people have won (so pleased for them) can anyone give me help on how tthey did it please.

CAB have been great help but feeling very nervous and stressed just waiting for date. I have other health issues but feel it is a lottery really to where you...

CAB have been great help but feeling very nervous and stressed just waiting for ...

macR

•12 years ago

11 Replies

Don't know if I'm starting with the itches of pbc only seem to have them at night on my arms legs face neck and chest give me answers

karenlesley

•12 years ago

12 Replies

I won my appeal for ESA on 9/10/2012. Can anyone tell me how long it takes for the back payments to be payed

john95

•12 years ago

4 Replies

What has anyone's experience been with esophegeal varices?

Gaisie

•12 years ago

3 Replies

pbc and antiinflamatories

Hello I have a joint pain every day, GP tells me to take antiinflammatories, which I have been taking for months , can this very damaging for my liver,...

Hello I have a joint pain every day, GP tells me to take antiinflammatories, ...

nellysarmiento

•12 years ago

9 Replies

Checking in -:)

My goodness!! Didn't realize it had been so long since I had been here. -:( Things have been kind of crazy this month. I found a new product, checked it out...

My goodness!! Didn't realize it had been so long since I had been here. -:( Th...

Tumbleweed41

•12 years ago

7 Replies

Modafinil for fatigue

Does anyone know if the drug Modafinil is used in the UK and/ or Ireland to treat PBC related fatigue? Has anyone here had this drug prescribed and if you...

Does anyone know if the drug Modafinil is used in the UK and/ or Ireland to trea...

SC49

•12 years ago

15 Replies

e.s.a appeal.. yesterday i won my tribunal with the dwp and have been placed in the support group, this has been going on for 16 months....

and thank god its now over. ive found it a bit confusing though in searching to see what my new payments would be, as for the past 16 months ive been on the...

and thank god its now over. ive found it a bit confusing though in searching to ...

misterm

•12 years ago

13 Replies

Anyone have a low WBC ( white blood count)?

Hi everyone. I was wondering if any of you have ever had a low white blood count since being diagnosed with liver disease? I have just recently had blood work...

Hi everyone. I was wondering if any of you have ever had a low white blood count...

amandarosas

•12 years ago

14 Replies

Does anyone suffer from STEATORRHEA?

Hi everyone. I was curious if any of you guys suffer from steatorrhea? I have been experiencing this for two months now, in which it has caused me to be...

Hi everyone. I was curious if any of you guys suffer from steatorrhea? I have be...

amandarosas

•12 years ago

11 Replies

Does anyone with pbc have palpitations and sometimes feel like your liver is jumping

karenlesley

•12 years ago

5 Replies

im after a pbc awarness tattoo does ne 1 no ne good websites or designs 4 this

littleman

•12 years ago

1 Reply

Please can anyone tell me how long you had been diagnosed with pbc before you was started on medication does it go on your blood levels

karenlesley

•12 years ago

45 Replies

incompetant asos

i have had a few medicals with asos and found that everytime i went they cured me at least thats what i thought it meant when i read the paperwork they sent to...

i have had a few medicals with asos and found that everytime i went they cured m...

fattony39

•12 years ago

3 Replies

can we still get piercings and tattoos if we have pbc

littleman

•12 years ago

11 Replies

Please can anyone with pbc tell me all there symptons and how they feel I find it hard all day long but really I'll when I get up in morning

karenlesley

•12 years ago

5 Replies

I've got pbc found out 3 months ago but have not been put on any medication anyone with this desiese not on medication

karenlesley

•12 years ago

2 Replies

Started the Urso today

Felt a bit strange today getting the urso and taking first tablet. At least I know what the score is now and the 3 months of waiting and wondering is over. I...

Felt a bit strange today getting the urso and taking first tablet. At least I kn...

hannah1973

•12 years ago

6 Replies

What are your experiences of blood tests when first put on URSO? My GP says I don't need any until I see my consultant at end of February?

Agardener

•12 years ago

13 Replies

use of urso

Hello I am going to see my consultant in November, any idea when URSO should be use, I am positive of ANA and AMA, slightly abnormal lfts and very itchy....

Hello I am going to see my consultant in November, any idea when URSO should be...

nellysarmiento

•12 years ago

3 Replies

Benenden Healthcare. Affordable private care for £7.80 a month

My mum and dad have been members of this for some years, and they have reaped benefits, so i thought i,d join. It doesnt matter what health probs you already...

My mum and dad have been members of this for some years, and they have reaped be...

Hidden

•12 years ago

Be the first to reply

Looking for some advice on pain relief

Singsing

•12 years ago

4 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for October 2012

Advice

Has anyone been for a work group interview? What's involved?

Waiting for more tests...

Just a quick question to all you unfortunates with aih and pbc how was the aih diagnosed?

Is there anyone on here who has had pbc for more than 10yrs, suffered with the itch but never been on urso?

Anyone else with auto-immune hepatitis concurrent with PBC?

Any ideas about usage of Borax?

losing it!!! :)

Still waiting for date for tribunal! Seeing some people have won (so pleased for them) can anyone give me help on how tthey did it please.

Don't know if I'm starting with the itches of pbc only seem to have them at night on my arms legs face neck and chest give me answers

I won my appeal for ESA on 9/10/2012. Can anyone tell me how long it takes for the back payments to be payed

What has anyone's experience been with esophegeal varices?

pbc and antiinflamatories

Checking in -:)

Modafinil for fatigue

e.s.a appeal.. yesterday i won my tribunal with the dwp and have been placed in the support group, this has been going on for 16 months....

Anyone have a low WBC ( white blood count)?

Does anyone suffer from STEATORRHEA?

Does anyone with pbc have palpitations and sometimes feel like your liver is jumping

im after a pbc awarness tattoo does ne 1 no ne good websites or designs 4 this

Please can anyone tell me how long you had been diagnosed with pbc before you was started on medication does it go on your blood levels

incompetant asos

can we still get piercings and tattoos if we have pbc

Please can anyone with pbc tell me all there symptons and how they feel I find it hard all day long but really I'll when I get up in morning

I've got pbc found out 3 months ago but have not been put on any medication anyone with this desiese not on medication

Started the Urso today

What are your experiences of blood tests when first put on URSO? My GP says I don't need any until I see my consultant at end of February?

use of urso

Benenden Healthcare. Affordable private care for £7.80 a month

Looking for some advice on pain relief

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