Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,387 members • 7,992 posts

All posts for August 2018

Antidepressants

Hello just checking in to see what others thought about taking antidepressants while having PBC...

Hello just checking in to see what others thought about taking antidepressants w...

Irisw

•6 years ago

16 Replies

immunotherapy

Hi everyone, Does anyone takes immunotherapy session for pbc, i am not responce udca .. 2 years past i didnt find a solution and ocaliva didnt comfirmed...

Hi everyone, Does anyone takes immunotherapy session for pbc, i am not responce...

bozcan

•6 years ago

1 Reply

Optavia and urso

Has anyone been on the optavia diet? Are there any conflicts with Optavia and urso? Want to lose some weight and hearing great things about optavia. Ty

Has anyone been on the optavia diet? Are there any conflicts with Optavia and u...

jplitt

•6 years ago

4 Replies

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Flying with pbc

Hi there,does anyone know if flying with pbc can cause problems. I have had bad pain in my abdomen since coming off a long haul flight.

Hi there,does anyone know if flying with pbc can cause problems. I have had ba...

Maryslattery

•6 years ago

9 Replies

Hi there,does anyone know if flying with pbc can cause problems. I have had bad pain in my abdomen since the flight.

i there,does anyone know if flying with pbc can cause problems. I have had bad pain in my abdomen since the flight.

i there,does anyone know if flying with pbc can cause problems. I have had bad...

Maryslattery

•6 years ago

2 Replies

Endoscopy

Hi, just joined. Diagonosed Apr 18. Dr says I have had PBC since at least 2008. So 5 months taking URSO I am finding inch getting a lot worse. I`m seeing...

Hi, just joined. Diagonosed Apr 18. Dr says I have had PBC since at least 2008...

millieja

•6 years ago

10 Replies

More Tests

Things continue to be confusing. Had an MRCP, which my doctor wanted to do to rule out PSC (since I also have Crohn's), and it did. So good news. It showed...

Things continue to be confusing. Had an MRCP, which my doctor wanted to do to r...

Chefess

•6 years ago

4 Replies

Is the Ketogenic Diet, w intermittent fasting okay, if I have PBC?

I'm 65, newly diagnosed w PBC a year ago. After 6 years of extreme fatigue, it was great to finally put a name to it. Once I started Ursidol, my experience...

I'm 65, newly diagnosed w PBC a year ago. After 6 years of extreme fatigue, it w...

bluefireeyes

•6 years ago

4 Replies

Confused

I have just been diagnosed with PBC. My AMA was double and my alk phos was elevated with the lab work my family doctor ordered. She then referred me to a GI...

I have just been diagnosed with PBC. My AMA was double and my alk phos was elev...

Blessed123

•6 years ago

3 Replies

Need a ray of hope

Hello all. How many of you have had PBC for 15-20 years and are doing okay? I’m very new to this diagnosis and am trying to not see it as a death sentence....

Hello all. How many of you have had PBC for 15-20 years and are doing okay? I’...

Irisw

•6 years ago

24 Replies

Huge spike in LFTs

I first went on this path to being diagnosed by a sudden spike in my liver function tests about 3 years ago. They gradually went back down to normal and have...

I first went on this path to being diagnosed by a sudden spike in my liver funct...

littysgirl

•6 years ago

7 Replies

Pregnancy and bile acid

I am about 8 weeks pregnant and have bile acids of 260 (normal range 0-10). All of my other LFT levels are almost normal. They have gone down significantly...

I am about 8 weeks pregnant and have bile acids of 260 (normal range 0-10). All...

danaLL

•6 years ago

2 Replies

Skdavis

Hi everyone! I’m 59 yrs old. First time to post....diagnosed in 2011 with PBC/AIH overlay. Last biopsy I still had no scarring. Have taken Urso since 2011....

Hi everyone! I’m 59 yrs old. First time to post....diagnosed in 2011 with PBC/A...

skdavis59

•6 years ago

15 Replies

Two questions. Sore feet and maleria l tablets .advice sort on both

Hi everyone Mine are trivial questions really but I could really do with some feedback. If I suffer I suffer in the past year or so with really sore achy feet...

Hi everyone Mine are trivial questions really but I could really do with some fe...

boneytoys

•6 years ago

6 Replies

Struggling eating anything

I have Hashimotos, gluten intolerance and PBC, also have candida overgrowth, struggle with constipation ( have to take Senna) and my stomach is rumbling and I...

I have Hashimotos, gluten intolerance and PBC, also have candida overgrowth, str...

