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PBC Foundation

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All posts for September 2016

Diet confusion.

With my new Ninja Bullet I've been experimenting with juicing and supplements. One that I've been using called Spirulina is, I read, good for the liver and...

With my new Ninja Bullet I've been experimenting with juicing and supplements. O...

CathieG

•8 years ago

6 Replies

Change of tablets

Hello I was diagnosed with PBC two years ago and have been taking Urso since then and been ok. I also take Warfarin as I have a heart condition. My GP has...

Hello I was diagnosed with PBC two years ago and have been taking Urso since the...

Noidea63

•8 years ago

1 Reply

Flu jab?

Hi All I've received a notification from my GP surgery that I am eligible for the flu jab. Has anyone else been called in? I know it's optional - not sure...

Hi All I've received a notification from my GP surgery that I am eligible for th...

Hidden

•8 years ago

24 Replies

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Complaints

Had another cancelled appointment and facing an 18 week wait... anyone know the complaint process and going private?

Had another cancelled appointment and facing an 18 week wait... anyone know the...

Chazzy

•8 years ago

14 Replies

Gastritis

Hi, have been diagnosed 4 years and also have a small hiatus hernia. I have used that as the reason why I have had loads of acid reflux etc,I'm on Lansoprazole...

Hi, have been diagnosed 4 years and also have a small hiatus hernia. I have used...

Lisacj

•8 years ago

4 Replies

New to PBC

Just diagnosed with PBC. I am at stage 1-2. Not sure what that means. Am starting ursodiol tomorrow. What side effects can I expect? What is the usual cost...

Just diagnosed with PBC. I am at stage 1-2. Not sure what that means. Am start...

Lignite

•8 years ago

3 Replies

Elevated Liver Enzymes - Positive AMA

Hi, In 2013 I had a routine blood test that showed I had elevated liver enzymes, so an ultrasound was ordered which came back normal. Last week, I had...

Hi, In 2013 I had a routine blood test that showed I had elevated liver enzymes...

alison600

•8 years ago

22 Replies

Opposing Diagnostics about cirrhosis

My gastroenterologist said I didn't have cirrhosis my hepatologist said I did have cirrhosis. Will a fibroscan settle this? I have autoimmune PBC and diabetes...

My gastroenterologist said I didn't have cirrhosis my hepatologist said I did ha...

Juamcc

•8 years ago

11 Replies

Urso side effects

I've been taking the Urso for 4 days, I've had a terrible headache all 4 days. I've taken a few doses of ibuprofen to try to manage it. I've also had stomach...

I've been taking the Urso for 4 days, I've had a terrible headache all 4 days. ...

Jaksgirl

•8 years ago

13 Replies

Bile in urine

I've noticed my urine darken with a fluorescent yellow tinge over the last week. I'm pretty sure it's bile as I'm a retired midwife and due for routine blood...

I've noticed my urine darken with a fluorescent yellow tinge over the last week....

spoul

•8 years ago

30 Replies

Anyone on here From Canada?

Just wondering if anyone on this forum is from Canada?

Sweetness_1

•8 years ago

14 Replies

Mum has pbc

Hi.. What are my chances as a woman in her 40's from also having pbc as my mum has it? She was told by her gp that she has probably had it years. Can I ask my...

Hi.. What are my chances as a woman in her 40's from also having pbc as my mum ...

Flower-fairy

•8 years ago

7 Replies

Worried!

I've just moved from West Yorkshire to West Sussex and while in Yorkshire, attended the liver unit at St James hospital and really happy with the care. Now I...

I've just moved from West Yorkshire to West Sussex and while in Yorkshire, atten...

CathieG

•8 years ago

9 Replies

Stages of PBC

Hello,I was just diagnosed a few days ago so I'm really still in the shock, dramatic time after hearing this. I have a boy who is 5 & he is all I think of...

Hello,I was just diagnosed a few days ago so I'm really still in the shock, dram...

N-Sedky

•8 years ago

41 Replies

Obstetric cholestasis that led to Primary Biliary Cholangitis

Hi all, I have a few elevated liver functioning tests that led to me getting a fibroscan. That result was 4.8. The consultant believes I could have PBC but is...

Hi all, I have a few elevated liver functioning tests that led to me getting a f...

lauralocks123

•8 years ago

16 Replies

PBC and Coeliac Disease

I have suffered with regular pain and diarrhoea which my GP put down to my PCB. I accepted this and suffered on until it got really bad and in desperation I...

I have suffered with regular pain and diarrhoea which my GP put down to my PCB. ...

liver-bird

•8 years ago

5 Replies

Recently diagnosed

Anyone else diagnosed with PBC stage zero? I just got my diagnosis after a liver biopsy and I started Urso 300 3 times per day. My ANA is 1:2560 and AMA is...

Anyone else diagnosed with PBC stage zero? I just got my diagnosis after a liver...

