Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,387 members • 7,990 posts

All posts for September 2013

Catch 22

Came off Urso as they make me feel ill but i feel ill off them also. :-( I know i have to suffer it till my body gets use to them but i cant suffer them and...

Came off Urso as they make me feel ill but i feel ill off them also. :-( I know...

Hidden

•11 years ago

18 Replies

Feeling positive..

Yesterday I took my brother who suffers from PSC, another autoimmune liver condition, to his support group meeting in Oxford. A doctor - Roger Chapman spoke at...

Yesterday I took my brother who suffers from PSC, another autoimmune liver condi...

Hidden

•11 years ago

6 Replies

My doctor had bee monitoring the enzymes function on my liver for the last five years just controlling my diet it is possible ?

Recently I was diagnosed PBC and still I had not gotten any medicine. Is there any rezon he did not prescribe any medicine?

Recently I was diagnosed PBC and still I had not gotten any medicine. Is there a...

Dollyhenriquez17

•11 years ago

5 Replies

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Liver Panel Results & Urso

Wonderful news! After almost 8 months on URSO, my liver panel bloodwork result were ALL within normal range! First time in over 8 yrs. So, Urso, DOES work!

Wonderful news! After almost 8 months on URSO, my liver panel bloodwork result w...

WendyMarie

•11 years ago

34 Replies

Liver biopsy results

I recently had my gallbladder removed as it was damaged from a gallstone. They also did a liver biopsy because I had abnormal liver function tests. The...

I recently had my gallbladder removed as it was damaged from a gallstone. They...

Blossompossum

•11 years ago

4 Replies

hi just had a bone density scan yesterday, liver biopsy showed severe bile duct damage ??? I also have had fatty liver for 3 yrs, started

urso,makde me feel spewy and like a puffer fish waiting to explode, none of my clothes fit and I don't want to wear kaftans for the rest of my days. im looking...

urso,makde me feel spewy and like a puffer fish waiting to explode, none of my c...

dm1360

•11 years ago

27 Replies

PBC: Medicare "2 year wait"

Hello and positive thinking to all my sisters and brothers with PBC, I am 59 years old. I have been on Soc.Sec. Disability since 11/12. I am losing my...

Hello and positive thinking to all my sisters and brothers with PBC, I am 59 y...

CindiA

•11 years ago

2 Replies

anyone having trouble staying awake

during the day i have trouble staying awake (unfortunate as i work in a bar) Drs say i should only feel fatigued. If not working i will sleep for hours even...

during the day i have trouble staying awake (unfortunate as i work in a bar) Drs...

flora

•11 years ago

13 Replies

Does anyone In this group have Spleen pain so bad that you want to pull your hair out?

momofsad

•11 years ago

1 Reply

Newly diagnosed

Hi I've just been diagnosed with PBC last week I don't understand the blood test results , the consultant didn't explain very well are they high or low my LFTs...

Hi I've just been diagnosed with PBC last week I don't understand the blood test...

Kieraferret

•11 years ago

6 Replies

Can itching come and go?

Hi, I started with bad itching a few weeks ago and was sent for a blood test which showed very high ALT (750ish). The GP has referred me and I'll need to have...

Hi, I started with bad itching a few weeks ago and was sent for a blood test whi...

dairymilkmum

•11 years ago

13 Replies

Hi does anyone suffer from scalp issues? I get these pimple like bumps that hurt terribly. Tried about every medication and shampoo.

CBCB

•11 years ago

4 Replies

Anyone on here had a rising bilirubin and managed to get it done with treatment or other measures?

My bilirubin amongst the other LFTS apart from thankfully the Albumin have been rising since I stopped Urso last August and I am now worried that if I dont get...

My bilirubin amongst the other LFTS apart from thankfully the Albumin have been ...

littlemo

•11 years ago

18 Replies

Ama question

Hi.. so I am ama positive no symptoms apart from right side dull pain sometimes. So I have been told I have been positive since November last year without...

Hi.. so I am ama positive no symptoms apart from right side dull pain sometimes....

melbourne

•11 years ago

21 Replies

PBC

Just found out that I'm AMA positive. My symptoms are itching and slight pain on my right lower rib. If you're AMA positive, does it mean you have PBC? I...

Just found out that I'm AMA positive. My symptoms are itching and slight pain o...

barotacnuevo

•11 years ago

13 Replies

Intense pain. Right side from ribs to hip.

Hi guys Been told I have early signs of PBC. Not on any medication. Don't have the itch or severe fatigue. UltraSound was ok. They say I have this because of...

Hi guys Been told I have early signs of PBC. Not on any medication. Don't have t...

Clairetopaz

•11 years ago

22 Replies

I noticed a few red dots on the inside of my upper arm the other day. Also some very faint bruising on my wrist. PBC or crossover related?

CinSF

•11 years ago

9 Replies

Children?

Hi it has been a while since I have been on here.. guess been getting on with life as am 30 and was in shock for a while. Only found out because I have lyme...