Joanneconnor

•6 years ago

19 Replies

Hello

Hello I’m posting again because I’m just having a dark day. I’m not trying to be negative but I’m still new to this as I start Urso in a couple days and I’m...

Hello I’m posting again because I’m just having a dark day. I’m not trying to be...

Irisw

•6 years ago

38 Replies

PBC Awareness Day

Could the owners of this site up date the date of the PBC awareness day for 2018.

Could the owners of this site up date the date of the PBC awareness day for 2018...

kiwivivr

•6 years ago

3 Replies

First post here

Hello I’m a newbie here. One of my favorite pics of my sister, Mama and I. My sister who passed away from cirrhosis of the liver from being a type II...

Hello I’m a newbie here. One of my favorite pics of my sister, Mama and I. My ...

Blondie48

•6 years ago

9 Replies

PBC part of a larger autoimmune disease

Hello all, In my journey to diagnosis I saw a rheumatologist who referred me to a gastro, I then followed up with the rheumatologist and expected him to say...

Hello all, In my journey to diagnosis I saw a rheumatologist who referred me to...

Hidden

•6 years ago

17 Replies

Alcohol, feel really drunk after 2 drinks, anyone have this?

Diagnosed 4 weeks ago but I knew something was wrong because I was drunk after 2 drinks, anyone had this, do you know why, waiting for Lfts to come back, also...

Diagnosed 4 weeks ago but I knew something was wrong because I was drunk after 2...

Joanneconnor

•6 years ago

8 Replies

What about CBD oils and tinctures.

Hello all, I know there's probably information about this but I'm not sure how to access it. I've recently had an accident and I'm recovering.... slowly....

Hello all, I know there's probably information about this but I'm not sure how ...

Ktltel

•6 years ago

25 Replies

Alternative pbc treatment if can’t take Urso or Ocaliva

What can I take for pbc if I can’t tolerate Urso or Ocaliva?

Gangee

•6 years ago

46 Replies

Anyone from NC in USA

Would love to someday meet other PBCers face to face...anyone from NC here in the US?

Would love to someday meet other PBCers face to face...anyone from NC here in th...

Irisw

•6 years ago

17 Replies

Hi all

I decided to join the community today, not sure why today, but here I am. I was diagnosed nearly 10 years ago, after having Lymes Disease at the age of 44,...

I decided to join the community today, not sure why today, but here I am. I was...

MyFliss

•6 years ago

7 Replies

How often do people get a scan?

Hey folks. Just wondered how often everyone got either a ultrasound or fibroscan? I was told last year that I should have bloods done every 6 months and an...

Hey folks. Just wondered how often everyone got either a ultrasound or fibroscan...

Angel_b

•6 years ago

17 Replies

OCALIVA /Fibroscan Results

Last year my fibroscan result showed my fibrosis to be early stage. Now it is early stage 3 fibrosis. I m disappointed to say the least. Dr is not worried at...

Last year my fibroscan result showed my fibrosis to be early stage. Now it is ea...

gwillistexas

•6 years ago

59 Replies

Graves and PBC

has anyone with PBC had radioactive iodine for graves after their PBC diagnosis

dollydaydreams

•6 years ago

3 Replies

New and anxious

Do you think most PBC ers will need a transplant at some point?

Irisw

•6 years ago

10 Replies

Seeing dr for possible diagnosis today... stressed

Hello, I am in Canada near Toronto. I have had abnormal liver blood work for the past year. Last two blood tests found I am testing positive for ANA and AMA....

Hello, I am in Canada near Toronto. I have had abnormal liver blood work for th...

Flowerwh

•6 years ago

14 Replies

Scared

39 and tested positive for PBC... shocked and scared Please help

Irisw

•6 years ago

6 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for August 2018

Antidepressants

immunotherapy

Optavia and urso

Flying with pbc

Hi there,does anyone know if flying with pbc can cause problems. I have had bad pain in my abdomen since the flight.

Endoscopy

More Tests

Is the Ketogenic Diet, w intermittent fasting okay, if I have PBC?

Confused

Need a ray of hope

Huge spike in LFTs

Pregnancy and bile acid

Skdavis

Two questions. Sore feet and maleria l tablets .advice sort on both

Struggling eating anything

Hello

PBC Awareness Day

First post here

PBC part of a larger autoimmune disease

Alcohol, feel really drunk after 2 drinks, anyone have this?

What about CBD oils and tinctures.

Alternative pbc treatment if can’t take Urso or Ocaliva

Anyone from NC in USA

Hi all

How often do people get a scan?

OCALIVA /Fibroscan Results

Graves and PBC

New and anxious

Seeing dr for possible diagnosis today... stressed

Scared

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