Posts - PBC Foundation | HealthUnlocked

Administrator•9 hours ago

I want this group to always be somewhere that anyone can 'vent'. We all understand.

love this!

I want this group to always be somewhere that anyone can 'vent'. We all understa...

Administrator•9 hours ago

What is it about a certain color that makes it your favorite? Mine is yellow. I find it soothing - almost hopeful.

Friday Fun Question

What is it about a certain color that makes it your favorite? Mine is yellow. I...

Administrator•10 hours ago

Hard to believe that today is already February 20. As I get older (soon to be 75!) the years really seem to fly by. I look around and another month is...

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Thursday's Thoughts

Hard to believe that today is already February 20. As I get older (soon to be 7...

Administrator•1 day ago

This certainly gives us an idea of how many deal with rare diseases every single day.

some perspective...

This certainly gives us an idea of how many deal with rare diseases every single...

Administrator•1 day ago

senescence This refers to one of the ways that the cells that line the bile ducts ( biliary epithelial cells) respond to injury....

Wednesday's Word

senescence This refers to one of the ways that the cells that line the bile duc...

Don't forget that Dr George Mells will be answering your #pbc questions from 2pm (UK time) tomorrow. If you have any questions, please submit them by using...

Administrator•2 days ago

1 Reply

Great opportunity... submit your questions

Don't forget that Dr George Mells will be answering your #pbc questions from 2pm...

Administrator•2 days ago

Cholesterol levels are frequently found to be elevated in patients who have PBC. This can be very unsettling as they feel it's 'one more thing'...

Tuesday's Tip

Cholesterol levels are frequently found to be elevated in patients who have PBC....

Administrator•3 days ago

#RareDiseaseDay is on 28th February next week, and this week we are sharing information that highlights this year's Rare Disease Day slogan 'More than you can...

love the slogan... so true

#RareDiseaseDay is on 28th February next week, and this week we are sharing info...

Administrator•3 days ago

Dr George Mells will be answering your #pbc questions from 2pm (UK time) on Thursday this week. If you have any questions, please submit them by using the...

take advantage of this...

Dr George Mells will be answering your #pbc questions from 2pm (UK time) on Thur...

Administrator•4 days ago

Our next Choose Me Tuesday self-care session is tomorrow at 6pm UK time. The theme this week is: movement is medicine. Login is required to keep this a safe...

self care session...

Our next Choose Me Tuesday self-care session is tomorrow at 6pm UK time. The th...

Administrator•4 days ago

I know in the past week there have some very poignant posts - acknowledging the fact that we are no longer the same person before PBC, that we can feel...

It's Monday Me!

I know in the past week there have some very poignant posts - acknowledging the ...

Administrator•4 days ago

There will be an online Community Café taking place this evening from 7-7.45pm Log-in is required to keep this a safe space. If you are already registered...

a reminder....

There will be an online Community Café taking place this evening from 7-7.45pm ...

Administrator•4 days ago

I’m not sure why and I guess it doesn’t matter but the last few days I was wishing I would fall asleep and not wake up. I’m sure I’m not the only one that...

Worst days of my life

I’m not sure why and I guess it doesn’t matter but the last few days I was wishi...

Gabe61

•5 days ago

11 Replies

improved Fibroscan

hi guys has anybody had their Fibroscan scores improved after taking urso? eleni

hi guys has anybody had their Fibroscan scores improved after taking urso? ...

Elkol

•7 days ago

5 Replies

Friday Fun Question

Looking back, what would you tell your '18 year old self' today?

When I got up this morning - and not sleeping well lately (I know some of you can relate) the fatigue was awful. Just showering was an effort.... walking...

Administrator•7 days ago

5 Replies

Thursday Thoughts

When I got up this morning - and not sleeping well lately (I know some of you ca...

Steatotic This word refers to Fatty Liver Disease. There is literally a build up of fat in the liver. Common causes are obesity,...

Administrator•8 days ago

9 Replies

Wednesday's Word

Steatotic This word refers to Fatty Liver Disease. There is literally a build u...

Administrator•9 days ago

The questions of exercise comes up frequently when someone has PBC. It is frequently suggested - and proven -that exercise does help with the...

Tuesday's Tips

The questions of exercise comes up frequently when someone has PBC. It is freque...

Administrator•10 days ago

I came across this phrase the other day and it really hit home with me... 'welcomed aloneness' Any thoughts? Even those 2...

It's Monday Me!

I came across this phrase the other day and it really hit home with me... 'welc...

Administrator•11 days ago

Prof David Jones will be answering your questions in this week's Q&A, which starts at 2pm UK time on Thursday. If you have any questions, please submit them...

take advantage of this...

Prof David Jones will be answering your questions in this week's Q&A, which star...

Happy Super Bowl Sunday to those of you that care....😀 Having neighbors over for homemade lasagna and watch the game. Of course, we will be rooting for the...

Administrator•11 days ago

3 Replies

Football fans...

Happy Super Bowl Sunday to those of you that care....😀 Having neighbors over f...

Administrator•12 days ago

Who can relate to exchanging little 'themed' Valentines with your classmates? We used to love decorating that special shoe box with the...

Friday's Fun Question

Who can relate to exchanging little 'themed' Valentines with your classmates? W...

On Saturday, I helped celebrate a friend's 75th birthday. We have known each other since we were 18... it was a surprise party. We hadn't seen each...

Administrator•14 days ago

6 Replies

Thursday's Thoughts

On Saturday, I helped celebrate a friend's 75th birthday. We have known each ot...

Administrator•15 days ago

Don't forget about our special self-care workshop tomorrow with guest host Ange Cameron: Navigating Challenges with Energy and Focus. This will take place at...

just a reminder...

Don't forget about our special self-care workshop tomorrow with guest host Ange ...

Administrator•16 days ago

Good morning all! (Morning in the US. 24 degrees and freezing rain later today!), If you look at my posts you will see that I have had a "blip" on my PBC...

MRI/MRCP Tomorrow

Good morning all! (Morning in the US. 24 degrees and freezing rain later today...

NotorDJP

•16 days ago

6 Replies

Wednesday's Word

jaundice This is the result of elevated bilirubin levels. Initially, is it visible only in the whites of the eyes...

jaundice This is the result of elevated bilirubin levels. Initially, is it vi...

Administrator•16 days ago

Going on a vacation can be worrisome for someone with PBC. If you are responding well to Urso, early stages of the disease, or are non...

Tuesday's Tips

Going on a vacation can be worrisome for someone with PBC. If you are respondin...

Administrator•17 days ago

morning, can anybody help I’ve just had results for bloods last week and my alt has a little rise is this something to worry about? I can’t speak with a doctor...

alt rise

morning, can anybody help I’ve just had results for bloods last week and my alt ...

Lena2011

•18 days ago

11 Replies

It's Monday Me!

I set my alarm for 6am this morning. I'm up and dressed ready to leave around 7:10 or so. I signed up for a new 4 week - twice a week - session of water...

I set my alarm for 6am this morning. I'm up and dressed ready to leave around 7:...