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PBC Foundation

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All posts for April 2017

Bezafibrate

I have been on Urso for about 6 months but my levels have been up and down. I started on bezafibrate about 4 weeks ago and my ALP has gone from 686 to 377 !...

I have been on Urso for about 6 months but my levels have been up and down. I ...

Melwoods

•7 years ago

8 Replies

Pbc/Aih

Hope everybody is okay. Thought i would post a posotive today. Having a lovely earned bank holiday weekend free. Relaxing. Hope all are having a rest too

Hope everybody is okay. Thought i would post a posotive today. Having a lovely e...

janine541

•7 years ago

4 Replies

Male with Pbc question.

Hello In the process of investigating neuropathy and pain in my arms and legs I t was discovered last year that I have elevated M2 antibodies. A liver biopsy...

Hello In the process of investigating neuropathy and pain in my arms and legs I ...

ryantsan

•7 years ago

5 Replies

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Pbc progressing ?

Hi everyone hope your all well. I was diagnosed with pbc two and half years ago after a period of severe fatigue . After initial shock I started on urso...

Hi everyone hope your all well. I was diagnosed with pbc two and half years ago ...

tessiecat

•7 years ago

13 Replies

Ocaliva cost??

Where are you from? I'm currently taking URSO (started in early January) and while it's making my numbers better...300s down from 900s it's still not where...

Where are you from? I'm currently taking URSO (started in early January) and wh...

marty102

•7 years ago

15 Replies

Back to Indy

Back to Indianapolis Monday morning for a GED & colonoscopy. I'm ready for all of this to calm down. Trying to see the light at the end of the tunnel. Angry...

Back to Indianapolis Monday morning for a GED & colonoscopy. I'm ready for all o...

Shulsey

•7 years ago

1 Reply

Recently diagnosed w/PBC but....

I am just getting started on this site and have found a lot of the threads to be beneficial. I may have stated by I have had high ALT/AST since 2012. They go...

I am just getting started on this site and have found a lot of the threads to be...

cfsummerford72

•7 years ago

8 Replies

Add too hep visit

I forgot you add that I am starting Ocaliva as soon as my insurance okays it. Dr says that it can take a little time for that😕. Fingers crossed that my labs...

I forgot you add that I am starting Ocaliva as soon as my insurance okays it. D...

Shulsey

•7 years ago

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Heptologist visit

Hope everyone is doing as well as they can. Extremely exhausted today due to driving three hours to see my heptologist then three hours back. Thankful that I...

Hope everyone is doing as well as they can. Extremely exhausted today due to dri...

Shulsey

•7 years ago

5 Replies

Need to Know

I have been getting tested for the last year and a half to determine if I have PBC. My AMA has gone from 40 up to 75.2. A biopsy has not shown a definitive...

I have been getting tested for the last year and a half to determine if I have P...

labootz16

•7 years ago

5 Replies

Double up on Prevalite?

I have still been itching terribly since I started Prevalite (Questran) in January. Saw my specialist last Thursday. He wasn't ready to try some the other...

I have still been itching terribly since I started Prevalite (Questran) in Janua...

marty102

•7 years ago

11 Replies

Why did I get PBC

Just want to share this newsfeed from PBCers org. It's exciting to know that there are people fighting for us. ******** By M. Eric Gershwin, MD University of...

Just want to share this newsfeed from PBCers org. It's exciting to know that the...

JaneIng

•7 years ago

8 Replies

I am new here

Hi: I was just diagnosed with PBC last Friday, (April 21st) . I am 61 years old and too scared. First, scared of what will be my future health condition and...

Hi: I was just diagnosed with PBC last Friday, (April 21st) . I am 61 years old ...

ritarobainapbc

•7 years ago

9 Replies

Sport

Happy Monday everyone!! Quick question... Do different sports have positive and negative impacts on PBC? Where I'm coming from with this is that i train BJJ...

Happy Monday everyone!! Quick question... Do different sports have positive and ...

Emer1986

•7 years ago

3 Replies

Aih/Pbc

Just want to ask more advise. Dont want to be seen to be living at the doctors and a moaner. Has any one got little lumps on the joint of knees and on a aching...

Just want to ask more advise. Dont want to be seen to be living at the doctors a...

janine541

•7 years ago

6 Replies

Thank you

Thank you all for your feedback!!! It's AWESOME knowing I'm not alone in this fight. I live in a house full of people on 5 1/2 acres in the middle of corn...

