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PBC Foundation

9,389 members • 7,995 posts

All posts for September 2017

PBC and liver stones

Is there anyone else who has PBC and also has a liver that makes stones. Had my gallbladder out 47 years ago. Liver now makes stones which become lodged high...

Is there anyone else who has PBC and also has a liver that makes stones. Had my ...

Jeanb47

•7 years ago

5 Replies

PBC new diagnosis

Hi. I’ve recently had the diagnosis confirmed but have a problems for many years. I also have the unfortunate problem that my liver makes stones in the...

Hi. I’ve recently had the diagnosis confirmed but have a problems for many years...

Jeanb47

•7 years ago

18 Replies

Orange Urine

Something different has been happening in this last week...I drink a lot of water, my urine is always clear... In this past week, when I wake up around...

Something different has been happening in this last week...I drink a lot of wate...

tonia17

•7 years ago

7 Replies

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Disgusted

I called my dr first thing Monday morning about Oclavia dosing. Expressed my concerns & she said someone would call me. No call. Thursday afternoon, nurse...

I called my dr first thing Monday morning about Oclavia dosing. Expressed my con...

gwillistexas

•7 years ago

40 Replies

Flu and Pneumonia Vaccine

Today I got the Flu Vaccine.But I have to pay $90 for a Pneumonia Vaccine if I want one.Do you think the Pheumonia Vaccine is necessary?I called my Insurance...

Today I got the Flu Vaccine.But I have to pay $90 for a Pneumonia Vaccine if I w...

PBCTracy

•7 years ago

7 Replies

Burning in legs & feet

Does anyone have problems with burning in their legs & feet ? It is not all the time but it comes and goes. It is not a tingling and is not numb. Thoughts or...

Does anyone have problems with burning in their legs & feet ? It is not all the...

Ohio82

•7 years ago

5 Replies

Bathroom issues and Urso

I am having a problem with diarrhea (sorry) lately. I am on a quest to find the source of my issues because it has reached a level that it is truly affecting...

I am having a problem with diarrhea (sorry) lately. I am on a quest to find the ...

littysgirl

•7 years ago

18 Replies

Results

So my liver ultrasound and the other ultrasound they done was normal. But liver enzymes and AMA are elevated. Does anyone else have normal ultrasound but...

So my liver ultrasound and the other ultrasound they done was normal. But liver ...

Krichards1971

•7 years ago

8 Replies

Wrong result

I am in double shock now , my specialist said all my autoimmune test s were negative when he emailed . His secretary sent me the results and can you believe...

I am in double shock now , my specialist said all my autoimmune test s were nega...

Mirimaur

•7 years ago

18 Replies

Advice regarding Consultant

Hello there, apologies for what might be a long post but I'm desperately in need of advice. I'm 47 yrs Old, in the U.K. and was diagnosed with PBC after biopsy...

Hello there, apologies for what might be a long post but I'm desperately in need...

Caroline-12

•7 years ago

38 Replies

Trials for new drug in uk

Hi haven't posted in awhile as I have not had much contact with my Dr at all about the condition all I was told was he was sending me to Birmingham to see...

Hi haven't posted in awhile as I have not had much contact with my Dr at all abo...

Lilbear89

•7 years ago

6 Replies

Is it safe to eat Grapefruit while taking certain medication?

Hi all. I absolutely love grapefruit but just looking some advice if grapefruit is safe to eat with certain medication as I've heard that it can work against...

Hi all. I absolutely love grapefruit but just looking some advice if grapefruit ...

Auds5

•7 years ago

10 Replies

Feeling good on Prednisone?

I started what my dr called "a very low dose" of 20mg of Prednisone last Thursday for that AIH part of my diagnosis. I feel Amazing...like fantastic. I know...

I started what my dr called "a very low dose" of 20mg of Prednisone last Thurs...

IAmTheGlue

•7 years ago

7 Replies

Pain in side again and now Petechiae

Hello all! I am stage 2 PBC (as of 2014, I don't know my current stage) I've been fine for a while, then had three surgeries in 2015-2016 and have had some...

Hello all! I am stage 2 PBC (as of 2014, I don't know my current stage) I've b...

NotorDJP

•7 years ago

3 Replies

Dizziness

I have been having dizzy spells over the last few days, is this a symptom of the illness or the drugs?

I have been having dizzy spells over the last few days, is this a symptom of the...

SharonM69

•7 years ago

3 Replies

Ocalvia

Hi everyone Is there anyone on here who has been given Ocalvia here in the UK. Just got back from my annual consultation and my doctor is considering...