Sissymcc

•8 years ago

14 Replies

Liver hemangiomas and PBC

I have PBC and 8 (!) hemangiomas in my liver - anyone else with plenty of hemangiomas? Is it possible that there is some kind of a connection between these two...

I have PBC and 8 (!) hemangiomas in my liver - anyone else with plenty of hemang...

saarima

•8 years ago

3 Replies

PCB and iron/biotin tablets? Right side muscle spasms?

Hi everyone! I'm quite new here (just been diagnosed PBC) and I would like to ask whether anyone else has suffered the same symptoms and discussed about the...

Hi everyone! I'm quite new here (just been diagnosed PBC) and I would like to as...

saarima

•8 years ago

11 Replies

New!

Hello, I could do with some advice. I have been given a diagnosis of PBC about 4 weeks ago. I have had my bloods tested again since the doctor said she was...

Hello, I could do with some advice. I have been given a diagnosis of PBC about...

Emma715

•8 years ago

10 Replies

I don't trust these statin drugs

Taking Lipitor for 3 months, leg aches reported to Doctor,he said add CoQ10 and keep taking. Went for check up yesterday, blood work shows enzymes elevated,now...

Taking Lipitor for 3 months, leg aches reported to Doctor,he said add CoQ10 and ...

Tacnap

•8 years ago

10 Replies

Advice please - PBC stages and healing after surgery

Newly diagnosed with PBC in July 2016 after itching for almost 12mths. Just had the results from my biopsy that say I am stage 3 of 6 (my understanding is...

Newly diagnosed with PBC in July 2016 after itching for almost 12mths. Just had...

jayneypickles

•8 years ago

6 Replies

DETOX for the liver with PBC

i have PBC for 25 years and am 48. I have had my ups and downs with this disease but not until recently I wanted to do some detoxing at a cellular level....

i have PBC for 25 years and am 48. I have had my ups and downs with this diseas...

lisababs

•8 years ago

7 Replies

Tummy ache or is it?

Hello, Been feeling bit anxious about PBC and still waiting for liver biopsy, I'm finding everything I eat is giving my tummy ache. I don't know whether it's...

Hello, Been feeling bit anxious about PBC and still waiting for liver biopsy, I'...

Chazzy

•8 years ago

3 Replies

Long road and still no diagnoses

Dear all, Writing to see if someone can shed some light on my huband's issues. His siuation is further complicated by the fact that we have lived in 3...

Dear all, Writing to see if someone can shed some light on my huband's issues. ...

ingestedt

•8 years ago

17 Replies

Low Iron?

Hi , I was just diagnosed with PBC Cirrhosis last week. I have had low iron for quite some time, prior to bring diagnosed.I actually get iron infusions for it....

Hi , I was just diagnosed with PBC Cirrhosis last week. I have had low iron for ...

Sweetness_1

•8 years ago

2 Replies

Help! Does anyone get get Blisters on your legs or arms?

About 3 weeks ago, i got a large red blister made up of many small blisters, much like poison ivy, on my leg. I really havent been out in the yard because of...

About 3 weeks ago, i got a large red blister made up of many small blisters, muc...

gmo3352

•8 years ago

6 Replies

What is the life of a pbc cirrhosis patient, what can they do or not do etc etc.

there seems to be no definite hard and fast rules to cirrhosis..some have it for 15 years and are not too bad, others for a few years and are very ill...its...

there seems to be no definite hard and fast rules to cirrhosis..some have it for...

Bobbycat12

•8 years ago

8 Replies

Hungry all the time

Hi I am hungry all the time..I have chirrosis ..was diagnosed with it earlier this year after having pbc for over 20 years. Apart from when I had a varice...

Hi I am hungry all the time..I have chirrosis ..was diagnosed with it earlier t...

Bobbycat12

•8 years ago

13 Replies

Bad days!

Diagnosed with pbc in June and I am on 1000mg of urso. Had a dexa scan and ultra scan get results in a couple of weeks. Recently had fingerprint bruising Lowe...

Diagnosed with pbc in June and I am on 1000mg of urso. Had a dexa scan and ultra...

Lcagar63

•8 years ago

4 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for September 2016

Diet confusion.

Change of tablets

Flu jab?

Complaints

Gastritis

New to PBC

Elevated Liver Enzymes - Positive AMA

Opposing Diagnostics about cirrhosis

Urso side effects

Bile in urine

Anyone on here From Canada?

Mum has pbc

Worried!

Stages of PBC

Obstetric cholestasis that led to Primary Biliary Cholangitis

PBC and Coeliac Disease

Recently diagnosed

Liver hemangiomas and PBC

PCB and iron/biotin tablets? Right side muscle spasms?

New!

I don't trust these statin drugs

Advice please - PBC stages and healing after surgery

DETOX for the liver with PBC

Tummy ache or is it?

Long road and still no diagnoses

Low Iron?

Help! Does anyone get get Blisters on your legs or arms?

What is the life of a pbc cirrhosis patient, what can they do or not do etc etc.

Hungry all the time

Bad days!

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