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PBC Foundation

9,387 members • 7,992 posts

All posts for May 2018

PBC and Cholinergic Urticaria

I have posted a couple of days ago about PBC and sun exposure. The rash that flares by the heat and the sun burn as well as the itching. Some of you have said...

I have posted a couple of days ago about PBC and sun exposure. The rash that fla...

ZEMR

•6 years ago

21 Replies

anyone suffered from drug induced PBC

Hi I havent as yet got a diagnosis, however I am seeing a liver specialist tomorrow (privately as was over a 20 week wait on the NHS). I had breast cancer 3...

Hi I havent as yet got a diagnosis, however I am seeing a liver specialist tomor...

PamF60

•6 years ago

4 Replies

Positive AMA went down to normal

Hello everyone, So my doctor diagnosed me with pbc but never put me on urso because my bilirubin was not elevated. She decided to get my labs checked monthly....

Hello everyone, So my doctor diagnosed me with pbc but never put me on urso beca...

selinihun

•6 years ago

10 Replies

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Used Ursofalk for too long but...

Today I’m very sure as since I have stopped taking the Ursofalk last January this itch has gone. May be a little not as much nor as horrible any way I have...

Today I’m very sure as since I have stopped taking the Ursofalk last January thi...

Evaibrahim60

•6 years ago

11 Replies

Positive AMA M2 test - diet changes?

Hi I am not sure who to ask - I had a positive AMA M2 blood test last year, I have no symptoms and my liver function test was fine so the doctor is not...

Hi I am not sure who to ask - I had a positive AMA M2 blood test last year, I ha...

Jobylou

•6 years ago

7 Replies

Questran Lite

Hi all. I have been on Questran Lite for about a month now, and it has finally reduced my itching. Just wondering whether others can share their experiences...

Hi all. I have been on Questran Lite for about a month now, and it has finally ...

Schnauzergirl

•6 years ago

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Conflicting test results

Hi everyone I am new here. I haven’t been diagnosed with PBC but some of my tests point that way. I have a high Alk p and a positive ama and Ana. I also...

Hi everyone I am new here. I haven’t been diagnosed with PBC but some of my tes...

Rottiemommy

•6 years ago

3 Replies

Alkphos

Hi! Thanks for reading this! I’m on Urso and last November my alkphos was normal - like really normal- then in April I had a med check (cholesterol check) with...

Hi! Thanks for reading this! I’m on Urso and last November my alkphos was normal...

Sam1121

•6 years ago

9 Replies

Sun Exposure :(

Hi Everyone, Do you experience extreme itching after sun exposure? It’s one of the symptoms I started having few years before I was recently diagnosed. I...

Hi Everyone, Do you experience extreme itching after sun exposure? It’s one of t...

ZEMR

•6 years ago

9 Replies

Update: Partial responder to URSO - back to splitting the dose

Hi All - I posted a couple of months ago about being a partial responders to URSO. Diagnosed 3 years ago when LFTs were sky high. After first four months took...

Hi All - I posted a couple of months ago about being a partial responders to URS...

LisaC22

•6 years ago

9 Replies

Pbc/Aih

Hi All Probably sounds silly bit i phoned the hospital today and asked where my letter of diagnosis were and she said she would send it out 1st class today....

Hi All Probably sounds silly bit i phoned the hospital today and asked where my ...

janine541

•6 years ago

5 Replies

For kittle

Hello kittle , Sending you some flowers x

246810

•6 years ago

2 Replies

Digestion issue

I’m noticing that I can not digest well vegetables like spinach, kale, broccoli and green beans.. my bowl is always coarse and green even I can see vegetables...

I’m noticing that I can not digest well vegetables like spinach, kale, broccoli ...

Sachin1234

•6 years ago

7 Replies

I need a reminder...

Hi PBC family, I Hope everyone is doing as well as can be expected. And for those of you experiencing the worst of this stupid disease, many prayers go out...

Hi PBC family, I Hope everyone is doing as well as can be expected. And for tho...

Ktltel

•6 years ago

23 Replies

PBCers in Rockland County NY?

Any one out there who might be interested in getting together to share information and give and get support about PBC?

Any one out there who might be interested in getting together to share informati...

FranSP

•6 years ago

17 Replies

Pbc/Aih

Hi all going for a bone density test Thursday. Has any one had one and do you get the results when your there?

Hi all going for a bone density test Thursday. Has any one had one and do you ge...

janine541

•6 years ago

10 Replies

TRAVEL INSURANCE

Hi all, was wondering if anyone has recently bought travel insurance that they thought was reasonable?

Hi all, was wondering if anyone has recently bought travel insurance that they t...

Hidden

•6 years ago

6 Replies

PBC Coffee Meetup 6th June Melbourne

Hi, I would like to let the Australians in this group know there will be a PBCers Coffee meetup on Wednesday the 6th June 12.30pm at Lindt Chocolate Cafe...

