Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,484 members•8,374 posts

All posts for June 2013

Can anybody help me please?

I have pbc diagnosed nearly a year ago now. My doctor told me to try speaking to other people with this condition. The main problem i have is my sore dry...

I have pbc diagnosed nearly a year ago now. My doctor told me to try speaking to...

sophierose

•11 years ago

10 Replies

THYROID ISSUES & PBC

Interesting article - http://qjmed.oxfordjournals.org/content/95/9/559.full

Silvers

•11 years ago

Be the first to reply

Why does it seem my system is breaking down

AIH/PBC overlap, Hashimotos disease, T3 toxicosis, odd looking ultrasound pics.....what next? How long before we say enough is enough ?

AIH/PBC overlap, Hashimotos disease, T3 toxicosis, odd looking ultrasound pics.....

Alley27

•11 years ago

1 Reply

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Hi is anyone taking Q10? Is it okay with our liver problems?

Shirleygreen

•11 years ago

4 Replies

Ultrasound

I had an ultrasound of my liver on Thursday. Normally when I have had them done before, they have just done the front of my abdomen. I am not normally a...

I had an ultrasound of my liver on Thursday. Normally when I have had them done ...

Alley27

•11 years ago

11 Replies

Medical travel insurance for 2 weeks in France, Belgium and Holland.

First European trip in new motor home. Quote went from £22 to £70 when I declared PBC. Anybody found a cheaper alternative?

First European trip in new motor home. Quote went from £22 to £70 when I declar...

berg944

•11 years ago

8 Replies

Sjogren's syndrome.

Just been told I have this. What do others use to help with very dry eyes, do you get prescription from the GP for this.

Just been told I have this. What do others use to help with very dry eyes, do yo...

Hidden

•11 years ago

9 Replies

I have pbc and 1 kidney (left side) experiencing pain right side can't get any answers from my consultant!!!!!!!

Angel2612

•11 years ago

5 Replies

What a long three months !

Well since my last visit to the consultant in March where he told me off my bloods I had PBC, But was also haing biopsy to confirm and stage. i have had my...

Well since my last visit to the consultant in March where he told me off my bloo...

jewelsspeak

•11 years ago

2 Replies

Gallbladder

Hi all been ages since I have been on (sorry). Hope your all keeping well. Had a few things to deal with myself. I have had a couple off stays in hospital...

Hi all been ages since I have been on (sorry). Hope your all keeping well. Had ...

donnathompson

•11 years ago

8 Replies

PBC with negative AMA, ANA and SMA?

Can it be possible to still have PBC with negative AMA ANA and SMA? I have been tested for all of these still with elevated lfts and they are negative.....

Can it be possible to still have PBC with negative AMA ANA and SMA? I have be...

Blossompossum

•11 years ago

12 Replies

one for the ladies!

can anyone tell me if they have a tum with this pbc.ive lost weight but seemed to have added inches round my waist and upper abdomen.now buy non wired bras and...

can anyone tell me if they have a tum with this pbc.ive lost weight but seemed t...

cazz22

•11 years ago

9 Replies

As Questran is off limits for the time being, I spoke to my hepatologist who suggest I can substitute Questran Light, colestipol or

general cholestymamine. I can't guarantee that the spellings are correct! I know what Questran Light is like, has anybody used either of the other two? If...

general cholestymamine. I can't guarantee that the spellings are correct! I kn...

Pat_H

•11 years ago

2 Replies

esa help can anyone please tell me what form is ESA55 as I am going court this week thanks

tattybear

•11 years ago

3 Replies

How do I know if rash is due to PBC?

I was diagnosed w/PBC 5 months ago, 2013. In 2009 I developed a very itchy rash on each side of my collar bone. A dermatologist prescribed hydrocortisone cream...

I was diagnosed w/PBC 5 months ago, 2013. In 2009 I developed a very itchy rash ...

WendyMarie

•11 years ago

3 Replies

sorry I meant to ask if anyone has used UVB light to help with the itch

sydney

•11 years ago

3 Replies

Has anyone used usb light for the itch? has anyone been given ondemet tablets for the itch?

sydney

•11 years ago

1 Reply

I have constant dryness of the mouth, and constant tingling and burning of my lips. This is horrendous and is driving me to despair? HELP

The constant dryness in my mouth and tingling and burning sensation which is worse on my lips is horrendous. It is making me feel like I do not want to...

The constant dryness in my mouth and tingling and burning sensation which is wor...

susanburgess

•11 years ago

19 Replies

THANK YOU FOR YOUR COMMENTS

Hi All, I have just returned from a week in Greece. The sunshine really did make me feel good! I did not need to use my eye drops after the 2nd day. Now just...

