Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,484 members•8,374 posts

All posts for January 2021

Upper Back pain

Hi there. Does any have pain in the mid 5o upper back after eating. I have noticed this occasionally and some times it's quite bad. Thank you

Hi there. Does any have pain in the mid 5o upper back after eating. I have notic...

Nellies47

•4 years ago

3 Replies

Biopsy tomorrow morning

Doing the liver Biopsy tomorrow morning. Any one who has had one, please chirp in. Do I have to be sedated? Or is it a doable test with out drugs. Exception...

Doing the liver Biopsy tomorrow morning. Any one who has had one, please chirp i...

Laurie62

•4 years ago

12 Replies

Information on Sitosterolemia

I was diagnosis with OBC 6 years ago ... had liver biopsy l year ago finding a where hypertoxity due to statins ... no statin therapy since then chlorestrol...

I was diagnosis with OBC 6 years ago ... had liver biopsy l year ago finding a w...

Glens

•4 years ago

1 Reply

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Anyone do chats on phone?

Hi all. Just wondering if anyone does phone call chats??? Love traci x

Lagathavikings

•4 years ago

3 Replies

Blood work

Hello All =] I am trying to figure out my newest lab results. Anyone ever had a high Ferritin level, and high ABs eos percentage (6.6) with a PBC diagnosis?...

Hello All =] I am trying to figure out my newest lab results. Anyone ever had a...

Laurie62

•4 years ago

1 Reply

Irish liver specialist

Hi. Just wondering if anyone on this site is Irish and can recommend a good liver specialist please here in Ireland. Saw liver specialist in St. Vincents...

Hi. Just wondering if anyone on this site is Irish and can recommend a good live...

Nellies47

•4 years ago

15 Replies

Anxiety

Hi all xx my anxiety is high today. Any tips on calming techniques?? Hope you are all doing well with lockdown.. Don't know what I'd do without my lovely...

Hi all xx my anxiety is high today. Any tips on calming techniques?? Hope you a...

Lagathavikings

•4 years ago

18 Replies

Yoghurt or not?

Hi all... Hope you are all OK. Wondering what the advice is on eating yoghurt?? Good or bad. Thankyou in advance x 😊

Hi all... Hope you are all OK. Wondering what the advice is on eating yoghurt??...

Lagathavikings

•4 years ago

19 Replies

Essex area?

Hi everyone xx just a quick question.. Are there any pbc/aih sufferers in the Essex area?? Don't want to know exact area just wondering if anyone near me in...

Hi everyone xx just a quick question.. Are there any pbc/aih sufferers in the Es...

Lagathavikings

•4 years ago

12 Replies

PBC Diagnosis, or COVID related

Hello, I'm Laurie, I'm new here. Not officially diagnosed yet. No Symptoms, High ALP for the last year, up and down a little, but mostly high, I lost over 150...

Hello, I'm Laurie, I'm new here. Not officially diagnosed yet. No Symptoms, High...

Laurie62

•4 years ago

13 Replies

OwAlot of pain at night with the liver and spleen.What to do

Low platelets 52 enlarge spleen and hurts and the liver hurts. Dr. I think wrote me off. Says need a new liver and nothing he can do. No pain management Dr....

Low platelets 52 enlarge spleen and hurts and the liver hurts. Dr. I think wrote...

Alittletan

•4 years ago

2 Replies

Pain Right Side

Hello Everyone, New here or haven't really interacted much. I was told by my doctor that I have a fatty liver and only followed up with "get on a diet and lose...

Hello Everyone, New here or haven't really interacted much. I was told by my doc...

LArams99

•4 years ago

1 Reply

Issues with this page

I am being logged out every 2-3 days and having to sign back in. Anyone else having this p? Very annoying

I am being logged out every 2-3 days and having to sign back in. Anyone else hav...

gwillistexas

•4 years ago

12 Replies

Tired

Sorry at work I was ment to say lol

Purdy2017

•4 years ago

Be the first to reply

Tired

Well at worst soon as it hits around 1,30 14,00 struggling to keep my eyes opened it's horrible does anyone else struggle with this time of day ??

Well at worst soon as it hits around 1,30 14,00 struggling to keep my eyes opene...

Purdy2017

•4 years ago

25 Replies

Covid vaccine

Good morning my lovelies 🌺 I know that this has been asked before but if it has been answered and I have missed it I apologise for the repetiveness! I have...

Good morning my lovelies 🌺 I know that this has been asked before but if it has...

