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PBC Foundation

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All posts for November 2018

Cholurso vs Ursofalk

Hi everyone. I've been diagnosed a year, no symptoms as yet, early stage. I've been on Cholurso which brought my numbers back within range. When picking up...

Hi everyone. I've been diagnosed a year, no symptoms as yet, early stage. I've...

Mariontp

•6 years ago

5 Replies

Quick update on me, bloodwork

I went off ocaliva last month, staying on urso, at doctors suggestion. My ALP was essentially unchanged from the last test. I’m starting a fibrate this...

I went off ocaliva last month, staying on urso, at doctors suggestion. My ALP wa...

Ottley3

•6 years ago

3 Replies

Immune system

Hi everyone hope ur all well. I had my first hospital appointment this week and came out feeling so relieved. Consultant was great. Answered all my questions...

Hi everyone hope ur all well. I had my first hospital appointment this week and ...

BabyK

•6 years ago

12 Replies

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Good primary dr who can monitor thyroid

I’m looking for primary dr around northern Virginia any recommendations!

Sachin1234

•6 years ago

1 Reply

High Blood Pressure Medication

I was wondering if anybody took any high blood pressure medication?I was prescribed 10 mg of Lisinopril last week by my Family Doctor.But I always check with...

I was wondering if anybody took any high blood pressure medication?I was prescri...

PBCTracy

•6 years ago

8 Replies

Sick note.

Hi guys thank you for your replies. I took your advice and went into Pinderfields. I got let out on Saturday, with a sick note for a month, to start with,...

Hi guys thank you for your replies. I took your advice and went into Pinderfiel...

Vespa27

•6 years ago

8 Replies

Results!

Got my blood test results yesterday and down to 130 from 180 so over the moon that the urso tablets are working after 3 months. Spoke to my specialist and she...

Got my blood test results yesterday and down to 130 from 180 so over the moon th...

nunbrook

•6 years ago

6 Replies

PBC diagnosing...

Hi! I’m new to this site and I’ve been diagnosed with PBC but don’t know how far along it is ct scan is normal other than fatty liver. Liver profile has been...

Hi! I’m new to this site and I’ve been diagnosed with PBC but don’t know how fa...

tech63

•6 years ago

3 Replies

Fibroscan

Just been for a fibroscan and score 16.8. I know that is not good lol. Can anyone give me any info of what happens next? I hate the feeling of not knowing...

Just been for a fibroscan and score 16.8. I know that is not good lol. Can anyon...

HelenTM

•6 years ago

10 Replies

Thankful & Blessed💞

On this special day of giving thanks around the world, I wanted to share my thanks & appreciation with all you wonderful people. This was the first group I...

On this special day of giving thanks around the world, I wanted to share my than...

gwillistexas

•6 years ago

31 Replies

First appointment

Re my last text. Will I get any tests taken or will it just be a chat? I feel kinda on my own here.

Re my last text. Will I get any tests taken or will it just be a chat? I feel ki...

BabyK

•6 years ago

9 Replies

Grateful for this forum

Hi All So it's Thanksgiving time in America and I just wanted to say how grateful and thankful I am for this fantastic community. And a special...

Hi All So it's Thanksgiving time in America and I just wanted to say how gratefu...

EileenUSA

•6 years ago

28 Replies

Upper right abdomen pain, discomfort.

Hi guys, I was diagnosed with PBC 14 yrs ago, (i'm 65) and without meds remained symptom free until about a year ago. Started to get lots of digestive probs,...

Hi guys, I was diagnosed with PBC 14 yrs ago, (i'm 65) and without meds remained...

Elianan

•6 years ago

6 Replies

First appointment

First hospital appointment next week what should I expect?

BabyK

•6 years ago

1 Reply

High Platelet count

Had blood work done this morning for a hepatologist appointment next week. Less than 3 hours later got a call from the Dr.'s office; high platelet count (I...

Had blood work done this morning for a hepatologist appointment next week. Less...

kp1234

•6 years ago

5 Replies

Banding

Happy to say that I was back in for a scope on the varices which I have and the consultant did not band them this time, he was very happy with them. So this...

Happy to say that I was back in for a scope on the varices which I have and the ...

JaniceK

•6 years ago

12 Replies

Kidney pain/Kidney stones

Has anybody experienced kidney pain?I wasn't sure if it was PBC related or Urso related.It is sharp then goes away.My spouse gets frequent kidney stones so he...

Has anybody experienced kidney pain?I wasn't sure if it was PBC related or Urso ...

PBCTracy

•6 years ago

8 Replies

Antibiotics

G’morning! I’m just curious about which antibiotics any of you have taken for upper respiratory. I’m still trying to get rid of what I’ve had. I don’t feel...

