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All posts for March 2019

Sensation of band, not tight, under rib cage

Does anybody experience a sensation of a band, not tight, under rib cage? I have been diagnosed with AMA but liver functions normal. ANA also elevated....

Does anybody experience a sensation of a band, not tight, under rib cage? I have...

spalatin

•6 years ago

10 Replies

Is it true what my doctor said?

So my question is my doctor said 90 percent of patients that test positive for AMA most likely has PBC . But I also read where this disease is rare. So can...

So my question is my doctor said 90 percent of patients that test positive for A...

HULK80

•6 years ago

13 Replies

Lab Values and Fibrosis

Hello everyone, I had a recheck on my labs and everything is finally in normal range! ALP-89, ALT/AST-both 19. Woot! Woot! So very thankful that I responded...

Hello everyone, I had a recheck on my labs and everything is finally in normal r...

HealthyChik

•6 years ago

10 Replies

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Painful joints

Hi everyone I have had PBC/AIH for 5 years I have been on steroids since then the inflammation in my liver has gone down so they have taken me off the steroids...

Hi everyone I have had PBC/AIH for 5 years I have been on steroids since then th...

Janicemr

•6 years ago

6 Replies

Itching!

Hi I cannot sleep tonight. My legs are itchy & it’s been driving me insane for the past hour. A bit of background info. Newly diagnosed, incidental finding, no...

Hi I cannot sleep tonight. My legs are itchy & it’s been driving me insane for t...

Karaxxx

•6 years ago

20 Replies

Confused

Hi everyone, is it possible to have normal AMA and still have PBC? Feeling confused.

Hi everyone, is it possible to have normal AMA and still have PBC? Feeling confu...

Spanishnan

•6 years ago

6 Replies

New to this

Hello my name is chad so I had high levels of AMA and my doctor referred me to a specialist for a biopsy. I am scared with this whole thing can yall tell me...

Hello my name is chad so I had high levels of AMA and my doctor referred me to a...

HULK80

•6 years ago

18 Replies

Ursodiol Dosage

I was recently diagnosed with PBC. The doctor said I was in the very early stages and prescribed Ursodiol. I take 500mg twice a day. Is that the typical...

I was recently diagnosed with PBC. The doctor said I was in the very early stag...

StopPBC

•6 years ago

4 Replies

AMA Question

Hi everyone, I was just dismissed from my hepatologist because I have positive AMAs and have had them for 4 years now but with normal lfts and also had a...

Hi everyone, I was just dismissed from my hepatologist because I have positive A...

Jenni4962

•6 years ago

12 Replies

Work capability.

Hi I had the work capability assessment a week or so ago and the result was permanently unfit for work either full or part time. She told me at the...

Hi I had the work capability assessment a week or so ago and the result was perm...

Vespa27

•6 years ago

9 Replies

Pain

Hi over the past few days, I keep getting a sharp pain under my right rib cage so bad it tool my breath away yesterday. Felt like my rib cage was pinching...

Hi over the past few days, I keep getting a sharp pain under my right rib cage ...

Vespa27

•6 years ago

1 Reply

Veganism - does it make a difference?

Are there any vegans out there? Can you tell me if your blood tests have been affected? Also cholesterol and blood pressure? I have PBC and I'm very interested...

Are there any vegans out there? Can you tell me if your blood tests have been af...

kandiepat

•6 years ago

8 Replies

Abdominal Cramp Pain

Hi just wondering if anyone taking Urso has had any effects such as severe cramp/nausea and sweating half hour after eating. I’ve been on Urso since start of...

Hi just wondering if anyone taking Urso has had any effects such as severe cramp...

P13jne

•6 years ago

10 Replies

New brand of Urso

Hi all, I currently take 300 mg capsules of ursodiol and I usually receive an all white capsule labeled "WATSON 3159" which I tolerate with no problems. I...

Hi all, I currently take 300 mg capsules of ursodiol and I usually receive an al...

HealthyChik

•6 years ago

20 Replies

PBC and travel insurance

I’ve recently been diagnosed with liver disease and PBC and am travelling abroad from UK this summer. Do I need to declare my condition and can anybody...

I’ve recently been diagnosed with liver disease and PBC and am travelling abroad...

deborahfrog

•6 years ago

11 Replies

Just a little info about ursodiol

I found this article to be interesting. https://www.gastrojournal.org/article/S0016-5085(04)02000-1/fulltext My niece gave me this link to read. It’s a...

I found this article to be interesting. https://www.gastrojournal.org/article/S0...