Sallam

•4 years ago

13 Replies

Personal independence payment

Hi I was wondering if anyone on here gets help and claims personal independence payment I dont no if having pbc it qualifies any information would be gladly...

Hi I was wondering if anyone on here gets help and claims personal independence...

Purdy2017

•4 years ago

2 Replies

Covid vaccine

Please all you PBCers try and log into the foundation on either Facebook or website and catch the online chats and questions with the consultants Thursdays 2pm...

Please all you PBCers try and log into the foundation on either Facebook or webs...

Biddyb

•4 years ago

1 Reply

PBCers

Hiii Beautiful People... I have just discovered the benefits of lychees..... it’s has the vitamins needed I’ve always loved this fruit I’m starting to eat...

Hiii Beautiful People... I have just discovered the benefits of lychees..... it...

RammieLea

•4 years ago

Be the first to reply

New to group

Hi to all... I've just been diagnosed with pbc and autoimmune hepatitis... Its been a terrible shock and I'd love to hear from anyone in the same situation as...

Hi to all... I've just been diagnosed with pbc and autoimmune hepatitis... Its ...

Lagathavikings

•4 years ago

32 Replies

Fibromyalgia

Anyone dealing with fibromyalgia as well as PBC? How do you manage the fibro? Seems like most meds are contraindicated for those with liver disease.

Anyone dealing with fibromyalgia as well as PBC? How do you manage the fibro? Se...

Susn

•4 years ago

5 Replies

PBC and cognitive decline, need solutions?

So I haven't been on here for a while but those who remember me I was on here to try and understand what my mother has as she had been diagnosed for two years...

So I haven't been on here for a while but those who remember me I was on here to...

Rimeru

•4 years ago

2 Replies

Solutions....

Non stop vomiting and constant heartburn... any ideas to get rid it??? Unable to keep medication n food down.

Non stop vomiting and constant heartburn... any ideas to get rid it??? Unable to...

RammieLea

•4 years ago

6 Replies

Does anyone use anything to reduce itching? I’ve become really anxious since my diagnosis leaving home feels daunting..

It’s really encouraging to share stories. I gained weight and loss of hair when I was diagnosed with PBC. I use natural products not really seeing much...

It’s really encouraging to share stories. I gained weight and loss of hair when ...

RammieLea

•4 years ago

8 Replies

PBC itch relief

What can help with PBC itching? I've already tried all the over the counter meds and the 2 prescriptions the Dr gave me. Nothing is working and it is greatly...

What can help with PBC itching? I've already tried all the over the counter meds...

Larrysgirl

•4 years ago

33 Replies

2021

I wanted to begin this post wishing you a happy new year, but the early signs for 2021 are not much better than the year we left behind. So, instead I shall...

I wanted to begin this post wishing you a happy new year, but the early signs fo...

PBCRobert

Partner•4 years ago

8 Replies

Coronovirus vaccine

Can we have the covid vaccine if we have PBC and other auto immune problems like under active thyroid sjgeorns(prpb spelt wrongly) plus classed as highly...

Can we have the covid vaccine if we have PBC and other auto immune problems like...

Goldsworthyhelen

•4 years ago

8 Replies

Questions to my Doctor

Happy New Year to all. Have a call with my doctor tomorrow to learn my Fibroscan, latest bloodwork and MRI results. What questions should I be asking? Does...

Happy New Year to all. Have a call with my doctor tomorrow to learn my Fibrosc...

Terri-Lynn

•4 years ago

2 Replies

Pbc symptoms or something else??

Hi everyone I was diagnosed with pbc about ten years ago and I was taken off urso about twelve months ago because it gave me terrible stomach problems, much...

Hi everyone I was diagnosed with pbc about ten years ago and I was taken off ur...

Han73

•4 years ago

13 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for January 2021

Upper Back pain

Biopsy tomorrow morning

Information on Sitosterolemia

Anyone do chats on phone?

Blood work

Irish liver specialist

Anxiety

Yoghurt or not?

Essex area?

PBC Diagnosis, or COVID related

OwAlot of pain at night with the liver and spleen.What to do

Pain Right Side

Issues with this page

Tired

Tired

Covid vaccine

Personal independence payment

Covid vaccine

PBCers

New to group

Fibromyalgia

PBC and cognitive decline, need solutions?

Solutions....

Does anyone use anything to reduce itching? I’ve become really anxious since my diagnosis leaving home feels daunting..

PBC itch relief

2021

Coronovirus vaccine

Questions to my Doctor

Pbc symptoms or something else??

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