G’morning! I’m just curious about which antibiotics any of you have taken for u...

gwillistexas

•6 years ago

10 Replies

Urso dose

Hi everyone ❤️❤️ My hepatologist started urso with 1500mg/day. I’m 55kg. Isn’t it too much for me? Does anyone else take same dosage? Thank you

Hi everyone ❤️❤️ My hepatologist started urso with 1500mg/day. I’m 55kg. Isn’t i...

Sona_akb

•6 years ago

22 Replies

Just diagnosed and scared.

Two years ago I was diagnosed with Lupus because of symptoms and positive ANA. Last month I decided to get a second opinion because I felt as though my...

Two years ago I was diagnosed with Lupus because of symptoms and positive ANA. L...

Sandb26

•6 years ago

14 Replies

Fibroscan

Hi I’ve was diagnosed ( by a liver biopsy) with pbc in 2008. I am on urso . Ive heard about fibroscan and am keen to have a second opinion using the scan as...

Hi I’ve was diagnosed ( by a liver biopsy) with pbc in 2008. I am on urso . Ive ...

boneytoys

•6 years ago

27 Replies

Diarrhea

I have been having diarrhea for about a week. Diagnosed 2 years ago and on Urso since diagnosed with no issues. Seems everything I eat just goes right through...

I have been having diarrhea for about a week. Diagnosed 2 years ago and on Urso ...

Pamela4475

•6 years ago

13 Replies

Hello again

Hi I am not new to p c foundation it nor been on here for a very long time due to work comittment. I have the new Facebook log in name of Vespa27 but my...

Hi I am not new to p c foundation it nor been on here for a very long time due ...

Vespa27

•6 years ago

2 Replies

Hello PBCers

Hello, I am new to this chat. I was diagnosed with PBC over 10 years ago. I have been taking Ursodiol since diagnosis. I have had an up and down road since...

Hello, I am new to this chat. I was diagnosed with PBC over 10 years ago. I hav...

Camp_Host

•6 years ago

13 Replies

Most recent labs. I stopped RA drugs & My Hepatologist Appt. today.... If it wasn't for you all.... I'd be upset. But I'm good! ❤

Hey🙋, LFT'S were going up instead of down. Weird nausea and URQP. I have elavated ferritin, as the lab that tested me has a range (30ng-130ng) and mine is...

Hey🙋, LFT'S were going up instead of down. Weird nausea and URQP. I have elav...

Ktltel

•6 years ago

47 Replies

Pbc results

Hi I had my liver test results and its blue 6 apparently that is very high ...does anyone know how these results work Kind regards yvonne

Hi I had my liver test results and its blue 6 apparently that is very high ...do...

Yvonnetrowman56

•6 years ago

2 Replies

Advice

Hi, Diagnosed 2.5 yrs ago with PBC stage 3. Non responder to urso, have tried OCA but temporarily stopped due to intense itch. Since starting OCA I have had...

Hi, Diagnosed 2.5 yrs ago with PBC stage 3. Non responder to urso, have tried OC...

Starfish72

•6 years ago

5 Replies

Undiagnosed skin problem

Combination of sand like substance as well as grainy salt like substance under top layer of facial skin. I’ve been to doctors, dermatologist for the last...

Combination of sand like substance as well as grainy salt like substance under t...

Dallas82

•6 years ago

3 Replies

Bronchial Inhalers

Have any of you had to use a bronchial inhaler? I’m sure my sweet hubby shared his germ with me. Started antibiotic & steroid pack last Thursday. Still some...

Have any of you had to use a bronchial inhaler? I’m sure my sweet hubby shared ...

gwillistexas

•6 years ago

31 Replies

Hi av just been diagnosed with angina I am very worried as I dnt know when I would need help r if it’s the angina

Hi I have just been diagnosed with angina I am so scared that I won’t know when to phone for help

Hi I have just been diagnosed with angina I am so scared that I won’t know when ...

Kimy1234

•6 years ago

5 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for November 2018

Cholurso vs Ursofalk

Quick update on me, bloodwork

Immune system

Good primary dr who can monitor thyroid

High Blood Pressure Medication

Sick note.

Results!

PBC diagnosing...

Fibroscan

Thankful & Blessed💞

First appointment

Grateful for this forum

Upper right abdomen pain, discomfort.

First appointment

High Platelet count

Banding

Kidney pain/Kidney stones

Antibiotics

Urso dose

Just diagnosed and scared.

Fibroscan

Diarrhea

Hello again

Hello PBCers

Most recent labs. I stopped RA drugs & My Hepatologist Appt. today.... If it wasn't for you all.... I'd be upset. But I'm good! ❤

Pbc results

Advice

Undiagnosed skin problem

Bronchial Inhalers

Hi av just been diagnosed with angina I am very worried as I dnt know when I would need help r if it’s the angina

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