Hi everyone Is there anyone on here who has been given Ocalvia here in the UK....

IOW-gal

•7 years ago

9 Replies

Intercept Patient Update for Ocaliva

Hopefully this will allay fears, however, we now have the info below to query any different dosing amounts of regularity of dose....

Hopefully this will allay fears, however, we now have the info below to query an...

Jo_Br

•7 years ago

2 Replies

Labyrinthitis

Hi members just developed the above has anyone had this and is it a one of or do I have to suffer this along with everything else?

Hi members just developed the above has anyone had this and is it a one of or do...

Maureen25

•7 years ago

7 Replies

Nail polishes

I have found a company called Lily lo lo who have won awards on their natural products without harmful ingredients . The nail polishes do not contain...

I have found a company called Lily lo lo who have won awards on their natural pr...

Mirimaur

•7 years ago

2 Replies

Fibroscan

I just had a fibroscan and the result was 9.9. Does anybody know how bad that is? The test only took a minute and I felt only one thump. Should the test have...

I just had a fibroscan and the result was 9.9. Does anybody know how bad that is...

dahlia54

•7 years ago

2 Replies

Memory where's it gone !!

Having been diagnosed PBC for about 2years and for the past 6months my brain doesn't seem to be working ! I go to say something and the wrong words come out...

Having been diagnosed PBC for about 2years and for the past 6months my brain do...

Anneeileen1

•7 years ago

10 Replies

Nail polish and hair dye

Does anyone know if nail polish etc or hair dye is ok to use with PBC sorry if it's a daft question

Does anyone know if nail polish etc or hair dye is ok to use with PBC sorry if i...

Mirimaur

•7 years ago

57 Replies

Devotional part 2

Love this❣️

Shulsey

•7 years ago

2 Replies

Doctors

This is so far fetched, but if I could afford it, I would find that Dr at Univ of Maryland who treated the nurse from Dallas that contracted Ebola from that...

This is so far fetched, but if I could afford it, I would find that Dr at Univ o...

gwillistexas

•7 years ago

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Urso

So I remember some few posted a while back that when first on Urso, you itched. But did anyone actually have hives too? The reason I ask is some, or one in...

So I remember some few posted a while back that when first on Urso, you itched. ...

gwillistexas

•7 years ago

2 Replies

Oclavia

I'm just curious as to how many of you take Oclavia. I know Shulsey takes it along with Urso.

I'm just curious as to how many of you take Oclavia. I know Shulsey takes it alo...

gwillistexas

•7 years ago

15 Replies

FDA Drug Safety Communication: FDA warns about serious liver injury with Ocaliva (obeticholic acid) for rare chronic liver disease

It sounds alarmist, it seems mainly to be incorrect dosage given and as a patient being considered for it or taking it I would want to know....

It sounds alarmist, it seems mainly to be incorrect dosage given and as a patien...

Jo_Br

•7 years ago

31 Replies

Just waiting blood test results very anxioud

Still waiting diagnosis . Saw professor Pinzani at the at the Royal free. He is so very kind and caring . He even stayed with me when my bloods were taken . He...

Still waiting diagnosis . Saw professor Pinzani at the at the Royal free. He is ...

Mirimaur

•7 years ago

14 Replies

UTI's

Anyone had UTI since diagnosed with PBC, and if so, how did your dr treat it? Which antibiotic?

Anyone had UTI since diagnosed with PBC, and if so, how did your dr treat it? W...

gwillistexas

•7 years ago

22 Replies

EGD & varicies

Just wanted to update everyone. I went in for my follow-up EGD this morning due to having two areas banded six weeks ago. Had to make sure they are healing...

Just wanted to update everyone. I went in for my follow-up EGD this morning due ...

Shulsey

•7 years ago

21 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for September 2017

PBC and liver stones

PBC new diagnosis

Orange Urine

Disgusted

Flu and Pneumonia Vaccine

Burning in legs & feet

Bathroom issues and Urso

Results

Wrong result

Advice regarding Consultant

Trials for new drug in uk

Is it safe to eat Grapefruit while taking certain medication?

Feeling good on Prednisone?

Pain in side again and now Petechiae

Dizziness

Ocalvia

Intercept Patient Update for Ocaliva

Labyrinthitis

Nail polishes

Fibroscan

Memory where's it gone !!

Nail polish and hair dye

Devotional part 2

Doctors

Urso

Oclavia

FDA Drug Safety Communication: FDA warns about serious liver injury with Ocaliva (obeticholic acid) for rare chronic liver disease

Just waiting blood test results very anxioud

UTI's

EGD & varicies

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