Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,484 members•8,374 posts

All posts for April 2014

Thanks all for the support!!

Thanks to all for the support towards me-- the newbie pbc-er! If I can laugh about it, I think I'm gonna be ok! I just don't understand a few things. I am...

Thanks to all for the support towards me-- the newbie pbc-er! If I can laugh ab...

PatinJersey

•11 years ago

5 Replies

Does anyone have a bad taste in mouth all the time. What can I do. Also have dry mouth

Nancybeck123

•11 years ago

10 Replies

Does anyone have a dry feeling. On the tips of fingers and toes? I feel like I am drying up. Tips have no feeling

Nancybeck123

•11 years ago

3 Replies

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Hey this whole PBC name change is great behind it 100 %

I did the survey and with a background in OR the new name takes the stigmas as a matter of fact I started using it as my own little test sample and people's...

I did the survey and with a background in OR the new name takes the stigmas as a...

Mickey1964

•11 years ago

3 Replies

Hey to All! I've joined the crowd, for better or for worse.

Hey everyone! This is not a momentous occaision, but, i just have found out that I have PBC after a biopsy. I'm a 64 year-old woman. Over the years, I've...

Hey everyone! This is not a momentous occaision, but, i just have found out th...

PatinJersey

•11 years ago

24 Replies

After having a liver biopsy done recently it has now been confirmed that I have PBC although with no evidence of copper associated protein

The biopsy also showed AIH. I am being treated with Prednisolone 80 mgs daily for I month then reduce to 60 mgs for a month with the anticipating need to...

The biopsy also showed AIH. I am being treated with Prednisolone 80 mgs daily fo...

MrsworryGuts

•11 years ago

22 Replies

PBC Name Change notice released via PBCers.org (* Partially repetitive to what's been posted here and with a few diifferent details)

PBCers Please Read - PBC Name Change Sun Apr 27, 2014 2:41 am (PDT) . Posted by: pbcers Hi Ya'll, As most of you know, the name Primary Biliary...

PBCers Please Read - PBC Name Change Sun Apr 27, 2014 2:41 am (PDT) . Posted b...

JennerLayne

•11 years ago

19 Replies

Is this the right forum?

Hi, I was admitted to hospital last August which I was informed I had acute pancreatitis and had lost 40% of my pancreas in the process. Just wondered if this...

Hi, I was admitted to hospital last August which I was informed I had acute panc...

Tracy2911

•11 years ago

5 Replies

Has anyone been symptom free for a long time?

I don't have many if any symptoms(not sure if the aches and pains are down to natural aging im55)but everyone in the 'profession'ive spoken to assure me they...

I don't have many if any symptoms(not sure if the aches and pains are down to na...

cazz22

•11 years ago

38 Replies

Changing the name of PBC - please fill out the survey for the PBC Foundation

Just an extra post to endorse Robert's post - please do find his post and fill out the survey. The survey is about our (as patients or healthcare...

Just an extra post to endorse Robert's post - please do find his post and fill o...

SheepJane

•11 years ago

2 Replies

has anyone else out there suffered with psoriasis ? This is also auto immune apparently.

As a child and young woman I suffered with severe bouts of Tonsilitis resulting in prolonged periods of taking anti- biotics. Perhaps my immune system felt...

As a child and young woman I suffered with severe bouts of Tonsilitis resulting ...

LindaSusan

•11 years ago

7 Replies

Disability act 2010 and pbc

I work for the nhs and have been told by atos(OCCUPATIONAL HEALTH ) that I have a disability...because I have an illness that will last for longer than 12...

I work for the nhs and have been told by atos(OCCUPATIONAL HEALTH ) that I have ...

meandmypbc

•11 years ago

17 Replies

Has anyone got a thickening of the small bowel I have pbc and after a ct scan I was told I have thickening of small bowel

sophie666

•11 years ago

3 Replies

Taking the "Cirrhosis" out of PBC

You will be delighted to read that we are knocking on the doors of a wonderful opportunity. There is an international initiative right now building momentum...

You will be delighted to read that we are knocking on the doors of a wonderful o...

PBCRobert

Partner•11 years ago

47 Replies

A cure (possibly temporary) for the dreaded itch

Hi, I am 45 and diagnosed with PBC ten years ago! Last summer I was signed off my work as I couldn't cope any longer - I had tried every medication possible...

Hi, I am 45 and diagnosed with PBC ten years ago! Last summer I was signed off m...

Jill68

•11 years ago

9 Replies

Nodules anyone???

Just got back from specialist .apparently bloods almost normal which is amazing as I barely take any urso.however still have nodules on liver (have been ct...

Just got back from specialist .apparently bloods almost normal which is amazing ...

cazz22

•11 years ago

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hi Can someone recommend me the best brands of milk thistle available in US and will i get it on amazon or some medical store?

How many of you have been using milk thistle and has it really helped?

nishahathi

•11 years ago

10 Replies

Announcement of Phase III POISE Data in PBC

Below is the link to a press release highlighting Intercept's late-breaking phase III data on obeticholic acid (OCA) in primary biliary cirrhosis (PBC). It...

Below is the link to a press release highlighting Intercept's late-breaking pha...

JennerLayne

•11 years ago

1 Reply

primary biliary cirrhosis/ autoimmune hepatitis lapover syndrome

Diagnosed with pbc / autoimmune hepatitis lapover syndrome . Anyone else have it and what is your treatment ? I have been taking urso doil but recent biopsy...

Diagnosed with pbc / autoimmune hepatitis lapover syndrome . Anyone else have i...

cocobailey

•11 years ago

9 Replies

Pregnant Or Not ?? The Line Was Faint What Does It Mean??

