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PBC Foundation

9,391 members • 8,002 posts

All posts for August 2017

Is Azathioprine indicated for pbc

Hi Again. just went to the GI, and yes it's confirmed I have PBC. So far I drink 1000 mg of Urso but I was proscribed today Azathioprine 50 mg. But reading...

Hi Again. just went to the GI, and yes it's confirmed I have PBC. So far I drink...

YADILURO

•7 years ago

11 Replies

Diagnosed today with PBC

I was diagnosed with pbc today, they have caught it early by chance. As went to doc for something else. I don't have any symptoms yet. I have been given...

I was diagnosed with pbc today, they have caught it early by chance. As went to ...

SharonM69

•7 years ago

9 Replies

1st specialist appt

My Dr says I have ama in my blood test. I am meeting a rheumatologist next week and am wondering what questions should I ask? My Doctor isnt concerned because...

My Dr says I have ama in my blood test. I am meeting a rheumatologist next week ...

Nenagh21

•7 years ago

7 Replies

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Labs

Hi my labs are as follows: AMA 77.8, Anion Gap 13.0, AST U/L 63, ALT U/L 62, Alkaline Phosphate U/L 106, C reactive Protein 17.8 High, Gamma GT (GGT) 45 So...

Hi my labs are as follows: AMA 77.8, Anion Gap 13.0, AST U/L 63, ALT U/L 62, Alk...

lorilee58

•7 years ago

12 Replies

Shortness of breath

For those who are wondering if shortness of breath has connection to PBC, here's the answer. I seem to get more winded than most at age 43, so I was curious...

For those who are wondering if shortness of breath has connection to PBC, here's...

Shulsey

•7 years ago

4 Replies

PBC and your period

Ok, for the last four years I've been blessed to NOT have a period...today...BAM! What gives? Anyone been thru something similar? I had read that PBC would...

Ok, for the last four years I've been blessed to NOT have a period...today...BAM...

tonia17

•7 years ago

3 Replies

First appointment tomorrow

Hello all, I'm brand new here and hoping for some reassurance. I am a 40 year old mother of 5 (17, 15, 13,7, & 9 weeks). I have not yet seen my GI...

Hello all, I'm brand new here and hoping for some reassurance. I am a 40 year o...

IAmTheGlue

•7 years ago

30 Replies

Blood results

Autoimmune profile ACI. Really positive mito abs Tissue transglutamase. O.4 u/ml M2 mitochondrial ab (EIA) lev Positive to d/w pt Positive for anti-PDH abs...

Autoimmune profile ACI. Really positive mito abs Tissue transglutamase. O.4 u/...

Joel31

•7 years ago

14 Replies

Recent labs

Sorry I had forgotten to post my latest labs, so, here they are. Wondering if they've gone the opposite direction this time due to the alternation of Ocaliva...

Sorry I had forgotten to post my latest labs, so, here they are. Wondering if th...

Shulsey

•7 years ago

8 Replies

The Itch - PBC or nor PBC - Just because you have PBC doesn't mean you can't itch for other reasons.

We are just recovering from several months of itch hell, those of you who experience the full blown itch will know the experience, Sue has been scratching the...

We are just recovering from several months of itch hell, those of you who experi...

JohnMalaney

•7 years ago

7 Replies

My little Try at fundraising

could anyone please sponsor me please, i have taken on a challenge to knit and complete 50 sindy and barbie sized christmas cardigans by christmas, not sure if...

could anyone please sponsor me please, i have taken on a challenge to knit and c...

dollydaydreams

•7 years ago

4 Replies

Who has alt over 100

My husband alt continue to going up It is now 163 What does that mean?

Mysa1981

•7 years ago

10 Replies

Crest syndrome and PBC

Hi my doctor just informed me that I have crest syndrome along with my PBC! I have always had problems with swallowing and have had Raynaud's for years. Now...

Hi my doctor just informed me that I have crest syndrome along with my PBC! I ha...

7WendyL

•7 years ago

34 Replies

My awareness and fund raising efforts for PBC Day

https://www.justgiving.com/fundraising/pbcdayskyathlon If you are able to support my efforts, I (and we) would be truly grateful. Your humble servant,...

https://www.justgiving.com/fundraising/pbcdayskyathlon If you are able to suppo...

PBCRobert

Partner•7 years ago

8 Replies

Coconut oil

I've noticed that a few on here are using coconut oil with the thoughts that it is good on the liver. I too was using this but remembered reading somewhere...

I've noticed that a few on here are using coconut oil with the thoughts that it ...

Shulsey

•7 years ago

19 Replies

Eye problems

Hi all, Just wondered if anyone has had eye pain, I quite often get pain behind my left eye, the best way to describe it, is that I feel like my eyeball has...