Hi, I would like to let the Australians in this group know there will be a P...

DoreenD

•6 years ago

16 Replies

Taking a Poll non-Alcoholic PBC

It would be enlightening to have a survey of those of us with Pbc or potential Pbc who are non-drinkers and see what lifestyle, -diet, family history ,...

It would be enlightening to have a survey of those of us with Pbc or potenti...

Sdone

•6 years ago

14 Replies

Not diagnosed yet but most likely PBC

Hello everyone! My name is Beatris and recently I found out that I might have PBC. I am still in denial, the test came positive but I am still hoping that it's...

Hello everyone! My name is Beatris and recently I found out that I might have PB...

Beatris03

•6 years ago

53 Replies

Gym or Support Buddies needed - London Essex

Hi All, So this year has been hard been told that the urso doesn't work for me and then they put me on steroids and they have done no good either so they have...

Hi All, So this year has been hard been told that the urso doesn't work for me ...

xXxAndzxXx

•6 years ago

3 Replies

Co-enzyme Q10

Hi, I was wondering if any of you have tried Co-enzyme Q10? I recently had my yearly review with my consultant who suggested that this supplement can help...

Hi, I was wondering if any of you have tried Co-enzyme Q10? I recently had my y...

joannej01

•6 years ago

19 Replies

Cold Sores

Hi , Has anyone had a cold sore in the eye. Very painful. Lasts about a week. Take painkillers and zovirax . Have been occurring for past 6 years . Wondering...

Hi , Has anyone had a cold sore in the eye. Very painful. Lasts about a week. Ta...

chasper

•6 years ago

5 Replies

Sad today ama goes up b12 gluten?

Hi Current blood work today showed 147 am a m2 & borderline high Cholesterol . My last reading had gone down to 90. On watch no ur so all other labs...

Hi Current blood work today showed 147 am a m2 & borderline high Cholesterol ...

Sdone

•6 years ago

2 Replies

RBC in urine

Does anyone have RBC (red blood cell) in your urine? I have trace of blood in urine for a long time. Went to a urologist 8 years ago and he said some people...

Does anyone have RBC (red blood cell) in your urine? I have trace of blood in u...

JaneIng

•6 years ago

9 Replies

Do you think it is safe to take the new shingles shot in 2 parts when you have PBC.?

Shingle shot PBC

Ellyne

•6 years ago

7 Replies

Texas PBC conference and support groups

Hello everybody, Sorry I took so long to get back to you who have been so kind and encouraging. The conference in Texas was so helpful to me. 2 plus very full...

Hello everybody, Sorry I took so long to get back to you who have been so kind a...

FranSP

•6 years ago

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A bad hangover feeling but I dont drink

Third time I am trying to post this..not sure why the message keeps disappearing!..anyway I sometimes get a pretty bad feeling in the morning..shaky feel in...

Third time I am trying to post this..not sure why the message keeps disappearing...

bobbycat

•6 years ago

6 Replies

Anyone try Dr Burk Berksons protocol for liver disease & have success?

Hello all! Hope everyone is well! So I've been on ursodiol since mid April & had my first blood test since starting. My ggt which was in the 800's went down to...

Hello all! Hope everyone is well! So I've been on ursodiol since mid April & had...

Caseymayr1102

•6 years ago

69 Replies

My findings about fasting while having PBC after seeing my doctor

Hi Everyone, Thank you so much for all those who replied, read, or liked my previous post, Fasting and PBC. I have gone to my GI and I also asked pretty...

Hi Everyone, Thank you so much for all those who replied, read, or liked my prev...

ZEMR

•6 years ago

2 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for May 2018

PBC and Cholinergic Urticaria

anyone suffered from drug induced PBC

Positive AMA went down to normal

Used Ursofalk for too long but...

Positive AMA M2 test - diet changes?

Questran Lite

Conflicting test results

Alkphos

Sun Exposure :(

Update: Partial responder to URSO - back to splitting the dose

Pbc/Aih

For kittle

Digestion issue

I need a reminder...

PBCers in Rockland County NY?

Pbc/Aih

TRAVEL INSURANCE

PBC Coffee Meetup 6th June Melbourne

Taking a Poll non-Alcoholic PBC

Not diagnosed yet but most likely PBC

Gym or Support Buddies needed - London Essex

Co-enzyme Q10

Cold Sores

Sad today ama goes up b12 gluten?

RBC in urine

Do you think it is safe to take the new shingles shot in 2 parts when you have PBC.?

Texas PBC conference and support groups

A bad hangover feeling but I dont drink

Anyone try Dr Burk Berksons protocol for liver disease & have success?

My findings about fasting while having PBC after seeing my doctor

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