Today I Was Having A Convo With My Sister On The Phone A Good One Too Nd She Just Had A Baby March 10 Nd She Had Some Promblems Nd Think Shes Pregnant Again Nd...

Today I Was Having A Convo With My Sister On The Phone A Good One Too Nd She Jus...

Hidden

•11 years ago

2 Replies

Biopsy done-wasn't as bad as I thought

For those of you contemplating a biopsy, my experience wasn't that bad. It was over before I realized it. Some soreness but no major pain. I was taken care...

For those of you contemplating a biopsy, my experience wasn't that bad. It was ...

NotorDJP

•11 years ago

5 Replies

Hi! I just signed the petition "Endocrinologists: Patients with Thyroid Dysfunction Demand Better Care" on Change.org. It's important.

Please support them too. Cheers, Gritty

GrittyReads

•11 years ago

5 Replies

Not a question, but a piece of interest. If you are in London, do pop into 20 Cavendish Square, to see the new library and Heritage Centre

for the Royal College of Nursing. Have a look at the 'Exhibition' and the 'Nursing History Room', and write supportive comments on their comment board....

for the Royal College of Nursing. Have a look at the 'Exhibition' and the 'Nurs...

GrittyReads

•11 years ago

2 Replies

Thymus gland

I'm starting a course soon, to study Aromatherapy because I want to work for myself on "my" terms. The course includes study of Anatomy & Physiology! So I've...

I'm starting a course soon, to study Aromatherapy because I want to work for mys...

skywalker

•11 years ago

7 Replies

Hi. Does anyone have liver scaring or/and fatigue or any other symptoms with normal LFTs?

I'm struggling to accept or believe that I have PBC when my LFTs are normal all the time! I've just come back off holiday and I've got a letter from the gastro...

I'm struggling to accept or believe that I have PBC when my LFTs are normal all ...

skywalker

•11 years ago

7 Replies

Hi everyone x happy Easter! Wondering wot ur thoughts are on something' I have a 16 yr old daughter who for the last year or more is

Constantly tired. She could sleep the clock round. I had her at the docs last year before I was diagnosed thinking it was her blood/iron but they all came back...

Constantly tired. She could sleep the clock round. I had her at the docs last ye...

Dmb1

•11 years ago

6 Replies

the point of taking statins?

my husband has taken statins for 20 odd years been at doctors constantly - is diabetic, had full bloods taken three monthly.Was seen in early march and had...

my husband has taken statins for 20 odd years been at doctors constantly - is di...

sayitis

•11 years ago

4 Replies

Greetings from the US and a relatively newly diagnosed BPC patient

First a bit about how the US and UK differ: US - we have PCP (Primary Care Physicians). UK - GPs. US - normally, a PCP catches something suspicious in your...

First a bit about how the US and UK differ: US - we have PCP (Primary Care Physi...

Kind_of_crazy

•11 years ago

23 Replies

Has anyone heard that drinking coffee is actually good for the liver?

I was told this by my heptologist and decided to do a bit of research online. I found the following article which upholds this theory at this link:...

I was told this by my heptologist and decided to do a bit of research online. I ...

Maribella

•11 years ago

7 Replies

Hi! I went for blood work yesterday and I asked for a copy to be mailed to me, so now I wait. They were to take 5 tubes, but they could

Get 4. I guess they could of tried another vein but the nurse taking my blood said they could do all the tests with the 4 tubes they took. That afternoon I...

Get 4. I guess they could of tried another vein but the nurse taking my blood s...

2006

•11 years ago

7 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for April 2014

Thanks all for the support!!

Does anyone have a bad taste in mouth all the time. What can I do. Also have dry mouth

Does anyone have a dry feeling. On the tips of fingers and toes? I feel like I am drying up. Tips have no feeling

Hey this whole PBC name change is great behind it 100 %

Hey to All! I've joined the crowd, for better or for worse.

After having a liver biopsy done recently it has now been confirmed that I have PBC although with no evidence of copper associated protein

PBC Name Change notice released via PBCers.org (* Partially repetitive to what's been posted here and with a few diifferent details)

Is this the right forum?

Has anyone been symptom free for a long time?

Changing the name of PBC - please fill out the survey for the PBC Foundation

has anyone else out there suffered with psoriasis ? This is also auto immune apparently.

Disability act 2010 and pbc

Has anyone got a thickening of the small bowel I have pbc and after a ct scan I was told I have thickening of small bowel

Taking the "Cirrhosis" out of PBC

A cure (possibly temporary) for the dreaded itch

Nodules anyone???

hi Can someone recommend me the best brands of milk thistle available in US and will i get it on amazon or some medical store?

Announcement of Phase III POISE Data in PBC

primary biliary cirrhosis/ autoimmune hepatitis lapover syndrome

Pregnant Or Not ?? The Line Was Faint What Does It Mean??

Biopsy done-wasn't as bad as I thought

Hi! I just signed the petition "Endocrinologists: Patients with Thyroid Dysfunction Demand Better Care" on Change.org. It's important.

Not a question, but a piece of interest. If you are in London, do pop into 20 Cavendish Square, to see the new library and Heritage Centre

Thymus gland

Hi. Does anyone have liver scaring or/and fatigue or any other symptoms with normal LFTs?

Hi everyone x happy Easter! Wondering wot ur thoughts are on something' I have a 16 yr old daughter who for the last year or more is

the point of taking statins?

Greetings from the US and a relatively newly diagnosed BPC patient

Has anyone heard that drinking coffee is actually good for the liver?

Hi! I went for blood work yesterday and I asked for a copy to be mailed to me, so now I wait. They were to take 5 tubes, but they could

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