Hi all, Just wondered if anyone has had eye pain, I quite often get pain behind...

sylviaj

•7 years ago

3 Replies

Joel 31

Am now totally confused. Just had result of Abdo scan....normal. Bloods said PBC. Does this mean liver not damaged yet ???

Am now totally confused. Just had result of Abdo scan....normal. Bloods said PBC...

Joel31

•7 years ago

15 Replies

Fiona

I have only been told following blood tests that I have PBC. I am 68 yr old retired nurse. Have had liver scan (awaiting results) and am waiting to see...

I have only been told following blood tests that I have PBC. I am 68 yr old reti...

Joel31

•7 years ago

6 Replies

Pbc and Botox

Hello my dear friends.😄 I am very glad to join this group. I'm having pbc and in stage two.It was detected in 2013. I left the treatment for a while, but it...

Hello my dear friends.😄 I am very glad to join this group. I'm having pbc and i...

Smfariman6060

•7 years ago

8 Replies

Increasing ALP.

Is there a concern when the ALP is gradually increasing?? Thanks in advance. Wilhelmina Hair.

Is there a concern when the ALP is gradually increasing?? Thanks in advance. ...

Wilmahair

•7 years ago

19 Replies

Osteoporosis

I have PBC and Osteporosis etc. I have been having a hard time walking and doing stairs. I've had lower back pain for some time and Dr has said it was...

I have PBC and Osteporosis etc. I have been having a hard time walking and doing...

Ohio82

•7 years ago

9 Replies

Constipation or free fluid with stage 4 pbc

Hi long time since I posted on here but a few days ago I had terrible watery diarrhoea then my stomach filled up I look full term pregnant I have cramps and...

Hi long time since I posted on here but a few days ago I had terrible watery dia...

sophie666

•7 years ago

15 Replies

Just recently diagnosed with PBC

Hi! I have been recently diagnosed with PBC. Definately not what I was expecting since Dr thought it was Lupus or Rheumatoid Arthritis. I am 45 and started...

Hi! I have been recently diagnosed with PBC. Definately not what I was expecting...

Krichards1971

•7 years ago

26 Replies

Other Illnesses and what you eat

I am fortunate to have been diagnosed with PBC very very early due to an anomaly in a blood test for a different condition, an episode of Sensory Myalitis. I...

I am fortunate to have been diagnosed with PBC very very early due to an anomaly...

Alisonsewsalot

•7 years ago

9 Replies

Tired

Do not know if this helps some one I only feel tired now and again but 2 heap spoons of coffee makes me feel better .

Do not know if this helps some one I only feel tired now and again but 2 heap sp...

susanburgess

•7 years ago

6 Replies

So confused, would love your opinions

This afternoon I had my second appt. with my hepatic specialist. I am so confused and hoping some of you can chime in. Current labs are back and my two...

This afternoon I had my second appt. with my hepatic specialist. I am so confuse...

angelofeventide

•7 years ago

57 Replies

Really ticked off

So, I haven't been on here in a while and you may or may not remember, I could not tolerate urso at all. I lost my hair, I was nauseous all the time, I itched...

So, I haven't been on here in a while and you may or may not remember, I could n...

donna01

•7 years ago

17 Replies

Filbroscan

I had my filbroscan today and my was 6.1 not sure if this is good or not. I had a scan to and she said that it was pretty much the same as my last one in...

I had my filbroscan today and my was 6.1 not sure if this is good or not. I had ...

Cherry69

•7 years ago

8 Replies

EGD results

Im feel extremely fatigued today. My EGD was a hard one to swallow yesterday🙄. My GI said that I've had significant changes to my varicies since my last EGD,...

Im feel extremely fatigued today. My EGD was a hard one to swallow yesterday🙄. ...

Shulsey

•7 years ago

17 Replies

Pbc/Aih

The itch was an allergcic reaction to vitamin d meds

janine541

•7 years ago

2 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for August 2017

Is Azathioprine indicated for pbc

Diagnosed today with PBC

1st specialist appt

Labs

Shortness of breath

PBC and your period

First appointment tomorrow

Blood results

Recent labs

The Itch - PBC or nor PBC - Just because you have PBC doesn't mean you can't itch for other reasons.

My little Try at fundraising

Who has alt over 100

Crest syndrome and PBC

My awareness and fund raising efforts for PBC Day

Coconut oil

Eye problems

Joel 31

Fiona

Pbc and Botox

Increasing ALP.

Osteoporosis

Constipation or free fluid with stage 4 pbc

Just recently diagnosed with PBC

Other Illnesses and what you eat

Tired

So confused, would love your opinions

Really ticked off

Filbroscan

EGD results

Pbc/Aih

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