Hi All, I have just returned from a week in Greece. The sunshine really did mak...

astondb9

•11 years ago

3 Replies

is there any time limit for an esa appeal

in december 2011 i had an atos medical ,i scored six points for mobility,i appealed in jan 2012,but i am still waiting ,in april esa was stopped and i am...

in december 2011 i had an atos medical ,i scored six points for mobility,i appea...

andypandyw

•11 years ago

2 Replies

is it genetic

colorfor

•11 years ago

5 Replies

i have pbc and transplant is it genetic

colorfor

•11 years ago

2 Replies

a bit nervous

just been precribed urso and also alendronic acid just wondering any comments of side effects while using them any advice would be so grateful before i start...

just been precribed urso and also alendronic acid just wondering any comments of...

sadie21

•11 years ago

12 Replies

What am I dealing with here? Pbc ?

I am 27 and just had t 3rd baby. I was having some diarrhea in February and the dr tested my lft as I have 1 large gallstone and she thought this was the...

I am 27 and just had t 3rd baby. I was having some diarrhea in February an...

Blossompossum

•11 years ago

12 Replies

i really need to take some pain relief have done too much and back pain is really bad what does anyone else take for pain thank you

chrissey7

•11 years ago

10 Replies

help @ advice please

just been 2 docs been told i have platar faccitis the pain in my heel is unbearable cant walk on it does any 1 else have it any advice or help would be...

just been 2 docs been told i have platar faccitis the pain in my heel is unbeara...

sadie21

•11 years ago

10 Replies

Interesting article on PBC and fatigue in BMJ (British Medical Journal)

Following up on the kind and supportive comments from so many of you, I found the Liver North website and ordered (as recommended by several of you) the PBC...

Following up on the kind and supportive comments from so many of you, I found th...

SheepJane

•11 years ago

8 Replies

FEDUP.COM

Afternoon All Well after having the run around from the medical profession I have finally come to the end of my tether and told my GP yesterday and then...

Afternoon All Well after having the run around from the medical professio...

Silvers

•11 years ago

10 Replies

Does everyone have to have a liver biopsy even if their liver function tests are o.k.?

Ellanvannin

•11 years ago

18 Replies

I AM AWAITING A DATE FOR MY APPEAL FOR ,ESA TO BE HEARD AT TRIBUNAL THIS WILL BE THE SECOND TIME BEFORE A TRIBUNAL FEEL SO STRESSED,

I AM SUFFERING ANXIETY AND DEPRESSION,ASWELL AS CHRONIC BACK PAIN, CONSTANT HEADACHES INSOMNIA,I DONT KNOW HOW MUCH MORE I CAN TAKE,IM ABOUT TO GO FOR A MRI...

I AM SUFFERING ANXIETY AND DEPRESSION,ASWELL AS CHRONIC BACK PAIN, CONSTANT HEAD...

iris29

•11 years ago

5 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for June 2013

Can anybody help me please?

THYROID ISSUES & PBC

Why does it seem my system is breaking down

Hi is anyone taking Q10? Is it okay with our liver problems?

Ultrasound

Medical travel insurance for 2 weeks in France, Belgium and Holland.

Sjogren's syndrome.

I have pbc and 1 kidney (left side) experiencing pain right side can't get any answers from my consultant!!!!!!!

What a long three months !

Gallbladder

PBC with negative AMA, ANA and SMA?

one for the ladies!

As Questran is off limits for the time being, I spoke to my hepatologist who suggest I can substitute Questran Light, colestipol or

esa help can anyone please tell me what form is ESA55 as I am going court this week thanks

How do I know if rash is due to PBC?

sorry I meant to ask if anyone has used UVB light to help with the itch

Has anyone used usb light for the itch? has anyone been given ondemet tablets for the itch?

I have constant dryness of the mouth, and constant tingling and burning of my lips. This is horrendous and is driving me to despair? HELP

THANK YOU FOR YOUR COMMENTS

is there any time limit for an esa appeal

is it genetic

i have pbc and transplant is it genetic

a bit nervous

What am I dealing with here? Pbc ?

i really need to take some pain relief have done too much and back pain is really bad what does anyone else take for pain thank you

help @ advice please

Interesting article on PBC and fatigue in BMJ (British Medical Journal)

FEDUP.COM

Does everyone have to have a liver biopsy even if their liver function tests are o.k.?

I AM AWAITING A DATE FOR MY APPEAL FOR ,ESA TO BE HEARD AT TRIBUNAL THIS WILL BE THE SECOND TIME BEFORE A TRIBUNAL FEEL SO STRESSED,

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