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PBC Foundation

9,383 members • 7,975 posts

All posts for November 2012

does anybody else suffer wit coldsores all the tym

littleman

•11 years ago

3 Replies

Milk Thistle HELP!

So I've never taken any pills, been afraid of alternative medicines, natural healing products. However I just began reading about milk thistle and liked...

So I've never taken any pills, been afraid of alternative medicines, natural hea...

hopepbc

•11 years ago

9 Replies

Home from hospital

I think its fair to say i under estimated how i would feel following surgery, thought I would be in and out of hospial and back to normal straight away. Ive...

I think its fair to say i under estimated how i would feel following surgery, th...

hannah1973

•11 years ago

8 Replies

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Infuriated with GP

You may have seen my other questions but briefly I had auto immune anemia all my life, had spleen removed in 2009 and now suffer fatigue, weakness, headaches,...

You may have seen my other questions but briefly I had auto immune anemia all my...

KathryH34

•11 years ago

12 Replies

Dentist

Is it safe to have anesthetic injection prior to tooth filling when you have PBC.

Is it safe to have anesthetic injection prior to tooth filling when you have PB...

Hidden

•11 years ago

5 Replies

What is the itching like?

I am waiting to find out if I have PBC, I have some symptoms which are fatigue and muscle pain and weakness, the AHA is positive, am deficient in vit D and...

I am waiting to find out if I have PBC, I have some symptoms which are fatigue a...

KathryH34

•11 years ago

3 Replies

Seeing liver specialist tomorrow

Hi, I was told I have PBC by my gp about 5 weeks ago, I'm seeing a specialist tomorrow and I'm petrified, my lft are normal my bilirubin is 8, is that high? I...

Hi, I was told I have PBC by my gp about 5 weeks ago, I'm seeing a specialist to...

annemariebradley

•11 years ago

12 Replies

Lots of questions to ask

As I am new to this and only being diagnosed a week ago with pbc. I have lots of questions to ask. Some of which I am writing down ready to ask my consultant...

As I am new to this and only being diagnosed a week ago with pbc. I have lots o...

sandgroundergirl

•11 years ago

16 Replies

May have PBC?

Just trying to get my head around this at the moment and reading a lot about it. I suffered auto immune haemolytic anemia all my life and had my spleen...

Just trying to get my head around this at the moment and reading a lot about it....

KathryH34

•11 years ago

9 Replies

Helicobacter Pylori - are there many PBCers diagnosed with this too?

Some studies associated several autoimmune conditions (among which rheumatoid arthritis, Sjogren's, autoimmune thyroiditis) with the presence of H. pylori....

Some studies associated several autoimmune conditions (among which rheumatoid ar...

Cristina_Romania

•11 years ago

6 Replies

I'm a 50 year old male recently diagnosed with stage 3 PBC, my mother has/had it (stage 3 PBC) since 1987 and is still alive today.

My mother was one of the first people on ursodiol at Mayo clinic in AZ in the late 80ies and her blood levels have been normal since that first year on...

My mother was one of the first people on ursodiol at Mayo clinic in AZ in the la...

hopepbc

•11 years ago

11 Replies

Pain in the back

Does anybody suffer with a very achy back ? in between the shoulder blades. Mine is always aching some days more than others. I was only diagnosed this last...

Does anybody suffer with a very achy back ? in between the shoulder blades. Mine...

sandgroundergirl

•11 years ago

7 Replies

Packing Hospital Bag!

Hi. I was diagnosed with PBC in September following a positive AMA result, despite the shock it was kind of a relief after all the worry about what could be...

Hi. I was diagnosed with PBC in September following a positive AMA result, despi...

hannah1973

•11 years ago

5 Replies

Help, won esa appeal, now waiting for increase in payment/back pay,

I know that this is for PBC but trying to find out from people who have won an esa appeal and i do not know where i can ask so i asking on different website,...

I know that this is for PBC but trying to find out from people who have won an e...

cleverthing

•11 years ago

10 Replies

Two days to my first rheumatologist appt and for some reason am getting quite stressed about it. So many wierd symptons where will I start?

Ellanvannin

•11 years ago

8 Replies

Can your GP do the AMA test or do I have to wait for my hospital appointment ?

I have recently had some liver function tests back from the doctors and have been referred to the hospital to look into whether I have PBC. Having done a bit...

I have recently had some liver function tests back from the doctors and have bee...

Katiecat

•11 years ago

7 Replies

Cannot get any reliese from the muscle and bone pain at the moment it's my 10th day on urso help

karenlesley

•11 years ago

9 Replies

AMA: What values are considered negative / positive in your country or part of the world?

