Posts - PBC Foundation | HealthUnlocked

PBC Foundation

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All posts for March 2018

Hair loss with urso

Has anyone found out if we can use topical rogaine for hair loss with urso?

Pamela4475

•7 years ago

23 Replies

Any partial responders to URSO out there?

Hi All. I was diagnosed almost 3 years ago. My LFTs were “grossly abnormal”. They really were through the roof. Started URSO straight away and while they have...

Hi All. I was diagnosed almost 3 years ago. My LFTs were “grossly abnormal”. The...

LisaC22

•7 years ago

18 Replies

Notifications

Is anyone else noticing problems getting notifications & msg’s? Noticed the last week or so, I get notification of a reply or msg & sometimes it’s there &...

Is anyone else noticing problems getting notifications & msg’s? Noticed the las...

gwillistexas

•7 years ago

1 Reply

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Choline

Is anyone having success with taking choline with PBC?

Maur22

•7 years ago

2 Replies

MRI Imaging of the liver study

Perspectum Diagnostics are looking for participants in an MRI study to map the liver. This study aims to find out whether multi-parametric MRI imaging of the...

Perspectum Diagnostics are looking for participants in an MRI study to map the l...

butterflyEi

•7 years ago

14 Replies

Hair

Does anyone eles have real dry hair. Mine has never been so blah. Tangles so easy. My sister has non hopkins lymphoma. She has lost her hair in chemotherapy...

Does anyone eles have real dry hair. Mine has never been so blah. Tangles so eas...

My-life

•7 years ago

11 Replies

Brain aneurism??

Has any one had a brain aneurism, while being treated for PBC?

Bobbiesitzman

•7 years ago

11 Replies

Update on my IU visit

Happy to say that I made it to Indianapolis safely & to my appointment as well. Dr Masuoka said my numbers are great, pretty stable compared to my past...

Happy to say that I made it to Indianapolis safely & to my appointment as well. ...

Shulsey

•7 years ago

25 Replies

Fibroscan

Had a fibroscan today. Technician said I did not show a fatty liver or any cirrhosis. Getting a 2nd opinion on my liver biopsy. All bloodwork is within range...

Had a fibroscan today. Technician said I did not show a fatty liver or any cirrh...

Ellyne

•7 years ago

29 Replies

PBC Vit D now getting bone pain

I visited my GP in Nov last year complaining of extreme muscle pain in my arms & legs, itching and tiredness no gastric problems at all. After doing bloods...

I visited my GP in Nov last year complaining of extreme muscle pain in my arms ...

marieharris67

•7 years ago

10 Replies

Recent labs.... with a surprise! (not a good one) ☹️

Hello PBC family, Not a whole lot to report with my labs. Alk-phos still fluctuates between 140's and 170's. Interestingly, the less I weigh, the better the...

Hello PBC family, Not a whole lot to report with my labs. Alk-phos still fluctu...

Ktltel

•7 years ago

23 Replies

Weight gain

Is it just me who has weight gain with the PBC or is this common? I've gained half a stone in a month and have history of Anorexia so this is a massive blow to...

Is it just me who has weight gain with the PBC or is this common? I've gained ha...

PBCnewbie2018

•7 years ago

2 Replies

Newly diagnosed

I'm a 31 year old mum of four from London and was recently diagnosed with PBC last month. Since then things have moved quote fast and my liver specialist want...

I'm a 31 year old mum of four from London and was recently diagnosed with PBC la...

PBCnewbie2018

•7 years ago

6 Replies

Colonoscopy and urso

Hi everyone, i'm having a colonoscopy soon and i received a letter telling me i have to have a clear liquid diet for 2 whole days prior to the proceedure. I...

Hi everyone, i'm having a colonoscopy soon and i received a letter telling me i ...

pottery1

•7 years ago

11 Replies

Pbc and black cahosh

Does anyone with PBC take black cahosh for night sweats have been recommended by a friend but because of the liver damage I'am not sure

Does anyone with PBC take black cahosh for night sweats have been recommended by...

janetfolley

•7 years ago

3 Replies

Back to IU

Going on my three month road trip today. Indianapolis, IN has be slammed with a ton of snow. To the point that my friends, whom I stay with when I go, was...

Going on my three month road trip today. Indianapolis, IN has be slammed with a ...

Shulsey

•7 years ago

13 Replies

For people who did not respond to Urso, has Ocaliva had a more positive effect?

My partner has been taking Urso for several years and it has not appeared to be helping at all. We went to see the liver consultant recently following another...