Thank you all for your feedback!!! It's AWESOME knowing I'm not alone in this fi...

Shulsey

•7 years ago

1 Reply

Allergies/autoimmune connection?

My pharmacist (I'm a pharm tech) and I were talking about this today. Pollen count in our area this week has been EXTREME and I've had the worst week yet with...

My pharmacist (I'm a pharm tech) and I were talking about this today. Pollen co...

tonia66

•7 years ago

5 Replies

? Correlation between cirrhosis and hypoglycaemia.

Hello everyone. I am wondering if anyone with widespread cirrhosis such as I have, experiences symptoms of hypoglycaemia? I was diagnosed at 38 with PBC (...

Hello everyone. I am wondering if anyone with widespread cirrhosis such as I hav...

Karaliz

•7 years ago

13 Replies

signs of a heart attack

does burning pain under right arm and pain from right side of neck, down right shoulder to middle of the chest a heart attack?

does burning pain under right arm and pain from right side of neck, down right s...

crimsontide123

•7 years ago

2 Replies

Don't know what to do.

The two thing I'm really fed up with is tiredness and memory loss. I'm 58 and to be quite honest I'm frightened to death of what is to come. I've been...

The two thing I'm really fed up with is tiredness and memory loss. I'm 58 and t...

Leighton56

•7 years ago

8 Replies

Pbc/Aih

Well been for a walk today and feel absoulty worn out. Not sure any body understands how tired and poorly i feel. At work for a few hours now. Have pain in...

Well been for a walk today and feel absoulty worn out. Not sure any body underst...

janine541

•7 years ago

10 Replies

Paleo diet

Is there anyone who follows Paleo diet?

Mg40

•7 years ago

18 Replies

Osteoporosis

Diagnosed with pbc 5 years ago. At that time I was given a dexa scan and believed that results were normal. Now having suffered a spinal fracture at the age of...

Diagnosed with pbc 5 years ago. At that time I was given a dexa scan and believe...

mojo62

•7 years ago

1 Reply

Bloods

Hi . Was diagnosed with pbc 3 years ago, bloods at the time were very high but after taking urso they have got better over the past couple years, but when I...

Hi . Was diagnosed with pbc 3 years ago, bloods at the time were very high but a...

Ginnymax

•7 years ago

7 Replies

Frustrated

The only "benefit" I have found in the PBC literature is weight loss. True to form, I've gained 10 pounds in the six months since my diagnosis! Sigh. Anyone...

The only "benefit" I have found in the PBC literature is weight loss. True to fo...

ILik3Pizza

•7 years ago

14 Replies

PBC or not!?

Ok folks. What do you think? Just had an ercp with sphincterotomy. Dr removed stones and sludge. Gastro dr now things that maybe I don't have PBC because my...

Ok folks. What do you think? Just had an ercp with sphincterotomy. Dr removed st...

Aussielouise

•7 years ago

20 Replies

Got my Rheumatologist results...

Hello friends, Wish it was good news. But, it is what it is... I've been diagnosed with SERONEGATIVE RA. Anyone else out there have this? The treatment is...

Hello friends, Wish it was good news. But, it is what it is... I've been diag...

Ktltel

•7 years ago

22 Replies

Big toe is numb

Has any one with pbc had trouble with their big toe going numb.

Kentay

•7 years ago

7 Replies

Results results and results

Hi all it would be really great if you guys could post your ALT and ALP results for us to compare

Hi all it would be really great if you guys could post your ALT and ALP results ...

Biddyb

•7 years ago

27 Replies

Pain on both sides

I have had pain in both my sides for over two years now, was diagnosed 2 weeks ago and on URSO for two weeks...it does not go away and gets worse when I'm...

I have had pain in both my sides for over two years now, was diagnosed 2 weeks a...

tonia66

•7 years ago

3 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for April 2017

Bezafibrate

Pbc/Aih

Male with Pbc question.

Pbc progressing ?

Ocaliva cost??

Back to Indy

Recently diagnosed w/PBC but....

Add too hep visit

Heptologist visit

Need to Know

Double up on Prevalite?

Why did I get PBC

I am new here

Sport

Aih/Pbc

Thank you

Allergies/autoimmune connection?

? Correlation between cirrhosis and hypoglycaemia.

signs of a heart attack

Don't know what to do.

Pbc/Aih

Paleo diet

Osteoporosis

Bloods

Frustrated

PBC or not!?

Got my Rheumatologist results...

Big toe is numb

Results results and results

Pain on both sides

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