Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,389 members • 7,995 posts

All posts for July 2023

Scalp itch with statins

I had a ‘subtle stroke’ in May. Prescribed statins for first time even though my cholesterol was over 7. I was diagnosed with PBC about 17 years ago. Always...

I had a ‘subtle stroke’ in May. Prescribed statins for first time even though m...

debrado

•9 months ago

4 Replies

pins and needle’s in hand and feet and heart palpitations

I believe it is stress and anxiety Recently i have been getting heart palpitations, fast heartbeat, i can hear it in my neck and also pins and needles in...

I believe it is stress and anxiety Recently i have been getting heart palpita...

Tramezzini

•9 months ago

2 Replies

Probiotics and Prebiotics Supplement in Australia

hi, As time goes by the more I realise the gut health is connected to autoimmune diseases. Any reliable brands of pre and probiotics that you have tried...

hi, As time goes by the more I realise the gut health is connected to autoimmun...

Tramezzini

•9 months ago

6 Replies

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Having trouble getting specific medication for mother.

Hello everyone, I've been on this forum a year or two ago seeking help for my mother who has been diagnosed with PBC since 2018. Since that year until now she...

Hello everyone, I've been on this forum a year or two ago seeking help for my mo...

Rimeru

•9 months ago

14 Replies

fatigue article

not sure this link will work as this comes via my Apple News, if not this article was written in The Atlantic. It’s about Long Covid and other fatigue...

not sure this link will work as this comes via my Apple News, if not this articl...

CeeCee101

•9 months ago

2 Replies

travel insurance

Hi all Been a while since I posted Ive been quoted £56 for a weeks trip to Europe live in uk Is this a fair price? The company wont do a years holiday...

Hi all Been a while since I posted Ive been quoted £56 for a weeks trip to E...

Eppy

•9 months ago

4 Replies

Spike in blood sugar levels

I was diagnosed with PBC in 2021. Take my Ursodiol faithfully everyday. Had bloodwork done in April. Everything was good except my ALP is high but below...

I was diagnosed with PBC in 2021. Take my Ursodiol faithfully everyday. Had bl...

Mcclintock3

•9 months ago

3 Replies

serum Alkaline phospharase abnormally high

hi My SLT results are usually all over the pace and dance around the 200/300 mark, but recently had a reading of over 600! I started taking Colysterimine for...

hi My SLT results are usually all over the pace and dance around the 200/300 m...

mrsreddave

•9 months ago

1 Reply

pbc and statins

I have been diagnosed with pbc for the past 12 years and taking ursi. Alp slightly above normal but below 200. Was put on statins for high cholesterol but...

I have been diagnosed with pbc for the past 12 years and taking ursi. Alp slight...

mel16

•9 months ago

26 Replies

joint pain

Hi all, I was diagnosed last Nov. over the past few months I have joint and muscle pain at different times. Some days are ok. My knees, thighs sometimes shins...

Hi all, I was diagnosed last Nov. over the past few months I have joint and mus...

Samanthaann

•9 months ago

4 Replies

Total mess

I've had the worst year ever I've have PBC with an overlsp of AIH since diagnosed in 2015 I am supposed to be getting a thoracic spine operation but can't get...

I've had the worst year ever I've have PBC with an overlsp of AIH since diagnose...

mjk98

•9 months ago

1 Reply

low folate

I gave PBC for 15 years and I’m on urso. My levels are reasonable. I have acid reflux, and I’m on Nexium 10 daily. In the last few months my folate has dropped...

I gave PBC for 15 years and I’m on urso. My levels are reasonable. I have acid r...

Gwelos

•9 months ago

4 Replies

foods I can’t tolerate since taking Urso

I’ve been taking Urso for 2 years now. Since then I’ve discovered I can’t eat mushrooms, onions and bell peppers. I use to enjoy these foods often. Now,...

I’ve been taking Urso for 2 years now. Since then I’ve discovered I can’t eat m...

Grams2020

•9 months ago

10 Replies

Cholurso tabs Anyone

please please can someone help I’ve been struggling as in choking on ursonorm capsules 5 a day and I’ve rang the dr this morning she’s changed them to ones...

please please can someone help I’ve been struggling as in choking on ursonorm ca...

Eternity6

•9 months ago

23 Replies

Hello, new to the forum. had ultrasound on tues, anyone been down the private road re getting diagnosis confirmed. so i can get in system.

Been feeeling rough for a few weeks with what i thought was indigestion. Went to doctors after a couple of weeks. High Levels in Blood results so scan booked,...

Been feeeling rough for a few weeks with what i thought was indigestion. Went to...

Andy2Teas

•9 months ago

6 Replies

Travel insurance

Can anyone recommend travel insurance company. My Husband and I are both in our eighties, hoping to holiday in Greece this year with Family. We both have...

Can anyone recommend travel insurance company. My Husband and I are both in our ...

alpha3

•9 months ago

9 Replies

Pbc auto immune

Has anybody had low white blood cells ... mine are very low and they have cut my rifapancin down. I'm only hoping the dreaded itch will not get any worse

Has anybody had low white blood cells ... mine are very low and they have cut my...

janine541

•10 months ago

5 Replies

biopsy

we’ll, I’ll get it right this time…activity grade and fibrosis grade are mild. Either way, stage 1. No more corrections, lol!

we’ll, I’ll get it right this time…activity grade and fibrosis grade are mild. E...

gwillistexas

•10 months ago

1 Reply

biopsy

correction…PBC is stage 1, not fibrosis…

gwillistexas

•10 months ago

2 Replies

update

just wanted to share the latest. You remember when I last posted I was going to Dallas for an mri/mre after a different hepatologist did a fibroscan and said...

just wanted to share the latest. You remember when I last posted I was going to ...

gwillistexas

•10 months ago

22 Replies

supplemental pbc treatments

Does anyone have diet and supplement experience and advice to help bring fibroses down? Resist temptation to say you don’t know any other than Ursodoil,...

Does anyone have diet and supplement experience and advice to help bring fibrose...

Jlruggie

•10 months ago

44 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for July 2023

Scalp itch with statins

pins and needle’s in hand and feet and heart palpitations

Probiotics and Prebiotics Supplement in Australia

Having trouble getting specific medication for mother.

fatigue article

travel insurance

Spike in blood sugar levels

serum Alkaline phospharase abnormally high

pbc and statins

joint pain

Total mess

low folate

foods I can’t tolerate since taking Urso

Cholurso tabs Anyone

Hello, new to the forum. had ultrasound on tues, anyone been down the private road re getting diagnosis confirmed. so i can get in system.

Travel insurance

Pbc auto immune

biopsy

biopsy

update

supplemental pbc treatments

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