My partner has been taking Urso for several years and it has not appeared to be ...

djws

•7 years ago

37 Replies

Anyone tried natural remedies or products for PBC and/or CREST symptoms even possible remission?

PBC CREST

rlfulton

•7 years ago

6 Replies

Looking for a website that has all medications that aren't damaging

When I went to my Specialist for the first time last November he told me about this website and for some reason I didn't right it down.I remember he imputed...

When I went to my Specialist for the first time last November he told me about t...

PBCTracy

•7 years ago

6 Replies

Went to a hepatologist for a 2nd opinion and AMA came back 90 units vs a titer of 1:640 . What is the conversion for equivalency? Thank you.

AMA (M2) AB result

Ellyne

•7 years ago

Be the first to reply

My partner has PBC, just looking for some help, advice and support

My partner has been diagnosed with PBC, first diagnosed around 4 years ago and has been living with it since then. She has been taking Urso for around 3 years...

My partner has been diagnosed with PBC, first diagnosed around 4 years ago and h...

djws

•7 years ago

18 Replies

Granuloma Annulare

Anyone else with PBC have this skin condition?

Sissymcc

•7 years ago

3 Replies

I was diagnosed 3 yrs ago with PBC. I would like to know how many people here have had their gallbladder removed and or appendix?

I have been reading what people post on here but have never posted. Does anyone know approximately how long between stages when on urso or is it different for...

I have been reading what people post on here but have never posted. Does anyone ...

tealmust

•7 years ago

19 Replies

Alcohol?

I've read that PBC is not caused by alcohol. However, I know it is taxing on the liver. Just wondering....has everyone given up alcohol completely after...

I've read that PBC is not caused by alcohol. However, I know it is taxing on th...

jplitt

•7 years ago

29 Replies

itchy help. PBC diagnose questions- where do we go now

hello all, hoping to get some help as I seem to be running out of treatment options and coming to a dead end with suggestions from my doctors. I was diagnosed...

hello all, hoping to get some help as I seem to be running out of treatment opti...

ead0724

•7 years ago

11 Replies

La Croix

I read people posting not to drink “fizzy drinks” if you have PBC. Does that include LaCroix?

I read people posting not to drink “fizzy drinks” if you have PBC. Does that inc...

Sissymcc

•7 years ago

3 Replies

Hi. My name is Dena. I have PBC.

I took this photo this morning after breakfast of my skin on my arms and hands. I also have these bruised and torn skin areas on my face, neck, and chest. I've...

I took this photo this morning after breakfast of my skin on my arms and hands. ...

denabentley

•7 years ago

13 Replies

Cholesterol conundrum...

Hi. Just had my cholesterol checked. The previous 3 tests showed elevated levels of 6.8,6.3,6.6. Pre PBC I was always around 4.9 +/- .1 or .2. Latest test...

Hi. Just had my cholesterol checked. The previous 3 tests showed elevated levels...

AdeleMalcolm

•7 years ago

14 Replies

B-12 Safe for liver?

I am on watch for PBC and feel like my B-12 is low. Are B12 supplements safe on liver?

I am on watch for PBC and feel like my B-12 is low. Are B12 supplements safe on ...

Sdone

•7 years ago

5 Replies

What to eat for on watch PBC

Diet recipes that are liver friendly?

Sdone

•7 years ago

3 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for March 2018

Hair loss with urso

Any partial responders to URSO out there?

Notifications

Choline

MRI Imaging of the liver study

Hair

Brain aneurism??

Update on my IU visit

Fibroscan

PBC Vit D now getting bone pain

Recent labs.... with a surprise! (not a good one) ☹️

Weight gain

Newly diagnosed

Colonoscopy and urso

Pbc and black cahosh

Back to IU

For people who did not respond to Urso, has Ocaliva had a more positive effect?

Anyone tried natural remedies or products for PBC and/or CREST symptoms even possible remission?

Looking for a website that has all medications that aren't damaging

Went to a hepatologist for a 2nd opinion and AMA came back 90 units vs a titer of 1:640 . What is the conversion for equivalency? Thank you.

My partner has PBC, just looking for some help, advice and support

Granuloma Annulare

I was diagnosed 3 yrs ago with PBC. I would like to know how many people here have had their gallbladder removed and or appendix?

Alcohol?

itchy help. PBC diagnose questions- where do we go now

La Croix

Hi. My name is Dena. I have PBC.

Cholesterol conundrum...

B-12 Safe for liver?

What to eat for on watch PBC

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