In Romania, at one of the main research & testing lab, they say "anything below 20 is negative." Then there's a "grey zone, aka uncertain" (20-25 approx, not...

In Romania, at one of the main research & testing lab, they say "anything below ...

Cristina_Romania

•11 years ago

7 Replies

Consultant appointment

10 weeks till my first appointment with consultant, seems a long time. this will make it 20 weeks before I get URSO. I am asymptomatic, hopefully will stay...

10 weeks till my first appointment with consultant, seems a long time. this will...

Hidden

•11 years ago

5 Replies

Gall bladder polyps

Anyone had gallbladder polyps with their PBC,if so was your gall bladder removed?

Anyone had gallbladder polyps with their PBC,if so was your gall bladder removed...

Hidden

•11 years ago

5 Replies

Pain in right side.

I was diagnosed with PBC September 2011, but my symptoms have increased over the last year. I have previously been diagnosed with ostearthritis, right hip at...

I was diagnosed with PBC September 2011, but my symptoms have increased over th...

merrill16

•11 years ago

11 Replies

hi everyone has anyone had high levels of potassium and album in their blood results

i recently did and my gp has suspicions for my kidneys also my lfts have risen quite a lot and my blood pressure is very high im have an emergency appointment...

i recently did and my gp has suspicions for my kidneys also my lfts have risen q...

debg

•11 years ago

5 Replies

Wish there was a live chat , so we could connect with other users!!

Would be great being able to connect with others and chat, without having to wait for answers to your question, although this is a great site !!! And thank you...

Would be great being able to connect with others and chat, without having to wai...

sjr1

•11 years ago

2 Replies

Hi everyone, I'm hoping someone out there can help. My back has been aching and I'm wondering is it ok for transplantees to take ibuprofen?

rachel-p

•11 years ago

5 Replies

Diagnosed today:(

Hi:) My name is Louise and I found out today I have PBC and although it needs confirming from the little research I have done it seems pretty certain. I have...

Hi:) My name is Louise and I found out today I have PBC and although it needs c...

Moomin900

•11 years ago

16 Replies

Scared but trying to stay positive

I am 22 yrs old and just diagnosed with PBC. I don't know my stage yet. In the process of trying to get Medicaid in my state because I don't have any insurance...

I am 22 yrs old and just diagnosed with PBC. I don't know my stage yet. In the p...

nightowl21

•11 years ago

9 Replies

Are people with PBC not surpose to eat chocolate at all?

thatgirl

•11 years ago

12 Replies

Hi I wonder if anyone has any advice on reflux I seem to have this after meals

chrissey7

•11 years ago

11 Replies

Combination of sand like substance as well as grainy salt like substance underneath top layer of skin. Anyone else experience with PBC?

Hi all! Previously I was diagnosed with seborrheic dermatitis. However after several dermatologist visits & trying the expensive prescribed shampoos and scalp...

Hi all! Previously I was diagnosed with seborrheic dermatitis. However after sev...

kathjean

•11 years ago

38 Replies

Alk Phos Levels

Can anyone tell me how high alk phos levels can go.

Hidden

•11 years ago

8 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for November 2012

does anybody else suffer wit coldsores all the tym

Milk Thistle HELP!

Home from hospital

Infuriated with GP

Dentist

What is the itching like?

Seeing liver specialist tomorrow

Lots of questions to ask

May have PBC?

Helicobacter Pylori - are there many PBCers diagnosed with this too?

I'm a 50 year old male recently diagnosed with stage 3 PBC, my mother has/had it (stage 3 PBC) since 1987 and is still alive today.

Pain in the back

Packing Hospital Bag!

Help, won esa appeal, now waiting for increase in payment/back pay,

Two days to my first rheumatologist appt and for some reason am getting quite stressed about it. So many wierd symptons where will I start?

Can your GP do the AMA test or do I have to wait for my hospital appointment ?

Cannot get any reliese from the muscle and bone pain at the moment it's my 10th day on urso help

AMA: What values are considered negative / positive in your country or part of the world?

Consultant appointment

Gall bladder polyps

Pain in right side.

hi everyone has anyone had high levels of potassium and album in their blood results

Wish there was a live chat , so we could connect with other users!!

Hi everyone, I'm hoping someone out there can help. My back has been aching and I'm wondering is it ok for transplantees to take ibuprofen?

Diagnosed today:(

Scared but trying to stay positive

Are people with PBC not surpose to eat chocolate at all?

Hi I wonder if anyone has any advice on reflux I seem to have this after meals

Combination of sand like substance as well as grainy salt like substance underneath top layer of skin. Anyone else experience with PBC?

Alk Phos Levels

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