Jen11804

•6 years ago

12 Replies

Effects of ursodiol

I have a niece who is into natural remedies for anything medical that requires medication. She was researching ursodiol and found that it can cause cancer...

I have a niece who is into natural remedies for anything medical that requires m...

Jen11804

•6 years ago

39 Replies

Question about elastograph ultrasound result

Good morning everyone. I was diagnosed last October after elevated Alk Phos for almost a year and positive AMA. I had my first elastograph ultrasound in...

Good morning everyone. I was diagnosed last October after elevated Alk Phos for...

lilygrower

•6 years ago

12 Replies

Good news

https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-researchers-identify-potential-new-therapy-for-liver-diseases/

https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-researchers-identify-p...

Sachin1234

•6 years ago

5 Replies

Jaundice

Woke up this morning with yellowish eyes. My last Bilirubin reading was 7 which is well within the range. Bit down in the dumps as I eat healthy and don’t...

Woke up this morning with yellowish eyes. My last Bilirubin reading was 7 which ...

Biddyb

•6 years ago

11 Replies

Me to,

I'm having the same problem. I moved in my house 2yrs ago. That's how long I had this..I stay by a creek, I think we'll water, or has any one had a leaky roof...

I'm having the same problem. I moved in my house 2yrs ago. That's how long I had...

Sweetie190

•6 years ago

2 Replies

Hair Color

I know there was a discussion a long while back about coloring our hair. Are any of you coloring? Gray is driving me crazy🙃 Gail 🦋

I know there was a discussion a long while back about coloring our hair. Are any...

gwillistexas

•6 years ago

35 Replies

Happy News

I wanted to let everyone know that my fight for disability is finally over. EVERYTHING WENT IN MY FAVOR!!! I couldn't be more happier. Now I'm looking for a...

I wanted to let everyone know that my fight for disability is finally over. EVER...

Shulsey

•6 years ago

52 Replies

Travel insurance

Am planning a trip to oz in the summer and I recently seen a post about how hard it is to get insurance if you have pbc if you are lucky it is terrible...

Am planning a trip to oz in the summer and I recently seen a post about how hard...

S2k0

•6 years ago

18 Replies

CBD OIL

Hi Has anyone used cbd oil and have you found it effective. It’s reported to help the liver and wondering if anyone has more information or a good website to...

Hi Has anyone used cbd oil and have you found it effective. It’s reported to he...

Gwelos

•6 years ago

15 Replies

Blue card for parking

Hi with PBC, do we qualify for the blue card for disabled parking? Or is there certain restrictions. I’m currently struggling to go out with fatigue so this...

Hi with PBC, do we qualify for the blue card for disabled parking? Or is there c...

P13jne

•6 years ago

20 Replies

Allergi mot Ursofalk

Oj stavade fel i mitt tidigare inlägg, JAG KAN INTE ÄTA URSOFALK SKA DET STÅ🙃

Kliar

•6 years ago

Be the first to reply

Hi

After 2 weeks on prednisone and azathioprine my liver enzyme were down to normal range alp=80, alt=44, ast=30 and today I had another every 2 weeks labs done...

After 2 weeks on prednisone and azathioprine my liver enzyme were down to normal...

Sachin1234

•6 years ago

7 Replies

Holiday insurance problems

Hi, Can anybody give me help with finding travel insurance for going to America. Every company I’ve phoned so far are quoting over £1000. I only have Pbc...

Hi, Can anybody give me help with finding travel insurance for going to America....

Mickeym

•6 years ago

19 Replies

Urso, how to take it

My consultant has just prescribed urso 3 to be taken at night, but on the enclosed leaflet it says to take 1 3xday for the first 3 months. How do other newly...

My consultant has just prescribed urso 3 to be taken at night, but on the enclos...

Spanishnan

•6 years ago

16 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for March 2019

Sensation of band, not tight, under rib cage

Is it true what my doctor said?

Lab Values and Fibrosis

Painful joints

Itching!

Confused

New to this

Ursodiol Dosage

AMA Question

Work capability.

Pain

Veganism - does it make a difference?

Abdominal Cramp Pain

New brand of Urso

PBC and travel insurance

Just a little info about ursodiol

Effects of ursodiol

Question about elastograph ultrasound result

Good news

Jaundice

Me to,

Hair Color

Happy News

Travel insurance

CBD OIL

Blue card for parking

Allergi mot Ursofalk

Hi

Holiday insurance problems

Urso, how to take it

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