Hi it has been a while since I have been on here.. guess been getting on with li...

melbourne

•11 years ago

8 Replies

Diag two weeks ago am 30 :-( Start Urso 2mro, so down and tired , the specialist said he does not need to see me for 6-12mths is this right?

I have so many questions i wanted to ask the doctor when i made my appointment and she could not answer hardly any of them, came out feeling so disheartened. I...

I have so many questions i wanted to ask the doctor when i made my appointment a...

donna30

•11 years ago

61 Replies

You can tell I am new at this PBC....does anyone take milk thistle seed ? If so does it help ? Lemon water ? Will diet help at all ?

Chippy45

•11 years ago

18 Replies

Has anyone ever tried the spice turmeric....and does it help at all ? What is the dose and how often can one take it ? No dx of reflux yet

Chippy45

•11 years ago

4 Replies

My pain in right side has intensified lately.. Anyone have input as to why this might be happening?

Bubie

•11 years ago

21 Replies

Hiya i have been diagnosed with pbc and im on urso 2 tablets twice a day but they make me feel very sick and want to stop taking them

please can anyone give me advice

susan6466

•11 years ago

13 Replies

Is there a search capability on this site? I'm not finding one.

CinSF

•11 years ago

2 Replies

Finally, after 4 month I have got a rest from all the investigations!

Hello everyone, I finally finshed all my investigations at the end of August, after being diagnosed with PBC at the end of May. The time from May to now, very...

Hello everyone, I finally finshed all my investigations at the end of August, a...

littledragon23

•11 years ago

7 Replies

Questran Light

Any one having trouble getting Quesrran Light have been to collect mine today and have been told they carn't order any in they are out of stock due to a recall...

Any one having trouble getting Quesrran Light have been to collect mine today an...

cavi

•11 years ago

5 Replies

Have any of you experienced a Vitamin D deficiency? With appropriate treatment, how quickly were you able to recover the levels to normal?

My Vitamin D level was tested this week and is seriously low. I've been prescribed an 8-week treatment of one 50,000 iu pill per week. I'm a little skeptical...

My Vitamin D level was tested this week and is seriously low. I've been prescrib...

JennerLayne

•11 years ago

7 Replies

Bone density and PBC

Anybody have any information on this? My bone density is -2 (osteoporosis is -2.5). Laughed when doctor told me to eat more cheese! Blood test for calcium and...

Anybody have any information on this? My bone density is -2 (osteoporosis is -2....

berg944

•11 years ago

8 Replies

any pbc ers from Australia on here as I have googled and they keep referring me back to here

I put off a a biopsy for 3 years as I thought between my thyroid and menopause they were my problems, my biopsy showed portal inflammation and scarring so they...

I put off a a biopsy for 3 years as I thought between my thyroid and menopause t...

dm1360

•11 years ago

19 Replies

Hi Folks, Does anyone know of a respite place that I could go to after my operation at Leeds or offer me a roof for recuperation.

Things are well crazy at home and making me very stressed with the imminent operation. It would be great to go somewhere to rest and recover as I know that...

Things are well crazy at home and making me very stressed with the imminent oper...

florrie505

•11 years ago

2 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for September 2013

Catch 22

Feeling positive..

My doctor had bee monitoring the enzymes function on my liver for the last five years just controlling my diet it is possible ?

Liver Panel Results & Urso

Liver biopsy results

hi just had a bone density scan yesterday, liver biopsy showed severe bile duct damage ??? I also have had fatty liver for 3 yrs, started

PBC: Medicare "2 year wait"

anyone having trouble staying awake

Does anyone In this group have Spleen pain so bad that you want to pull your hair out?

Newly diagnosed

Can itching come and go?

Hi does anyone suffer from scalp issues? I get these pimple like bumps that hurt terribly. Tried about every medication and shampoo.

Anyone on here had a rising bilirubin and managed to get it done with treatment or other measures?

Ama question

PBC

Intense pain. Right side from ribs to hip.

I noticed a few red dots on the inside of my upper arm the other day. Also some very faint bruising on my wrist. PBC or crossover related?

Children?

Diag two weeks ago am 30 :-( Start Urso 2mro, so down and tired , the specialist said he does not need to see me for 6-12mths is this right?

You can tell I am new at this PBC....does anyone take milk thistle seed ? If so does it help ? Lemon water ? Will diet help at all ?

Has anyone ever tried the spice turmeric....and does it help at all ? What is the dose and how often can one take it ? No dx of reflux yet

My pain in right side has intensified lately.. Anyone have input as to why this might be happening?

Hiya i have been diagnosed with pbc and im on urso 2 tablets twice a day but they make me feel very sick and want to stop taking them

Is there a search capability on this site? I'm not finding one.

Finally, after 4 month I have got a rest from all the investigations!

Questran Light

Have any of you experienced a Vitamin D deficiency? With appropriate treatment, how quickly were you able to recover the levels to normal?

Bone density and PBC

any pbc ers from Australia on here as I have googled and they keep referring me back to here

Hi Folks, Does anyone know of a respite place that I could go to after my operation at Leeds or offer me a roof for recuperation.

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